The title sums it up pretty well. She was born almost 5 months ago without an anus. She had an surgery and a ostomy bag and we are waiting for her to get bigger to move forward.
It's rare and just wondering if anyone had any experience with it.
Hello,
I am the mother of a 13=month-old baby boy. He was born with an imperforate anus-- Basically, he had no anal opening. The digestive system almost formed all the way, but he was missing an exit and the last little bit of intestines.
Overall, he is a very healthy little boy. We have an ongoing relationship with the specialist who surgically corrected the problem. Now that my son is over a year, we'll see the specialist every 6 months. Currently, the specialist has my son using Miralax daily (two teaspoons in his morning bottle). If my son were to become constipated, he is at a much higher risk of developing a prolapsed anus. Additionally, since the last bit of muscles and nerves didn't develop, he is more prone to constipation in general.
My question to this community is regarding the use of Miralax. I want to be clear: I'm not using Reddit in place of a doctor. I just thought this would be a good community to help me come up with some ideas/questions to bring to the doctor, or to help me better understand the situation.
I keep a log of my son's poops, and the amount of Miralax I give him. I'm realizing that the amount of "help" he needs is slowly going up. Now obviously, he's growing, so that could be the reason. Maybe a larger body needs a larger dose. On the other hand, I'm afraid his body is becoming reliant on the drug (I'm sure it is), and I'll need to keep upping the dose more and more to get the same effect. I don't know what this could lead to, but it doesn't seem healthy to me. The same as becoming dependant on sleeping pills.
I am asking to hear from people who are reliant on something like miralax. Does it have any bad effects? Is it something I should be concerned about? Will my son eventually be able to regulate his poops with a good diet?
Thank you for any and all thoughts on this!
I am posting this because I am curious of what people would ask. I was born without an anus along with scoliosis and holes in my heart.
Extra 1: I was inspired to do this AMA by this AMA done a while ago https://www.reddit.com/r/IAmA/comments/fx6sn/iama_girl_who_was_born_with_an_imperforate_anus/.
If I can't answer your questions, hopefully it is answered here.
Extra 2: Well, Im off guys, got to sleep, Post any questions and I will try to answer them in the morning.
So...I was born without an anus. I didn't know until I was older that I had a huge operation when I was born, although I did remember having some trauma about it.
So yeah, being a bottom it isn't advisable. I mistakenly tried it once and I won't describe what that was like any further.
So, when I was born, my rectum, instead of behaving normally, had developed in the womb to enter into my vagina instead. Thankfully, when I was born this was correctible by surgery. I'm not familiar with how the surgery has progressed since '91 but whilst it corrected my anatomy, it still left me with lasting problems which I deal with on a weekly basis. It's been the cause of many a hilariously disgusting story, but also the cause of many tears. Ask me anything :)
Here is the wikipedia article if you are curious.
http://en.wikipedia.org/wiki/Imperforate_anus
I'm doing this mostly incase there are any parents out there who have a child with this and have questions about how it might affect them. I know my parents would have loved more info when I was born.
A bit about myself: I'm 19 (f), go to university, and hopefully have a bright life ahead of myself when I graduate. I was born at Cheltenham hopsital in the United Kingdom and got transferred shortly afterward to Bristol Royal Infirmary for a colostomy and other correctional surgery. To this day I have a 7-8inch scar across the left of my stomach from this.
Edit I've done this all day around my lectures, but now I have a nice appointment with a console night down at the students union, so I'm going to go down and play some oldschool nintendo! Thanks to all who posted, especially from those who also have the delight of living with this, it was most informative for me and I'll walk away more knowledgeable than before :)
Hi,
I was born with an imperforate anus. I was fortunate my case was relatively minor - I was born with my anus further forward and tighter than usual (not opening up into my vagina or absent altogether as can happen). Doctors and my parents didn’t notice that there was anything wrong with me until I began eating solid foods around 6 months old. Once diagnosed, I had two surgeries and a few other procedures to… widen it…? Grim times. Whatever. I’ve been able to poop normally ever since (woohoo!) but it is of course still a bit further forward than usual. It’s pretty much right behind my vagina.
I was wondering if anyone knows whether I can expect to give birth naturally or not? I've tried to find out on the internet but there's only really information about babies being born with it and nothing about later life.
Any advice is appreciated. Thank you!
Hello,
My 6-month-old son was born with an imperforated anus. According to the surgeon, all other parts were whole and in fact. He literally just had to make an exit hole. Nothing was done internally.
In case your curious, my husband and I have to dilate our son's sphincter with a set of progressively larger rods. This is to prevent scar tissue build up. Right now we're at 14mm.
Anyway, the surgeon has said several times that my son will be more likely to struggle with constipation in his adult life. Growing up, we will need to be aggressive about preventing conspitation because any problems will be worse for my son than other kids his age.
My question is: Why? If everything regarding his internal organs and intestines are normal, why will he have a harder time with constipation? I have asked the surgeon but the answer was unsatisfying. Like, "it's just the nature of the condition." K, but, why? IS something different with his intestines? Or is it a side effect of having surgery/antibiotics so young, messing with his gut bacteria?
FYI my son is completely healthy besides this. No other concerns at all.
Thank you!
I am the mom of a 3 week old boy with a colostomy, which he has due to being born with an imperforate anus. After changing his diaper today, I decided to empty his bag into the old diaper. Well, as the bag was draining, the baby squirmed and I spilled poop all over him and his changing table. Poor baby had poop everywhere from head to toe and needed an unexpected bath. I felt like the worst mom ever! I hope others here can get a laugh from this!
I don't want to step on anybody's toes here, but the amount of non-dad jokes here in this subreddit really annoys me. First of all, dad jokes CAN be NSFW, it clearly says so in the sub rules. Secondly, it doesn't automatically make it a dad joke if it's from a conversation between you and your child. Most importantly, the jokes that your CHILDREN tell YOU are not dad jokes. The point of a dad joke is that it's so cheesy only a dad who's trying to be funny would make such a joke. That's it. They are stupid plays on words, lame puns and so on. There has to be a clever pun or wordplay for it to be considered a dad joke.
Again, to all the fellow dads, I apologise if I'm sounding too harsh. But I just needed to get it off my chest.
Never thought I'd be in this position. Made a throwaway cause I don't want to deal with rabid Proflifers.
At my NT scan last week (12w3d) a number of anomalies were discovered in our baby. There is a large omphalocele that includes the liver and intestines. They could not visualize a bladder. There are spinal deformities ( the spine is very curved and looks like a question mark). They could not see presence of an anus. The baby is missing a leg and the leg that formed did not form completely. I had the panorama done and all those came back low risk for trisomies. This is my 4th pregnancy, would be 3rd baby. Previous two children are healthy.
The MFM said it's highly suggestive of OEIS (omphalocele - extrophy of bladder - imperforate anus - spinal defects syndrome). When I look in the literature for that condition, it seems like our constellation is on the severe end of the spectrum given the lack of lower limbs. Usually, further problems arise for this syndrome such as lack of genitalia. Fetuses frequently are still born, or if they are born the case reports paint a grim picture, even after corrective surgery. Assuming the surgeries work, there is no guarantee of normal system function ( child may need colostomy and urinary assistance).
OEIS is very rare (estimated 1:250,000-400,000 pregnancies), so I can't find anyone online that's had this specific diagnosis, and the MFM could not say definitively that it was exactly this syndrome. When I looked up omphaloceles there are plenty of stories of people who's children were born with them, had surgery and then are fine, which I think is coloring my vision of what would be possible for our particular case with all the additional concerns.
I guess I'm just looking for reassurance that terminating based only on the NT scan with this level of deformity isn't crazy to assuage my guilt. OEIS isn't going to come up as a diagnosis from the microarray testing, we would have to wait for all the developmental points to be reached to confirm the structural defects. I just can't wrap my mind around continuing on though if the conclusions are ultimately going to be the same.
Do your worst!
They were cooked in Greece.
I'm surprised it hasn't decade.
For context I'm a Refuse Driver (Garbage man) & today I was on food waste. After I'd tipped I was checking the wagon for any defects when I spotted a lone pea balanced on the lifts.
I said "hey look, an escaPEA"
No one near me but it didn't half make me laugh for a good hour or so!
Edit: I can't believe how much this has blown up. Thank you everyone I've had a blast reading through the replies 😂
It really does, I swear!
Because she wanted to see the task manager.
Don't you know a good pun is its own reword?
Heard they've been doing some shady business.
but then I remembered it was ground this morning.
Edit: Thank you guys for the awards, they're much nicer than the cardboard sleeve I've been using and reassures me that my jokes aren't stale
Edit 2: I have already been made aware that Men In Black 3 has told a version of this joke before. If the joke is not new to you, please enjoy any of the single origin puns in the comments
They’re on standbi
A play on words.
My daughter, Chewbecca, not so much.
Pilot on me!!
Nothing, he was gladiator.
