I wrote a bit about my recovery from the Mayo Clinic's CSF-venous fistula endovascular therapy dinosaurdreams.substack.c…
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πŸ‘€︎ u/Rickasaurus
πŸ“…︎ Jan 20 2022
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The smell of cauterizing venous flesh

I got a giant air wisp of this to the face today. Took my entire breath away lol what’s your bad smell story?

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πŸ‘€︎ u/-no_one
πŸ“…︎ Jan 26 2022
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6 Days Post-OP from Venous Sinus Stenting

Hello all, I firstly wanted to thank everyone who took the time to reply to my previous post asking questions about deciding between the stent or shunt procedure.

After meeting with the neurosurgeon for the shunt and the neurointerventional radiologist for the stent β€” we decided the stent procedure was the best fit for me. My surgeon said the narrowing that was remarked on my MRI/MRV was a good indicator that I qualified for the stent procedure.

For those deciding or going to have the stent soon here’s my recollection of everything…

I had to start taking plavix (blood thinner) and baby aspirin a week before the procedure. I had to get a pre-op covid test three days prior. The procedure normally requires an overnight stay so I had things packed and ready for that. However, because of the covid cases the hospital was full and we successfully managed to pull off an outpatient procedure where I went home that afternoon.

When I got there at 9:00 am I provided a urine sample for a pregnancy test, changed into a gown, got some grippy socks, got into a bed. They hooked me up to a monitor, then an anesthesiologist came and spoke to me asking about my medical history and I told her I was nauseous. They hooked me up to an IV and they also gave me some anti nausea medication. They also used something to find a good pulse in my feet and marked them. Which one nurse later said was cheating which I chimed β€œwork smarter not harder” in response to. After going through a bit more red tape like current medications and such, they took me back to the procedure room. I got a fun blue hair net.

The plan was to perform the cerebral angiogram under sedation and then switch me over to general anesthesia to place the stent. Being as I was sedated, the procedure felt very fast and very slow at the same time. I could feel the catheter in my head but not in a way that was terrifying. There was some mild discomfort, but again I was sedated so I wasn’t that aware of it. Because of the anatomy in my head they decided they would be able to place the stent without much discomfort to me and thus without putting me under general anesthesia. They didn’t tell me what was going on though so my thoughts were β€˜this is taking too long for an angiogram’ β€˜are they looking in both sides’ β€˜why is nobody talking to me’ β€˜can I speak with this catheter in my brain’… After a while I started dozing off and waking up snoring. Then they finally woke me up to tell me they were done and the stent was p

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πŸ‘€︎ u/DanyRoseVG
πŸ“…︎ Jan 18 2022
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Could the DTR cause venous leaks or any other serious issues?

Is this possible? I'm having trouble finding the actual cause of venous leaks it all looks very vague. A guy posted today about it and it's always been a fear of mine as I use the DTR and am terrified of permenant injury, including peyronies.

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πŸ“…︎ Jan 17 2022
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Abnormal Venous Blood Gases

When I had my right heart cath, there was also a portion where I exercised for 5 minutes. They took blood samples at rest and during the exercise portion. At rest my venous blood gases were normal, but during exercise they were not.

During exercise, my lactate increased from 0.8 to 3.9, my pH dropped from 7.32 to 7.22, my O2 increased from 70% to 75%, and my CO2 increased from 50 to 59. Doctors don't know why I seem to be using anaerobic metabolism to fuel the exercise. The resulting acidosis would explain some, though not all, of my symptoms, but without knowing why it's happening, it's just interesting data.

Just thought I'd share.

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πŸ‘€︎ u/Pegazebracorn
πŸ“…︎ Jan 06 2022
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Ultrasound shows venous insufficiency and varicose veins.

I had an ultrasound completed on both of my legs yesterday due to them feeling heavy and slight swelling in calves. Radar showed venous insufficiency in the right great saphenous, sapheno-femoral junction and common femoral vein. There is also evidence of valvular incompetence involving the left great saphenous, common femoral and femoral veins.

Anyone else have experience with this? I’m nervous. :(

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πŸ“…︎ Jan 27 2022
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Anything that works for venous leak besides an implant?

Does anyone found anything that worked for him in case of venous leak?

I did PRP, testosterone, daily cialis and now I'm using a vacuum pump, but there is no real effect until now..

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πŸ‘€︎ u/Suitable-Bid-3494
πŸ“…︎ Jan 28 2022
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Superior Vena cava syndrome A 59-year-old man with hypertension and Crohn's disease was found unconscious at home. He was being treated with infliximab administered through a central venous catheter, which had been placed for long-term intermittent treatment. medizzy.com/feed/32084029
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πŸ‘€︎ u/GiorgioMD
πŸ“…︎ Jan 08 2022
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Doctor drills his own leg with IO needle! EZ-IO is an intraosseous vascular access tool that is used when venous access is difficult or time to get vascular access is critical. v.redd.it/now298vsvam71
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πŸ‘€︎ u/Surgeox
πŸ“…︎ Sep 08 2021
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Is there a possible connection between finasteride and a venous leak?

Hi all:

Been on fin for about 5 years now. I was recently diagnosed with a venous leak (have no trouble getting an erection, just maintaining it). I am not trying to be a conspiracy theorist here (I love fin it has worked amazingly for me), but could there be anything that points to a connection with the leak with fin? I have never seen anything that would indicate so but wanted to check with the greater community.

Thanks!

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πŸ‘€︎ u/Newtoschool11
πŸ“…︎ Jan 15 2022
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Post-SARS-CoV-2 vaccination venous sinus thrombosis: a literature review of 308 cases ejnpn.springeropen.com/ar…
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πŸ‘€︎ u/icloudbug
πŸ“…︎ Dec 30 2021
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Never had 240fps option in manual video venous. before thought I'd share it.
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πŸ‘€︎ u/___Psychopath___
πŸ“…︎ Dec 25 2021
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The moment when you find good venous access.
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πŸ‘€︎ u/CalicoRebel
πŸ“…︎ Nov 17 2021
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venous leak??

i am 24 male with right side small hydrocele and erectile dysfunction with very low t levels and zero sex drive.

my penis is soft all the time even if i get little erection at night , or during sleep i am not sure what is the reason maybe its venous leak as blood doesn't flow fully in the penis .

anxiety and depression due to situation is another thing .

i was a masturbator from past 10-11 years. ,😭😭

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πŸ‘€︎ u/iamvdisturbed
πŸ“…︎ Jan 26 2022
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Symptoms of Venous Sinus Stenosis

So I have symptoms of Venous Sinus Stenosis mentioned Here. And I went to my ENT and even got a MRI. She said that the reports are normal and there is nothing to worry. Just ignore the pulsing sound and it will go away. I also have very minor hearing loss is same ear. Should I get a second opinion, refer to another type of doctor or just do what she said. I even sent her about Venous Sinus Stenosis asking about it(on chat) and she didn't even mention it on our call. She just said MRIs are fine and there is nothing to worry. Am I being Paranoid?

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πŸ“…︎ Dec 14 2021
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SRS and venous stasis

Hi, I have a SRS appointment in March at the Suporn clinic. I went to the urologist today and the doctor found venous stasis and varicose veins in that prostate area. The urologist said that this could lead to complications during the surgery, he would not prescribe any new medications (I am already taking bicalutamide and dutosteride) and said that I should inform the surgeon and he would decide what I should do. But I'm afraid that if I tell the surgeon about this problem, my surgery will be cancelled altogether. Have any of you had a similar experience? I would be very grateful for any information. P.s. I feel really bad right now and can't stop crying.

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πŸ“…︎ Dec 25 2021
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Since one week trouble maintaining erection while standing up. If I get a doppler with induced erection and the bloodflow is fine, can I definitely exclude venous leakage?
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πŸ‘€︎ u/panicthrowaway277
πŸ“…︎ Dec 05 2021
🚨︎ report
Does anyone have experience with a venous stent after rib resection (last paragraph)?+ my story

I have had a long history with TOS so here's most of the story. I am 17 and have been a competitive swimmer and basketball player for nine years, training up to 20 hours a week. In 2017 I was in the middle of swimming practice and my arm got very sore and I noticed it was very swollen. I went to my GP the next day and they thought it was odd so they sent me for an ultrasound and x-rays. These both showed nothing. The constant swelling and pain persisted for about 2 months so I consulted physio. Physio thought I probably had microtears in my rotator cuff from overtraining and repetitive motions with swimming. I went to physio for three years and tried multiple people with different approaches. Whenever I swam my left arm (non-dominant arm) would get extremely painful, swollen, tingly, and discoloured. Physio, chiropractor and massages did not help with relief.

Physio told me I probably would need to just stop training for a bit to let my arm heal. So with covid lockdowns, I was out of the water for 4 months, the longest time ever for myself, and decided that if it wasn't better when I was back in the pool I would go back to the doctor. In my first practice back in the pool my arm was sore after swimming 50 meters, so about 40 seconds. This meant it was even worse than before taking time off as it used to take a few minutes for me to feel symptoms. I would also get symptoms from washing my hair or holding my arms up on the steering wheel.

I did some googling myself and found that all of my symptoms matched venous thoracic outlet syndrome. With this idea, I took it once again to a different GP and he agreed that it was a possibility so he sent me for more X-rays, a venous doppler ultrasound, and referrals to a neurologist and vascular surgeon. The ultrasound and X-ray proved nothing once again (I'm still shocked they never found that my subclavian vein was blocked after 2 ultrasounds??) and the nerve test was also normal. Nine months later I got in to see the vascular surgeon and he gave me some kind of arterial test which proved normal. He said I could just quit swimming if I didn't want to notice any symptoms because it wasn't really impacting my daily life. He didn't want to order me any other tests until I showed him a picture of my arm after practice and he could see how swollen and discoloured it was. With reluctance, he ordered me a venogram.

A few weeks later I had the venogram and immediately the radiologist showed me how my blood flow was complet

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πŸ‘€︎ u/GreenWeary5784
πŸ“…︎ Jan 04 2022
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Venous leak - Very important information for penis erection /r/erectiledysfunction/co…
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πŸ‘€︎ u/nupru-nero
πŸ“…︎ Jan 20 2022
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If you don’t have venous leak and peyronies disease, can you cure all forms of ED and don’t need to worry?
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πŸ‘€︎ u/panicthrowaway277
πŸ“…︎ Nov 27 2021
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Venous Insufficiency?

I had a venous ultrasound on both of my legs this morning to check for CVI (waiting on results). Does anyone here have chronic venous insufficiency? I read that this too doesn’t allows blood to properly return to the heart. Can this also cause an increase in heart rate due to the lack of blood flow?

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πŸ“…︎ Jan 26 2022
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Complicated HSG- small cervix and venous intravasation

I wrote a bit about my HSG in an earlier post but now that I’m a few days out and have had some time to think about it, I wanted to write about my experience. It sounds like my experience is pretty unique, but I wanted it to be documented for anyone who might go through it in the future! I haven’t found anyone on here who has posted about it.

I prepared for the HSG with 400mg of ibuprofen and ate a small breakfast a few hours beforehand. When I got into the room, I was pretty nervous but the tech told me that she’s never seen anyone have too much pain and that it’s over quickly. When the procedure started, the doctor told me she was having a really hard time getting the catheter through my cervix. Apparently mine is the size of a pinprick and with most people, it’s quite a bit larger. She tried to pull it open (sooooo much ouch) and that didn’t work. She called down my OBGYN to bring down better tools and see if she could do it instead. My OBGYN was able to dilate my cervix and get the catheter in. It felt like the worst cramps of my life. Then she inflated the balloon and the cramps got even worse. At that point I was crying. She told me she was going to release the dye and that the pain would get slightly worse but should get better quickly. It did not! It got worse and then worse and then even worse! It was the most painful experience of my life. I started hyperventilating from the pain. I heard them say both of my tubes were blocked so I asked them to take it all out. I don’t think they were able to complete the entire test as i never turned on my sides. They took everything out and the pain went away almost instantaneously. As soon as the pain went away, my legs and my hands started to tingle like they were asleep but so much worse. My hands started to contract and I wasn’t able to move them out of a fisted position. I told my doctor and she told me that the dye got into my veins and that’s probably why I was having those symptoms. Apparently that’s a complication that can happen (it’s decently rare) and it’s called venous intravasation. In my imaging you can see my uterus and then a cobweb looking structure around it. You can also see that some of the dye got in my right tube. It’s super confusing and I’m not sure that even my OBGYN knows what to think of it. She told me right after the procedure that she’s referring me to an RE so I’m guessing I will probably have to re-do my HSG. From the little bit of literature out there on venous intravasation

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πŸ‘€︎ u/Woolama
πŸ“…︎ Dec 11 2021
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Incidence of Cerebral Venous Sinus Thrombosis After Ad26.COV2.S Vaccination jamanetwork.com/journals/…
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πŸ‘€︎ u/GlossyEyed
πŸ“…︎ Nov 04 2021
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Jeff's Story (CSF Leak, Venous Fistula) spinalcsfleak.org/jeffs-s…
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πŸ‘€︎ u/Rickasaurus
πŸ“…︎ Jan 22 2022
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Lymphedema and chronic venous insufficiency

Is there anyone else here with both conditions? I have both, and I decided to get a stent in one of my legs last year. I think it has helped some. It's not a cure all, however. I still use compression socks and a pneumatic pump.

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πŸ‘€︎ u/lwill74
πŸ“…︎ Jan 08 2022
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Arterial blood is the oxygenated blood in the circulatory system found in the pulmonary vein, the left chambers of the heart, and in the arteries. It is bright red in color, while venous blood is dark red in color (but looks purple through the translucent skin).
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πŸ‘€︎ u/Surgeox
πŸ“…︎ Jul 22 2021
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Post Thrombotic Syndrome / Chronic Venous Insufficiency and Supplements

Has anyone here had any experience with supplements and their PTS/CVI? There's a few I'm looking into, namely Diosmin, Grapeseed extract and Pycnogenol, but have only been able to find a few small scale studies on them and thats about it.

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πŸ‘€︎ u/GucciOnTheOutside
πŸ“…︎ Nov 23 2021
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Does anyone have a venous leak?

Someone suggested that imight have a venous leak because my erections are rock hard when i lay on my back but as soon as I change position my erection fades. I am going to discuss this with my doctor because i might have it or not.

I was wondeing if anyone experenced a venous leak. Is it curable?

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πŸ‘€︎ u/brian-d-brain
πŸ“…︎ Dec 29 2021
🚨︎ report
Central venous catheters -asking for advice

Hi everyone, I'm newly graduated RN and looking for advice concerning CV-catheters. My questions are:

  • If using heparin to keep the line open and working, do you always aspirate it first? and if so, how? When blood comes up, do you throw it away or push it back?

  • I know it's very important not to get any air in the line, so when you connect an infusion to the line, do you first connect it and after open the valve and/or clip?

Thank you for reading this, any good tips and tricks of how to use the central line are also greatly appreciated!

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πŸ‘€︎ u/jenniwe
πŸ“…︎ Nov 25 2021
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Does anyone have any info about current research into CURING venous insufficiency?

It seems like it's something doctors aren't really researching because it's generally not a super serious issue, but I can't imagine a good life for myself with this condition. Is there any hope it can be cured, not just halted? It baffles me that something so simple doesn't have a surgical fix.

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πŸ‘€︎ u/Honey_and_Spice
πŸ“…︎ Jan 20 2022
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Venous leak on spongiosum?

Ei, i've had a injury recently with Angion Method, while squeezing the glans in AM2 i felt a burst inside and immediately lost erection.

Now 3 weeks have passed, i'm in constant pain, i feel a tingling and painful sensation and when i reverse kegel forcing blood to my penis, i feel blood rushing out near the glans and it hurts.

I can get erect, but if i touch my glans or start to masturbate, the glans starts to deflate and i lose my erection again. As soon as i put pressure on the glans by either masturbation or sex i feel a huge amount of blood rushing out in the site of injury and lose my erection basically.

Also the spongiosum got swollen near the glans, where the injury is located, got a little indent there and also some small thrombosed veins running trough my spongiosum, they feel like little hard strings.

The only improvement i had since injury is being able to pee without a burning sensation, also i had a urethral stricture caused by the trauma which fortunately resolved. As far as erection goes they've got worse to be honest, the day after the injury i could get erect and could masturbate without much problems. But now my EQ has diminished and as soon as i touch the glans to masturbate it deflates.

Went to the ER they suspected a fracture so ultrasound was performed but everything is clear, so they told me a vein pop is what happened... But 3 weeks should be enough for veins/arteries to heal,maybe i got a more serious problem here like venous leakage. Does it sound like that to you?

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πŸ“…︎ Nov 17 2021
🚨︎ report

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