I had glandular fever about 5-6 months ago and since then I noticed my hair was getting much thinner and I could see my scalp was much more noticeable. I would get hair coming out when I ran my hands through it and especially in the shower, the hairs had a little white bulb on the end as well. My hair is now much much thinner and Iโm only 20.
I havenโt seen a doctor yet but Iโm wondering if anyone knows if an illness like glandular fever (mononucleosis) can trigger TE, and if so does it sound like Iโm experiencing it?
As the title says, I am interested in knowing how many people here have fibro that have had either glandular fever (mono) or CMV (a worse form of gf) before?
Princess Mononocle.
Absolutely not a medical professional (and I am a statistician so I know not to base my theory off 3 people!)
But, it just occurred to me... the only people I know who have had 'long covid' also had terribly long recovery from mono/glandular fever. I had an awful case of mono ten years ago as a teen, was taken out of school for six months, and the same story for the other two people I know with long covid. Could it be an indicator?
As title points out - anyone knows someone that made full recovery? Or can I basically give up on that dream? Mine is mild
My 20 year old daughter is due to have her second Astrazeneca Covid-19 vaccination in 2 days time. She hasn't been feeling well for a while and has today been diagnosed with Glandular Fever following a blood test. I note that "low levels of blood cells called platelets (thrombocytopenia)" is a potential complication (see https://www.nhs.uk/conditions/glandular-fever/) and I wondering if it is prudent to delay her second vaccination as thrombocytopenia may be linked with the rare blood clots experienced by a tiny percentage of patients after vaccination? Her doctor has not mentioned thrombocytopenia in relation to her blood test results. Maybe I'm being over cautious.
Hey everyone,
Iโm not really sure if I have ME or not, I suspect I do and Iโve had the tests to rule out most things.
However in the second round of tests I found out I had glandular fever. I got the test results in December 2020 and my actual glandular fever was in February 2020 but at the time I just thought it was flu.
I did have fatigue prior to 2020 and there were some situations where I ended up lying down on the pavement or on benches when I was too tired to go on walking dating back to 2018.
However I think things are a lot worse now as my fatigue is a lot higher and I find a lot of things difficult like walking short distances, being in shops etc
Anyway I started seeing my doctor about my fatigue last year and he was quite understanding and friendly and he did the NHS recommended tests and before the second round of tests he said he thinks it could be chronic fatigue but said to wait for the second round of results.
When I got the second round of results it came up with glandular fever so my doctor said that is what causing my fatigue.
I asked if the fatigue would go and he said it could take up to a year. He said this in December.
There is also a CFS NHS service in my city he mentioned to me in one of our appointments but he said he wasnโt sure if they would accept me as I am already having CBT for mental health issues through the NHS.
Anyway now it has been over a year since the initial glandular fever infection so I was thinking of going back.
However I am also trying the Gupta Program at the moment so I am hoping that will help me.
Anyway what does everyone here think, does it sound like I have ME?
At what point does fatigue from a virus become ME?
The fatigue is seriously limiting my life
So ... Iโve always had bad period pains. Was always told it was normal. I went onto the mini pill which helped some of the pain but I still had heavy periods - which was just how it was between the age of 19 and 24.
Then almost two years ago I got glandular fever (mono). it was a very rough month and I was told I still might feel the effects for up to 6 months. Which I did.
Looking back though, this was when SO many of the symptoms I deal with now first started. Pain on the inside of my hips, pain during intercourse, bleeding in between cycles, random spells of fatigue, leg pains, shoulder pains. These have all carried on and gotten worse (with other symptoms) and more frequent over the last two years until about 6 months ago when my dr said she thinks if could be endo.
I was wondering if anyone has had something similar? It it possible for one illness to trigger it off or make it worse?
Or is this al just a coincidence and Iโm connecting dots that arenโt there?!
Just something Iโve been curious about for the last few months and thought this was the best place to ask!
Hi all, long post incoming.
So Iโve have tonsillitis more times than I can count. Been on antibiotics for it 5-6 times minimum. Usually get the classic symptoms of bacterial: white spots, fever, swallowing feels like broken glass all down my throat, chills, aches, fatigue, nausea, swollen glands.
Now, 4 weeks ago I noticed the white spots on my tonsils, had a very minor sore throat but I only noticed the spots because I was having a peak at my wisdom tooth coming through. I had no other symptoms of being ill, so left it thinking my body was doing itโs job. 2 weeks later and the spots are still there, but no pain, fever, anything. Glands in my neck are swollen and a little tender but thatโs all. Contact my doctors and he prescribed the usual for me - 10 day phenoxymethylpenicillin. I complete the course and there still a few small spots, glands are still swollen and tonsils are swollen.
Went back to the doctor and have been given miconazole gel to treat a potential oral yeast infection that thereโs no real evidence of. Doc said there no harm in using it if it turns out no thrush from the antibiotics. Been ordered a blood test which Iโm getting on Saturday to test general blood health and for glandular fever.
Overall Iโve felt very much like myself. Minor sore throat and swollen glands but thatโs all. Have felt more phlegmy the last week too. Also felt a little more fatigued the last week or so, but nothing crazy. Been doing regular salt rinses, taking it easy with exercise, drinking lots of water, and generally fueling my body well.
Does this sound like a funky case of tonsillitis or something else? Or has anyone experienced anything similar? Itโs not the worst thing and Iโm very lucky I donโt have full blown symptoms for the period of time, but it is rather annoying!
General health: female, 24, non-smoker.
Thanks in advance!!
For those of you who have had mono, and especially if itโs the likely cause of your symptoms:
a) did your CFS follow on immediately? What was the timing around you getting EBV and getting CFS?
b) are there any of you who didnโt know you had EBV?
My illness didnโt come off the back of a virus, but I was told after a very comprehensive blood test that I had had EBVโI knew neither that Iโd had it, or that it could be detected retrospectively. I still havenโt been able to pinpoint when I had it. Best candidates for time are when I was 12, ten years before I got sick, or eighteen months before I got sick, when I may have mistaken my symptoms for stress and depression.
Me: Australian 41F, 175cm, 89kg, caucasian, sertraline and ritalin, autism/adhd, early menopause
My results:
- VCA IgG - POSITIVE
- VCA IgM - Low POSITIVE
- EBNA IgG - POSITIVE
This is the second time in four years my GP has told me I have had a recent/current infection. I originally had it in 1999.
I had had recurring fatigue in the last couple of years and was being tested for a range of autoimmune things. Most recently I had a mild positive smooth muscle antibody test and anti nuclear antibodies test (1:80 for both).
My liver and full blood count was normal. My thyroid was fine except for slightly high thyroglobulin antibodies (8.2H).
I just found this thread but really need a bit of advice. Three years ago I got Post-Viral Fatigue after catching Glandular Fever. It took about 6 months until I felt well enough to get back to work however I feel that it keeps coming back. I feel fine for days, sometimes weeks at a time and then I wake up one day and struggle to put one foot in front of the other.
I've been back to the doctor repeatedly and been tested for everything under the sun and I am healthy apart from this. I do moderate exercise like walking and yoga daily. I have also tried CBT. Nothing seems to work.
My questions really are: Will I ever recover fully from this? How do I manage it?
CFS and glandular fever are suggested to be related. Some doctors believe CFS is set off by a bout of Epstein Barr virus infection.
Have any of you guys get tested for EBV? Can you share your insights on this?
Is there anybody who got POIS after a virus/infection/EBV/glandular fever/etc. ?
Diagnosed with glandular fever, not sure where I stand in regards to post viral fatigue syndrome / cfs
Hey everyone,
Iโm not really sure if I have ME or not, I suspect I do and Iโve had the tests to rule out most things.
However in the second round of tests I found out I had glandular fever. I got the test results in December 2020 and my actual glandular fever was in February 2020 but at the time I just thought it was flu.
I did have fatigue prior to 2020 and there were some situations where I ended up lying down on the pavement or on benches when I was too tired to go on walking dating back to 2018.
However I think things are a lot worse now as my fatigue is a lot higher and I find a lot of things difficult like walking short distances, being in shops etc
Anyway I started seeing my doctor about my fatigue last year and he was quite understanding and friendly and he did the NHS recommended tests and before the second round of tests he said he thinks it could be chronic fatigue but said to wait for the second round of results.
When I got the second round of results it came up with glandular fever so my doctor said that is what causing my fatigue.
I asked if the fatigue would go and he said it could take up to a year. He said this in December.
There is also a CFS NHS service in my city he mentioned to me in one of our appointments but he said he wasnโt sure if they would accept me as I am already having CBT for mental health issues through the NHS.
Anyway now it has been over a year since the initial glandular fever infection so I was thinking of going back.
However I am also trying the Gupta Program at the moment so I am hoping that will help me.
Anyway what does everyone here think, does it sound like I have ME?
At what point does fatigue from a virus become ME?
The fatigue is seriously limiting my life
