Suddenly it starts itching and tingling. Few times it happened to me when I was meditating to my higher self and I said out loud the intention to him or even during normal meditation or in today's hypnosis it happened again. It's very strange. Don't know what it can be? Did you experienced too? It feels like downloading information or what it can be. What can these strange sensations mean...
MRI showed fluid in my right mastoid air cells a year ago and with continuing symptoms my ENT wants me to get an inner ear CT because he wants to rule out dehiscence if it’s a possibility. I’m not overwhelmed by sound, but I am sensitive to sounds and pressure changes, always feels like the pressure changes with every sound I hear, plus vertigo that I feel more physically than visually. The CT is without contrast, but I’ve never had an inner ear CT or any CT for that matter. Can anyone tell me what it’s going to be like? Thanks!
I recently put in the work to have my temporal bone donated to science post-mortem. I was not even aware this was a thing until reading a one-off comment on here. If I hadn't seen that, I'd be clueless. This should be on the sidebar of the sub and every hyperacusis sufferer should consider donating.
And many people are still not aware about the CoRDS registry for hyperacusis. It may be on the hyperacusisresearch site, but I think it would be more convenient to have a direct link to it.
Someone made a website that lists all the research progress and current and future trials going on for hyperacusis as well. I can't find the link but that one is also important. If anyone knows what I'm referring to please drop it in the comments, and consider adding that one too.
Even without it, displaying the clinicaltrials.gov website with trials for hyperacusis would be helpful
There are currently trials happening in Belgium and France.
Please consider putting these on the sidebar. So many people come here and aren't aware of any of these. The fact it only displays on old.reddit doesn't help either. This sub is getting more members every single week. Imagine what progress could be made if every one clicked these links and filled all these out.
EDIT: Since the sidebar doesn't display on new reddit or mobile, consider making a pinned post with all the pre-existing resources along with the ones I suggested. Much more visible and accessible.
Hi, I'm new. I have a stress based epilepsy disorder with complex partial seizures in the left lobe, I was diagnosed 9 months ago. I have had a total of 3 seizures in my adult life(had them as a baby until age 2). 1st one back in September of 2019, 2nd in February 2020, and the most recent I had on Sunday night going into Monday morning. No one was around at the time, my boyfriend works very early in the morning, but I had a seizure while asleep and I hit my head against the window frame that is behind our bed. I woke up that morning and had no idea I had a seizure. I felt a bit nauseated that morning but thought I was just hungry, but I felt more nauseous after eating, as the day went on i got a major migraine and mild vertigo. I still had no idea I had a seizure. I had a migraine for 9-10hrs and didnt find out until the next day that I had a major bruise behind my right ear when someone saw it. After discovering the bruising we figured that was the only explanation for the bruising.
I'm curious though, has anyone else ever had a seizure in their sleep before? I didnt even realize it was possible.
My neurologist hasn't been very informative throughout the process of me discovering I have epilepsy, and I have a lot of concerns about my limitations. I was working in the yard moving branches and debris from a lot where my boyfriend and I want to build a house but I didnt exert myself that much, drank 3 bottles of water, and wasn't even in direct sunlight for any of the time. If that is what caused the seizure I am seriously concerned about what my limitations are before it triggers a seizure.
I also wonder if a seizure service animal is something to consider as I have no signals before the seizures start, I will be talking normally and then immediately start convulsions. I dont know what advice I need to ask for. This is all so new and frightening for me. Any advice is appreciated.
TL;DR: Sleep seizure caused a possible concussion and skull fracture, debating whether a service animal is something to consider, and really just need advice as I was only diagnosed a few months ago.
Can someone tell me what cholesterol plaque on my temporal bone means for me? For the past year I’ve been feeling really weird and having constant headaches and the doctors had been dismissing it for anxiety. I kept telling them I don’t thinks it’s just that and after an mri I had to demand after all this time they found plaque build up... they haven’t told me much more than that since it was just a phone call.
awhile ago I found out I had a cholesteatoma. At first, after I read up on it, I assumed it was a normal one in my ear, but once i saw my ENT I found out it is in fact in the air cell of my right temporal bone. Seems it's congenital and simply was missed every other time I had scans on my head. I had a lot of ear trouble as a child and in fact at one point had a skin graft on my ear drum. Anyone in this community familiar with a cholesteatoma of the temporal bone air cell? At the moment i'm waiting to hear from my ENT. It seems to be vary rare and complicated and his colleague has to pass my case around a conference to find anyone who thinks they can handle it. I’m Australian.
So guys, I'm wondering if I'm just squeezing the headset too tight to my head because after 30 or so minutes playing astrobot I started feeling some light pain and disconfort on my head (at the side of my head to be exact)! Problem is I can only use the headset that way cause it leaves the smallest gap under it, and it's the only way that: 1-I can't see the real world under the headset. 2-I can't breathe to the lenses and make them foggy!
What's the best way to maximise total 'darkness' and not getting any light under the headset?
Just in the past three months I've noticed more dents and ridges behind the ears. I'm totally freaked out! Every night I take my earrings off and since I have puffy hair, I secure it for the night in braids. Trust me, I KNOW I didn't have those ridges there. On the temporal bone, just behind the ears, now these "mini" valleys or dents or ridges (I really don't know what to call them) are getting deeper and deeper. They also seem to migrate upwards towards the temples. Since when is the human skull still changing? I mean if we just shifted into this new bodies, or reality, shouldn't these bodies be already formed? It is not a growing tomato!!! How can the skull still change, well and many other things, I mean every few months there are "updates" it seems. Unless there is a pattern of multiple universes still collapsing, every few months, new ones merge? Either that or we are indeed in a matrix!
I'd like to think my sitaution is unique.
I'm 28 y.o. and was born oremature along with my twin sister. Yada yada....
Until a month ago I never had my bearing evalauted by an ENT bc for a while Audiologists only needed their masters to open up a practice and issue hearing aids (not sure if this is still true) so seeing and ENT never came to mine or my parents mind since hearing aids seemed to work for me.
Back to a montb ago, I took a hearing test with an audiologist at an ENT's office and my test results were evaluated by the ENT. They noticed that my cochlear, which had previous been deemed damaged or inactive (or misread by the previous audiologist), was in fact catching sound. Except I have no speech recognition on my left side which led the ENT to assume that the tiny bones in my ears could be the problem.
I'd like to know if anyone else out there has had a CT scan only to find out something was wrong with their tiny bones and with surgeru came a fix, or maybe not.
TL;DR - ENT evaluated hearing test and recommended possible Temporal CT scan to evaluate tiny bones but only after further evaluation at an ear specialist. Anyone with similar experience?
I want to keep this as short as I can. So, I am just going to focus on this one issue. I started seeing a neurologist and he ordered an MRI of my brain. They found fluid or a lesion on the temporal bone. That sent me for a follow-up with a CT. The CT confirmed trapped fluid on the temporal bone. Neurologist brushed it off as nothing and so, I relaxed. But, I still felt something was off. Due to other medical issues, my pain management suggested finding a headache specialists, rather than a standard neurologist. I have occipital and trigiminal neuralgia, on top of a life long history of migraines. At this point, PM had not seen the reports or images from either study. But because of my continued severe pain, he feels that a headache specialist is warranted. I've been seeing my PM for other conditions when these popped up. He has been managing the agonizing pain while I find the right doctor to help.
I finally found and saw a headache specialist earlier this week. I provided both reports and the MRI disc. After reviewing all and actually looking at the imaging; unlike the original neuro, she became concerned very quickly. She will be ordering a new MRI in Nov. But left it at that.
I saw PM this week as well. I provided him with the reports, but not the disc. Specialist kept that in order to upload it to their system and will be returning it to me. Based on the reports alone, he became very concerned. He feels that the fluid needs to be drained. He also stated that when multiple studies are ordered, there is cause for concern. Note, I have a great relationship with my PM. He has always been honest and upfront with me. And every time he has made speculations on conditions and course of treatments outside his specialty, he has been correct. I completely trust him at this point. He is my favorite doctor.
So my question is, how worried should I be? Cause, I am now totally freaked the hell out. PM said that the fluid could become infected and so he feels it should be removed. But he also stated that my new specialist should be the person to make any suggestions and decisions on this. Anyone have any experience with an issue like this? I am curious to know what happened.
http://tinypic.com/r/2zoi0z8/9 Can't figure it out. Checked anatomy atlases but this seems to be a rare anatomical variation. Any help appreciated.
I was never given a healing time for the fracture. I was also wondering if it was safe for me to fly in an airplane. The fracture happened on January 18th, 2013.
Last week I picked up a really sad case. He's a 31 year old man paraplegic from a gun shot wound he suffered in 2014. He's poor and black. Most of our patients are wealthy and white. He was admitted almost 8 weeks ago with for acute on chronic sacral osteomyelitis and has been on piperacillin-tazobactam and minocycline basically since then. My first day meeting him we were short staffed due to holiday coverage, and I had 23 patients on my census so I did not have the time to explore his chart. I read through the novella-length progress note written by the previous hospitalist and was able to gather the basics. The plan I inherited was to find an orthopedic surgeon at another institution who'd perform hip disarticulation or possibly hemipelvectomy. The big academic shop in town apparently recently lost their surgeon who did those, and the smaller academic shop has a guy who does it but "only for oncologic indications" (???) according to the note. The hospitalists before me had tried a few other centers and identified a list of candidate surgeons, most of whom had declined. The last remaining candidate is a few hours away, and documentation indicates that my colleagues have faxed the records for review and consideration for transfer. The note contains a phone number for me to call and follow up. I call and get a nurse who confirms they have the records but informs me the surgeon is out of town for Christmas but he'll be back Monday (yesterday) so please call back then.
I go meet the patient, a very polite and extremely sarcopenic young man. Always "Yes, sir," and "No, sir." I introduce myself and explain that I'll be picking up where the prior hospitalist left off. I explain that I called the transfer center and we're waiting to hear from a surgeon who's out of town, so please just relax over the holiday weekend and I'll let him know as soon as I hear anything. I examine his wounds and see that our wound care team is doing a great job, everything looks clean and freshly bandaged. He has temporal wasting. His calves are as big around as my wrists. I have difficulty auscultating the chest due to the sunken intercostal spaces. I tell him I'm sorry he'll be spending Christmas in the hospital but that I'll be seeing him each day and I'm happy to help him feel more comfortable in any way I can. He tells me his pain is well controlled.
The next day is Friday, Christmas Eve. I go in to see him with no updates and start making small talk. Football is on TV. He tell... keep reading on reddit ➡