Palindromic rheumatism Puns

I've had swollen fingers and toes (only one at a time) which last for a day and then completely disappear for months. This has been happening since I was 14 and I'm 20 now. Only about 4 months ago I found out about autoimmune diseases after visiting a ortho for my swollen middle finger. He told me to visit a rheumatologist the next time I get a flare. So now I'm waiting for a flare. But the anxiety is killing me. If someone can answer this question it will put my mind at ease at least for now. Thank you.

so I'm almost 100% sure I have an autoimmune condition called palindromic rheumatism and my doc thinks so too but I'm waiting for a flare to get tested properly.

palindromic rheumatism isn't that bad of disease by itself (you get a swollen and painful finger or toe every 3 to 4 months which lasts for a day at most) but it can progress(approx. 30% of the cases progress) to rheumatoid arthritis.

I'm so scared of it progressing that I can't think about anything else but that. every time I do something I love all I can think about is how I won't be able to continue doing them in the future. also, the fact that I'm only 19 makes it even scarier.

I know medicine has come a long way and the outcomes are much better now than it was 10-20 years ago but I still can't accept it.

I cant meet with a therapist atm so any advice will be greatly appreciated.

thank you.

I have not been diagnosed yet but I strongly believe that I have PR. Since I was 14 I get these swollen fingers or toes( only one at a time) and these flares happen like 3 or 4 times a year and go away within 1 or 2 days. Because of the infrequency and short duration I never thought much of it. I'm almost 20 now and everything's still the same no change in attack duration or frequency but im really sacred of it progressing it to RA someday.

So my question is for those of you who had PR how long did it take to progress to Ra, also can we prevent progression(not much info in google)?

I'm still waiting for a flare to get diagnosed and the last one was about 4 months ago. 0 symptoms inbetween flares.

Also seborrheic dermatitis, does it have anything to do with autoimmune diseases?

Just need a place to vent where people understand how i feel and what im going though.

I haven't had a flair up for while and I guess my time is up. But why now!? Why on Thanksgiving!? On the day were i will be standing alot walking from room to room at my father's house seeing/talking to family. Some i haven't seen in years. This sucks. It hurts alot. Not just physically but emotionally. A few things i could do is bring meds with me and keep up on the pain...hmm...icey hot on my knee...i cant bring my weed...damn...i could drink and pretend it doesn't hurt...nah...best option is to suck up and act like thing is wrong and baby myself Friday.

Thanks just needed to vent think out loud. Happy turkey day to all the Americans out there! Eat drink and be merry!

Hey all!

I've been diagnosed with seronegative PR about 8 months ago, am treated with hydroxychloroquine, and the frequency and intensity of my flare ups decreased dramatically (although now, possibly due to the cold, they start showing up again). I know that PR is often a precursor for RA, and I was wondering if anyone here had PR that did not develop into a RA. Is there anything I can do to decrease the odds of the disorder progressing into RA?

Thanks!

I dabble in writing a blog to bring awareness to these rare conditions, and how they affect me because there is not much info available. Hope this helps someone newly diagnosed.

today is still a flare day

It's a weird feeling. One day I think I'm just having strange joint issues that may go away, and then the next day, boom, I have an autoimmune disease. It's kind of hard to wrap my brain around. Does anyone know of any subs or other online forums that are specific to PR? I'm not on Facebook, so no Facebook groups please. Thanks in advance!

I was diagnosed with Palindromic rheumatism and Sjorgen's syndrome (which is kicking my butt). My new rheumatologist is super positive, very encouraging. He did more tests and said that based on my tests he thinks it is early onset RA, which according to him is a great thing, because we can be proactive. He put me on prednisone for 2 months (20 MG first two weeks and then tapering down) and I had immediate effect with the pain..until today. After the confirmation of the diagnosis, he said we have to strive to prevent the flare-ups from happening and wants me on hydroxychloroquine 200 per day for one week and then 400 per day for 3 months.

I have a huge flareup today...and I started the HCQ today as well. I am really concerned about the side effects. I am a chronic migraine sufferer and anything that mentioned a headache scares the heck out of me. Would HCQ make any difference in the flare-up I am currently experiencing?

My most important question is how do you deal with triggers for flare-ups?Stress is mine...l can literally feel the flare-up coming..I just don't know what to do about it. What do you do???

As I said, I also have Sjorgen's syndrome which has proved so uncomfortable, I have to wake up multiple times a night to moisturize my eyes, throat and nose. Any advice?

Thank you all for taking the time to reply.

Wow.

So my subpar rheumatologist got fired and I was shuffled around to get in with a new doctor. Before initial diagnosis, I had done a lot of research on my own and found a condition called palindromic rheumatism. It literally matched my symptoms to a T! I presented this information to my last rheum who dismissed me and said it’s all the same blah blah blah made me feel like an idiot (and I work in healthcare). It’s been a frustrating 2 years...

NOW, my new rheumatologist is telling me he thinks I have PR. Without me evening bringing it up. He went on to explain that it will like turn into full blown RA at some point, but to continue with my meds (plaquenil) and the dietary changes I made (vegetarian 16 months) and we will keep monitoring for worsening.. I’m so relieved to actually have a knowledgeable doctor who actually cares! And a diagnosis that fits what I’m experiencing!

Anyway... just looking for some support. Does anyone else have this? What has been your experience with it? Did yours fully progress or are you still managing? What treatments/lifestyle changes have you made? I don’t know anyone else who has this... TIA for all the help :-)

I was diagnosed with this about 2 years ago. My new rheumatologist said she wasn’t sure and wanted to run more tests, then ended up diagnosing me with it again today... So I guess this is what I have.

I’ve been prescribed celecoxib. Has anyone experience with these? She told me to use these during flares and if I have a worse flare up to contact them again.

Also, is there a sub reddit just for PR? I can’t seem to find one.

Hey everyone, my rheumatologist said she thinks I might have palindromic rheumatism but it's kind of a wait and see if a pattern emerges/continues. She specifically mentioned a pattern of joint involvement that indicates PR. Namely, starts in fingers/wrist then moves to elbow, shoulder and then dissapates. This is a pattern I am seeing, though not symmetrical joint involvement. Has anyone else heard of/experienced this pattern of joint involvement with PR?

Thank you.

Edit: was officially diagnosed with Palindromic Rheumatism. I guess I'm glad to have an answer.

Hi! So, I am in the midst of some kind of inflammatory arthritis attack. This is the second time it's happened.

The first time was 2 years ago in my wrist. It lasted for 1.5 months and only cleared up after a steroid injection directly into the joint that was inflamed. The MRI diagnosis for the wrist was capsulitis. The orthopedic doctor I saw for it said "sometimes your body will mistakenly attack itself." He was very casual about it and did not refer me to a rheumatologist. So I just kind of hoped it would never happen again.

Well, it did. This time in the ball of my foot and I just entered my fourth week of having a painful, swollen foot. It feels systematic in that my whole body hurts and my hands swell up too. I have a low-grade fever daily. I've had bloodwork done, x-rays and an MRI. Bloodwork was negative for ANA and RF, but showed elevated white blood cell count. I was on prednisone and received a steroid injection 24 hours before having the blood drawn. PCP that did the blood test suggested an infection and just prescribed antibiotics which of course didn't work because this is NOT an infection. They referred me to an orthopedic doctor who said that the steroids could alter WBC and other things. MRI just showed that my joints were inflamed. Possible MRI diagnosis of bursitis.

I finally saw a rheumatologist and she seems skeptical, which is very annoying and frustrating. She finally said that "Palindromic Rheumatism may be a diagnosis," but she also seems to think I have an infection because of my WBC. An infection makes zero sense to me, especially knowing that steroids can increase your WBC.

The symptoms I'm experiencing now are identical to what I experienced with my wrist. Symptoms were sudden. One second I was fine, the next I was in pain. Constant, throbbing aches. Warm joints. Lots of stiffening. It sometimes feels like my foot is being cast in cement. This attack seems more intense than the first and my whole body hurts. My hands swell up and my finger joints ache. I'm already having noticeable muscle loss in my leg.

Does any of this sound similar or familiar to anyone?

Sorry for whining and rambling, I just feel like no one is listening to me.

UPDATE: After another round of bloodwork, I tested positive for HLA-B27. My rheumatologist thinks my symptoms/episodes may be precursors for ankylosing spondylitis.

25/M here. I was diagnosed with palindromic Rheumatism about 2 weeks ago. However, I'm not fully convinced but obviously I should defer to my rheumatologist. My main symptoms are random pains anytime anywhere. For example, I was walking yesterday and mid step my left knee suddenly hurt a lot. It continued to hurt while walking for about 24 hours and now it's completely fine.

What is confusing me so much is that it happens suddenly and sharp, and there's no swelling or anything else and the pain is never on both sides or even in more than one joint at a single moment. It has happened in almost every joint in my entire body, but happens most frequently in my right wrist. Does anyone else have similar symptoms? The inconsistency is driving me mad! I adjust to a certain joint being sore and then boom it's something entirely different!

I'm just looking to commiserate I guess.

Hello, first time here. I'm 34 and my GP is running tests to see what is causing my pain. After a lot of searching the only thing that sounded close was PR, but a lot of the symptoms aren't well defined. So my question for those with PR are, how quickly does your pain move? How much does it hurt? How long is your downtime between flare ups?

My rheumatologist thinks this is what I have, mostly based on how my first appointment with him was at a time when I was physically well and symptom free. Does anyone have any experience with this disorder? I haven't actually heard of it before, even during researching RA!

I usually get periods of pain and stiffness in my joints, which started in my knees but has now spread throughout all my joints, even in my ribs. I can barely walk when this happens and have extreme fatigue. But, I have flare-ups 1-5 times a year and are usually symptom free in-between those times. I'm guessing this is the differentiation between RA and PR. My DR tested me for rheumatoid factor but this was negative, however my Rheum has sent me for a few more tests, so maybe this diagnosis will change if something comes back positive... Any advice?

Does anyone have any background with this? It seems to be really rare and not much info on it. Curious to hear peoples’s symptoms/experiences.

wondering if this sounds familiar to anyone here.

I'm a 28 year old woman with no history of lyme, STIs, or any other form of chronic illness. Three years ago I woke up one day and my foot was cramped up so tight and stiff I could barely walk. After several weeks and it hadn't gone away I bought a cane. It went away out of nowhere after four months.

After that I started getting attacks, or flare ups of severe joint pain and stiffness that lasted anywhere from a few days to a few weeks. It has progressed to both feet, ankles, knees, hips and sacrum. In January it was in my hands. It seems to be triggered by damp or humid weather and since I live in a harbour city in Southern Ontario this is not infrequent. I also have unexplained fatigue, and random numbness.

I have had about twenty blood tests, X Rays, MRIs and EMGs. I was tested for MS and came back normal. My iron, cholesterol, B12 are all normal and healthy. I am a thin, active hiker and yoga practitioner but the pain, stiffness and fatigue during attacks makes it impossible to be active. No OTC pain relievers work except Naproxen and anti-inflammatories.

Attacks are random and go away just as randomly.

Tge only thing is I don't have redness around the joints but after three years I am shocked that my doctor hasnt mentioned arthritis. In my blood tests there are always high white blood cell count and my EMGs came back abnormal in affected areas. Sciatica is not present.

What do you all think?

Update: thanks for the comments! Some people seem to look.like me, others don't. Went to the doc today and got a preliminary diagnosis of polyarthritis. Possibly palindromic but he wants to do an x-ray on my spine to make sure it's not originating from there. He said given my history it seemed like classic early stage rheumatoid or palindromic. I'm hoping it's palindromic so it's not progressive. Ive been referred to a rheumatologist and for some x-rays. Ive picked up a rollator sicne my cane wasn't cutting it.

Thanks again!

29 y/o F: I've been having "flu-like" symptoms for a little over 10 years, maybe earlier. The pain would come and go, but during the worst of times I couldn't get out of bed. Everything would ache and I felt so stiff I could barely move. I also have Endometriosis which can cause chronic fatigue and some other related chronic pain. I assumed it was that until the past month. I was previously diagnosed with Morton's Neuroma in my left foot in July (I honestly thought I had broken a bone on the top of my foot until my ankle was so stiff I could barely walk). The nurse practitioner put me on prednisone and it got better for awhile, but it came back along with stiffness in my knuckles on my left hand. And cut to a couple of weeks ago and all of a sudden, I couldn't get out of bed. I have existing problems with my right side, but this time I felt frozen and every step felt like a challenge. I went to the doctor on Tuesday and they are testing me for Palindromic Rheumatism, but from what I've read...I'm worried I didn't get tested early enough and now it's RA. I've been absolutely exhausted since this started, moreso than before. I can't sleep enough and although the prednisone is helping, I still ache and my joints are still swollen. She said it is good because I'm finally being tested during a flare-up, but I'm worried my test results will come back normal. She said if they do, she's sending me on to a neurologist. Thoughts on all this? I've read the three main symptoms of RA are: joint swelling, morning pain and stiffness, and fatigue. Any help is appreciated!

UPDATE: Got my results back. Positive ANA, C-Reactive Proteins 23.1 (range is <8.0). Sending me to a rheumatologist!

A good friend of mine has displayed symptoms for years that look to me like palindromic rheumatism, extreme pain in joints that only lasts for a few days at a time, but has not been diagnosed by a doctor. He works with his regular doctor during these flare-ups, and he has seen a rheumatologist (I'm not sure about what), but has not suggested this possible diagnosis for investigation.

I love my friend and support his decision to deal with the pain however he wants. His mother has had chronic pain issues his entire life and has made poor choices with pain meds, and so my friend is understandably resistant to go down this path.

If anyone in this community has any comments or suggestions for me, I'd welcome them. I think my only question is if there would be any benefit in my encouraging him to get a diagnosis sooner rather than later (if this is the case). If he is aware of the possibility but would prefer to deal with the symptoms rather than get treated, could this make things worse later on?

Hi all,

I wanted to run something by you all and see if anyone has had any similar experiences. I moved from the Southeast US into a dry and mountainous area a few months ago, and right after the move is when I started noticing a change in my body.

The pain started in my wrists, then elbows, hips, knees, and bottom of feet. It would sort vary in intensity in different joints depending on the day. I went to a doctor who ran some tests, some of which were RA related. My Sed rate and CRP were normal (which I know isn’t sufficient to rule anything out,) and my Vitamin D levels were low. The doctor said there was no chance it was RA because of my age, which I know is a joke, but they were convinced it was dehydration. I admittedly struggle with hydration, but I’m working on it.

The pain lasted for about a month, and then over the course of 2-3 days everything vanished. About a week ago I started to notice a slow creep of pain again, this time starting in my hips and slowly working up and down my body. The intensity doesn’t seem as bad as the first time, but it’s still apparent. I’ve been slacking pretty heavily on hydration the last two weeks, which is annoying because I’d have liked to rule that explanation out.

I’m waiting for my new insurance to kick in before I asking for further testing and imaging from a Rheum.

Anyone have a similar experience where symptoms virtually vanished?

I have a fear of losing things.

every time I start to like something, my brain tells me all the ways I can lose it. for example, I was really into speedcubing then these thoughts started popping into my mind,

"what if they go out of fashion and won't be produced anymore?"

"what if I cant buy Rubiks cubes anymore?"

another example, I was really into music for some time and I started to wonder if I'll be able to listen to them forever, this lead to me researching about data hoarding and that resulted in me taking a break from music for about 2 months.

I know now that these sound silly but at that time they felt way more important than they actually were. these thoughts lead me to research about these things (borderline obsessively) and I always come to the same conclusion, I can't predict the future and I end up abandoning the hobby.

recently I found out that I might have an autoimmune disease called palindromic rheumatism, which is not a bad disease by itself( you basically get a painful swollen finger or a toe every few months and it lasts for about a day) but it can progress to a more serious disease called rheumatoid arthritis and it does permanent damage to your joints and there's a 30% - 50% chance of PR progressing to RA.

and this has been nightmare-inducing for me. every time I play a PC game, draw, color, write, etc all I can think about is how I won't be able to continue doing them in the future.

people say that in order to conquer anxiety you must accept the worst-case scenario but how can I accept it if the worst-case scenario is so bad? this lead me to stop focusing on things that are physical, things that might be affected by the disease.

so I took up reading books, thinking that nothing can take reading away from me but boy was I wrong, I started to question if I was actually understanding what I was reading even though I understood everything perfectly. I have to imagine every single sentence to make sure I understood it properly and some sentences are abstract and really hard to imagine. I can't even read in peace anymore, every time some minor confusion happens it triggers an intense anxiety response. I am at the end of my rope, everything I care about seems to never work out for me.

I really don't wanna live like this anymore and I don't have access to therapy atm so, any advice you can give will be really appreciated.

thank you.

In 2 days i will be getting a scope down the throat. And i was told by the nurse i need to stop some of my meds that help with my fibro and Palindromic rheumatism pain as they are also blood thinners. I have been miserable for 4 days. I hurt. I can't sleep. I have a never ending headache. And my brain fog is horrible. This week feels so damn long. I cannot wait to be home from the scope Wednesday so i can take all my meds and start feeling better.

So here goes. Hopefully I'm just hyping myself into anxiety.

TL;DR -- is there any way to know if my Palindromic Rheumatism is in fact early Multiple Sclerosis?

I was diagnosed with Palindromic Rheumatism 6 months ago, since for the last two years my joints hurt in flare ups that came and went in different areas each time, leaving no tissue damage, and since the flare ups responded very well to Prednisone and Hydroxychloroquine. I'm seronegative, with no RA/PR biomarkers apart from slightly high Immature Granulocytes count (0.04 TH/uL, or 0.5%).

A few weeks ago, I started having weird muscle spasms that localized above my left elbow for a few seconds at a time. They disappeared after a few days and did not return so far. Yesterday, I suddenly had a moving scintillating scotoma, which is a vision disturbance that originates in the brain. Scintillating scotoma often appear in migraines, but also in MS, and I never had one before.

I was concerned by these new symptoms, so I started reading about MS, and apparently it can also cause flare ups of joint pains with no tissue damage, can cause vision issues and muscle spasms, and worse -- it's also responsive to Prednisone and Hydroxychloroquine!

Is anyone familiar with both diseases and can share their experience? I updated my neurologist and we're meeting next month, but I don't want to be anxious until then.

So I probably have palindromic rheumatism which basically means that one of my fingers or toes swell up from time to time. Waiting for a flare to get properly diagnosed. This disorder has a 50% chance of progressing to rheumatoid arthritis which unlike palindromic rheumatism can cause permanent joint damage.

Even though my case of PR isn't really severe (only get flares like once every 3 or 4 months and they last for about a day) and has been going on for about 6 years now, I am very scared of it progressing to ra.

I speed solve rubiks cubes but now whenever I pick one up to solve I'm reminded of the possibility of not being able to continue doing that if I get ra.

Same with gaming. I'm not even afraid of all the pain. Just don't want to lose everything I hold dear.

Tl;dr I can't handle the fact that I may not be able to continue doing what I love because of something that may happen in the future.

Thanks in advance.

I'm just wondering whether the residual pain from healed ankle and wrist sprains may be somehow related to Rheumatoid Arthiritis. Any experience?

https://www.ponderingpot.com.au/national/tga-slaps-invigorate-labs-with-18k-in-fines-for-breaching-medical-cannabis-advertising-laws

The Therapeutic Goods Administration (TGA) has slapped the individual responsible for the Invigorate Labs website with seven infringement notices for “advertising breaches relating to medicinal cannabis.” In total, this is a whopping $18,648 in fines.

According to an announcement published by the TGA on Tuesday (September 28), the person behind the Invigorate Labs website allegedly breached the Therapeutic Goods Act 1989. While it doesn’t go into detail, the announcement cites three examples of the breaches it says Invigorate Labs made.

First, the TGA says that Invigorate Labs advertised several CBD products (including a vaping liquid) that aren’t included in the Australian Register of Therapeutic Goods (ARTG). Therapeutic products not listed in ARTG can’t be advertised without an exemption.

Second, the TGA says the Invigorate Labs website claimed people can treat palindromic rheumatoid arthritis with a CBD cream it sold. Palindromic rheumatoid arthritis (or “PR”) is a rare condition that causes sufferers to experience bouts of joint pain, swelling and inflammation suddenly. Companies need approval from the TGA to advertise a product for PR — and the TGA says “no approval had been granted” to Invigorate Labs.

Finally, the TGA says that Invigorate Labs made a “prohibited representation” relating to CBD oil and cancer.

The announcement also makes it clear that the TGA didn’t immediately jump to fining Invigorate Labs. According to the TGA’s announcement, they “notified the individual on multiple occasions to remove the relevant advertising.” Instead, TGA claims Invigorate Labs engaged in “phoenix activity” by changing websites.

A few of those websites (which may include invigoratelabs.com.au and invigoratelabs.shop) are now unavailable, and the Invigorate Labs’ Shopify store only has a notice that previously read:

>*We are sorry to inform you, bu

I am currently suffering from: Achondroplasia Acne AIDS Albinism Alcoholic hepatitis Allergy Alopecia Alzheimer's disease Amblyopia Amebiasis Anemia Aneurdu Anorexia Anosmia Anotia Anthrax Appendicitis Apraxia Argyria Arthritis Aseptic meningitis Asthenia Asthma Astigmatism Atherosclerosis Athetosis Atrophy Autism Bacterial meningitis Barack Obama syndrome Beriberi Black Death Botulism Breast cancer Bronchitis Brucellosis Bubonic plague Bunion Bella killer Calculi Campylobacter infection Cancer Candidiasis Carbon monoxide poisoning Celiacs disease Cerebral palsy Chagas disease Chalazion Chancroid Chavia Cherubism Chickenpox Child elongated penis syndrome Chlamydia Chlamydia trachomatis Cholera Chordoma Chorea Chronic fatigue syndrome Circadian rhythm sleep disorder Coccidioidomycosis Colitis Common cold Condyloma Congestive heart disease Coronary heart disease Cowpox Cretinism Crohn's Disease Dengue Diabetes Diphtheria Dehydration Ear infection Ebola Encephalitis Emphysema Epilepsy Erectile dysfunction Foodborne illness Gangrene Gastroenteritis Genital herpes GERD Goitre Gonorrhea Heart disease Hepatitis A Hepatitis B Hepatitis C Hepatitis D Hepatitis E Hepatitis F (Childhood Herpes) Histiocytosis (Childhood Cancer) HIV Human papillomavirus Huntington's disease Hypermetropia Hyperopia Hyperthyroidism Hypothermia Hypothyroid Hypotonia Impetigo Infertility Influenza Interstitial cystitis Iritis Iron-deficiencyanemia Irritable bowel syndrome Ignious Syndrome Jaundice Keloids Kuru Kwashiorkor Laryngitis Lead poisoning Leaking scrotum syndrome Legionellosis Leishmaniasis Leprosy Leptospirosis Listeriosis Leukemia Lice Loiasis Lung cancer Lupus erythematosus Lyme disease Lymphogranulomavenereum Lymphoma Malaria Marburg fever Measles Melanoma Melioidosis Metastatic cancer Ménière's disease Meningitis Migraine Mononucleosis Multiple myeloma Multiple sclerosis Mumps Muscular dystrophy Myasthenia gravis Myelitis Myoclonus Myopia Myxedema Morquio Syndrome Mattticular syndrome Neoplasm Niggeritis Non-gonococcal urethritis Necrotizing Fasciitis Night blindness Obesity Osteoarthritis Osteoporosis Otitis Palindromic rheumatism Paratyphoid fever Parkinson's disease Pelvic inflammatory disease Peritonitis Periodontal disease Pertussis Phenylketonuria Plague Poliomyelitis Porphyria Progeria Prostatitis Psittacosis Psoriasis PTSD Pubic lice Pulmonary embolism Pilia Q fever Ques fever Rabies Repetitive strain injury Rheumatic fever Rheumatic heart Rheumatism Rheumatoid arthr

Since I was diagnosed my son has been trying to help me, seeing how bad I am and struggling to find the right meds... and especially how long has been taking.

One of the research projects he is working on in college is meant to help people who have RA(rheumatoid arthritis)or PR(palindromic rheumatism)because of that.

I am already submitting a bunch of information to help the group but if any of you would be inclined to be interviewed for the research project, please..please do.

It will help all of us.

Here is my son's message:

" Hi everyone, my name is Kalin. I'm leading a small group of people in my entrepreneurship class to see how we can improve people's experiences in a small way when it comes to dealing with rheumatoid arthritis (RA) and palindromic rheumatism (PR). We want to get a sense of your experience and overall well being with both diseases to see how we can help.

We would like to meet with anyone interested for 20-30 minutes using whatever method of communication you prefer within the next three weeks. We will get back to around 5 to 8 people to figure out a date and time that works well for everyone alongside a list of sample questions we might ask if you would like to see them ahead of time.

I really appreciate you taking the time to look this over."

Please PM me if you are interested to share information with the group or email him directly at kalin.kochnev@uconn.edu

Like the title said this month i was told i 100% have Fibermalga and palindromic rheumatism. For the past 4 years im in pain everyday with the last 2 year of it becoming worse.

I look for tips and tricks to make life easier with this new life. I hope some or you can help me out. Like I said every day on different levels of pain. Thank you!

Hi everyone! I was diagnosed with palindromic rheumatism and fibro about 3 years ago but I’ve been a little occupied with the rheumatism to begin thinking about the fibro symptoms.

I sometimes randomly get really sharp pain on random parts throughout my body, like someone stabbed me with a big needle. It’s a very concentrated pain in a very small area but god is it annoyingly painful. It normally only lasts for a few minutes but it happens often enough that I brush it off as normal.

Is this a fibro thing or am I over analyzing normal bodily functions (the age old question for anyone with chronic illness)?

Edit: Wow wasn’t expecting so many responses. Thank you all for reminding me I’m not insane and that the stabby pain is actually a legitimate symptom :)

Age 35
Sex M
Height 183 cm
Weight 76 kg
Race Caucasian
Duration of complaint 2-3 years
Location (Geographic and on body) Canada/Germany, lower legs
Any existing relevant medical issues (if any) Palindromic rheumatism, other weird undiagnosed auto-immune issues
Current medications (if any) None

Hi there!

Two or three years ago, I noticed almost suddenly that a huge patch on each side of my shins/calves was almost totally bald. It seemed to have happened almost suddenly and not very gradually. To this day, nothing has grown back or go worse. It really isn't a big deal, of course, but it's super weird.

I've googled for a while and figured that it probably was "Anterolateral Leg Alopecia", but I'm mostly wondering if it will ever grow back, or what could be the cause.

As you can see from the linked photo, there's hair right over and right under the big patch, and everywhere else on the leg aside from the bald patch. It's just a 3x10in patch that is exactly the same on the other leg.

I have a lot of strange issues that relate to auto-immune issues, and so far no one has been interested in diagnosing me in a holistic manner. All I get are doctors trying to cure the specific symptoms. I wonder if it would be related to a larger auto-immune condition. Aside from that, I'm active, fit, eat healthy and diverse, etc.

https://imgur.com/pbfphzJ

Thanks!

I just started a new job yesterday and I was diagnosed with palindromic rheumatism a few weeks ago. I don't really know how to approach the subject to let them know I basically have a disability. I'm also worried how to handle sick time if I have to frequently call out, like I'm assuming I can apply for something that won't count calling out against my attendance because I have a chronic condition? I'm in the US by the way. Any talking points or tips would be greatly appreciated!

I don't want to step on anybody's toes here, but the amount of non-dad jokes here in this subreddit really annoys me. First of all, dad jokes CAN be NSFW, it clearly says so in the sub rules. Secondly, it doesn't automatically make it a dad joke if it's from a conversation between you and your child. Most importantly, the jokes that your CHILDREN tell YOU are not dad jokes. The point of a dad joke is that it's so cheesy only a dad who's trying to be funny would make such a joke. That's it. They are stupid plays on words, lame puns and so on. There has to be a clever pun or wordplay for it to be considered a dad joke.

Again, to all the fellow dads, I apologise if I'm sounding too harsh. But I just needed to get it off my chest.

The nurse asked the rabbit, “what is your blood type?”

“I am probably a type O” said the rabbit.

I've had swollen fingers and toes (only one at a time) which last for a day and then completely disappear for months. This has been happening since I was 14 and I'm 20 now. Only about 4 months ago I found out about autoimmune diseases after visiting a ortho for my swollen middle finger. He told me to visit a rheumatologist the next time I get a flare. So now I'm waiting for a flare. But the anxiety is killing me. If someone can answer this question it will put my mind at ease at least for now. Thank you.

so I'm almost 100% sure I have an autoimmune condition called palindromic rheumatism and my doc thinks so too but I'm waiting for a flare to get tested properly.

palindromic rheumatism isn't that bad of disease by itself (you get a swollen and painful finger or toe every 3 to 4 months which lasts for a day at most) but it can progress(approx. 30% of the cases progress) to a more serious disease called rheumatoid arthritis.

I'm so scared of it progressing that I can't think about anything else but that. every time I do something I love all I can think about is how I won't be able to continue doing them in the future. also, the fact that I'm only 19 makes it even scarier.

I know medicine has come a long way and the outcomes are much better now than it was 10-20 years ago but I still can't accept it.

I cant meet with a therapist atm so any advice will be greatly appreciated.

thank you.

Like the title said this month i was told i 100% have Fibermalga and palindromic rheumatism. For the past 4 years im in pain everyday with the last 2 years of it becoming worse.

I look for tips and tricks to make life easier with this new life. I hope some or you can help me out. Like I said every day on different levels of pain. Thank you!

Like the title said this month i was told i 100% have Fibermalga and palindromic rheumatism. For the past 4 years im in pain everyday with the last 2 year of it becoming worse.

I look for tips and tricks to make life easier with this new life. I hope some or you can help me out. Like I said every day on different levels of pain. Thank you!

I am currently suffering from: Achondroplasia Acne AIDS Albinism Alcoholic hepatitis Allergy Alopecia Alzheimer's disease Amblyopia Amebiasis Anemia Aneurdu Anorexia Anosmia Anotia Anthrax Appendicitis Apraxia Argyria Arthritis Aseptic meningitis Asthenia Asthma Astigmatism Atherosclerosis Athetosis Atrophy Autism Bacterial meningitis Barack Obama syndrome Beriberi Black Death Botulism Breast cancer Bronchitis Brucellosis Bubonic plague Bunion Bella killer Calculi Campylobacter infection Cancer Candidiasis Carbon monoxide poisoning Celiacs disease Cerebral palsy Chagas disease Chalazion Chancroid Chavia Cherubism Chickenpox Child elongated penis syndrome Chlamydia Chlamydia trachomatis Cholera Chordoma Chorea Chronic fatigue syndrome Circadian rhythm sleep disorder Coccidioidomycosis Colitis Common cold Condyloma Congestive heart disease Coronary heart disease Cowpox Cretinism Crohn's Disease Dengue Diabetes Diphtheria Dehydration Ear infection Ebola Encephalitis Emphysema Epilepsy Erectile dysfunction Foodborne illness Gangrene Gastroenteritis Genital herpes GERD Goitre Gonorrhea Heart disease Hepatitis A Hepatitis B Hepatitis C Hepatitis D Hepatitis E Hepatitis F (Childhood Herpes) Histiocytosis (Childhood Cancer) HIV Human papillomavirus Huntington's disease Hypermetropia Hyperopia Hyperthyroidism Hypothermia Hypothyroid Hypotonia Impetigo Infertility Influenza Interstitial cystitis Iritis Iron-deficiencyanemia Irritable bowel syndrome Ignious Syndrome Jaundice Keloids Kuru Kwashiorkor Laryngitis Lead poisoning Leaking scrotum syndrome Legionellosis Leishmaniasis Leprosy Leptospirosis Listeriosis Leukemia Lice Loiasis Lung cancer Lupus erythematosus Lyme disease Lymphogranulomavenereum Lymphoma Malaria Marburg fever Measles Melanoma Melioidosis Metastatic cancer Ménière's disease Meningitis Migraine Mononucleosis Multiple myeloma Multiple sclerosis Mumps Muscular dystrophy Myasthenia gravis Myelitis Myoclonus Myopia Myxedema Morquio Syndrome Mattticular syndrome Neoplas Non-gonococcal urethritis Necrotizing Fasciitis Night blindness Obesity Osteoarthritis Osteoporosis Otitis Palindromic rheumatism Paratyphoid fever Parkinson's disease Pelvic inflammatory disease Peritonitis Periodontal disease Pertussis Phenylketonuria Plague Poliomyelitis Porphyria Progeria Prostatitis Psittacosis Psoriasis PTSD Pubic lice Pulmonary embolism Pilia Q fever Ques fever Rabies Repetitive strain injury Rheumatic fever Rheumatic heart Rheumatism Rheumatoid arthritis Rickets