Temporal lobe Puns

I (32F) was recently diagnosed with TLE in late 2021 after 15+ years of trying to figure out what was causing my bizarre episodes. I did short term EEGs, MRIs and eventually a week long EEG that confirmed my diagnosis.

I am feeling rather alone about it. My partner and family are supportive, but I can tell they are seeing the changes in my behavior due to Keppra (I am also on lexapro). Does anyone with TLE have advice or guidance for someone just diagnosed?

I'm on an adventure to find out why my body is the way it is. My family really dropped the ball with my health & ignored obvious problems. Combine that with poverty & a history of seeing the worst doctors I could find & here I am in my 30s trying to work backwards to figure out diagnoses.

I found out just over a month ago that I've been experiencing focal seizures since I was a child. I've been getting these little head rushes & randomly slipping into weird dreamlike states since I was probably 9 or 10. I also get little tics where I twitch or jerk, which has provided me with a lifetime of clumsiness. It was brought up multiple times to my mom, but the only thing that ever happened is the family doctor ordered a CBC, said everything looked fine & that it was probably just stress related. No further testing or action was taken & any further issues were ignored by my mother. When I moved out, I couldn't afford insurance or medical care, so the issues were put off even longer. Eventually I got married & was added to my husband's insurance, so I was finally able to afford medical care.

So I lived with these weird little tics & random changes in perception for 30+ years until I reached a point where I was in a constant state of pain & fatigue. I recently left another doctor who refused to order testing & was convinced it was psychosomatic. Now I have a new doctor who was willing to listen & run tests. After checking a few hormones, she discovered signs of hypopituitarism & referred me to an endocrinologist. I brought up my other issues that I'd been having for years & she said it sounded like "seizure-like activity". She had me keep a journal for 30 days to track the symptoms. That prompted me to read about seizure symptoms & once I recognized them, I discovered mine were triggered by sleep deprivation, stress, certain sounds, smells, & light/color patterns. With the signs now pointing to epilepsy, my doctor sent a referral to a neurologist.

Now, referrals are great, but the healthcare system in the US is kind of a shitshow right now. I'm finally getting into the endocrinologist this week (even with an urgent referral, it still took 6 weeks to squeeze me in), but neurology hasn't even scheduled me yet.

So now I'm playing the waiting game. But my desire for answers is strong, so I'm always reading more & more to understand what might be happening while I wait for concrete answers.

At first I th

Hello, I wanted to get some advice. I’ve been having temporal lobe seizures for about 4 years. I’ve only seen one doctor in attempt to diagnose, but I was quickly told I just had anxiety, so I’ve just dealt with it. After reading countless testimonies, I’m more than confident that what I have is TLE. I’ve never been overly concerned about it, it never really effected me in a huge way. I would have an episode that lasted 30 seconds, and nothing major would happen so I didn’t worry. But within the last 5 months, the frequency has increased greatly and I’ve developed some memory problems. About once or twice a month, it will happen 8-10 in a 24 hr period. I will keep waking up to an episode, and they can be pretty intense. I sometimes have trouble remembering events, someone will be telling a story about something we did together and I’ll have no memory of it. Things as recently as last March. I wanted to know if anyone else has experienced this type of progression, and what happened in their case. I’m attempting to see a neurologist this week, so I’m hoping to get answers soon!

I just found out that the intense deja vu/clairvoyant feelings/zoning out/hallucinations that I've been having isn't from too much weed or just me being weird. I want to see a neurologist soon but I'm hesitant to get a proper diagnoses.

I love skydiving and don't think I could give it up, but if I really have this I'm not sure if its safe for me to continue my hobby.

Are temporal lobe seizures typically bad enough to make you lose awareness and body function long enough to be dangerous? I'm not sure exactly what my seizures look like because I've never noticed it happening. The only time anybody has seen something seizure-like was a week ago when my friend told me I zoned out mid-sentence and scratched my face then just continued talking with no recollection of it, which is what made me start suspecting I have something.

Any epileptic skydivers out there? I appreciate any advice or info about this stuff, its all new to me.

Hey,

I jut got a fitness watch for xmas and i have noticed when tracking my sleep im not getting enough deep sleep. Very interesting to see early in the late morning im going right from light sleep to rem. This explains lots of issues blowing through alarms and daytime fatigue. I also have a low resting heart rate.

Deep sleep seems to come on only after my night time valproate dose. But its relatively short. Im hoping to look into herbs to improve it. But for sure im bringing it up with my doc as this is not good. Does anyone have any recommendations? I also largely lack bedtime routines.

New Seizure type? Edited repost for months ago

Hello I am very new to seizures. I really just wanted to see if anyone has similar seizures to me. I have a head jerk always to my left with a feeling of pleasure running up my spine these last from a few secs to 10 seconds. Iv had a few episodes of gelastic seizures lasting from half a Minute to 4 minutes during theses I feel the same way I did when I had my appendix removed and they gave me morphine! Afterwards slurred speech extreme tiredness and headache that blows my mind. Im mainly posting due to a new potential seizure. Its onset starts with dizziness light visuals and pill rolling (rubbing fingers and thumbs rapidly) I then cannot move or talk for a few minutes after wards i have slurred speech confusion etc.. The Neuro has now decided i have atypical presentation of TLE as lamotrigine has reduced them down to nearly gone. My eeg and mri are clean. I have questioned him about phylogenic pnes etc.. hes pretty sure it is not as lamotrigine has worked. He has decided not to do anymore tests for a year. I just wanted too see if any one else had a similar seizure types etc....

Many thanks

Hello everyone! My first post here.

I have temporal lobe epilepsy (diagnosed 3 years ago). I take lamotrigine and levetiracetam. Yesterday I got diagnosed with ADHD by a psychiatrist and they prescribed me Wellbutrin 150mg. (They know I have epilepsy but prescribed it anyway)

I keep reading how people with epilepsy are not supposed to take Wellbutrin and it’s giving me a lot of anxiety.

Is it really common to have seizures while on Wellbutrin? My last EEG was completely normal and I haven’t had any seizures ever since I started my anti seizure meds. Thank you!🙏

Neuro thinks I have temporal lobe epilepsy. We are just yet to catch an episode on EEG. My question to you all is does anyone here have temporal lobe epilepsy that has not progressed to tonic clonic seizures? Like is it possible to only have focal aware seizures for life without progressing to the huge seizures, or do most people progress to the huge ones? It’s been almost a year of focal awares for me and they are terrifying enough to be honest

I'm confused. Does anyone know what this means?

Female, 23, MS, (questioning) epilepsy, diabetes and IBS

What could this mean?

Has anyone either been misdiagnosed as or also diagnosed with both TLE and bipolar? Or has anyone experienced an increase in temporal lobe seizures as a result of coming off an anti-epileptic mood stabilizer, such as Lamictal?

Suddenly started being able to smell vinegar about an hour ago, fairly faint but noticeable, this follows me everywhere I go, and still hasn't gotten away. I've had some chest pain, one tiny pain over my right temporal lobe, and at one point my legs began shaking slightly, but that didn't last long.

Now laying in bed worrying.

I have temporal lobe epilepsy and it's just so fucking tiring. The attacks became less frequent since I had a brain tumor operation earlier this year, but when they occur it just feels like I'm going insane and the fear of the attacks re-appearing is always present. Does anyone else have these? I've never known how to explain them to other people/doctors and I've never met anyone who has these attacks as well, so it would be interesting to hear someone else's experience.

Written By Abdullah Gondal

REVELATION OR DELUSION?

- Muhammad had a very troubled childhood where he lost both his parents at an extremely tender age. This would have a deep and everlasting effect on a young mind. At a very young age, Muhammad had his first hallucination. Two men allegedly held him and performed open-heart surgery in the middle of the desert. http://sunnah.com/muslim/1/320

What's interesting is the reaction of Halima. The lady who took care of Muhammad as a young child had been told that Muhammad had a stroke. Halima herself believed that Muhammad had been possessed by a demon. No external entity could verify the alleged experience.
‎Ibn Ishaq records the following on page 72
‎"His [Muhammad's friend's] father said to me, "I am afraid that this child has had a stroke, so take him back to his family before the result appears. ..... She [Muhammad's mother] asked me what happened and gave me no peace until I told her. When she asked if I feared a demon had possessed him, I replied that I did."

Even more profound is the fact Muhammad claimed to have had an almost identical experience once again just before the Miraj where his heart was opened up and the angel Gabriel performed open-heart surgery. What for? Hallucinations aren't supposed to make sense.
https://sunnah.com/bukhari/25/119

- Before Muhammad claimed prophethood, he claimed that he could hear stones praising him. A very strong auditory hallucination where inanimate objects talk to people.
http://sunnah.com/muslim/43/2

This didn't stop here. Muhammad went on to see mythical beings called Jins and that a tree informed him of them. Again an inanimate object is conversing or interacting with Muhammad

I was looking at the temporal lobes of different mammals, and noticed that most of them only have a stub (if any at all). They also don't have an insula, as the sylvian fissure is only a sylvian sulcus (if the animal is not lissencephalic). I found that only 3 species have a real temporal lobe: primates, elephants, and toothed whales. Below are my guesses why?

Primates - Very visual creatures. The defining characteristic is reliance on vision and enlarged occipital lobe. Their eyes also migrated to the front. I therefore believe that it was the expansion of the visual system (inferior temporal lobe) that increased the size of the temporal lobe.

Whales - I'm going to guess that the temporal lobe is an expansion of their auditory cortex, and sonar capabilities. This is consistent with their very enlarged inferior colliculus. It should be noted that some studies identified their auditory cortex in the parietal lobe.

Elephants - Given their incredible memorization of navigation routes, I expected that their temporal lobe will be due to to expansion of the hippocampus. Surprisingly, their hippocampus is rather small. Not sure why, or what their temporal lobe actually do. They do have very large frontal lobes, basal ganglia, and cerebellum which is expected given their control of the trunk.

Are there any species I missed? Thoughts?

https://pubmed.ncbi.nlm.nih.gov/16782503/

https://pubmed.ncbi.nlm.nih.gov/16782503/https://www.sciencedirect.com/science/article/pii/B9780123735539000389?via%3Dihub

I've been reading alot more on this condition and trying to pinpoint what seizure activity "feels like" for me. And lately i would describe it as something novel that happens, out of the usual. Suddenly, im fearful over something that most people would brush off. It could be a person or thing i can't quite place at that place/time. Like finding a note in a drawer i forgot writing. The emotions are quite quick intense and sometimes leave me tired after.

So my dad who is 60 was diagnosed a few months ago with this condition. Does anyone know anyone with it who can give me any information on it? How to help him for the future? What to expect?

Words vanish from me Immediately As I'm thrown to the floor Convulsing As I lose all light My mind swept away While my body still parades Like live fish Outside of a dish Ive seized Remove these memories I've stored them safe for decades But now I'll just forget to grab them Ways an anomaly can cause damage

Awaking with this straw they shoved in to remove the urine Uncomfortable pain In my main vein Please pull this string Aghhhhhhhhhhhh Help me remove it If any worse it'd probably make me faint Black engulfs my eyes While agony shoots through my toes I think I may pass out Sit down Down I go

Wake up, hey! you have suffered A grand Mal The most dangerous type You can have amongst the seizures Wake up, hey! You have just had a seizure Wait have I suffered amnesia They say I may never get it back

Hey what's your name Sorry I've had some damage bad short term memory Is what's left sorry I've had some damage Oh I did Must have told you again Sorry I've had some damage Bad short term memory I've had some damage

Please tell me how it's perceived this is my first attempt at a POV theme style feedback 2feedback 1

https://academic.oup.com/cercor/advance-article-abstract/doi/10.1093/cercor/bhab261/6347937

Abstract:

Creativity is generally defined as the ability to generate innovative thoughts that are both original and valuable. Previous studies have suggested that the temporal lobe, related to memory extraction and construction, is responsible for generating creative ideas and that the executive system supports the generation of creative ideas. However, the causal relationships between these structures and the novelty index as well as the appropriateness index of generated ideas have not been revealed. It is still largely unknown where and how original and valuable ideas are generated. In this study, the transcranial direct current stimulation technique was used to selectively manipulate the activity of the generation-related right temporoparietal junction (TPJ) (experiment 1) and the executive control-related left dorsolateral prefrontal cortex (DLPFC) (experiment 2). Then, both the novelty and appropriateness indexes of generated ideas were analyzed during insight problem-solving. The results showed that anodal stimulation of the right TPJ increased both the novelty and appropriateness indexes of creative ideas, whereas anodal stimulation of the left DLPFC increased the novelty index but not the appropriateness index of creative ideas. These findings suggest that the posterior temporal lobe takes both the novelty and appropriateness attributes into account to generate ideas, while the executive control system can effectively regulate the novelty attribute of generated ideas but ineffectively addresses the inappropriateness attribute. The current study indicates complementary mechanisms in the process of generating original and valuable ideas.

Hey guys! I’m 22 y.o., been struggling with epilepsy my whole life, was properly diagnosed at 20. Currently on Lamotrigin and Gabapantin.

Was on different BC’s since 16 years old because my periods don’t stop without it.

All hormones that I tried before (levonorgestrel and ethinylestradiol) conflict with my epilepsy meds.

As I understand now, the best coarse of action would be to ask my gynecologist and epileptologist to get in touch and discuss my situation.

Does anyone have a similar problem? Any advice or opinion would be appropriated!

I wonder why mohamad had his revelation conditions so much similar to temporal lobe epilepsy like this patient john in the video

Symptoms :

Convulsions☑️

Shivering☑️

Trembling ☑️

Snorting☑️

Salivating☑️

Rolling of eyes☑️

The Most important one : Grandiose Delusions i.e Relation with God and divine being ☑️

https://youtu.be/qIiIsDIkDtg

I was diagnosed with epilepsy about 6.5 years ago. I was originally put on Dilantin which didn’t stop the seizures; (grand mal) they were still happening, roughly, every three months and just caused extreme weight loss. After a week long stay in the EEG monitoring unit I was put on lamotrigine and clobazam. These medications worked. They worked great. I still felt like myself, I was optimistic, outgoing, wanted to go out and do things. Then after about 4 years I started to have, what me and my epileptologist believe are focal seizures. Mild but still happening. We upped my doses of medications and that worked for a little while. But these focal seizures kept happening. I slowly got more frustrated and defeated because it just kept creeping back in and screwing up my “normal life”. I have become a very introverted, anxious, forgetful, tired version of myself. Then after 5 years on the meds I had a grand mal. This was incredibly defeating and I was willing to do anything to stop it from happening again. Once the lamotrigine and clobazam stopped working as well as they had been we introduced new medications. I can’t even remember which ones. I believe they were more to treat the anxiety but also may have been helpful with seizure activity. Those weren’t successful. I just started taking keppra about 3 weeks ago and I have noticed some very annoying side effects. Nothing too severe yet. I’m only taking 500mg a day for now. I’m feeling uncoordinated, a little off balance at times, my short term memory is completely shot and I’m exhausted all the time.

Anyways, if the keppra works to keep my seizures at bay, I don’t know if I am willing to deal with the side effects long term. I know there’s a chance they subside or at least become less annoying the longer I’ve been on it. But I was doing some thinking and kind of trying to make a timeline.

I noticed that the focal seizures kind of lined up with when I started to take my my birth control. I’m taking norethindrone which has no estrogen in it because it’s what was recommended. I was, more or less, wondering if maybe the keppra isn’t right for me if, instead of trying another new medication, I could suggest going back down to just the lamotrigine and clobazam without the birth control pills and see if that makes a difference?

I know professional medical advice may not be a strong suit for a lot of people on this subreddit but I know a lot of you are dealing with similar problems.

I don’t really know w

I finally have an appointment for an EEG to figure out what's going on with me.

I went to my doctor a few months ago regarding these "episodes" I've been having. I explained them to her and without any prompting she suggested that they might be seizures. I won't go into detail but what brought me to this subreddit a few months ago was my connection specifically to temporal lobe seizures.

Anyway, I'm worried the EEG won't show anything and my doctor will brush it all off. Will an EEG show anything if I'm not actively having a seizure?

Back in April, I had my first EEG and it turns out I have partial epilepsy which I never knew even existed. I was having spells of dizziness, nausea, and uncontrollable shaking but was completely conscious always. It’s been a few months now and I’m on Zonisamide, feeling generally better. Later in May though, I had a tilt table test done and during the test my heart stopped for a little over a minute. That same day I had a pacemaker implanted and am feeling better even still.

Tomorrow morning I have a follow up EEG to check on my status. Lately, I’ve been having more spells of what I can only ever really describe as “dissociation”. It’s almost a panicked feeling that I suddenly am not in my body anymore or that I need to escape it? Its as though I feel as if I need to throw up but my entire body feels “staticky”. It’s very difficult to explain. But I’m almost wondering if these aren’t related to partial seizures and just presenting themselves in this way that I have always mistaken for anxiety or panic. I’m certainly not at the severity I was at pre-medication, but these spells are concerning and I’m feeling written off by doctors who want to label it anxiety (but maybe that is truly what it is..)

So, if anyone is still reading :), two questions,

1. What does a partial seizure feel like to you? And,
2. Has anyone ever heard of ictal bradycardia or had seizures with cardiac issues? Curious to know if there are other cases similar to mine though I have no official diagnosis. Trying to connect the dots.

Hello everyone! I am new to this subreddit and new to epilepsy. I am having temporal lobe seizures and I’m currently taking Vimpat (150mg twice daily). Looking to see what others experience with these seizures, what are your triggers, and what medicine worked best for you…so here’s my story and experience so far:

Around a year ago I had this really weird daydream that felt like I was reliving a dream I once had and it just felt really weird. I had them off and on but not daily or even weekly at that time. Fast forward 6 months to this January and I started noticing them more frequently and they started coming with other symptoms like tingling in my arm/hand and a rising sensation in my stomach. At this point I researched and found that they could be seizures so I immediately scheduled an appointment with a neurologist in February who ordered and MRI which was in April. I learned that I have a 3cm meningioma tumor pushing on my right temporal lobe which is what’s triggering these. I met with a neurosurgeon right away and am going to try and get this tumor removed asap but first I had to get the seizures controlled. I was on Keppra for around 6 weeks but it wasn’t making a difference so I got to spend 4 days in the EMU (hospital prison) where they said they could only see very subtle activity a couple times but it was consistent with epilepsy. I switched to Vimpat my last couple days in there and have been on that now for a little over a month. At first it seemed to help with controlling them but it didn’t eliminate them so they upped the dose a week ago.

I’ve also been fighting off a sinus infection this past week and noticed the seizures are happening much more frequently and I’m not sure if it’s the higher dose or being sick or maybe I’m mistaking seizures for Vimpat side effects…I’m kinda leaning towards being sick but I’m not sure. I meet with my later this week so she’ll be able to help as well but I wanted to chat with some others about it too…