Keratoconus Puns

My vision was 20/400 in my left eye from what they told me. I'm getting a pentacam done in 2 weeks. I just wonder if people could answer some questions for me to the best of their ability.

1. I took a high dosage of Lexapro (30mg) for years. My bad eyesight in my left eye began in late 2018, but never really got any worse, felt like it happened overnight. I was foolish, and thought it was simply bad eyesight that could be fixed with new lenses, so it took a while for me to see somebody about it. Can Lexapro cause something like this? I've heard that Lexapro can cause high intraocular pressure, and glaucoma, but I've never read of it causing keratoconus. Two MRIs of my brain done in 2021 showed mild CSF buildup in the optical nerve. I was also diagnosed with idiopathic intracranial hypertension. I am overweight, so that could be the reason for those problems, as I've never heard of Lexapro causing any of these issues like this. I possibly had a very adverse reaction to trying to go back on Lexapro after quitting it for a few months, so that's why I ask.

2. How successful are cornea transplants?

3. How painful are they? What does the local anesthesia feel like?

4. I also see floaters a lot in my left eye, and sometimes I'll see like slight wavy motions in my eyes if it's a bright day. Is that caused by high pressure in my optic nerve/eyes?

5. Sometimes I also see little blue dots, usually at night. Is that related at all?

If anybody has advice unrelated to these questions, I'd appreciate it too. Thanks!

Hey all, I want to tell that please don't waste money of rgp or different lenses they are waste of money scleral lens are 100× more comfortable like nothing is present in eyes go for sclerals please

Asking for a friend of course

Hello. I’m not asking for a DX, just some advice if possible as I don’t have anyone to talk to. My doctor told me I might have Forme Fruste Keratoconus? I don’t quite know what that means even after researching it. Has anyone heard of this or could you help me out? She told me that and then showed me my steepening corneal curve number (forgive me I don’t know the medical terminology) and it was a 44.0. I’m just trying to understand what this means or what questions I can bring to my next appointment as they didn’t give me enough time. Thank you so much.

Before I even noticed my vision was going bad, I was a totally different digital artist and photographer. It was the year gap between being diagnosed and getting scleral lenses that was the most painful for me. As my vision got worse, I struggled to compete on the level of the other photographers in my photography program. I began to let go of my passion which was the biggest mistake I’ve made in my life.

I began to have a spiritual awakening which started my meditation practices that lasted an hour or 2 per season. This really changed my perspective on my past self, the world and my artistic mind. Eventually I got my scleral lenses which brought me a moment of ecstasy because I was able to finally see the world again through the eyes of an artist.

Fast forward almost 2 years, now I’m doing photography as my main profession but my style and vision evolved to become something deeply rooted in what shaped me up to this point.

So to any artists out there struggling with keratoconus, don’t give up on your passion, use your pain to fuel you and drive your art to new heights!

I’ve only just started experiencing this - I wake up with my eye really hurting and stinging. I’ve looked online and people say it might be because my eye may be dry, but has anyone experienced something similar?

Hey guys,

I've finally been referred to the specialist contact lens department in Sheffield, after a lonnnnnng time waiting (especially with the pandemic delaying everything).

My question is, what are your experiences with getting Scleral lens on the NHS? if I tell them I want sclerals instead of normal RGPS/soft lens/whatever - will they just do it for me?

Also, how does that even work? would I be doing testing at my appointment and have the lens ordered for another time (if so how long do they take to create?) or would they be created at the same time?

I know, quite a few questions in there. Hopefully someone can help me.

Much appreciated!

Hello All, I recently came to know that I have Keratoconus. Right eye thickness is at 440. I am concerned, getting a doc’s appointment takes months. If its too late for cross-linking, what options do we have? Can you please suggest some good reliable info links? I want to know the Dos and donts. Is there any supplement that will help, any food thats harmful? Thanks a lot!!

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Hi again!

So today I went for my first contact lens fitting appointment.

I told her I was hoping to get the scleral lens instead of normal RGP and asked why etc. I told her most people I've seen talk about contact lens say the scleral are way more comfortable than the normal rgp lens and are generally better.

Anyway, she said the sclerals they offer are actually "semi-sclerals" on the NHS which is the first I've heard. Been trying to research them and can only find "mini", or websites tend to say theyre just called that because they are smaller than x measurement, which has me pretty confused.

I tried them in and the vision was pretty good etc, not the best comfort but I assume its because I'm just not used to it yet.

She told me I could only wear them for 8 hours per day? is this right? Whenever I've done sceral research its always said 12-16 hours is fine. How long do you guys keep them in for? is it because they are semi-sclerals?

She also said normal RGP's can be worn 12hrs+

Thoughts?

I'm blind but not blind enough to be registered as legally blind. For context, my eyes are so bad. I cannot drive because the eye sight that doesn't allow you to drive, mine is just borderline. Meaning any worse, and I WONT ever be allowed to drive. I could drive with RGP lenses but they are uncomfortable as hell and hurt me after 4hrs of wearing them. So I'd be able to drive myself to work, I just won't be able to drive myself home. Hope that makes sense.

Day to day life is getting so much harder with not being able to see. My vision is distorted to the point where everything is just blurs of colours. My right eye can be corrected with RGP lenses and my left eye can only be partially corrected. This is after corneal cross linking

I hate struggling to be able to do everyday activities. Like I can't even sit at home and watch Netflix because my eyes hurt after wearing the lenses. Glasses are ineffective.

The eye doc has talked about "piggybacking" which is wearing soft lenses under hard lenses to make it more comfier but idk. I've just lost hope. I can't access services and aids for visually impaired but I also struggle with lenses. What am I supposed to do??

Here's to a better year than 2021! For the coming year, I wish you all good health and clear vision, affordable health care, comfortable contact lenses, successful corneal grafts, effective crosslinkings, and stable corneas.

Have a happy and healthy 2022 everyone.

I am a 14 year old male with Keratoconus in my right eye. I went to an eye doctor and she said that I will most likely need cornea replacement surgery. I’m wondering if it stays with you for life. And another question is that I play video games a lot, do I have a higher risk of making it worse? I have been realizing I’m squinting more often when I look at my TV.

Im 20 years old. And im struggling with seeing things far away. I have short sight or myopa or wtf is it called in english. And yesterday i went to get an eye check because i wanted to get a lazer eye corection. So how it went is that a doctor showed me my right eye photo and said that its a rare case and i have so called “ Keratoconus” and that they dont want to do an eye corection to me. So the doctor said to come to her again after half a year and then they will check my eyes again So my question is, can someone please explain in a way that i could understand what is this Keratoconus and is it dangerous? should i be worried? Because after yesterday i wouldnt lie,im a bit in shock.

Just had an eye exam for LASIK and it turns out that my topography is suspicious, so no laser surgery for me. And my chamber depth is only 2.74 2.79, so ICL is also not very likely. My topography has not changed much over past 6 months (in fact the corneal thickness increased 5 and Kmax decreased a bit, I believe could be the result of me stopping eye rubbing).

My question is, if I get PRK+CXL, will it be very risky? Will it be too much riskier than a normal person taking lasik with no CXL? Can someone tell me how big is the risk of ecstasia I would be under? (I know things can be unpredictable but can someone give me an estimation?) I’m -3D with-0.25D astigmatism in both eyes. Corneal thickness 513 509. I won’t need a 20/20 vision. In fact I’d be happy to end up with -0.5 t0 -1D left since I’m a indoor person.

Edit: I think the doctor said it’s not a full keratoconus.

Edit2: I saw although the suggested ACD is greater than 2.8mm, some doctors can do less. Will ICL be a safer option for me?

I was denied rating for this condition when I got out but this seems to be the only reason I go see a doctor these days. At least 6 times a year for various reasons from prescription check, contact lens, cornea check and so on. Should I re-submit?

Does keratoconus cause cataracts early for patients who get transplants?

I’m wondering how quickly things generally progress for other people...

I was only diagnosed yesterday and told my case was fairly mild and that I shouldn’t be too concerned about it based on the fact that I’m almost 32 and it probably shouldn’t get too much worse. But, of course, I am concerned.

I only started noticing the double vision about a year and a half ago, but it has certainly gotten noticeably worse in that time. I think the progression since I’ve noticed it is more concerning to me because I know I’ve been rubbing my eyes much less than I used to (switched from a waterproof mascara that was hard to get off to something easier and then to just getting my lashes tinted instead of wearing mascara at all AND my allergies seemed to have magically resolved themselves this year and had zero hay fever symptoms).

I’m just feeling lost and confused about where this leaves me and what I should do. Would appreciate if you could share a bit of your journey.

I'm finding it extremely hard driving at night with KC especially because other cars have started using xenon headlights and was wondering if you folks had any advice that could help elevate the problem :)

I want to know is there any precaution I take in terms of living with it or some habits to stop triggering it in right eye? My age is 30 and I don't know when my eye started worsening. I can see perfectly clear with right eye with glasses.

He had a cornea transplant in one year and in a couple of months he’ll have the other eye done. He goes to a great doctor. He told me he thought he got the disease because when he was younger he rubbed his eyes a lot. But there wasn’t anything that said that was a cause. At his last appointment his doctor kinda joked to us that we need to tell our child (I’m pregnant) to not rub his eyes and to get his eyes checked. Just curious. It seems no one has an answer to this

i went to the eye doctor today and he assigned me to go see a specialist. he said i have a possibility of keratoconus and honestly i been feeling scared and pretty down all day. i would like to hear what’s it’s like living with keratoconus from you guys. will i still be able to wear contact lens? i honestly prefer wearing contact lens over glasses. is lasik possible if you are diagnosed with keratoconus? i don’t know if i can handle having bad eyesight my whole life. i’m only 22 years old.

I just have some questions that maybe people that have Keratoconus can help cause I can’t find answers. My anxiety sky-rocketed when I looked it up and saw I could possibly go blind. Also I have pretty bad astigmatism too.

1. Can you go blind? I see places that I can and that I just will be very visually impaired.
2. Can you feel the bulging of the cornea? I just got a strong prescription and wearing glasses for the first time so idk if it’s eye strain or the bulging it just feels like someone is slighty squeezing the tip of my eye.
3. I’m experiencing what I believe is double vision or ghosting I can’t tell and does that mean my Keratoconus is bad? Does the possible double have a chance of going away or am I stuck with it for the rest of my life. My right eye when I look at something I see it’s slighty under especially when I look at something under light I see like a block of light and a light. I can also see the bulging through my phone camera. 4.Are intacs, scerals lense or RGPs best for this condition?

Sorry for the questions just I’m scared and already set a appointment up to see about CXL.

Hello, my left eye has incredible halo / ghosting / glare, it started some years ago with glare but it wasn't annoying at all

Now I have Incredible halo ( rainbow halo ) they are horrible, I can no longer drive at night ! I'm forced to wear sunglasses at night or look at the ground while walking

I went to my ophtalmologist, he checked my eye ( retina + cornea) and said everything is fine and it's just probably astigmatism or dry eyes and gave me prescription for glasses and a eye lubrifiant

When I wrote "rainbow halo" on google I only found people with closed angle glaucoma , I doubt I have something like this i'm just 25 years old

I think my symptom are related to keratoconus, can keratoconus cause rainbow halo, glare ? my doctor said my cornea is fine but he just look at it

I've been diagnosed with Keratoconus last month. My last doctor visit, she said you cannot drive or work. With me having advanced Keratoconus and I haven't gotten my contacts yet. They're trying figure out what they can use for my eye and hoping it works to avoid surgery. I'm trying avoid surgery due to school and with me not having much time for it.

At 18 I'm trying get everything together before I head to college. With my insurance not covering contacts I need, my father cannot afford paying about 2400 for contacts. It's stressing me out I'm not able to work yet, my parents been pressuring me to get one asap. I was originally going get a job last year, due to Covid my parents refused to allow me get a job. I feel like a mess this year being senior. I haven't gotten a job to help pay for my own stuff, can't drive, got college coming up and need to pay deposit, it makes me feel bad for my parents paying everything for me at 18. Do you think I can work regardless what my doctor told me? At least get some type of online job until my vision gets better.

I am 25 yo Male. I got diagnosed with Keratoconus on my left eye around a month ago. The doctors said it is due to constant rubbing of my eye. In recent times, my eyes have been extremely itchy and rubbing is inevitable.

So basically this is pretty early. I am not having headaches. Just very slight blurred vision and I am wearing spectacles (not any special lenses). Can people just share their experiences and thoughts?

What does this develop into? If I dont rub my eyes, does it stop getting worse, or it gets worse as you age? Google says you may go blind? Just trying to understand this condition. Thanks!!