A list of puns related to "Autoimmune Diseases"
If you have not read part 1 of gut microbiota theory then this post will not make sense. You can find it here: https://www.reddit.com/r/PSSD/comments/q03uci/gut_microbiota_theory_how_i_finally_cured_my_pssd/
As many of you know, despite being cured from PSSD for a few months now, I still dedicate much of my time towards helping people with PSSD and researching the gut connection. I believe that I now have a (nearly) complete etiology of PSSD, hence the reason for this post. To start, I want to establish the connection between PSSD/PAS/PFS, CFS (chronic fatigue syndrome), and Covid Longhaul. If you have not heard of CFS or Covid Longhaul, I encourage you to look into them. These conditions are identical to PSSD/PAS/PFS; the symptoms are the exact same (with the exception of those who do not experience brain fog or fatigue - I'll explain this discrepancy later). If you have any doubt about this, please go onto the corresponding subreddits for these conditions and read peopleβs stories, I can guarantee they will ring a bell. I began looking into CFS when my PSSD fatigue was getting bad and that was the first time I noticed all the similarities (however many other researchers have noticed these similarities as well). After I had cured myself by treating my SIBO, I began to notice that SIBO also has a very high prevalence in the CFS community. Sure enough, I had even found cases and stories of people curing their CFS after a corrective mechanism to the gut (change in diet, fmt, probiotics, etc). I doubt many of you know what Covid Longhaul is, but it is essentially a CFS/PSSD-type state that people can go into AFTER getting covid. Just like with CFS and PSSD, some recover and their symptoms go away and some donβt recover at all. It is common knowledge that viruses (such as covid) are capable of altering the gut microbiome so this is another clue that points to Covid Longhaul being a gut issue. You already know (from my previous post) that SSRIs can alter the gut microbiome and leave it with reduced diversity. If you do not know what the MMC (migrating motor complex) is, look into it. It is the muscle mechanism that the gut uses to digest food and move bacteria and fungi out of the small intestine. Gut motility describes the ability of the MMC to perform its job. There are many different factors that affect gut
... keep reading on reddit β‘I have celiac disease and I'm vaccinated. I had difficult symptoms right after vaccines. My acid reflux got worse and I had some heart palpations and also some soreness in my hand. Now when they are suggesting 3rd booster I'm really afraid to take it. I feel like I'm a lot weaker now after being vaccinated, like I have no energy and my heart is feeling weird every other day.
So anyways, tried to do some research on my own and now I'm afraid that these jabs can cause some new autoimmune diseases in the future as I have already one. Because of the strong autoimmune reaction that they are teaching to the body when facing viruses it might be possible? That your immune system will attack itself? Maybe I just need to hear other's view and toughts on this? Is there anyone else who is afraid to take any more vaccines after the two received or that you might feel nervous what these might cause in the future? Just to need hear I'm not only one...
Posting as a rant because all my doctors believe the symptoms I have are caused by an autoimmune disease, however Iv been seeing a rheumatologist for two years now and he doesnβt believe that and just says I have fibro and need to get into therapy
Long story short, I bought some cashews thinking they were harmless. Ate handfuls of them, felt sick, looked at the back and saw that the cashews were processed on shared equipment with gluten related food.
I feel absolutely defeated. I got diagnosed 8 years ago. And when I got diagnosed, the endoscopy showed my villi completely blunted. I've tried my best to not eat gluten. Sometimes I've gotten careless. I can't eat fresh food everyday as I'm on my own and don't have the time to cook and shop as often as I'd need to.
Then I foolishly looked at several articles about celiac disease and how it is associated with nerve damage. That there is an increased risk of other ailments such as Multiple Sclerosis, and even increased risks for some cancers. The similar symptoms are downright scary.
I'm not in very good shape. I work a desk job and live a pretty sedentary lifestyle. I have a dog I walk as often as I can, and have lost some weight but I'm very unhealthy. After reading so much, it all just made me feel like I was dead already. That before I know it, I'll be afflicted with all sorts or horrible ailments. I can usually tell when I've been glutened but at times, I know I've been glutened but wouldnt have my usual reactions of sweats, toilets trips, and vomiting. Just increased stomach rumblings and gas.
I'm in my mid-30s and feel like I'm significantly closer to death/life threatening diseases than ever before. I won't see a cure or vaccine. I don't know what to do anymore. Sometimes I'm just ready to eat the world's supply of mozzarella sticks and be done with the diet.
I apologize for the rambling. I just have no one and wanted to put it all into words.
Edit: words
I've been trying to figure out what type of therapist I need to go to. I've tried two chronic illness therapists that just weren't very helpful. I've got relationship and financial issues now too. I've happened upon a couple of articles that describe therapy for trauma and I'm wondering if those would be good for me. For context, I think I had a very mild version of this illness for about 8 years and then the illness got so bad that I went from being about 90% functional to about 20%. I still haven't found anything that makes me feel much better. I'd like to start looking for a new therapist, but don't really know where to start. I also don't necessarily feel like I've gone through the same terrible things that are considered to be traumas and I absolutely don't want to take a spot with a therapist away from someone who has experienced a real trauma. Does anybody have any advice?
Iβm here seeking advice and support. Me (20F) and my boyfriend (21M) have been dating for a while and have been planning on getting married in August. We are both in college and will be graduating in the next couple of years. I know we are kind of young, but we both are very responsible. Iβve been the primary βadult/parentβ for my younger siblings since I was about 15. I havenβt really been βparentedβ in years and am very mature.
My boyfriend has a great relationship with his dad that I totally support! The last thing Iβd ever want is to separate him from his family and I have told him that. My boyfriends mom is passive aggressive and mentally unstable. She is actually not his biological mom (donor egg) but she did birth him and raised him. She has been terrified since he was born that he would disown her some day because of this. My boyfriend is the sweetest person and would never do that. He has actually even told her that and had to constantly reassure her. If feel super bad because you can just tell sheβs hurting and terrified. Anyway, I have met his mom/family a few times since we started dating. Itβs difficult to make regular trips because we go to college 10 hours away. His mom has always been pleasant when I have seen her in the past (no longer than 4-5 hours). This past week we went down to his house for the first part of thanksgiving break. She was nice the first day and we event walked around a mall altogether.
Side note: I have an autoimmune disease called POTS. Anything out of my regular routine wears me out super easy. I occasionally will pass out and sometimes just need a day in bed to recover. Iβve been dealing with this for years. There is no real cure but lots of βtreatmentβ type things. Worst part is itβs super unpredictable and the way Iβm feeling isnβt super visible to others.
Anyway after the long car trip and day of walking around I was exhausted. The next day I woke up and had all my really bad symptoms at once. I was nauseous and unable to keep anything down. I was super dizzy, had a migraine, my blood pressure was irregular, and was just overall exhausted. I nearly passed out twice before leaving the house. I wanted to tough it out for the day because we were going to have a family party with his extended family.
We went to his grandmaβs house and hung out of a few hours. It was really nice to meet more of his family. They were all super sweet. During a card game I felt myself getting sicker and unable to handle it. I knew
... keep reading on reddit β‘Is it possible to request my courses that will resume in-person lectures and term tests on January 31 to accommodate so that I do not have to attend in person but rather do it online since I am immunocompromised and don't want to risk getting sick from coming in person or at least minimizing times I have to come in?
I just got my booster shot and nurse asked me if I had an autoimmune disease. I said "I'm diabetic." Nurse says "but nothing that weakens your immune system, right?" I said "well... diabetes." She then said "my husband has diabetes and he's healthy as a horse!" So then we looked at the list of conditions that my state considers autoimmune. Look at that! Both type 1 and type 2 are listed! I should have said "are you sure you're a nurse?"
So a few weeks ago I spoke with my Intuitive eating/anti-diet dietician about some health concerns and implementing some gentle nutrition and she told me she doesnt think I am ready for that because I havent been super great at eating regular meals. Then this last week I was diagnosed with early stage systemic sclerosis and my doctor recommended a specific diet to hopefully prevent progression of this disease. I asked my dietician about it and she said she will research it and we will talk about it for our next appointment. I have a history of orthorexia and binge eating, so the idea of a restrictive "healthy" or "anti-inflammatory" diet seems really triggering, but at the same time I want to do all I can to prevent progression of my systemic sclerosis because it can lead to kidney, lung, and heart failure.
I have been working really hard on healing my relationship with food and my body over the last few years, including therapy, working with a dietician, reading ALL the books(IE, Anti-Diet, HAES, IE Workbook etc), and listening to ALL the podcasts. I no longer restrict any food groups, but I struggle to feed myself regularly because of other things like time, illness, etc. I guess I am just looking for any advice? I want to fast forward to gentle nutrtion without undoing the work I have done.
Everyone I know that has covid right now is vaccinated to varying degrees.
This is just an example of how their immune systems are already weakened.
I have never gotten covid and live in a large city.
Everyday I take zinc, vitamin d, make a fresh juice with kale, oregano, celery, orange juice and lemon.
no alcohol, no smoking, and I keep stress low.
big Pharma are creating customers. People with vax injuries are going to the drs over and over again now. People who get sick from omicron are likely to get boosted a 4th time for extra protection because they are convinced covid is super duper dangerous and the vaccines help keep them out of the hospital.
some people will have long term silent issues that will require more western medicine attention and become a slow degrade on their system. literal cash cows that will siphon peoples life savings.
all this money being generated will be paying off politicians that they lobby for. Its all interconnected and all based on power.
that's the most obvious to me right now. also, of course vax passes help extra surveillance and social credit. closing businesses and creating the biggest wealth transfer in history. Masking to show compliance and submissiveness. Mass confusion to create more weakness. Constant propaganda to control and program fear and weakness into people.
on top of that we as consolidating western power in the world under the great reset. Its only important the world powers join in on this, as they will be able to bully countries that don't comply later on down the line. That is why there isn't a big emphases getting Africa vaccinated, or Eastern Europe. too poor doesn't matter
then there is me. the conspiracy theorist. Low stress, healthy eating. Not a single issue the last two years health wise.
So my doctor diagnosed me with vitiligo today after examining some a spot on my face, one on my neck, one on my shoulder and some lighter patches on my chest. He also did some bloods which indicated there is no autoimmune disease.
These are the tests he ordered, not sure if it makes sense to anyone but if it does I am wondering if there's a specific test that needs to be done that wasn't?
https://ibb.co/QDSZ0wQ
If my vitiligo isn't caused by any sort of autoimmune condition, what other possible causes are there?
I've also seen many others supplement with things like vitamin B12, folic acid, vitamin d etc. Would I adopt the same approach for my case given there is no autoimmune conditions?
Also, more questions about everyday things like shaving for example, do I avoid shaving the areas with spots/lesions? Do I continue using my usual body wash, face wash etc?
Apologies for all the questions but almost all the information I've come across assumes that it's caused by an autoimmune condition to trying to figure out how to approach treating my vitiligo...thanks and all the best to you all.
I dont have another autoimmune disease to my knowledge but I do know I get some gnarly peripheral neuropathy and consistent night sweats. I was wondering if anyone has experienced this as well? And Iβm just curious about what autoimmune diseases seem to be linked to Celiac
I was wondering if anyone has any good resources they've found (or any sort of way of describing things you've come up with) to describe having an autoimmune disease.
I find it hard to explain to people because most of the time I seem fine. I go to Orange Theory pretty often and I play the piano. But sometimes I can't get to the gym. Or if I'm there, I can't plank. And sometimes my fingers don't work right when I'm trying to play the piano. But I think it just comes off as an off day vs. hitting a point where I physically can't do it.
My doctor is back to looking at lupus again at my primary AI. And I know people are trying to be helpful when they tell me about someone who had it who was totally fine, but I also know people with chronic diseases don't "look sick" or advertise their daily struggles since they are chronic.
Thanks for any help!
Been a type 1 since I was 6 and Iβm now 24 (M), diagnosed with mild psoriasis around 18 years old I mainly have it only on my elbows and is annoying but bearable. So I first saw my CRS a couple years ago for a fistula that I had put off getting diagnosed for about 5 years because I was too embarrassed when I was in high school/college to even get it looked at so I would go through the same routine of having it be very uncomfortable, burst and provide some relief, heal and then repeat the cycle. The CRS I see did an examination under anesthesia and put in a seton to drain my original fistula and then after going through that excruciating pain for about 3 weeks she performed a lift procedure to remove the fistula and seal it up. I was healed up and feeling good that I got it taken care of after about a month or so. About 9 months later this past summer I noticed another bump and went back to see her and she said that this one was superficial so she scheduled me for another operation and I just recently had that one taken care of. So far Iβm 3 surgeries in for this and itβs been terrible. My CRS sent me to a gastroenterologist bc she thinks that I have chrons due to the reoccurring fistulas and because I am a type 1 diabetic and have psoriasis so my body is prone to killing itself apparently. My gastro did blood tests, stool tests, urine tests, colonoscopy w/ tissue samples, and recently a CT scan and he has said everything looks normal but that my chrons could be βdevelopingβ which is some of the shittiest news Iβve ever heard. So now Iβm in the same boat just wondering what the hell is going on/when Iβll get another fistula/have to go in for surgery. I have a follow up with my gastro in a couple weeks so I am curious what the next steps will be in determining why they are happening but my guess is that he will stay on the idea that I have developing chrons disease (Edit: My doctor said that he believes I donβt have chrons but it will be good to keep checking in with him, regardless something has been causing the fistulas which is still undiagnosed). Life is pretty shitty to some of us unfortunately, I just try to remind myself that it could be worse or I could be in one of my multiple close friends shoes who have passed away so young due to unforeseen circumstances/events. I have just been trying to enjoy every day and do the things I like because life is short for everyone and itβs definitely what you make of it. Just really hoping I donβt live a short lif
... keep reading on reddit β‘So I know that mentioning your illnesses is a tricky thing, but I am still feeling very uncertain about this:
I planned to pursue my interest in classical political theory and even applied to a few long-shot Ph.D. programs in PoliSci during the first COVID Application cycle; however, while waiting for the results (rejected or waitlisted), I was diagnosed with multiple sclerosis and hence had to come into close contact with my countryβs healthcare system (I am from Russia). There experience made me reconsider EVERYTHING, and I became unable to play with the Greeks as soon as I came to know how people with chronic diseases get enslaved by the government since they depend on the current regime, how the Russians have a bizarre attitude towards such people, how Russian IR behavior backfires at everyone, including the people who depend on the treatment manufactured in the US/Europe etc., etc., etc.
Finally, Iβve also been interested in Russian culture, realism and anti-realism, current changes in Russian PoMo lit (became less angry and more tired), and now I just feel I should address the issues I used to avoid or discuss between the lines. Plus, I finished my MA program and ended 6-year long research project on political emotions in Ancient Greece, and now I am free and hungry for a new research quest. So I plan to apply to Ph.D. programs in Slavic studies/literatures etc., and a bunch of CompLit programs with a particular interest in immunology, postcolonialism of the peculiar Russian kind, transition studies. (I know about the job market, but this issue is of the least importance here)
The question is: when explaining my sudden turn from the classics to Russia / immunology/postcolonialism, is it a bad idea to mention multiple sclerosis? Usually, I disclose this since Iβve chosen not to keep this a mystery. This is not a mental disease, and I can do perfectly well as soon as I have my treatment, but I fear that (1) I may be seen as a weak person because of my diagnosis; (2) I may be seen too cliche βwow, youβve got sick and you had a revelation!β; (3) I may be seen as a person who is trying to manipulate AdComs. The truth is, this is exactly what happened - after several flares, lots of pain, uncertainty, and bureaucracyβs attempts to rape my self-identity, I went through a significant change, however trivial this may sound.
Thank you for any input!!
https://www.reddit.com/r/Health/comments/rzum75/global_spread_of_autoimmune_disease_blamed_on/?utm_source=share&utm_medium=ios_app&utm_name=iossmf
Not saying anything I donβt think weβre already aware of but nice that the world is starting to take these things more seriously. Found in r/health
I read herpes viruses can bring on and progress autoimmune diseases. Had anyone had this experience?
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