Hello everyone, I just wrote an article about my experience with IBD (UC). It's more on the comedic side, but maybe it could make you feel a bit better by adding some normalcy to an awkward situation.
Soooo... I just went to the doctor and I have IBD! I was going for PF and told them all of my symptoms and did test and now here I am. Anyone else? They said my PF is caused by IBD 😭
How does smoking help in ulcerative colitis while aggravate crohn's?
Hello, how does everyone study or work with this condition?
What medication, natural supplements, dietary advice or lifestyle do you recommend to enable you do those things?.
Hey everyone, I am a 30 year old German gastrointestinal surgeon currently working in the United States. I am a surgical resident at a German Hospital, with roughly 18 months experience, including a year of Intensive Care. I started doing research on inflammatory bowel disease at a US university hospital in 2019. While still employed in Germany, my surgical training is currently paused, so that I can focus on my research. This summer I will return to working as a surgical resident and finish my training and become a GI surgeon. The plan is to continue working in academia, because I love clinical work, research and teaching! I was a first generation college student and heavily involved in student government and associations - so feel free to also ask anything related to Medical School, education and training!
I have witnessed the past two years from two very different standpoints, one being a temporary resident of the US and the other being a German citizen. Witnessing a Trump presidency & impeachment, BLM, Kobe Bryant, RBG, a General Election, a Biden-Harris presidency, police violence, the COVID-19 pandemic, the assault on the US Capitol on January 6th, and the COVID-19 vaccine rollout has been quite a journey.
Obviously I am happy to try and answer any medical question, but full disclosure: none of my answers can be used or interpreted as official medical advice! If you are experiencing a medical emergency, please call 911 (and get off Reddit!), and if you are looking for medical counsel, please go see your trusted doctor! Thanks!! With that out of the way, AMA!
Alright, r/IAmA, let's do this!
Edit: hoooooly smokes, you guys are incredible and I am overwhelmed how well this has been received. Please know that I am excited to read every one of your comments, and I will try as hard as I can to address as many questions as possible. It is important to me to take time that every questions deservers, so hopefully you can understand it might take some more time now to get to your question. Thanks again, this is a great experience!!
Edit 2: Ok, r/IAmA, this is going far beyond my expectations. I will take care of my mice and eat something, but I will be back! Keep the questions coming!
Edit 3: I’m still alive, sorry, I’ll be home soon and then ready for round two. These comments, questions and the knowledge and experience shared in here is absolutely amazing!
Edit 4: alright, I’ll answer more questions now and
... keep reading on reddit ➡Dietary beliefs and recommendations in inflammatory bowel disease: a national survey of healthcare professionals in the UK Benjamin Crooks et al. Frontline Gastroenterol. 2020. Free PMC article Show details
Full text: https://pubmed.ncbi.nlm.nih.gov/34966530/
Abstract
Background: The role of diet in inflammatory bowel disease (IBD) remains incompletely understood. Knowledge around the actual dietary advice healthcare professionals provide to individuals with IBD is scarce. Our objective was to describe the dietary beliefs of healthcare professionals and dietary recommendations made to people with IBD.
Methodology: An online survey regarding IBD-related dietary beliefs and advice provided to patients was distributed to gastroenterologists, dietitians and IBD nurses in the UK.
Results: Two-hundred and twenty-three eligible healthcare professionals participated: 107 (48%) believed that diet was involved in IBD development. The most frequently implicated dietary components were processed foods (78%), additives/preservatives (71%), sweet/sugary foods (36%), red meat (36%) and fatty foods (31%). Views were broadly consistent across professions, however, gastroenterologists were significantly more likely to believe red meat and additives/preservatives initiated IBD. One hundred and thirteen participants (53%) believed that diet could trigger disease relapse and 128 (61%) recommended limiting specific foodstuffs to reduce this risk, most commonly high fibre foods. Forty-six (23%) considered recommending a low Fermentable Oligo-, Di- and Monosaccharides and Polyols diet to reduce relapse risk. IBD nurses and healthcare professionals with <5 years experience were most likely to recommend this. Dietitians felt most comfortable providing dietary advice for functional gastrointestinal symptoms in quiescent IBD.
Conclusion: Dietary advice in IBD is inconsistent reflecting uncertainty among healthcare professionals. While some consensus exists regarding dietary components implicated in IBD development and relapse, dietary recommendations varied. Future research is required to disentangle these complex relationships, alongside better training and education.
Keywords: crohn's disease; diet; inflammatory bowel disease; ulcerative colitis
I have mostly given up now. We are a middle class family and can't afford to go around to every single doctor. I even went to fortis mohali but the doctors didn't even listen to me. They just have me steroids and that's all.
So I turn to you guys for help. I am extremely frustrated and defeated. I just want it to end already. Pain 24/7.
Travelling is difficult for me and my family right now. My condition is also deteriorating. If I don't get treatment soon I might end up with surgery.
Can anyone suggest a good gastro? Especially someone who is proficient in treating ibd. If he can tele consult that would be great as we are not able to go out of state right now. I have already done all the tests humanly possible and Crohn's disease is confirmed. I just need to get in touch with a good doctor for treatment, which seems to be impossible as I have been trying for over 2 years.
I have heard about Ajit Sood but unfortunately he does not teleconsult. It's also not possible to go to cmc vellore or aiims or pgi. My family right now is not in a condition to travel.
I am in constant pain and can't even relax let alone study.
I would greatly appreciate it if you guys could recommend some good gastroenterologists who can consult me via call. I don't know how long I can hold on anymore.
Edit: I suppose this shows how rare this disease is in India. Literally everyone is saying ibd whereas I have IBD. They are worlds apart. IBD will kill you whereas IBS won't. It seems like you need to be extremely lucky to find a doctor who actually listens to you. Most people seem to get so bad that they need surgery.
I know surgery is a guarantee. But I want to at least try everything else before that. Not doing so would be idiotic. Well let's see how things go.
Again I have IBD and not IBS.
