Hope encouraging someone with Gastroparesis to look into it. Doesn't sit right with me.
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πŸ‘€︎ u/slothgummies
πŸ“…︎ Jan 11 2022
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After 18 Months we finally figured out my wife's gastroparesis cause. Hope somebody can use this to get to the bottom of their problem.

I know that a lot of you are at a loss for what is happening. I hope this helps, because the half dozen gastrointestinal specialists sure didn't. Three neurologists didn't help. Vascular surgeon didn't help. Family physicians didn't help. Mayo clinic doctors didn't help. Radiologists didn't help.

The TLDR is a cartilage break in the front of her right rib allowed the intercostal nerve bundle (on inside of rib) to get impinged and cause horrific chronic pain (Slipping Rib Syndrome). The intercostal nerve is part of the sympathetic nervous system (fight/flight adrenaline based). When the sympathetic nervous system is stressed it turns off (inhibits) the parasympathetic nervous system. This will be most apparent in the gastrointestinal system in some people, but usually has a cascade effect on the other systems innervated/controlled by the parasympathetic nervous system.

I have a tough time not being frank because of the all frustration, wrong diagnosis, and wasted money along the way. The lack of parasympathetic innervation knowledge among these hotshot doctors is ridiculous. They almost cut out her gallbladder out for no good reason. But here goes, maybe a couple of you will see some parallels and figure your problem out.

My normally healthy wife presented in July 2020 to the ER with severe pain in her upper right quadrant. We thought it had to be her appendix or gallbladder. The pain was easily a 10/10 nonstop. Emergency department did CT scan and radiologist advised slight inflammation of ileum and should check Crohn's. Bloodwork was all normal. Referred to GI Doc. First GI doc thought Crohn's, but we noped out of there from our little town and went to Omaha "where all the best doctors practice". The next GI doctor ordered colonoscopy/endoscopy and everything was normal. The GI doctor ordered a gallbladder test and it was normal. But since her pain elevated while doing the scans, he figured we might as well cut her gallbladder out.

We went to smart surgeon he said "I've seen a lot of young women like you and taking out the gallbladder doesn't resolve symptoms". We were flabbergasted and got a new GI doctor. He was a little smarter and listened to wife better. We told him about how she can't eat, early fullness like she ate two thanksgiving dinners after a couple bites of food. Nausea, constipation. He ordered a stomach emptying test and sure enough wife was extra slow. He hypothesized that maybe she had a virus and it f

... keep reading on reddit ➑

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πŸ‘€︎ u/BigCrappola
πŸ“…︎ Jan 23 2022
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Is Gastroparesis rare in men? Feel like I'm the only man who has it lol
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πŸ‘€︎ u/Leader_golden
πŸ“…︎ Jan 24 2022
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Gastroparesis improved when I went off my anti-anxiety meds

I had really severe stomach problems for the past year since I started my anti anxiety meds (lexapro only 10mg) it didn't do much to help my anxiety and i read online that it could slow your GI tract (or have the opposite effect). I have always had gastroparesis symptoms but they were significantly worse this past year. Now I'm off it and I feel 100x better. i still have gi issues but im not debilitatingly ill anymore. I would suggest changing your anti anxiety/antidepressants if youre experiencing any slowing of your GI tract and see if that helps.

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πŸ‘€︎ u/yazzz723
πŸ“…︎ Jan 26 2022
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Masks and gastroparesis

So I'm at the point where masks are mandatory for the foreseeable future and I've notice the increase in my nausea and just over all feeling light headed. Has anyone else found this to be a issue ? Any tips to improve this ? I have yet to see my gastro specialists and now I've noticed that I'm eating less then a 2 year old. Please help.

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πŸ‘€︎ u/littlestone96
πŸ“…︎ Jan 18 2022
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Has anyone here been diagnosed with gastroparesis along with this?

Hey guys not sure if any of your remember me but I was the b6 contrast dye girl. Of course I didn’t come here to talk about that crap but wanted to hear from any of you who may have been diagnosed with gastroparesis? I was diagnosed with this an recently had a gpoem done to help hopefully but so far no improvement. Is this a common thing to get from sfn or does gastroparesis maybe cause the sfn?

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πŸ“…︎ Jan 24 2022
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Post-Viral Gastroparesis? Or other causes?

I have idiopathic gastroparesis. My doctors have been trying to find the cause and so far they have eliminated through months of testing:

  • Surgery
  • Diabetes
  • Vagus Nerve Damage
  • Autoimmune diseases (they tested for everything except scleroderma bc my symptoms are the opposite what is found in scleroderma)
  • Cancers

That leaves post-viral/post infection gastroparesis. Does anyone here have assumed post-viral GP?

I think its weird because I wasn't sick right before getting GP. I fell asleep healthy one day and then woke up with GP the next, though in the beginning before diagnosis they did see I had a 'slight case of pneumonia' from some chest x-rays. They gave me a weeks worth of antibiotics and the pneumonia resolved. But this discovery of pneumonia happened roughly 1 week after my initial GP attack. Could this still be post viral? Or is there another cause that they aren't considering?

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πŸ‘€︎ u/Questioning0099
πŸ“…︎ Jan 14 2022
🚨︎ report
Helpful Guide for Eating with Gastroparesis From my Gastroparesis Dietitian

I have written this out in comments a couple of times so I thought maybe a Post that people can go to might help :) This is the Eating Guide that my Gastroparesis Dietitian gave me when I was first diagnosed and it has helped me a ton to figure out where to start and what "stage" I am in. I hope it can help you all too :)

Vomiting Daily = Liquids Only (Stage 1)

  • Clear Ensure
  • Clear Fruit Juices (ie apple, cranberry)
  • Gatorade, ginger-ale, Flat sprite/7-up
  • Fat free broths
  • May include saltines if able to keep them down.

Not Vomiting but intolerant of Soft solids (Stage 2)

  • Milk, Yogurt (without solids in it like fruit etc), Yogurt based smoothies
  • Vegetable juice/ Fruit Juice
  • Saltine crackers
  • Ensure, Ensure Plus, Ensure Extra Protein, Boost, Boost Plus, Carnation Instant Breakfast, Glucerna, Kate Farms, Protein Shakes, Meal Replacement shakes
  • Any type of fat/oil consumed moderately
  • Any beverage (Avoid Carbonation/Alcohols)
  • Fat Free Broth
  • Can add supplements here Like liquid vitamins/minerals, Fiber substitutes (Metamucil/Benefiber)

Can tolerate Soft solids, but intolerant of hard Solids (Stage3)

  • Ice cream, frozen yogurt, cheeses (cottage cheese, ricotta, cheese sticks- nothing melted)
  • Pureed Vegetables/Fruit (mashed potatoes, applesauce, baby food purees, etc), Fruit Smoothies, Canned Fruit/Fruit cups (start with peaches)
  • Cream of wheat, cream of rice, Low fiber oatmeals, low fiber white breads- no crust, low fiber cereals if soaked in milk
  • eggs, peanut butter
  • Low fat soups without meat
  • Anything in the previous 2 stages

Maintenance-- Can tolerate Full Solids (Stage 4)

  • Low Fiber Foods (some may also need Low Fat Foods)
  • Avoid Raw or dried fruits/Vegetables
  • Try to have <3 grams of fiber for each serving of carb (breads, cereals, pastas, etc)
  • May Add in Meats (ALWAYS LEAN, and aim for tender pieces that you can thoroghly chew into a liquid before swallowing)
    • First add in tender white chicken (canned chicken/pouched chicken, boiled, baked)
    • 2nd add in Fish (canned, broiled, baked, etc)
    • 3rd Lean ground beef
    • 4th Lean Shredded pork/ Shredded beef
  • May add soups with meat and higher fat if tolerated
  • Anything that was in the previous 3 stages
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πŸ‘€︎ u/Questioning0099
πŸ“…︎ Dec 30 2021
🚨︎ report
Diabetic vs. Non-Diabetic Gastroparesis

I understand that diabetes is the most common cause of gastroparesis.

I'm looking to get a snapshot of the ratio of diabetics to non-diabetics in this forum.

Any discussion of your experiences of diabetic and non-diabetic gastroparesis in the comments is encouraged.

EDIT: Perhaps I should have asked only those whose cases have been confirmed via GES to vote.

If you're here prior to diagnosis but with symptoms, feel free to leave a comment to that effect including any other additional info you want to share.

View Poll

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πŸ‘€︎ u/forsakenangel666
πŸ“…︎ Dec 31 2021
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MCAS vs gastroparesis?

not looking for a diagnosis, just want to know if others have similar experiences

I am currently diagnosed with microscopic colitis, but now my doc is suspecting either gastroparesis or MCAS. My symptoms are:

-after eating even a small amount feel very full and incredibly nauseous; this happens basically every time I eat and has caused significant weight loss -rapid heart rate/palpitations occasionally after eating -had an episode of hives for a few weeks when my symptoms first started but nothing since then -achy knees off and on

Has anyone experienced something like this? My main symptoms are GI-related but tests show the colitis is under control at the moment and shouldn’t be causing these symptoms. I am still actively losing weight because it is so hard to eat. The doctor thinks because of the hives and the heart palpitations it might be MCAS. But she tested tryptase and it was normal? Though I was feeling fine at the time of the test and hadn’t eaten.

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πŸ‘€︎ u/ruthy-13
πŸ“…︎ Jan 17 2022
🚨︎ report
if youve had covid, how did it effect your gastroparesis?

asking this partially out of curiosity, partially in preparation, as im getting tested later today. if youve had omicron, please specify. i also asked the pots subreddit, as i have that as well. i havent heard many stories about covid and gastroparesis, but i figured it couldn't hurt to ask.

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πŸ‘€︎ u/ggarballs
πŸ“…︎ Jan 07 2022
🚨︎ report
Gastroparesis Books

I’m wanting to get some books about dealing with GP. These two have pretty good reviews on Amazon. Has anyone read them or could recommend any others?

The Gastroparesis Cookbook by Karen Frazier

Living Well With Gastroparesis by Crystal Saltrelli

Thanks in advance!

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πŸ‘€︎ u/cfs887
πŸ“…︎ Jan 05 2022
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Can you have normal stool frequency with gastroparesis?
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πŸ‘€︎ u/TahmBench69
πŸ“…︎ Jan 27 2022
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Anybody have IBS-C with gastroparesis? Seriously what diet do you follow? Anything helpful with keeping motility going and keeping you regular?
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πŸ‘€︎ u/hm025
πŸ“…︎ Jan 29 2022
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How do you manage gastroparesis with college?

I'm going into college this fall, I'll be around 2 hours away from home so I can't stay in my usual safe zone. My main problem is that my gastroparesis frequently causes me to have diarrhea, and I will either 1) have to use a public bathroom, or 2) share a bathroom with 1 other person. How do you avoid the awkwardness of public bathrooms or make your roommate aware of anything that might be going on?

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πŸ“…︎ Jan 29 2022
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Do regular probiotics help your prevent gastroparesis flares or does it make it worse?
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πŸ‘€︎ u/Morningglory77
πŸ“…︎ Jan 23 2022
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For those with compession syndromes, what got your doctors to test for them abd what were your symptoms + relation to your gastroparesis?

There's no subreddits for SMAS, MALS or similar topics so.. Hey I guess why not ask here. I'd like to hear y'all stories

To be honest I've been stuck lately trying to find a cause for my gastroparesis. Im trying to check around for common gastroparesis causes in young women my age and what pops up the most is Compression syndromes, EDS and autoimmune conditions.

I've been diagnosed hypermobile by my PCP and comfirmed with mesurements of how far my joints with my physiotherapist, been hypermobile all my life but had a lot of trouble with my joints all time. Growing up the pain just got work and subluxations more frequent, I can dislocate my shoulder at will, dislocated my hand while sleeping, all the fun stuff, did the self assessment test with my sister one evening where we met up for holidays since we're both chronically ill on a hunt to find what the hell is wrong with us and EDS was brought up. We both self assessed with the official test and I could pass it compared to my sister who is not hypermobile at all. But I feel like EDS is too far fetched of a diagnosis right now since I see many others who seems to have it worst than I do, and not only that it doesnt explain other symptoms. Doesnt explain why my GP just suddently became such a burden in my life either.

Autoimmune I tested positive for the markers and currently under investigation, We dont know why they're positive, its not RA though which my aunt has so my joint pain isnt that, but like, why is it positive? Im confused by it, but scared it may be the reason for my GP, but again, unsure.

I've been looking more into compression syndromes and wonder sometimes, I've never been tested, never checked, never mentionned as I've had professionals already clueless about how to treat gastroparesis so.. but Ive been looking at it as a possibility like the rest. Ive been sick since Ive been a kid, had GP symptoms as a child but mild, but I would very often toss and turn from severe abdominal pain, or intense pain in my lower left abdominal area to my back that would spread to the other side when walking too much or doing too much activity. Ive had lifelong IBS-D, but it doesnt cause intense abdominal pain that is there 24/7, right? There must be a reason for the pain, a lot of GI conditions were ruled out and nothing explains it. Being on my back makes it worst and makes me able to feel a large artery beating to my heart, pain is worst when pressing down too so like.. arghh

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πŸ‘€︎ u/ShaariAmairi
πŸ“…︎ Jan 16 2022
🚨︎ report
Intermittent Fasting for gastroparesis (eat from 12-8 pm)

NOTE: NOT FOR WEIGHT LOSS OR TO LIMIT CALORIES. SIMPLY TO REDUCE NAUSEA AND SEVER BLOATING FEELING

Hi,

I was wondering if anyone had any success with nausea by limiting their eating window, which would give your body more time to digest. I have a huge problem of being uncomfortably bloated after I eat dinner. Sometimes I wake up the next morning feeling really bloated and nauseated from what I ate over 12 hours ago.

Waiting until 12pm to eat makes it so that my stomach is actually empty before eating more.

Just curious if anyone has been successful. I've tried Remeron in the past and it did more harm than good. Currently trying to improve things with diet (smoothies, very cooked veggies, light but filling meals)...

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πŸ‘€︎ u/BeaconHillDreamer
πŸ“…︎ Jan 22 2022
🚨︎ report
Anyone who also has gastroparesis?

What was your experience getting diagnosed? And do you have any tips for the process, or for dealing with symptoms?

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πŸ‘€︎ u/ruthy-13
πŸ“…︎ Jan 22 2022
🚨︎ report
I’m being referred for gastric bypass/gastrectomy to treat my gastroparesis and I don’t know how to feel

I am 5’4” (used to be 5’6” but I’ve shrunk due to spinal issues), almost 23, and weigh 250. You wouldn’t guess I weigh that looking at me, I’m clearly a big gal but I’ve had several doctors be absolutely flabbergasted that I look so small and weigh so much. A good term for me is small fat, I am bigger than midsize but I’m not as big as I used to be.

I was diagnosed with gastroparesis spring 2020 weighing 320 lbs. By the end of my first flare (month without eating) I weighed 280 and have trickled down since to 250. Due to my other health conditions (hEDS, POTS, chronic fatigue, degenerative disc disease, arthritis, asthma, sensory overload from autism, etc) I have major exercise intolerance so the closest to a workout I can get is moving around gently to music and a few basic modified yoga poses. I have also worked a TON to heal my wounds from 21 years of extreme abuse at the hands of my birth parents. I was forced into a ton of harmful yo yo dieting, in weight watchers type programs from the age of 8, and developed a gnarly eating disorder in my teens. PCOS made my weight shoot up 100lbs when I was 14, but before that hit I was genuinely pretty happy with my body and weight despite all the fat shaming I grew up with. That all to say this whole thing is very triggering to a lot of old trauma.

I’ve worked really hard to stop hating my body and genuinely don’t hate it anymore. I like my rolls, I like my curves. I don’t feel the need to look malnourished in order to be beautiful enough anymore. Physically I am ok with my size, the only things I dislike about it are more about the world and how accessible it is as opposed to me not liking my body. I don’t have high blood pressure, high cholesterol, blood sugar issues, any of the typical β€œfat person” diseases that of course anyone, fat or skinny, can get. I now come from a very health at every size perspective and my goals with my health do not revolve around weight loss.

I am very nervous about what this process will bring up and require. I physically cannot do a big exercise push to lose 25-50 lbs before starting this process. I’m a wheelchair user and while I do β€œwork out”, my version of a workout that I am happy with is slowly moving/dancing to music while holding onto things for stability and doing a few simple and modified yoga poses to stretch. Sometimes I get the cleaning itch and will push myself way too hard in order to do a few chores then crash for a week after. I’m in the process for getting a

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πŸ‘€︎ u/mostdelicatemoss
πŸ“…︎ Jan 07 2022
🚨︎ report
Losing weight with gastroparesis

It seems impossible to lose weight with this disease. When I'm not flaring, I still have to eat a gastroparesis diet, which means lots of carbs. If I even try to eat anything fiberous or high in protein or fat, I send myself directly into a flare. Of course, when I'm flaring I can easily lose 10-15 lbs, but they come all back the moment I'm done flaring.

It's so frustrating. I wish my weight would just stay stable for once.

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πŸ‘€︎ u/boba-boba
πŸ“…︎ Dec 18 2021
🚨︎ report
Gastroparesis?

Hi everyone,

After periods of hardcore disordered eating and quite a lot of restriction, I always seem to get an issue with delayed gastric emptying.

I ate at 5pm, it was a jacket potato, some ham, some lettuce, some egg whites, etc. It's now almost 2am, and I don't think my food's moved at all. It feels so crap, how do I kickstart my stomach into digesting?

Does anyone else experience this???

Thanks :( I have emetophobia so it's extra scary, just need to feel validated really. I hate this!

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πŸ‘€︎ u/coconutmilk99
πŸ“…︎ Dec 30 2021
🚨︎ report
I need to hear some post viral gastroparesis recovery stories.

I got gastroparesis after having Covid back in January. It started up really badly in March. I've been told that you can recover from post viral gastroparesis. I have been having a hard time staying hopeful with my condition. I would like for someone to tell me straight if this is something I can recover from or not. I would also like for anyone to share their recovery stories.

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πŸ“…︎ Jan 04 2022
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Gastroparesis vs functional dyspepsia

My symptoms are nausea, vomiting, left upper abdominal pain, bloating. I have dealt with symptoms since I was a child. They got worse as years went by. I was first diagnosed with GP. Those that have been diagnosed with FD do my symptoms sound the same?

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πŸ‘€︎ u/Meforever_______
πŸ“…︎ Jan 03 2022
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Is anyone here after having a GI bug that brought on gastroparesis?

I recently had a nasty GI bug I got from my toddler. My mother and my fiancΓ© got it as well. It’s been two weeks, and as everyone has gotten better I’m still really struggling with my stomach.

I’m nauseous all the time, especially after eating. As someone who is not shy about eating their fair share, I now can’t finish a meal. At the end of the day sometimes I vomit because I am so bloated, and I feel like I’m stuffed to my mouth- and when I do throw up, there is undigested food from the morning..

I’m finding it really hard to drink too. Water feels really heavy on my stomach and really fills me up. So I’m not eliminating the same either :/

Other than seeing a doctor, which I’m waiting to do. Can anyone give me any advice? Thanks!

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πŸ“…︎ Dec 26 2021
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Gastroparesis Diet but Allergic to Dairy!

I just got recommended the GP diet as an attempt to figuring out my GI symptoms, and don’t find it too difficult… My only problem is that I’m lactose intolerant and therefore can’t stomach all the low fat dairy products, has anyone tried nut/oat milk, and if so, did you have problems?

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πŸ“…︎ Jan 10 2022
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Is anyone here overweight or obese? Trying to lose weight with gastroparesis

I've gained a lot of weight over the past few years. My BMI is currently sitting at 33 or 34 (I'm 215 lbs and either 5'6.5" or 5'7"). In September I was diagnosed with gastroparesis. I didn't think I had early satiety, but we did a lot of testing to try and figure out where my nausea was coming from and the GES came back with delayed emptying. I think I might get full kind of easily after all, I just power through because I have a bit of a problem with self control and food. This is going to sound stupid, but I thought feeling like you can barely move after eating and regurgitating food was just a normal part of being full.

My GI NP sent me to a dietitian after the GP diagnosis who told me to eat 6 small meals a day that are low fat and low fiber. I went off all my fiber supplements (for IBS) but honestly haven't changed my diet much, which I know is bad. I'm not on any treatments for the GP because my NP told me they only use medications if you're losing weight from vomiting. I take promethazine prescribed by my neurologist, so I don't usually vomit. I'm also on Amitiza for IBS-C, but I don't think it affects the stomach portion of the digestive tract. Since I'm not managing my diet, I still have nausea, burping, and regurgitation. I'm going to be seeing a new GI at the end of January. I want to get a second opinion on a few things (NP told me I can't have acid reflux and stopped my Protonix, that I have to just live with the painful urgency from my IBS, etc.) and decided to change all together.

For all of my GI issues I have GP, IBS-C, and they removed my GERD diagnosis but I think it's still a possibility. Instead of eating small spaced out meals, I just eat one large meal and one snack a day and feel terrible. I have problems with the discs in my back that have needed surgery before, and I'm in a lot of pain right now and I'm sure the excess weight is not helping and needs to go. I've lost weight in the past with restrictive diets, but I always get tired of tracking my food and eventually stop, leading to gaining it all back. I don't know how to lose weight with GP. I know I need to follow a GP diet, but weight loss diets tend to emphasize fibrous vegetables and whole grains to keep you full. I'm obviously not supposed to have these, but I'm worried cutting them out while reducing my calories is going to leave me hungry. I'm going to speak with my PCP this week because I got a sleep study recently and the results recommended starting "medically super

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πŸ‘€︎ u/MsFuschia
πŸ“…︎ Dec 13 2021
🚨︎ report
Are there specialists for Gastroparesis? My GI kinda just threw up his hands and said I need to find one

My ENT order some barium swallows and I saw my GI the same day. I asked if there's anything that can be done for Reflux/Burn/Gastritis issues and the Gastroparesis issues (medication to control failed); at the very least something for symptoms. He dodged all questions related to symptoms, when I inquired about procedures and therapy's I was going to have to find someone else. What profession that is, he didn't elaborate.

My only hope is my ENT knows a General surgeon that also specializes in Gastric issues and in his word knows more about specific medication, therapy's, procedures that need to be done.

But that still puzzles me as to what other specialist is there and why wouldn't my GI know? Do I have a bad GI?

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πŸ‘€︎ u/MrMoros
πŸ“…︎ Dec 15 2021
🚨︎ report
I (18M) have Irritable Bowel Syndrome and Gastroparesis AMA
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πŸ‘€︎ u/JoshDaMan765
πŸ“…︎ Jan 14 2022
🚨︎ report
Could gastroparesis cause my ADHD medication to have a very delayed absorption?

I’m newly diagnosed and don’t know a whole lot about gastroparesis yet and was wondering if it could effect medication absorption wether it be in delayed onset or effecting the ability for it to be absorbed at all. I have noticed some days it just feels like my meds are not working at all and then at some point in the evening I feel as if my meds kicked in out of nowhere as I’ll feel more awake and able to be productive/focused. It can also really mess with my sleep

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πŸ‘€︎ u/goosterben
πŸ“…︎ Dec 24 2021
🚨︎ report
I have gastroparesis from childhood trauma, my vagus nerve is fucked. I can't see anything but a slow decline in my physical health? Like, I'm just slowly losing my stomach :(

.

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πŸ‘€︎ u/Leader_golden
πŸ“…︎ Jan 26 2022
🚨︎ report
Can long term use of pain killers cause Gastroparesis???

Hello guys, 22f here.

I have spinal problems from 2years now and in the beginning I took a loot of NSAIDS I stopped them 1 year ago and started taking Tramadol in combo with paracetamol and baclofen for intermediate pain relief for my cervical spine.(everyday)

The thing is that I took them for so long and I had vomiting episodes I dismissed as stomach being sensitive of the meds. I have used PPI before and everything was ok. Since December I started having abdominal pain under my ribs in the middle that will resolve with med for cramps and cold compress. In December I got COVID and things went downhill i couldn't go to the doctors but the pain was horrible it resolved after few hours. I went to the ER several times they did x-rays and ultrasound (the doc noted head of pancreas was bigger but then I had 3 more ultrasounds and nothing was seen) (I have stopped using the painkiller almost the next day)

I had CT scan which noted a small probable cyst in my liver and nothing else. Family radiologist saw that my duodenal walls are more thicker and I am scheduled for endoscopy and colonoscopy on the 18th. I am thinking of the worst since I have some concerning symptoms:

⚫ abdominal pain (stabbing like something is squeezing my intestines)

⚫ back pain sometime lower back and in the middle

⚫ change in bowel movement

⚫ I saw 2 times that I have dark blood in my stool And the stool is lighter sometimes

⚫ I have a lot of gas

⚫ Hiccups from time to time.

⚫ I have stopped vomiting for nearly 2 months

⚫ I feel full even If I haven't eaten

⚫ I noticed that when I eat I have less pain and then it comes back when I stop.

⚫ bloating

⚫ I believe I have hemmoroids since my anus is tender and bleeding with constipation.

⚫ Tender stomach to the touch.

⚫ I have general numbness in my libs but I gave it to my cervical spine issues.

MY TESTS:

⚫ CT scan with contrast

⚫ 4 Ultrasounds

⚫ 2 x-rays

⚫blood panels ( i have higher d-dimer and anemia that I believe is with me for a long time) My pancreatic enzymes are fine And my liver too.

⚫ urine test is noting I have 5 tomes the norm amount of white blood cells.

⚫ Neg for h pylori and kalprotectin in stool sample

I need some help with scanxiety it drives me crazy, I'm always thinking im dying.

My grandfather (79) has pancreatic cancer atm.

Did somebody here have similar experience or knows someone who had

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πŸ‘€︎ u/ipsi_dipsy
πŸ“…︎ Jan 15 2022
🚨︎ report
Anyone here have Gastroparesis and sibo?

I’ve been suffering from gastroparesis, sibo, slow motility, gerd and what I believe to be Candida overgrowth. Does anyone else here have delayed stomach emptying and gerd?

I’ve started taking motegrity and it’s only been helpful in reducing my bloating. Reflux is sadly still there. The heartburn is my most difficult symptom to deal with. Currently I’m following a low fermentation diet. How do you guys take the motegrity? Doc told me to take it in the morning but I might switch to night time as I think that may be the issue.

Any help is appreciated. Thank you

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πŸ‘€︎ u/cheezepuffzs
πŸ“…︎ Jan 24 2022
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Off and On Gastroparesis

Does anyone else’s condition come and go? I will go months with no symptoms, then weeks of symptoms. It’s bizarre. And when I have the symptoms, there is nothing I can do to make them better. And what is even more bizzare is that my diet appears to have nothing to do with it. Prior to getting symptoms this last time, I was eating very clean. Prior to that I was eating like crap and had no symptoms. Make it make sense!

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πŸ‘€︎ u/Krober89
πŸ“…︎ Dec 24 2021
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Gastroparesis and its Impact on Enzymes

I have a pretty intense case of gastroparesis that was diagnosed within the last year. I’ve also lost over 30 lbs in the last year without trying. I’ve experienced some intense flares and am now struggling daily to get food down.

The problem that I’m running into is that it seems when I can eat, my enzymes aren’t working. I will alternate from Zenpep to Creon but it seems like the cycle time is shortening.

I was able to gain 8-10 pounds back over the course of a few months. I saw that gain vanish in the last 2 weeks. What concerns me is that I was actually doing well with eating during that time. I’m now back to not being able to eat easily and the weight loss has leveled off. I’m so confused about it all.

But I’m also worried about my Trikafta being absorbed properly.

During my last clinic appointment, we discussed when a feeding tube will be needed and it’s a matter of trying to avoid that. I am about 10 pounds away from the benchmark my doctor established. Part of me just wants the damn tube already so I can live my life. I have found myself reserving my energy for work and that’s all I have in me. I miss being able to exercise.

Not sure what I’m looking for in posting this. I think I just needed to vent. I really want to be positive and optimistic but finding it hard.

Any tips on helping appetite would be great. I already rely on medical marijuana but even that’s a crap shoot.

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πŸ‘€︎ u/AZPines
πŸ“…︎ Dec 13 2021
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What's up with (predominantly) young women and the triad of EDS, FND, gastroparesis and other chronic pain syndromes?

Hi all, hoping for a little insight here. I've noticed since graduating (and on social media) there is a significant population of young people with multiple overlapping diagnoses like EDS, FND, gastroparesis, CRPS, POTS etc.

In my experience in a small DGH, these people tend to be admitted with severe symptoms, few (if any) demonstrable pathology (e.g. severe nausea, vomiting, no intake for weeks) but little in the way of biochemistry/pathology/test results to suggest a... reversible pathology. Alternatively, they are admitted with a multi drug resistant bug secondary to a line infection/blocked tube etc.

Is there some unifying diagnosis or underlying thing that is a better explanation for what's going on? How best to manage these patients' conditions when they are admitted to hospital? I accept it may be something I overlooked in med school, but why do these patients typically have /so much/ wrong with them?

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πŸ‘€︎ u/Myeloperoxidase
πŸ“…︎ Oct 31 2021
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She's wearing the gastroparesis shirt again
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πŸ“…︎ Dec 11 2021
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Disability Coverage and Working with Gastroparesis

Has anybody received short or long term disability for their gastroparesis? A couple months ago, I started working again after managing my flareups, but recently I've missed a lot of work due to vomiting and nausea from the condition. I just want to cover all my bases to make sure that I am protected and the company as well. If anybody has any experience with this, I would really appreciate your insight and advice.

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πŸ‘€︎ u/carmensandiegoky
πŸ“…︎ Jan 04 2022
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Severe GERD? Check for Gastroparesis.

Hi all! So Ive been battling GERD like crazy after a bout with food poisoning in July - I don't have typical symptoms of Gastroparesis (nausea, vomiting, bloating, constipation), but I DO have acid reflux and heartburn, confirmed by a PH study/manometry.

But yesterday I completed a gastric emptying test and they determined I have a severe delay in my stomach emptying, which is causing my GERD.

I was about to have a fundoplication on Jan 3rd to help correct the acid reflux, but my problem is really stemming from Gastroparesis. Anyone else suffer from this? What have you done to help?

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πŸ‘€︎ u/hrh7786
πŸ“…︎ Dec 16 2021
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Does having gastroparesis complicated conceiving a child or giving birth?
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πŸ‘€︎ u/projectskye
πŸ“…︎ Dec 15 2021
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If anyone is feeling nauseous with gastroparesis drinking a sip of water every time I'm feeling sick helps me also if u feel run down I have this drink called get more vits (recovery) and it's helping me so much (cranberry flavour)
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πŸ‘€︎ u/projectskye
πŸ“…︎ Dec 14 2021
🚨︎ report
Does anyone have these symptoms with gastroparesis?

Okay so I’ve been sick for two months now and I have this weird problem that comes up every couple weeks or so. When I have a bowel movement I get EXTREMELY sick. I get super nauseous while I’m going and then the rest of the day feel like I am dying and get these insane dizzy spells like I’m going to faint. I lose all appetite and I feel totally off for the next few days. I’ve tried to find things on this but can’t seem to find anything similar. Does this happen to anybody else? Also I’d like to note I got gastroparesis mysteriously and it all started with a random dizzy spell like I was going to faint and then I threw up with diarrhea that day and have never recovered since. I have never had issues before this. Im am really struggling mentally and physically and feel so lost and helpless. I feel like my body is just killing itself slowly. Again if anyone has experienced what I mentioned before so I can have some peace of mind let me know. Also any advice would be so much appreciated. Thank you for taking the time to read all of this.

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πŸ‘€︎ u/teeniefeet
πŸ“…︎ Oct 29 2021
🚨︎ report
Gastroparesis Diet Advice

I was recently diagnosed with diabetic gastroparesis; and my GI wants me to start on a Phase 3 Gastroparesis Diet for several months to see how I do. The guidelines I was given are fairly restrictive, and only one example of each meal/snack were given.

Is anybody else living with gastroparesis and have some good recipes that you are willing to share? I’m worried that I will get very bored of the diet and fall off the wagon quickly. Hoping someone out there has more culinary creativity than me!

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πŸ‘€︎ u/kyleruder
πŸ“…︎ Dec 28 2021
🚨︎ report
I’m being referred for gastric bypass/gastrectomy to treat my gastroparesis and I don’t know how to feel /r/ChronicIllness/comment…
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πŸ‘€︎ u/mostdelicatemoss
πŸ“…︎ Jan 07 2022
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Anyone have hair thinning from lack of nutrients bc of gastroparesis?

For the last six or so months, I’ve noticed that my hair is progressively getting thinner and thinner. At first I thought I was having male pattern baldness but after some investigation, I have a feeling that my hair thinning is actually due to a severe lack of nutrients because my hairline isn’t receding and there is no indication of balding. I’m wondering if anyone else has experienced this and what you did to combat it? I’ve been looking at biotin supplements in the hopes that would help. I know getting adequate nutrition is the best option but that’s been pretty difficult as of late.

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πŸ‘€︎ u/julian_greyson
πŸ“…︎ Dec 28 2021
🚨︎ report
Gastroparesis ?

Ive been suffering with Anorexia. I have noticed that I am developing symptoms that seem to be Gastroparesis. Feeling full after eating barely anything, no appetite, etc. I have a feeling I am developing it. But, what I noticed was that its on an off. Some days my stomach/appetite seems normal. Other days I have major symptoms. Barely can choke down any food, reflux, no appetite, nausea, full/bloat, etc. Anyone else suffering with Gastroparesis experience "flare ups?" Or anyone else have on and off symptoms with it? Any insight helps. Thanks:)

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πŸ‘€︎ u/daniellebonelli
πŸ“…︎ Jan 09 2022
🚨︎ report
What other disease is associated with your Gastroparesis?
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πŸ‘€︎ u/Alive-Ad-2392
πŸ“…︎ Jan 21 2022
🚨︎ report
Insomnia and gastroparesis?

I know most if not all of us have sleep issues with gastroparesis. I wanted to know if people still have issues even after taking sleeping pills and other things like tea. I've had times where I can take multiple things one after another and still can't sleep. So I was wondering if other people have the same issue.

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πŸ‘€︎ u/No_Conclusion2658
πŸ“…︎ Dec 18 2021
🚨︎ report

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