Part of this story is of what my mom told me
As all of you can get from the title, I had cancer.(that also explains my username) That happened when I was around 3/4 years old and I can barely remember most of it so I will be telling my mom's side of the story. Also this will be a pretty long story...sorry for any orthographic errors, I'm on mobile
When I was 3(almost 4), my mom said that I would walk funny, like as if it hurt to walk and she also said that was always whining and crying because I wanted to be picked up, during night I slept on top of my mom's stomach, and I would be in this weird position and she said that I wouldn't stop moving at night.
It got to the point that she got more and more worried and she didn't know what to do, so she decided that she would take me too the hospital.
When we got there, the doctor said it was nothing but a small fever and a sore throat (like that had anything to do with my problem), my mom was not satisfied, but my dad told her to trust the doctor and we went home.
The next day we went to my grandmother's house, and of course she had to criticize my mom "there's nothing wrong with her, she's just a whinny child" or "she's like this because you spoil her so much, she's just spoiled!" Or even "if you didn't pick her up so much she would walk on her own and be less clingy and whinny!" and so on.
This puffed my mom off, because she knew something was wrong with me, so she kept going to different doctors and they all would dismiss it saying that "it's just a fever, I'll prescribe her an antibiotic and she'll be just fine", but I wasn't fine, If anything I was only getting worse, I started crying more and whining to the point I couldn't breathe... The fifth and last doctor I went to did the same thing so my mom said:
BME: best Mom ever
D: Dad
BME: "No!"
D: "No what?"
BME: "I am not giving her this, it's the fifth antibiotic and I'm done, she is not getting better and I don't care what that doctor has to say, we are going to another hospital!"
So we did, and that day I was getting so bad that I was in and out of conscious, we got to this new hospital a bit far from our home and when we got there, they refused to see me because they needed a signed letter from a doctor or something like that (I think it used to be like that), my mom snapped, she said she literally picked me up and forcefully entered the room were they took you in, shouting that she needed help, a young doctor (my savior) took one look at me
... keep reading on reddit ➡Like how does it change the functions of the kidney molecules? Just speed it up or are there other functional differences?
Good afternoon fellow Dads. I have a story to share, and some basic advice to give as well. I've been a lurker in this sub for a long time, enjoying lots of posts, pictures and stories of your own kids. My wife and I had a normal, low key family life for the past three years, so I didn't really have anything to post until now. Brief synopsis of my family:
We have a 3 year old daughter and a 2 month old daughter. My wife teaches school and I work in construction management. We own a home in a small town in NC, and basically life is awesome. Not perfect, but we're a happy family of 4. My folks live in NY, and her folks live about an hour away in NC.
Back on Wednesday August 16th, we found a small lump on the left side of my 3 year old daughter's abdomen. We didn't think much of it since it wasn't causing her any pain and wasn't restricting her movement. We said, if the swelling doesn't go down by tonight, we'll bring her to the pediatrician Thursday morning first thing just to see what, if anything, is going on. Swelling didn't go down, so the next morning I brought her to the pediatrician to get it checked out.
We got there around 8:30am, and they did the typical exam, along with a bit more examination of the abdomen. I saw the look on the Doc's face of surprise and confusion, and she said, you need to head to the hospital to get an ultrasound to see what this is. A bit more worried than I was that morning, we got back in the car and sped over to the hospital, about 20 minutes away. They put us in the queue for an ultrasound, and were taken back shortly. My daughter was acting completely normal, playing, laughing and joking with the nurses. The doctor looked at the ultrasound for a few minutes, and asked the nurse to take my daughter out in the hall to look at some stickers.
She closed the door, and said very plainly, "I am so sorry, but it is a neuroblastoma." To which I replied, "What's that?" because I'd never heard of such a thing. She said " It's cancer."
I was taken aback, didn't really know what to say or do and immediately felt sick and my eyes welled up. I managed to keep it together enough to go back out and hug my daughter, call my wife and get her to the hospital immediately. We then began the most difficult two week stretch we hopefully will ever have to endure together.
They sent us to a different hospital that same day that specializes in pediatric oncology and surgery, where we were told it was actually a Wilm's Tumor, and tha
... keep reading on reddit ➡
My cousin's 6-year old daughter, Amelia, recently got diagnosed with a Wilms tumor on her kidney. She's currently in the hospital and will be undergoing surgery on Monday to I believe remove her entire kidney.
My aunt (so her grandma) has asked people to send her cards, so I figured this would be a good place to ask.
Amelia has been in good spirits so far, and I believe the prognosis is generally good for a Wilms tumor, but it's still a very scary time. Amelia's father is currently deployed in the Navy, but thankfully they have allowed him to come back home to be with Amelia.
Here is Amelia in the hospital yesterday
Please PM if you're interested and I will send you the address.
Thanks everyone!
Hi /r/assistance! I’m here posting on behalf of very close friends (family to me) who do not “reddit”. I’ve been sitting here staring at my screen not knowing how or what I should write in my intro to you. This family situation is so close to me personally, my head is an emotional mess of unfinished thoughts. I feel like I have only one shot here to gain readers attention and… am already blowing it for the family.
I know “copy/paste” is considered tacky etiquette here on reddit, but Dorothy’s grandmother wrote out a very concise update on the situation and… she’s a Grandma. Grandma’s can explain things better than guys can.
The rules state that there must be a general location added: San Luis Obispo, Ca.
Dorothy's GoFundMe Page link is this sentence.
Dorothy's Facebook “Team Dorothy” Page is this sentence.
Redditors, thank you so very much for your time reading! I will be around periodically to answer any questions anyone may have. If I did anything wrong in making this post, please let me and I will add/amend anything!
> Hi Friends. I am Dorothy's Grandma Marianne and so happy to be a part of this wonderful little girl's life. She is a sensitive, loving person and brings joy to my life and all those who know her. In her most recent update by Dorothy's mother Shannon, she explained that some protein was found in her urine. This indicates that her remaining kidney is "stressed" and working harder than it should. They will repeat the same test in two months and if there is no improvement the nephrologist is recommending starting Dorothy on blood pressure medicine to prevent her kidney function from worsening and leading to kidney disease. She would potentially take this for life.
> We would like to take every opportunity and explore every avenue to prevent her from needing this medication so in the next couple of months we hope to do everything that we can. Dorothy has been through so much in the last year including surgery to remove her left kidney and tumor, chemotherapy and radiation. Since completing treatment, our focus has been on detoxing her body from the chemicals and radiation and building back up her immune system. There are many things we can do to support her body and help her remaining right kidney to heal. We have a great team of Doctors who are working with us to give Dorothy every opportunity to bring homeostasis to her body.
> Shannon a
... keep reading on reddit ➡Hey y'all. Been browsing this sub for a few weeks ever since we found out my son had a Wilms tumor. Today makes a month since his surgery to remove what we thought was a hydrocele-simple fix- that turned out to be a Wilms tumor, caused by pediatric kidney cancer. He is one of maybe 70 people in known literature that have had a free standing Wilms tumor instead of on a kidney, and so is one kidney ahead of the 99% of kids with this type of cancer. After another surgery for his chemo port placement, we are now 4 days into his 6 radiation treatments and one week into 25 weeks of chemo. To be told your child has cancer makes your heart stop...and I know you guys know what I'm going through. Would love to talk with anyone going through chemo with a young child past or present... And I wish all your children recovery.
My wife and I just got to Children's Hospital of Philadelphia with our 3.5 year old boy to treat what looks like a Wilms Tumor. We are learning more each time we talk to the doctors, but I'd appreciate any anecdotes, advice or general well wishes.
Running in the Disney Princess Half Marathon next month to celebrate being a 30 year cancer survivor on my 31st birthday! I've been able to raise 2000 so far with some help from some awesome redditors. Working now on reaching 3100. If you have 5 dollars you could donate that would be greatly appreciated! Please check the link for more information and to donate :)
http://www.alexslemonade.org/mypage/117878
Please find the link to my site here: http://www.alexslemonade.org/mypage/1113575
My cousin's daughter has been diagnosed with Wilms'. They recently went to do surgery and found out that the cancer had spread, despite some chemo.
"Her tumor is attaching to her vena cava, and her surgeons didn't want to risk removing it and causing further harm. They took a few biopsies, they're going to look and see if there's something else aside from her Wilms tumor. As of right now, it could either be another surgery, with a larger group of surgeons, and more equipment there if need be, or a more aggressive form of chemo."
The daughter is two, and I understand Wilms' is generally prevalent in younger kids. Anyone who has experience with something like this, either this form of kidney cancer or something similar? I'm on the other side of the planet right now and a little out of the loop, but I'm hoping I can get some more information from a community like this - both for my own peace of mind, and for my cousin and her husband.
Hi reddit! A friend of mine is participating in St. Baldrick's this year. He is sponsoring this little girl Alyssa.
http://i.imgur.com/lIbrC.jpg
At the age of 4 she got diagnosed with stage 3 Wilms tumor and had to go through 12 weeks of chemo to shrink her tumor. She had her kidney removed and then another 12 weeks of chemo. :( It's a lot for anyone to go through, let alone a 4-yo
The onions were overwhelming when I looked at the photos, and as much as I'd like to give her why whole salary, I have a kid myself. This is the donation page. If you can spare a buck or two, I'm sure her family would be very grateful. you can also look at more photos of her and read about her life.
http://www.stbaldricks.org/participants/mypage/530214/2012
My cousin's daughter has been diagnosed with Wilms'. They recently went to do surgery and found out that the cancer had spread, despite some chemo.
"Her tumor is attaching to her vena cava, and her surgeons didn't want to risk removing it and causing further harm. They took a few biopsies, they're going to look and see if there's something else aside from her Wilms tumor. As of right now, it could either be another surgery, with a larger group of surgeons, and more equipment there if need be, or a more aggressive form of chemo."
The daughter is two, and I understand Wilms' is generally prevalent in younger kids. Anyone who has experience with something like this, either this form of kidney cancer or something similar? I'm on the other side of the planet right now and a little out of the loop, but I'm hoping I can get some more information from a community like this - both for my own peace of mind, and for my cousin.
