SEE BELOW FOR UPDATE
It hurts like hell, whatever it is.
I have ADHD-C (fully medically diagnosed) and started on Concerta, then after a while went to Ritalin for literally two days and now my provider is having me try Vyvanse (40mg). Not only has it not helped my most challenging sx at all, but it seems to have made me overall worse—even more scattered, soupier brain, talking with even less of a filter (as in, on topics and at lengths that no one truly gives a shit about, not with being cruel or anything), and having even greater decision paralysis, among others. No pressured speech or euphoria/mania/whatever. Regular me just with Even More ADHD Brain™, I guess.
About three hours in, my fingers started to get cold. I didn't think too much of it because it was a chilly day and my apartment was at 66°F/18°C. But over the course of the afternoon and into the evening, I got colder and colder, and especially in my fingers and hands and, later, my feet and toes. They all went white (and I'm a redhead so I mean whiter than normal lol) and my fingernails went purple starting at the cuticle and extending about a centimeter up and my toenails ranged from bluish to bright red. The preliminary, lesser chill was staved off by a warm shower before dinner, but it returned. Mostly recently, after getting in bed, I had to get right back out again about 30 mins later and back into a warm shower because my feet especially were so fucking cold it was painful. And it was starting to creep (also painfully) up into my knees. I was in the shower 20 minutes full-body (with for 10 mins prior being just my feet and hands) and my skin was still cold, but at this point it was my whole damn body. It's two hours later and I'm now warmer, but my feet are swollen and sore and I keep getting painful tingles in my feet and up into my lower legs.
And by the way, I've never been sensitive to the cold. I practically THRIVE in it. It's at the faintest sign of heat that I turn into angry sludge. All I can think is that it's Raynaud's phenomenon. I've never experienced this before—the closest experience I've had has been shoving my bare hands deep into snow and seeing how long I could keep them there in a childhood toughness contest.
I'm definitely not going to take Vyvanse again tomorrow, especially seeing as I also mildly (but still distressing) visually hallucinated a couple hours before bed.
After all this, I'll never complain about only getting 4 hours out of 54mg Concerta. I'm
... keep reading on reddit ➡Found this study https://pubmed.ncbi.nlm.nih.gov/12099150/ and there are several others like it.
Would reducing homocysteine levels slow or eliminate Raynaud’s attacks?
For those unfamiliar with Raynaud’s https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571
If you have Raynaud’s, what’s your homocysteine level?
Ever since I started experiencing symptoms of elevated cortisol, I have experiencing more frequent tooth infections and cavities. Prior to this, I had great dental no need for braces or anything.
Also noticed during the winter if i were to stay out for an extended time, my fingers would turn numb and dead white. Toes would turn either purplish or black. Sometimes, it would take about 2 hours for my fingers/ toe to return normal (color and feeling wise)
From what I've (Female, 24) been able to gather, it seems as though beta-blockers can cause cold extremities and mimic Raynaud's, as well as sometimes worsen the symptoms of certain pre-existing conditions such as POTS if the dosage is high. But my question is...can beta-blockers be the primary cause of a condition like that? I can provide some context from my particular situation to clear up any confusion.
In July I was diagnosed with Grave's disease after experiencing heart palpitations (Which were later deemed isolated supraventricular and ventricular ectopics per my 48-hour Holter monitor), dizziness, and black vision every time I stood up starting mid-June. The only other symptom of note at the time was very prominent livedo reticularis covering my entire legs and arms that was never present prior to this summer. They put me on beta-blockers as soon as I got my initial TSH results back (50 mg metoprolol daily to start). Within a week, I started to notice a "rash" after I took a hot shower that would disappear as soon as I sat down and put my legs up. With every shower I took, it seemed to get worse and worse. I later realized it was severe blood pooling that made my entire legs turn purple with red and white splotches all over them. The same thing happens in my hands and lower arms as well.
Fast-forward to October, and my thyroid levels have returned values within their normal reference ranges and I am still on thyroid medication. Some symptoms have improved (fewer trembles, reduced eye pain, less anxiety), while others have not (blood pooling, livedo reticularis, fatigue, muscle/joint pain, increase in bpm when standing). My beta-blocker dosage was doubled in September to 100 mg metoprolol per day, because my bpm and blood pressure were still too high for my cardiologist's liking. Other doctors visits include a rheumatologist for a lupus anticoagulant panel to rule out various rheumatic conditions (including those that can cause dysautonomia, such as lupus), and a neurologist to discuss my dysautonomia symptoms.
The neurologist seemed pretty convinced that it was simply my medications that was the sole cause of the blood pooling. This just felt very odd to me? Her top 2 suspects were the birth control (which I only take for severe, debilitating cramps) and adderall (for ADHD). Although it does seem that those 2 medications can increase the risk of blood pooling, I've been on the birth control for over 6 years and the adderall for over 2 years, an
... keep reading on reddit ➡My mum has just been diagnosed with Polythychemia, a leukemia that causes blood to thicken. It is NOT an inherited condition but a gene mutation that occurs in adulthood (cause "unknown" however some sources say smoking, alcohol and being overweight are causes). Her brother had survived a different adult leukemia many years ago so I really wonder about the genetics but what do I know?! Mum does not think she has EDS despite having some symptoms of it. She never had Raynaud's but I've had it since my teens.
Hopkins Medicine's website says Raynaud's "may be caused by blood disorders that increase blood thickness, or that effect the receptors that cotrol blood vessel narrowing." I am confused. I know many of us have Raynaud's and it's not a big red flag. I do not have any blood disorders - not to say there's not underlying issues waiting to manifest, like for my mum. I have no nerve damage as I just had a nerve conduction test yet parts of my toes and fingers have been numb/tingling for 20years.
I don't understand, do they mean there are many possible causes of Raynaud's but a blood disorder is just one potential cause? I hate being ignorant about specific issues and like to understand the science behind it, as we are so used to being told "yes that's normal with EDS", just a big vague blanket statement that explains nothing and breeds more fear and confusion. Any clarity much appreciated!
I've searched this sub and I wonder if I can't find anything because people don't experience it (it's unrelated to Vit D) or if people just don't realise what it's called or that it might be related.
I suffer from my fingers and toes turning dead white and losing all blood flow in cold weather. I lose feeling and function until I can get blood flow back after being in a warm environment for 20-30 minutes. I found out this winter that it's called Raynaud's phenomenon.
The reason I looked into what it's called is that it's been SO bad this year that I have been using heat packs on my feet while at home with the central heating on, because my sheepskin slippers are not able to facilitate enough warmth. This is also the first year I've had such low Vitamin D.
After a particularly scary experience at the supermarket where my car's steering wheel caused my hand to literally shut down for an hour, I tried to find out if I was the only one this was happening to, and I'm not, but I don't have any of those other health problems that is a risk factor.....
except ... my vitamin D is only 39...
So does anyone else with D deficiency suffer from Raynaud's phenomenon?
Hello, friends ! I am a Rheumatologist, currently in my 4th year of residency in Romania. I created a YouTube Channel, Flagship Medicine, where I post highly researched medical topics.
Inspired by the problems my patients face, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms. I think it's useful to watch because Raynaud's Phenomenon is a known manifestation of Sjogren.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way the video will reach more people). Thank you very much for your time and support!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Yo. So, I just came to find out that my fingers getting very easily numb and hereafter tingly because of the lacking blood circulation, is actually very common when using dextroamphetamine. It appears to me primarily when I’m out in the cold, but can also happen to me when inside in the warmth. Welp, as this side-effect really gets on my frickin nerves (lol, get it?), I was wondering if anybody else experienced this as often, and if anyone had any tips to minimize the occurance of this side-effect. Thanks. :)
Basically your fingers turn white or blue/darkish when it’s cold or when you’re stressed.
The doctors say it’s very common but I don’t know anyone who has it except for me and my family. Idk if it’s very common all around the world but it is in Sweden.
My daughter has been diagnosed with Raynaud’s Phenomenon after having one of her toes become discoloured for 3 weeks.
Few questions - this is really rare for a child of 22 months to be diagnosed with this isn’t it? He didn’t do any specific tests on her so could it be something else? How long would an episode of discolouration usually last? Is it normal that after three weeks it is still discoloured?
If it is Raynaud’s - how can I help her? The doctor said extra socks and lots of layers but it’s only her hands and feet that are ever cold, she’s always been a pretty warm baby!
So sorry for all of the questions, very confused, worried and tired mama here. Thanks in advance for any help!
Hello! Today, I went to my podiatrist for discoloured toes and he told me I had Raynaud's Phenomenon. I've had it for 2+ months now (it stays constant rather then an "attack") and he recommended wearing socks and taking niacin with inositol every day until it goes away. Is this the best way to treat Raynaud's and are there any side effects or drawbacks of niacin/inositol? I'm just concerned because it affects blood pressure and from my search on the internet niacin products can cause things like headaches, liver problems and stomach aches.
Also, if Raynaud's doesn't go away and my toes keep being red/purple-ish will they lose function?
Thanks in advance for your advice! :)
Details:
Age: 19 Height: 5'4 Weight: ~135lbs Gender: F Meds: none Smoking: no
No medical issues.
Earlier this year, I increased my dose of Vyvanse to 30mg, 2x a day. Since the summer ended, I'm having a huge problem with cold/numb fingers & toes, even in the house. Even my ears and nose get super cold, regardless of how warm the rest of my body is. Has anyone else experienced this? Is it worth reducing my dose? I did blood work and my iron is fine. I've always been the girl who is always cold, but now it's really affecting my quality of life.
I'm wondering if anyone knows about the benefits of getting a vascular study for the diagnosis and treatment of Raynaud's Phenomenon.
The cause of my Raynaud's symptoms is unknown - would a vascular study provide clues regarding the onset?
If anyone has recommendations for articles, feel free to share them as well.
Thank you! 😊
r/Raynauds r/ReynaudsDisease
https://preview.redd.it/u0usuecsyce41.png?width=603&format=png&auto=webp&s=6c6b733ebb3be46a03c29c6e42ae19d218b8dd00
https://preview.redd.it/u9z4xrouyce41.png?width=220&format=png&auto=webp&s=06dafe5305c169ed78eb22afa00027b045f9e683
https://preview.redd.it/6qw2omnxyce41.png?width=275&format=png&auto=webp&s=caecc7630d347b935150354c3abf36e19adb8afe
https://www.reddit.com/r/zerocarb/comments/an6kf6/raynauds/
- It's gone. Over the last few weeks we've been getting proper Scottish cold winter. Snow, ice, biting northerly wind and my fingers have been fine. Not gone that classic Raynaud's white. I've been out on the Cairngorm plateau* taking photos in a temperature of -5c or less with a biting wind dropping the windchill to something evil, my hands freezing cold, and they don't go white and horrible. I can be under the campervan with ice on the driveway handling cold tools to fix it, and my fingers don't go white with fright. Nope, all good. For the last couple of months when my hands and fingers have got cold they do like normal people's do and hurt. They don't stop working, and go white, and numb and impossible to warm up without considerable external heat. Put my gloves back on, or stick them in pockets, and they warm back up just fine. I'll take that thanks very muchly. I really cannot remember a time when my hands did not go white in the cooler temperatures.To be honest I'd long since stopped expecting anything to change.(*) high place in the mountains of Scotland
- 90% improvement here.
- I have Raynaud's too and, yeah, it's getting better on ZC. I've been ZC for 5 months now. I used to get several episodes per week and sometimes every day and I'm down to several episodes a month.
- This is very interesting, I'm a sufferer with a long background now of keto eating, but I cycle in and out sometimes on quite a slow schedule weeks/months rather than days). In winter my Reynauds is definitely worse if I'm in ketosis, and one of the criticisms I've seen leveled at keto is that body temps can drop (along with thyroid issues, some claim). If ZC can do the opposite to that, it's a very persuasive reason to go that way.
- The Wheat Belly book has a section on how cutting wheat out of your diet (which you will have done through zero carbs) can have an effect on autoimmune diseases including arthritis and rheu
I have had mild pain and swelling in one foot for 7 months. Other symptoms include redness, burning, itching, that comes and goes usually when I am standing for long periods, during sleep under covers (have to sleep with foot uncovered), or wearing shoes and socks (been wearing sandals). My toes are always freezing cold. Always. But I can’t wear socks because my foot gets burning hot and uncomfortable. MRI results came back and says I have intense bone marrow edema (swelling) on my distal toes as well as metatarsal effusion (fluid). One of the etiologies listed says severe Raynaud’s phenomenon.
I am wondering if anyone has shown similar MRI results?
When I was four, I was sent to the hospital after I was found in bed one morning, completely paralysed. It was discovered that my body was attacking itself, and I was diagnosed with Guillain-Barré syndrome (GBS). My case was so severe, I nearly died on several occasions. Thankfully, the right people were there at the right time, and I was able to recover within a few months. I had to relearn how to walk, talk, etc. However, I’m still left with side-effects, including Raynaud’s Phenomenon. Raynaud’s is a condition which leaves me with blood circulation problems, meaning I’m more sensitive to the heat and the cold. Ask me anything, and I’ll answer to the best of my ability.
So the tip of my wedding ring finger (its wasnt tight, haven't worn it in years) goes sheet white and numb when I surf. It stays that way for up to 20 minutes after I get out of the water, even as the next door neighbor fingers have regained full pinkness and sensation. It feels and looks dead, and is starting to scare me a little- like one day it'll just stop trying to come back to life after a sesh and stay dead...
Does anyone else experience this?
I've noticed that my resting heart rate will creep up over the course of a week, my blood pressure drops and then I end up with a really bad Raynaud's attack.
I don't feel more stressed but I have been feeling more aggravated this week. I tend to dissociate a lot so my awareness of my stress levels can be rubbish.
I'm currently huddled under a load of blankets, wearing 3 hoodies, heating is blasting and a hot cup of tea to try and get the blood back into my hands, toes, lips and nose.
I have Raynaud's Phenomenon, a ridiculous disease/disorder where my body overreacts to cold, withdrawing blood from my hands and feet, and putting me as risk of frostbite, guaranteeing serious discomfort for four months of the year, and giving me hands that are numb and useless for a half hour after I get back indoors.
Anyone in the same boat? Have you found anything (gloves? Electric heated gloves? Some sort of chemical hand warmer?) that allows you to ride your bike through winter weather without suffering damage of serious discomfort?
Any suggestions welcome. I love riding my bike and don't want to give it up because of this ridiculous condition.
After another Redditor commented on reading about POTS, I decided I would too.
Until two years ago when I dislocated my knee quite bad on a ski trip and decided I was sick of it subluxing and dislocating all the time, I booked to see a surgeon. He diagnosed me with hEDS and said there was no real point in surgery as would stretch back out again and while I'm not in pain,to just use my brace.
Then I went down a wormhole of looking up EDS, found you guys and all the info....yup I've got it.
Back to the Redditor reading about POTS, I believe I have it too. But is there a difference between Raynaud's, dysautonomia, and POTS explicitly? Both POTS and Raynaud's seem to be types of dysautonomia?
I also tend to drink 3L minimum of water per day with up to 5L if i eat salty things...I also have issues holding that water in my bowels (no matter how much water I drink, I have had constipation issues for years and years, sorry for the overshare). Is this all linked in anyone's experience?
I don't want to read too much into all this new research and think I have issues I simply don't have. I know I've got hEDS, but POTS too now??? Do I have to modify even more of my life? Should I be eating more salt?? Less water?? It's all so confusing, but I want to be a healthy, functional human and nurture my body. Thank god I only have one joint with pain, unlike many of you poor things :(
21M, 6'0", 145lbs, Caucasian, On Sertraline HCl.
Whenever I stand or sit for a period of time without walking around my feet get dark purplish red and slightly warm. Walking around makes this go away, the same happens to my hands to a lesser degree. People have suggested raynauds, but I have shoved my hands in ice water to test that theory with no change. It only occurs during inactivity. There is no pain or swelling either
Noticed during the winter if i were to stay out for an extended time, my fingers would turn numb and dead white. Toes would turn either purplish or black. Sometimes, it would take about 2 hours for my fingers/ toe to return normal (color and feeling wise)
Hello ! I am a Rheumatologist, currently in my 4th year of residency, in Romania.
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I am a Rheumatologist, currently in my 4th year of residency in Romania. I created a YouTube Channel, Flagship Medicine, where I post highly researched medical topics.
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
Hello ! I came back with a video !
Inspired by the discussion in this community, I created a video about Raynaud's Phenomenon, after a thorough review of the literature, trying to explain from the most simple to more complex mechanisms.
I hope it brings value to your knowledge and if this is the case, I am waiting for a comment on my YouTube Channel (this way it is easier to keep track of them). Thank you very much for your time and support! Hugs!
https://www.youtube.com/watch?v=2hHXt7CUyKI&ab_channel=FlagshipMedicine
