Everything is in the title, I want to be the most supportive possible, without being intrusive.
Any tips ?
I'm from B&H and my dad possibly has multiple sclerosis, now I researched a bit and see treatment has evolved a lot in the world, but I know the Balkans are usually pretty far behind.. How accessible is treatment here?
"Currently MS is classified broadly into progressive and relapsing groups, which are based on patient symptoms; it does not directly rely on the underlying biology of the disease, and therefore cannot assist doctors in choosing the right treatment for the right patients.
Here, we used artificial intelligence and asked the question: can AI find MS subtypes that follow a certain pattern on brain images? Our AI has uncovered three data-driven MS subtypes that are defined by pathological abnormalities seen on brain images."
Dr Arman Eshaghi, Lead Author, UCL Queen Square Institute of Neurology
So to summarise i said science is advancing and who knows what will happen in 20 to 10 years times. Especially since the advancement of stemcell research... i don't know if this is true but I'm not going let a 12 year old lose hope. I was wondering if anyone can tell me research which looks promising in finding a cure or treatment for ms. So I can tell my student.
I made a video you guys may appreciate about 10 surprising/interesting facts about MS :
https://www.youtube.com/watch?v=DPKjhGTPvZ0&t=93s
Let me know what you think.
Vickie from "Even So it Is Well" did a similar video: https://www.youtube.com/watch?v=dY3uD...
Sources:
How Bad is Multiple Sclerosis? [Average Prognosis from MS EPIC UCSF Study]: https://www.youtube.com/watch?v=DGAgC...
The First Case of Multiple Sclerosis: 1395! [Lidwina the Virgin, Patron Saint of Ice Skating]: https://www.youtube.com/watch?v=K63tJ...
Sunlight and Multiple Sclerosis: https://www.youtube.com/watch?v=f0DqK...
Uhtoff's Phenomenon (Heat Sensitivity in Multiple Sclerosis): https://www.youtube.com/watch?v=YrH4S...
EBV Causes MS?: https://www.youtube.com/watch?v=nycIH...
Does Vitamin D Treat Multiple Sclerosis? https://www.youtube.com/watch?v=W9dAP... Sources: 901 of 901 (100%) patients with CIS/RRMS were EBV-seropositive in this study: https://jnnp.bmj.com/content/91/7/681
Example of a report of improvement in multiple sclerosis symptoms after breast cancer chemotherapy: https://www.va.gov/MS/Veterans/Vetera...
Migration study multiple sclerosis: [https://pubmed.ncbi.nlm.nih.gov/8966212/](https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbV
... keep reading on reddit ➡My mom is 36 and has ms and I just feel really bad for everyone out there who has or knows someone who has ms it is a terrible thing to have. I drew my mom an orange carnation for ms awareness month.
Dr David Perlmutter interviews Dr Steven Phillips/Dana Parish (authors of best-selling book "Chronic") - about Lyme and Multiple Sclerosis treatment of latent infections with antibiotics like doxycycline:
https://www.drperlmutter.com/the-role-of-infectious-agents-in-autoimmune-conditions/
THE EMPOWERING NEUROLOGIST
The Role of Infectious Agents in Autoimmune Conditions
Video:
https://youtu.be/wv__gwA9Q4Y
Relieve Chronic Pain - Steven Phillips, M.D. & Dana Parish | The Empowering Neurologist EP. 118
DavidPerlmutterMD
Apr 12, 2021
>It has been estimated that some 50 million Americans have been diagnosed with an autoimmune disease. As such, we have become all too familiar with things like rheumatoid arthritis, systemic lupus erythematosus, and multiple sclerosis, to name a few. > >On our program today we are going to speak with the authors of a new book entitled Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again by Dr. Steven Phillips and Dana Parish. Dr. Phillips and his patient, Dana Parish, reveal the role that chronic underlying infections, like Lyme disease, may play as it relates to autoimmune conditions. We will explore not just Lyme disease, but other chronic infections that also may have long-term manifestations. We explore how these diseases present, how they are diagnosed, and of course, treatment, as well as the politics that may well be keeping this information from gaining widespread acceptance or at least recognition. > >I think you will find this program to be very intriguing. > >Steven Phillips, M.D., is a renowned Yale-trained physician, international lecturer, and media go-to expert. Well-published in the medical literature, he has treated over 20,000 patients with complex, chronic illness from nearly 20 countries. Phillips experienced firsthand the nightmare of an undiagnosed, serious infection after nearly dying from his own “mystery illness,” and having to save his own life when 25 doctors could not. > >Dana Parish developed Lyme-induced heart failure as a result of being improperly diagnosed by some of the “top” doctors in the country—and had her life saved by Dr. Phillips. A chart-topping Sony/ATV singer/songwriter who has written songs for artists like Celine Dion and Idina Menzel, she has become a major voice in the world of chronic illness. Her popular column on Huffington Post has been read by more than one million people globally.
https://www.spokesman.com/stories/2021/mar/03/it-is-exciting-multiple-sclerosis-vaccine-could-be/
The breakthrough technology deployed to vaccinate against COVID-19 also has led to a promising new approach to preventing the progression of multiple sclerosis.
“It is exciting, definitely exciting,” said Dr. Yashma Patel, an MS specialist at Valley Neurology in Spokane Valley.
So far, the new MS vaccine has been the subject of only a handful of studies in mice, the results of which were published last month in the highly regarded journal Science. But though they were limited, the results may also open up a new path toward successfully treating a difficult-to-manage disease, according to Patel and Dr. Annette Wundes, director of the Multiple Sclerosis Center at the University of Washington.
While acknowledging that it’s “obviously still very early on,” Wundes said the approach analyzed in the Science study “allows a completely new way of dealing with MS.”
Current therapies also “don’t stop (the disease) and don’t fix anything,” Patel said.
But the new approach could do exactly that: prevent the disease’s progression and improve existing symptoms without affecting normal functioning of the immune system. It may also stop the disease from ever taking hold in the first place.
A key to achieving these groundbreaking results is messenger RNA, or mRNA, vaccine technology, which has been in development for three decades but was first successfully deployed late last year in a series of new COVID-19 shots.
“When you get a vaccine, any traditional vaccine, you’re given a small amount of a virus, either a live virus or dead virus,” Patel explained. That injection triggers the immune system to make antibodies so your body fights it off” and prevents you from getting a full-blown infection, she said.
But mRNA vaccines take a fundamentally different approach.
Instead of giving you a virus, Patel said, they inject mRNA, which is “essentially a code” that “tells your body how to make” an antigen that triggers the production of antibodies that ward of infection.
One of the successful mRNA COVID-19 vaccines is Comirnaty, which the German biotechnology company BioNTech created with the American firm Pfizer. BioNTech’s CEO, Dr. Ugur Sahin, is behind the effort to employ the same mRNA vaccine technology to combat MS.
The study Sahin published with a team of fellow researchers found that mice administered the MS shot produced an antibody that prevents
... keep reading on reddit ➡I'm not asking about SSDI or going on disability.
That's right, we're $10 short of our next fundraising stretch goal, so we are doing our second FLASH EVENT!
Every game you play with us between now and 11:59pm EST Sunday, March 28th will enter you for a chance to win a Strixhaven Bundle. Every win counts as 2 entries, and every donation (enter your discord username on the name line) is 3 entries!
If you missed it last week - we are a new Spelltable and Discord based EDH League to support rotating charities, where the winner of each season picks the next Cause we support. This Season we are supporting The National Multiple Sclerosis Society.
Here is our discord!
And if you just want to donate, Here is that link!!
Hi all, Apologies if this has already been asked, but I tried to search and couldn't find anything. Is there anyone with relapsing remitting multiple sclerosis on here that could share particular strains they've found helpful? Medical cannabis is new to me and I'm just lost and don't know where to start. Looking for pain relief and nausea relief mostly. Thanks in advance!
A friend of mine has MS (multiple sclerosis) and her condition has recently worsened and new symptoms have developed. I really want to be there for her and help in whatever way I can, but all I’ve been able to do is listen and give her the space to vent about her feelings. I can’t relate to her and I feel like I could be doing more. I’ve never experienced health issues personally or had a close loved one experience them before either so I’m at a loss.
I started Androgel in Dec 2020 and 2 months later I had lower extremities neuropathy (ice-hot feeling in legs, muscle twitches, jabs in toes and fingers, etc).
My doc had me come off TRT and did Brain/Spine MRI which showed some arthritic changes in the next but no nerve compression. All my blood work for SJdrogen, RA, and other auto-immune diseases came normal. I am low on zinc (56 vs 60 being lower normal) and borderline on Vitamin D (20 which low normal range).
Coming of TRT, I am feeling low, lost muscle mass, and 10 pounds.
My neuro and primary are clueless on what should be the next step for me :) My T levels even on 2 pumps of Androgel were at 250 (220 before I started the treatment)
Did anyone experience Neuropathy or MS trigger after starting TRT? What should I even ask my doc? :)
Hey all! I’m wondering if anyone with MS has ever experienced DMT? If so was it any different? Did it affect your physical and/or mental health in any way?
And most importantly did you find what you were looking for?
I'm surprised how few posts I can find on here from people using LDN for MS, and yet that is one of the conditions that seems to be mentioned most elsewhere in relation to LDN.
Any MS sufferers care to share their experience?
I've got a prescription arriving this week and I've been waiting so long to get to this point, so I'd love to hear how others have got on.
Thanks
Hello everyone, Can someone tell me if there's any side effects for covid-19 vaccine for MS patients? Especially if it's Astrazenica or Sinopharm (Chinese vaccine). Thanks 🤍
When I was diagnosed I wanted to crawl up into a shell -and I did for a while. After I realized that wasn’t going to help I started to relearn how to do everything again with limited mobility and balance. My wife has always had a serious sex drive so I knew that that was one of the things I had better relearn first. To makes matters worse she has a botched hip replacement that limits her ability to lift her right leg. So for the next 6 months I endured the embarrassment of figuring out the things I couldn’t do or couldn’t do for very long ( like standing on one leg with the other kneeling on couch) To my surprise narrowing it down to 3 ways we were both comfortable and supported while having sex actually ending up turning me on. I guess it’s because those 3 positions became so intense. The use of wedges and pillows led to absolutely perfect angles and what we lost out on because of the MS we took back in the form of toys, outfits, and different characters.
So first off there is always hope, I hope all of you reading this have an amazing pain free day. Second, let me know what works for you. Please! Have you found a certain bed pillow, wedge, or piece of furniture that works really well. Good night all
Hi,
Just looking for other MS long haulers and their experience with/without the vaccine. My symptoms are severe some days, but most days just the Covid symptoms. Been long hauling since January 2021 and considering the vaccine but don’t want it to send my MS into a flare up. Can anyone relate?
Just wondering. Thank you.
