Alopecia Universalis Puns

Several articles have come out in the last 2-3 years showing anecdotal evidence that Dupixent spontaneously spawned hair regrow that in eczema patients. There was a year long study on it that wrapped up in Dec 2020 but results haven’t been posted yet. Treatment of Alopecia Areata (AA) With Dupilumab

I was wondering if anyone has had any luck??? I’ve been on it 2 months and seen small success, but been told it can take up to 4 months to see full results... should I hold my breath???

Hey all, I am trying to find delgocitinib corectim 0.5 to buy/order since in Germany is unavailable and also unavailable to order it and just in Japan and which I have no friends there. Do you guy happen to know in which country is also available? I have relatives in Canada and USA it could work for me. And how much it costs? I have alopecia universalis, autoimmune disease and my doctor suggested me to use this cream twice a day.

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My 12-year old son developed Alopecia Universalis beginning ~September 1st. By the middle of October he lost all of his hair including eyebrows and eyelashes.

We started on 12.5MG of Methotrexate around January 1st. It is now March 2nd, 2021. He has had blood work done and all of his labs are good. He takes the methotrexate once per week - on Sundays. In addition, he takes a pill for Folic Acid to help with side effects. To date he has had no side effects, but know this may not be true for all patients.

I went to give him a kiss goodbye before work last Thursday and immediately noticed peach fuzz that had come out of nowhere on the backside of his scalp. I immediately started crying and did my best to hide my excitement from him in the event that it is a false sign of regrowth.

The past week has seen additional "peach fuzz" or hair beginning to come thru on the top of his scalp as well. I have no idea how this will come in, when the pigmentation will change, the density of hair, etc. But it is hope, which is more than we could ask for right now.

I will update with pictures in a couple weeks. But for those who are waiting for a JAK Inhibitor to be approved or trying other medications, it may be helpful to ask your treating doctor about Methotrexate as a possible solution.

Hi all, I had shingles January 2020 and took valocyclovir for 10 days and noticed my first hair loss spot several weeks later. It’s now been about a year since and my hair loss and just steadily progressed to universalis. I’ve been to the dermatologist and have had cortisone injections without much improvement. I’ve also tried the AIP diet with no hair improvement.

I’m just wondering if anyone has had a similar experience or has successfully treated hair loss after taking the medication or having shingles.

https://imgur.com/a/VZa5Fdt

Hello! I’m Alex. I’m 17 and from France. When I was 6 my mom started noticing bits of hair on my pillow when I woke up. After a while she knew something was wrong, she told me that she would grab my hair and chunks would fall out. I went to the dermatologist and they diagnosed me with what they thought was alopecia areta at the time (only affecting the scalp in small patches).

Alopecia is an autoimmune disorder that attacks hair follicles. They told us that as of now, alopecia has no known cure though there are treatments and miracles do occur. They also said that it was most likely genetic and stress-related. But I’ve just recently started researching my condition and many say it could be caused by inflammation in the gut which many autoimmune disorders are related to. I also saw that the solution could stem from a more holistic approach, meaning alopecia is only a symptom of a deeper issue and that the body’s balance is generally out of whack.

I have a family of two half brothers and a sister, my father was always very tough on the boys and hair loss (male pattern baldness) runs on my paternal side. My mother blamed my father for potentially causing the stress and ultimately passing me “the bad genes”. He would deny this but recently as my familial situation changed, I learnt that he felt very guilty which is part of the reason why I had it easier than my two older brothers when they were growing up, and he researched my condition a lot to try to find a solution and has taken me to several specialists.

So when the bald patches started to grow we all knew that there was no it getting better on its own and I still remember the day when my mother decided to shave it all off because it would look better. At 11 i noticed a tiny patch in my eyelashes which grew. At a certain age I realized that what I had was alopecia universalis (affecting the entire body). Having almost no body hair when I should’ve and my eyelashes/eyebrows disappearing to the point of having none two years ago. Though I have them now, I fluctuate between losing them to them being dark and full (but still patchy).

Anyways thank you for reading ! Feel free to ask any questions :)

I'm a 28 year old male living in Scotland, originally from the south of England.

When I was getting ready to go out on a date at the age of 22, my mate noticed that I had a perfectly round bald spot above my left ear. I'd never noticed a bald spot anywhere on me so I shrugged it off, but more appeared to the point where my hair was incredibly patchy so I shaved it all off. Eventually there was no hair left at all, anywhere! No eyebrows, no eyelashes, nothing!

I do have small amounts of regrowth which I shave down, mostly on my head and face but also my wrists and the odd stray leg hair. I've totally made my peace with being a bald man so young, in fact I think it's given me a confidence that I didn't have before and I wouldn't be fussed if I stay bald for the rest of my life!

If you've ever felt embarrassed to ask a question to somebody suffering with hair loss, or you have any questions about what it was like, ask away!

Hi everyone, just wanted to stop in and share my personal experience with hair loss in the case my story might help even one person. So here goes:

In 2018, I was the most stressed I’ve ever been in my life (so far). I was planning my own wedding, burning out in my job that caused me a lot of anguish at the time, my parents both fell ill (they’re both still with me, thankfully), I was the maid of honor in my sister’s wedding, I had my wisdom teeth removed, a root canal, and I hadn’t taken any days off in close to 2 years to save up time off for my wedding in August of 2018 and subsequent honeymoon.

On July 23, 2018 my fiancé (now husband) noticed a bald spot on the back of my head. I thought nothing of it at first and rushed off to a family event. Literally the next day, all of my silky long hair felt completely dead, brittle, and lifeless. It was so sudden. I woke up to all of my hair on my pillow case and any time I ran my hand through my hair big clumps came out. I was horrified and so scared. I’d never experienced hair loss before and my hair was the one thing i never thought I’d need to worry about, especially with my wedding coming up in just a few short weeks.

Anyway, I went to my doctor and she was not helpful. Bloodwork came back “normal”. She sent me to the dermatologist, and he told me I had alopecia or telogen effluvium (diffuse shedding) based on how suddenly my hair was going. I shared with both of them that I had a root canal, my wisdom teeth removed, and had switched birth control all before May of 2018. Both said that it was likely unrelated. They said it probably wasn’t my job that was stressing me out since I had been at my company for three years at that point — even though my job was definitely the consistent source of my stress at the time. Looking back, I think it was a perfect storm of just about everything and I wish my doctors would have helped me understand that better.

Unhappy with the information i received I sought out to be my own advocate. I refused the expensive steroid creams and scalp injections (based on the results vs the side effects, risk wasn’t worth it to me), wasn’t interested in driving 3 hours one way on a regular basis to do a clinical trial for a drug I’d need to potentially take for the rest of my life, and stopped taking any forms of hormonal birth control. I cried a bunch and freaked out a lot. I had multiple anxiety attacks a day. I still had to go to work and manage my team. I was a wreck. I had no i

Has anyone experienced alopecia universalis while on Humira? BF has been on Humira for 1.5 years (diagnosed with UC) and was doing great until January. Started experiencing bald patches in beard, then scalp and has progressed to the rest of the body. Blood tests have come back fine so GI thinks it is a side effect of the Humira and is transitioning him to new meds. I’ve done some research and AU does appear to be an extremely rare, but not unheard of side effect. Unfortunately there’s not a lot of research out there. Has anyone else experienced anything like this? Did your hair grow back? BF is experiencing a lot of stress because of the hair loss and anxiety about changing meds. I want to be able to support him any way I can.

Honestly, I'm not optimistic, but out of nowhere I got a sudden influx of hair regrowth in the last couple months. Not much. Little scattered strands across my scalp. Two really tiny sparse patches on opposite sides of my head. Barely noticeable really. But, I have to ask, is this a sign of hope?

Some background: my hair fell out everywhere on my body after my health insurance discontinued the biologic agent Dupilumab from me 2 years ago. Otherwise, I have no predisposition towards hair loss whatsoever. It was really tragic that the happened and has affected my social life and body image severely. My hope is low, but this recent influx of regrowth has reignited some of my hope, albeit small.

When I was ten years old, my mom noticed some bald spots, and I was diagnosed with Alopecia Areata. Two years later, all of my hair fell out in a matter of weeks. This includes my eyebrows, eyelashes, body hair, nose hair, everything.

Recently, I grew some patches on my head along with a few eyelashes. I wear wigs and fake eyebrows/eyelashes when I'm out in public.

Here is a picture of me without hair - http://imgur.com/1AaBP

Here is me with hair/makeup - http://imgur.com/dJKzr http://imgur.com/5miWG http://imgur.com/mROm1

I'm really hoping to spread awareness, since so few people know about this condition. This is also my first post, so I hope I'm doing this right.

Edit: front page?! You guys are awesome

Another edit: for all you awesome skeptics out there! http://imgur.com/HI548 http://imgur.com/m1WEv

http://imgur.com/a/TSOzjyR

Basically title. I'm overweight for sure, and Ive been on a helluva ride to lose weight. I've shed some pounds since January, but I still feel weird in my own skin. People feel obligated to be nice to me because of my condition and it honestly annoys me. I just want honesty, ya know?

Don't be afraid to be harsh! I'm made of tough stuff, and I probably need to hear it anyway! :)

I was originally diagnosed with Alopecia Areata when I was 8 years old which quickly progressed to Alopecia Universalis. I am now 20 years old and married. AMA

Wikipedia Alopecia Universalis

Photo Album removed

Edit: I think I got everyone, sorry if I missed you. Will answer anything else that comes to my inbox.

Hello! I've done one of these before, but I wanted to raise some more awareness to this tricky disease.

When I was 21 I noticed a small patch of hair missing from my hair line. I didn't think anything of it because at the time my mother was very ill. She passed away, my hair loss got worse, and here I am a year later...completely hairless. There have been some recent successful findings with the use of immunosuppressants, but those can be very harmful to the body.

Anyway, AMA!

Here's my proof: http://imgur.com/D60z0G2

Hi, I am looking for a good doctor in bay area neighbourhood who can diagnose and treat my hair fall situation. Currently I am noticing hairfall across my eye brows / eyelashes / nostril hair pretty much all over my body. I saw few dermatologist doctors in past and they were not helpful just saying its a male pattern baldness. I checked online and it says it can be an autoimmune related issue. PLEASE HELP ME FIND A GOOD DOCTOR WHO CAN HELP ME OR ANY ADVICE WHO IS GOING THROUGH SAME SITUATION.

THANKS!

Hey guys, so I started loosing my hair when I was 8 years old, and it was all gone by the time I turned 9. I was diagnosed with Alopecia when I was 10. Ask away.

Me: http://i.imgur.com/e7d1n.jpg

Proof: http://i.imgur.com/4ebrE.jpg

I’m 23 and my life was ruined in the last 6 months. Some background: I’ve always been a smart guy. I’m a PhD student. I have good taste in art and strong moral/philosophical convictions. I haven’t been great at much outside of the cerebral, but I could express myself through mediums that require creativity and intuition, like writing and film making.

My family immigrated to America from Uzbekistan when I was 4. I was raised by a single mother. We lived in poverty all my life. I got bullied. Due to translation issues, my first name was literally Semen until high school. I had severe eczema all across my body such that I couldn’t even move — sometimes I was completely immobile. I also had pretty bad allergies. I’m allergic to most foods and as a result my diet is super expensive. My skin being so rashy worsened my body image and alienation from others and sense of inferiority. It didn’t help that I’ve always been short and scrawny. Today I’m 5’5”.

Despite all of these disadvantages, it wasn’t that bad of a childhood or adolescence. I enjoyed different creative outlets and got really good grades, got into a top university and even a PhD program in Artificial Intelligence. I loved rambling about politics, leftism, feminism, philosophy, and spirituality. I was good at it. My identity centered around the creative and cerebral. My biggest challenge was my social anxiety, and overcoming that was my main concern.

Little did I know, things would get worse beyond my worst nightmares. A couple years ago, two horrible events coincided at once: (1) I was prescribed Dupilumab, a hardcore medication for severe dermatitis, and (2) I started getting symptoms of mania.

A year later, my health insurance cut me off from Dupilumab. How unfortunate! Okay, so I thought my eczema would return and that’s all. No, instead, my eczema returned and all of the hair on my body fell out. Complete baldness. Not even eyebrows. To think I struggled with body image issues before. Now I look like I have cancer. I’m only 23 and the remainder of my life has to be spent hairless head to toe because I live in a country where your health insurance is allowed to cut you off from a medication you need.

Then the mania. I started getting grandiose thoughts and becoming more and more toxic to the people around me. I acted awfully. I betrayed my closest friends. I’ve since apologized, but it can’t be undone. I destroyed every relationship I had. I took my friends for granted and now I have no fri

To those who have AU or AT, how did your alopecia progress? Did it go from areata to universalis/totalis? How long did it take for you to lose all of it?

I think I’m progressing into universalis and I just want to hear people’s experiences/how their condition progressed. :)

I have AA and have gone through 2 bouts of large hair loss! I don’t know anyone else with AA or alopecia at all. I started my first semester of college this year and I met a guy that had AU! While we have different types it is really nice to meet someone in real life that understands the struggle of alopecia and can emphasize with me.

It started off as a small patch of hair missing. 1 year later I have close to no hair on my body. I'm a 21 year old female.

My purpose for doing an AMA is to bring awareness to the disease. Not too many know about it, but alopecia is an autoimmune disease where the body attacks the hair follicles. not life-threatening per se, but it does do damage to one's self-esteem. http://en.wikipedia.org/wiki/Alopecia_areata

Feel free to ask for more proof

Hallo, my name is Alex and I am 28 years old (male) and I have alopecia universalis. I never really noticed it till my eyebrows started to go. Reason why I did not notice it, is because I always was hairy and it was thinning out rather than falling out.

Problem is that seven years ago I noticed my hair going. Did not thought much of it cause my dad is also bald. I accepted it as male pattern baldness. But after reading a bit I came to the conclusion that it was an infection caused by a stupid desicion.

I was sick and decided to go to work. My work was very dirty at the time. So I probably ended up with something bad inside. After the fever went away I got headaches that I usually have once a week till today. Also my hair started to go but I did not make the connection. Now it all makes sense.

But the worst part is not the hair right now. The worst part is that I can't come to terms with the desicion I made 7 years ago. I just constantly think that it could have been different. And the question why comes up a lot.

I du not want to fall into a depression, had to deal with it already in my life. My question is, did any of you expiereienced a similar turn of events and how did you come to terms with it.

This might seem unconventional, and even I'm surprised, but I am a male and I find that I still can't get over my alopecia universalis after 7 years. The way I used to look played a big role in my personality. Growing up, I always had this boyish charm to me, it was part of my identity. I'd like to think I'm not a shallow person, because I do value what's inside more than what's outside. But I just don't feel the same. Even as a male, it's hard to feel attractive with not a single hair on your face. False eyebrows, makeup, wigs, whatever, you just know deep down that you look different and less attractive than you were before. A part of me prays that one day something just clicks and my hair starts growing back. At the same time, I want to accept my appearance more and try to be more confident with my new look.

I just want to share my thoughts and see how everyone else copes with their alopecia. We're all in this together :)

And does anyone know of any nanobot permanent follicle destruction studies in San Diego, CA?

Hi all! I am 37, and 4 months pregnant. I started losing my hair at 8 weeks pregnant and now have no hair on my head, underarms, legs, and losing my eyebrows! Has anyone else gotten alopecia from pregnancy? Thanks!

Hello Reddit, i'm Dr Fadi and i'm a general physician who contracted Alopecia Universalis at the age of 25. I'm curious about nail changes in alopecia, so my questions are:

• Did you experience any nail changes after being diagnosed with alopecia?
• If so, then describe the changes and how many nails were affected?
• Did the nail changes improve, get worse or remain the same?
• I would appreciate it if you state the age you got the alopecia, and whether it's areata, totalis or universalis.

Edit

• Do the index fingernails look more healthy, or appear to be less affected?

Thanks for helping me to better understand the disease.

I first noticed my hair falling out in first grade, I lost all of my hair in fifth grade- and it never returned. My eyebrows/eyelashes/leg and arm hair come in and fall out off and on... ask me anything!

With hair! [IMG]http://i1241.photobucket.com/albums/gg516/monikaholly/305493_2410865517331_1422036828_2704672_1176240359_n1.jpg[/IMG]

Now it's not there! [IMG]http://i1241.photobucket.com/albums/gg516/monikaholly/22.jpg[/IMG]

Anyone here been diagnosed with this form of Alopecia (AU)? Dr says it’s the rarest.. they’ve pretty much given up doing shots to my head/scalp and are just doing my eyebrows. Has anyone here ever had regrowth with AU? The Dr really didn’t seem too assuring that anything would grow back.. pretty bummed ☹️

Not a single strand of hair exists on my body, ask me anything!

I posted here about two days ago about my Alopecia Universalis. She loved the post and wants to be hair free, like me!