Hi! I'm new here and just trying to gather information. I had an ultrasound a few weeks ago and a FNA last week on a 3.3cm nodule. They called this morning to say it's a tirad 5 and they found microcalcifications (hope that's the right term. I go to Kaiser in California and sometimes their rating scales sound different than what I read online. The nurse said they use a 6 point category scale and mine was a 5.) The endocronologist I saw had recommended at least a partial thyroidectomy due to issues the nodule was already causing but now they are saying they want to do a full removal. My TSH levels are within normal range (1.89) so I'd like to keep at least half of my thyroid if possible.
I guess my question's are:
If you had a partial thyroidectomy and found out later that it was cancer, was the second surgery harder?
I read that a tirad 5 nodule can still be benign but become cancerous later. Has that happened to anyone here? Do you wish you would have just gotten the surgery right away?
I actually found the nodule because of a Tiktok video (I know it's ridiculous but I really thought I'd just pulled a muscle in my neck. I had no clue that my issues had anything to do with my thyroid. I wasn't even really sure where my thyroid was!) So this is all been quite the surprise. I don't even really know where to start with figuring out what to do but the nurse I spoke with this morning made it sound like things were pretty urgent. I don't like the idea of jumping into surgery and removing the whole thyroid if there's a good chance that nothing is wrong.
Thanks for reading and any answers you might have.
So I (19f) have a nodule on the left side of my neck that I noticed at the end of 2019. I had an ultrasound months ago and they decided I needed a biopsy…then never booked another appointment for me. I have now got an appointment in less than a month for a biopsy, but I’m a bit worried.
It feels like my nodule can change in size throughout the day, like it feels bigger if I’ve come home from work/done physical exercise of some sort. But recently it feels smaller? I don’t know if I’m just used to having the lump there or I’m panicking and tricking myself or it’s actually gotten smaller, but I have this fear it’ll go away and the doctors won’t find anything and will think I made it up, even though they did an ultra scan before and found it.
Is there a chance that this thing has shrunken? What if it completely disappears by my appointment? Is there a chance it’ll grow again before then? If it has shrunken, could it still be cancer?
Edit: I should also mention that it’s still visible when swallowing and I can still clearly feel it.
Due to terrible genetics and growing up in a filthy rodent infested house I have a myriad of health issues mostly surrounding my heart and lungs.
I’ve had friends and family get COVID, some died, some had full recoveries, some are suffering from long haul syndrome. The fact that it adversely effected lungs and hearts so much scared the shit out of me.
I got the Pfizer vaccine (two part) back in March and besides a sore shoulder for a few days I’ve had zero side effects. I just feel safer knowing I’ve done what I can to protect the weakest parts of me.
So I posted here that I needed a biopsy on a nodule on my thyroid. I got my results today.
Inconclusive
So my ENT is going to refer me to an ENT surgeon to have a consultation about removing it. The ENT said just based on size he believes it should be removed but it is my choice of course. I want to thank each and everyone of you that prayed for me.
So now I pray that God will help me make the right decision.
Again, I love all of you and thank you for keeping me in your thoughts.
I have always had several easily visible brown specks in my green irises, and have had a few routine eye exams with an optometrist and an ophthalmologist... If my brown spots were lisch nodules, would they have been able to see them & would they tell me? Would i know by now?
Or is that a special test that is only done if they're specifically looking for neurofibromatosis
Amethyst geodes are a thing in real life and so are nodules. nodules are solid geodes without the space inside. Jasper is a precious gem which can be found in these nodules. I feel like it would be cool if you could find a nodule, smaller than an amethyst geode but solid and packed with jasper. Jasper could be a new form of currency or decorative block. There wouldn’t be any jasper clusters or crystals but only jasper crystal blocks which could be refined into smooth jasper. (Could also be cool if we had geodes or nodules that were actual items that could be cracked open with a hammer or other tool for crystals)
I hope you’re all well, and I dearly wish I’d found this forum earlier. All of your queries, stories and comments are humbling and full of positivity.
I’m 27, was finally doing alright in life, and this seems to have knocked me for 6. Surgeon spent 5 minutes with me a day after having my lefticle removed because of a 33mm mass causing excruciating pain. I asked if the CT showed anything extra, and he said it showed 4 2-3mm nodules in my lungs, but that he didn’t know if they were related or not because no lymph nodes looked inflamed and no other abnormal masses presented throughout my abdomen. Still waiting for biopsy results and i’m terrified (Dr. Google has NOT been my friend in this). It sounds like a lung metastasis can take me from a stage 1 to stage 3 just like that... Has anybody else had benign unrelated lung nodules? How did you all cope in the weeks before getting your biopsies back? (I’m 2 weeks out from knowing yet).
Thanks, and my best to you all
Greetings!
I was just diagnosed as having 2 nodules on my thyroid. One is 1.5cm, and solid/mostly solid and on my isthmus. It’s rated a TR3. I have a smaller one, only .3cm, also solid/mostly solid on my upper thyroid that is rated a TR4. The radiologist recommended to repeat the ultrasound in a year but I’m not comfortable waiting to do more investigation. Any advice? I trust my doctor but I really don’t like that I’m growing something and we’re just going to wait to investigate. What would you do? Push for more definite answers for peace of mind or follow the recs?
Hi all,
I had written a post about the possibility of lung endo here: https://www.reddit.com/r/Endo/comments/mzqjsr/does_someone_with_lung_endo_wanna_help_me_out/?utm_source=share&utm_medium=ios_app&utm_name=iossmf
Now the pulmonologist who looked at my scan is saying that the nodule on my lung might be malignant. I am 31 years old and do not smoke. I am scared shitless.
I am going for a follow-up CT of my chest this week.
It’s confusing to me because I literally only have GI symptoms (constipation, regurgitation, inability to pass gas, and a bulge in my lower back that my doctor told me was a lipoma, but nothing showed up in the subcutaneous fat there on an MRI). I have zero pulmonary symptoms except for shortness of breath and searing upper back pain, particularly in my left shoulder blade.
I asked my doctor about the possibility of a hernia and she said she’s never heard of a hernia in your back.
I have bad pain in my left lower back as well. It feels like my bowels are pushing things into my lungs, that’s the best way I can describe it.
I am scared of what will show up on the chest CT. I asked my doctor about doing abdominal CT because I have pain there, but she said I’ve already had 2 and it’s a lot of radiation.
Hey everybody! I’m asking for prayers because I’m getting my lung nodules checked out this week and I’m nervous. I’ve been praying they’re not cancer, have been stable, and nothing serious. I’m also asking for prayer because the right side of my throat is swollen and I have to get a thyroid/soft tissue ultrasound next week. Also, thank you for praying for my skin biopsy results! One came back negative, the other had precancerous cells. I have to go back on June 1st for further examination. I just need Gods peace right now. I’ve been going through a lot and I just graduated from college. Praise the Lord for that! Thank you everybody 🙏✝️❤️
My dad just got a LDCT scan because he has been having a chronic cough for the past few months. His results showed that he has a lung nodule but the doctor described it as a stable lung nodule and will check again in a year to see if it's grown. I was just wondering, are benign lung nodules supposed to cause a chronic cough? It seems most benign lung nodules don't cause any symptoms. My dad's family also has a history of lung cancer so I'm just wondering if I should tell him to follow up with his GP and emphasize that and maybe get a biopsy in case? Or should he just wait till next year to see if it grows?
I recently noticed a goiter that seemed to have grown and went to the doctor who ordered an ultrasound. My TSH levels were in range. I had a nodule that measured 4.8 cm. 2 weeks later I went to a surgeon to have a biopsy done and the nodule had shrunk to 3.7 cm and the doctor recommended surgery. I'm to see him in 3 weeks. After a week the thyroid feels to have shrunk even more over night. Is this normal?
As I have researched I have a lot of symptoms that coincide with thyroid problems.
22F, 5’7, 210 lbs, white, USA. About 2 months ago, give or take, I found a pea sized lump on my neck. No pain, and hard to touch. I went to my pcp after I noticed it, and she referred me to have it looked at by a dermatologist. The dermatologist referred me to get an ultrasound of it. I’m attaching a photo of the ultrasound results. I’m just looking for help dissecting and understanding what they found. I figured my pcp would want to see me again after I got this ultrasound, but I called and they said to see the dermatologist again. They’ve been closed for 4 days so I’m waiting to call back in the morning. It usually takes a month to be seen, and I’m worried that may be too long. What it looks like to me after research is a thyroid nodule, but I’m confused why it says to try an antibiotic before doing a biopsy. Is this normal? Should I see another doctor besides a dermatologist about this?
It may be beneficial to add that thyroid disease runs in my family, including a sister.
I also would like to add for about 1.5 months or so I’ve had diarrhea nearly every single day. Right after I eat or when I first wake up I have terrible cramps. I don’t know if this is just a digestive issue or if it could be related.
Attaching a link to the photo of my ultrasound resultsultrasound
Primary found a 0.6 cm nodule on my left lobe. That’s the only information I received. He said it’s probably nothing, but still referred me to a specialist. I’m nervous that the fact that he referred me means it’s serious. I know thyroid cancer is rare and very treatable, but it obviously still scares me. I was recently diagnosed with hypothyroidism and have been on levo since. I feel better, but now I’m hyper aware and think my thyroid hurts. I don’t know what to do to manage my anxiety. I see a therapist already and I’m still finding it difficult to stay calm and to not worry.
So nearly 3 years out from chemotherapy, I just had a chest X-ray and CT scan. Scans show a new nodule on my lung. Currently in panic mode until tomorrow when I can get in touch with my doctor. Thought I was done with this. Fuck.
The cut is about 2 inches long and 1/2 wide. The cut is not bleeding anymore. I do not have the ability to seek medical care. How can I care for my wound and promote healing?
28/f
Blood test levels of TSH was lowest of the normal range back in December. But none of the doctors I’ve spoken with (three) will test my T3, T4, and so fourth. They biopsied the nodule and it came back inconclusive. It was sent off for molecular, genetic testing.
As far as I know, it’s a PAX8-PPRG fusion (Idk what that means). It’s mixed in appearance, hypoechoic, taller than wide, slightly lobular. That’s all I know. It appears to be a 70% probability of carcinoma OR an NIFTP aka pre-malignant tumor.
The endocrinologist and the general surgeon said to remove my entire thyroid because if it tests cancerous, the risks of complication is much higher if they have to go back in to remove the rest.
Well I didn’t like the general surgeon, he was an hour late, rushed my consultation, I couldn’t get a word in, and he demanded the floor. Then when I went to get a pre-op ultrasound to look at my lymph nodes he just sent over the orders my endo sent over to radiology and didn’t even send in his own order for a repeat thyroid ultrasound and a second order for the lymph nodes. I spent another hour waiting for his office to get it together AND they still only sent the thyroid order, not even the lymph nodes. So the UST, bless her heart, did the imaging on both my thyroid and lymph nodes and said she’d get the order later. Lymph nodes are 2.5 cm on all sides. And ofc my entire thyroid is enlarged.
I went for a second opinion with an ENT oncologist surgeon at a cancer center near me. She is suggesting a partial removal and ordered a CT scan to better observe my lymph nodes. That is Tuesday so we will see. I’m terrified of getting the entire thing removed but I’m also terrified of doing a partial and requiring more. Any comments, suggestions, etc help.
