hello! I'm looking into hypermobility for myself (I'm going to consult a doctor of course), and I'm wondering if anyone has severe joint aches, especially at night. I typically have leg aches that are localized around my joints but feel like a deep muscle pain, and I can't figure out what it is. I get this in my arms very rarely, but it does happen. does anyone else experience this? thanks!
I'm in the process of considering using a wheelchair part time, mostly because of severe fatigue and weakness. I kind of 'test drove' a wheelchair recently, and was surprised that the wheels were far back enough that I was worried about the strain on my shoulder instability (I have hEDS). If anyone here also has shoulder hypermobility, any advice regarding using a wheelchair? I'm planning to talk to my PT and see if there could be specific exercises I could do, but I'd also like to hear from people who have experienced this firsthand if possible. And just in case it's relevant, I cannot get a power chair for several reasons.
So, just for background, I have sort of a mystery hypermobile inflammatory thing that was diagnosed as hypermobility and fibromyalgia, but the specialist I saw said to check out resources for EDS pain management, even though he wasn't quite comfortable diagnosing me with EDS specifically.
Wedging and centering clay is really painful and uncomfortable, and it sucks to feel like I'm restricted to hand building while everyone else in the studio is busting out these amazing wheel-thrown pots. I have to smash the clay on the table to wedge it to avoid hurting my hands, which makes it even harder to center. Getting the clay centered on the wheel makes my finger joints and upper arms hurt so bad, and it continues hurting for days. I feel like I'm just not strong enough to use the wheel, and it really sucks.
Ahowre there any potters here with similar physical conditions who came up with tricks to continue their craft without hurting themselves? Thanks!
I hope it's okay to ask/rant about this, but it's become such a bother.
I wake up with a hip out of joint, collapse while walking or skating due to a hip or hips popping out, and whenever I try to play most any instrument, my thumbs pop out.
It's taking away my favorite activities, and stealing things that give me joy.
I've played stringed instruments for nearly 10 years now, but I'm finding it harder and more painful to do so each day, and my kalimba (thumb harp) has become impossible to play at all.
Does anyone else struggle with this? And if so, have you found anything to help?
Just because I was recently diagnosed with hEDS and before then I had never heard of it, and so many of the symptoms overlap with fibro! Is this something that most of you have heard of and ruled out?
So I posted recently regarding my hypermobility and level of pain but I was wondering if anyone had any experience with it and CECS. My doctor seems sceptical but hopefully by the end of next month I'm looking to have a diagnosis for CECS on top of hypermobility.
For those who don't know CECS generally refers to pain and muscle hardness during exercise as a result of increased pressure from fascia restriction. It more often occurs in athletes but has been considered under-diagnosed in the general public.
Just thinking theoretically surely the two conditions would play off each other since muscles working harder to counteract hypermobility would lead to irregular exertion and therefore pain. But my doctor has said it doesn't present that way and thinks it's all just muscle fatigue in my case.
So does anyone have experience with both conditions or any literature? I really want this to be the answer but I can't find anything to back it up, and I don't trust the doctor with it until I get test results since talking to him will never be enough to properly convey 10 years of irregular pain.
Sorry to the Mods: I would post in another community but there isn't one for CECS since it's considered rare and is usually treated quickly, and research has not turned up any results for me.
In 2021 I got a breast reduction. I'd been somewhere between a 28F - 30H for over a decade and always had a lot of back and neck pain. It has improved significantly since the reduction, but I have always wondered why some people with the same size bust as me could have no pain while mine was unbearable.
I've gone to PT since the surgery, and discovered that I have hypermobility. Now it makes sense - it's already more work for my muscles to hold my back/shoulders in the right place, due to instability of my joints... so the added weight and bulk of my chest was making it worse. It also explains why my bra bands NEVER fit properly and were always either too loose to be supportive or so tight they made it hard to breathe. My ribs compress more than most people's, so wearing a tight band around them was adding to my pain. It also would make my sternum ache if I wore a band tight enough to support my heavy breasts.
I'm still a 30F after surgery (yes, I am disappointed to still be 'busty') but I can wear bralettes and loose bands now without sagging and stretching pain in my breasts. I will probably never wear a "real" bra unless I have a very good reason to do so.
All this to say, even if you don't feel your boobs are truly BBP, you may have other contributing factors that cause your pain. I can't believe it took me this long to find out about my hypermobility - I've injured ribs from coughing with a cold virus multiple times in the past and the doctor didn't look into why that might be! If I slept on my side too long without moving, I'd partially dislocate my collarbone and it would pop back into place when I woke up loudly, which I've described to doctors for them to dismiss it as "nothing".
So Ive been dealing with chronic pain in my forearms for about 10 years now. It used to be intermittent, but has now got to the point I'm in pain every day and it messes with my daily functions.
I've been trying to get a diagnosis and no-one has found anything except hypermobility (score a 6/9). I'm banking on another diagnosis but the doctors are sceptical and want to put it all down to hypermobility causing muscle fatigue. It just doesn't make sense to me that hypermobility alone would cause this amount of pain without a condition such as EDS.
No pain meds help me and the only treatment I've received is physio which isn't doing much. If I can't get another diagnosis I don't see anything else working.
So is it normal for hypermobility alone to cause extreme muscle and joint pain?
I HATE walking. Not because I’m particularly lazy—I’m happy biking around and doing weightlifting—but because it is SO UNCOMFORTABLE. I used to get absolutely insane lower back/hip/leg pain that was basically undiagnosable (“you don’t have any nerve or disc issues, you just have a weak core” uhhhh ok, then how come I can deadlift 175 pounds no problem). Sometimes I couldn’t walk to the end of the block without starting to cry from pain. It got significantly, but not completely, better when I started taking Wellbutrin and then Vyvanse in 2020.
But even now, I have to essentially hyperfocus on squeezing my transverse abdominus at all times, forcing my pelvis into a neutral, non-anterior-tilted position, keeping my upper trunk up without bending it backwards too much, and taking every step so I’m using my hamstrings and not clamping down on my quads and landing on my heel and not the ball/toes/outside ridge of my foot. Like, I shouldn’t have to do that, right? Or, that’s not normal?
Anybody else fucking hate walking because it hurts for mystery reasons or is super uncomfortable?
It’s a point of (mild) contention with my (NT) partner. They love walking, sometimes walk 15 miles a day when left to their own devices, and usually plan activities/vacations around “and then we walk around here, and from here to there, for hours”. They aren’t an asshole about it, but they just don’t get how a simple thing could be so hard.
I thought maybe I just had a randomly fucked up body until I saw this tik tok about ADHD and back pain, and, from the comments, apparently joint (esp hip) hypermobility is highly related to both ADHD AND back pain???!
idk what to do. What kind of doctor do you go to that will treat “walking makes my hips hurt and I think I need to re-learn how to walk/hips my body entirely?” I did PT for 6 months and it was like “shrug, idk, do some more Dead Bugs I guess”. The Alexander Technique helped a bit but was $$$$. I don’t really meet any of the Ehlers-Danlos diagnostic criteria besides my hips.
Context: I'm diagnosed with POTS, G-HSD (scored 9 on Beighton), reflux, IBS, snapping hip, have had a prolapse, weird allergic reactions (not sure if MCAS or not), bruise easily, and more. My GP highly suspects I have hEDS but only put the pieces together during the pandemic and we haven't found a place willing to see if that's the correct diagnosis with the pandemic. Hopefully I will have some answers in the future.
One thing that drives me crazy is I seem to have become increasingly clumsy in the last decade. I don't mean balance, I was in dance throughout my adolescence and can be very coordinated when focused. I mean clumsy such as constantly wacking into things or hurting myself in normal situations and I'm like, "How??? How is it even possible I hurt my hand trying to open the fridge? What happened that my hand somehow wacked into some non-existant edge somewhere on this fridge door??" It doesn't just happen when I'm mentally thinking about something else. It also happens when I'm mentally present.
It's both painful and frustrating, and it also drives my husband crazy because he is always wondering if I am seriously injured from many many "ouch!" exclamations.
Is this related to EDS/hypermobility at all? Does it have something to do with unstable joints moving around in ways that I can't control? Or is this just a personal problem / getting older problem?
Hi I've been a patient for a while now and really struggled to find strains that don't increase my joint laxity and hypermobility. I'm curious to know what strains other bendy people have found help, without increasing subluxation? I'm thinking CBD seems to increase my hypermobility, and low CBD high THC work better for me. What's your experience? Thanks.
So I have been struggling with a crapload of symptoms and joint issues my whole life and I have been searching for a diagnosis for almost 5 years now.
I discovered that my symptoms have to do with my hypermobility (my beighton score is around an 8 out of 9). I went to see a specialist and they said I have HSD like hEDS. They looked at the criteria and everything, I was short 1 point but honestly I don't care if they call it HSD or hEDS bc the treatment is the same.
The appointment went fine and all ,but it turned out they didn't give me a formal diagnosis, despite assuring me they diagnosed me with heds like hypermobility and now I'm being denied everything the doctor promised he'd arrange for me.
I asked my current PT what the hell was going on and why I'm being refused treatment despite a referal and turns out someone in the hospital wrote down I have localised asympomatic hypermobility and that my joint issues are caused by the fact that I am autistic. Yes, they said that. Didn't knew that autism caused chronic pain and subluxations appearently (sarcasm)
I feel like I'm being stabbed in the back. My current PT can only give me a small amount of treatments that are nowhere near the intensity that I need, especially for my lower body because my knees and ankles are really messed up from hyperextending/spraining all the time.
Today even she looked me dead in the eye and said that "Autism is an illness and a disability, your hypermobility isn't so it shouldnt causing so much pain and fatigue"
I really could use some advice how to get out of this situation because I can't get anyone to look past my autism diagnosis and I have no idea how to make them listen.
My apologies for the long vent, I'm just so mad and frustrated with the system and even specialist who i thoughr had my best interest, didn't actually care.
I think that's my situation. I've been assessed 3 times by 3 different practitioners. With the 2 first ones, I had 5/9 on the Beighton scale. With the last one, however, it wasn't enough, apparently. I don't have the results yet. I can't touch the floor anymore because I'm in pain, my knees and elbows are not hyperextending.
The big of my hypermobility is in my ankles, shoulders, fingers, neck and clavicles. I have positive suculus sign, neck instability, TMJ problems, subluxate my clavicles...
Does anyone have a similar issue? This Beighton scale seems so strange to me as it just forgets so many parts of one body. Does it prevent you from having an EDS diagnosis?
My 8 year old son is on the hypermobility spectrum. We suspect my 4 year old daughter has hEDS, because she meets the criteria, but we have yet to get her evaluated. I have a question that I've always wondered about, and wanted to know if anyone else has experienced it?
My son never crawled as a baby. Instead he learned to pull himself up, and at 6 months he took his first steps. I had recently heard another parent in a local EDS meet that had a similar experience, her daughter never crawled. Anyone else notice this in your hypermobile kids or were told you never crawled as a baby?
For the record, my youngest daughter did crawl briefly, but it was a very short period of time before she went to walking - like a week or two...
I suspected EDS for years before covid got me. I also have Pectus Excavatum (chest wall deformity). Anyone else here?
Anyone try getting disability for HSD? Was it hard? I live in the US and my body feels like it's falling apart. I studied to be an Medical assistant a few years ago but it was hard to do because of PTSD, anxiety and depression. I left the field and started working in factories doing general labor. I think even if I went back to being an MA, I would struggle performing the tasks for 8hours a day. I take medicine for depression and anxiety but it's still really hard to take care of myself due to depression. I was officially diagnosed with HSD at 25 but started feeling symptoms at 23. I injured my hip at 23 and went to physical therapy. My hip has become too flexible but I still try to do my exercises though depression makes it hard. I struggle having an appetite due to my mental health but I need to gain weight to build muscle. I can't sit down or stand for long periods of time- I can't hold my body up for long periods of time. i struggle with grocery shopping, I ask my family to carry bags. Grocery shopping incapacitates me. I can't carry more than 10lbs and even 10lbs is a struggle. I can't even enjoy my hobbies like drawing and video games because I can't sit long. I live with my parents. I don't have an extensive medical history apart from my hip stuff, my HSD diagnosis, and my mental health diagnosises. I have an identical twin suffering in a similar way, but she experiences it bad on her neck, I'm worried I'll head there too.
Yes yes I get it dashing about and making plays is cool to watch, but as far as game enjoyment goes hypermobility is too strong now, and has been for a bit. Moreso there is a distinct lack of options to shutting down mobile characters in items, almost all these toolkits are baked into heroes.
That was fine when hypermobile meant AM,Ember/Storm Spirit and Puck.
That's not the case anymore, dashing about like an ADHD kid on speed is becoming a generalist thing rather than niché, and it requires an item response to be bearable, or to be toned down.
It has been brought to my attention that being able to bend my fingers back so far that they nearly touch the back of my hand is not “normal”. I’ve spent the morning googling “hypermobility” and seem to fit a lot of the criteria.
I am joining this subreddit to learn more.
Does hypermobility mean that I have ehlers danlos syndrome? I do not have stretchy skin. I do feel tired a lot, but I do have low vitamin D. Can I just have hypermobility?
I'm not asking for a diagnosis but to know where HSD is considered to end when it comes to the rest of the tissues
Let me explain. I've been told I have HSD but I want to get properly assessed for EDS because I have some doubts. My question is, should I push for it or not? Can HSD lead to widespread tissue fragility or is that only within the EDS range?
Next to chronic pain and generalized hypermobility (Beighton score 5/9 + shoulders + hands, fingers + neck + ankles...) I have some symptoms that make me doubt. These include stretchy skin, blue sclera in the two eyes, retinal scars in the two eyes, very low tear break up time (2s while normal range is above 10s), hiatus hernia, striae on the knees and inner thighs, easy and spontaneous bruising, and probably some dysautonomia I need to get under control. I'm 30F and nulliparous.
Hi everyone! Here's some background first if you're interested. So, I've been seeing a rheumatologist about chronic intermittent joint pains in my back, SI joints, neck, elbows, knees, and fingers. We've considered rheumatoid arthritis and ankylosing spondylitis but have normal labs and no bone damage on imaging so I don't quite fit the diagnostic criteria for those. My rheum in passing did tell me I was hypermobile and could be causing the pain but didn't do a full evaluation or discuss that further, and so I started looking into hypermobility myself and eventually EDS and I'm starting to think this may be a possibility.
I scored a 5 on the Breighton scale, it was everything besides the elbow and knee hyperextension at least from what I could tell. But even though my knees do not hyperextend visibly, I've had knee issues and pain for so long and have sprained them so many times.
I can hurt my knees just by walking, it's like if I step the wrong way or something I'll feel my knee extend too far back causing pain for several days, this has happened too many times than I can count. Or sometimes when I twist my body to reach for something that will also cause injury.
Basically, I'm just wondering what knee hypermobility is like for you and if my experience sounds similar or is just normal people stuff? Thanks in advance!
EDIT: Thank you everyone for sharing!! I really appreciate it the responses!
Please remember hypermobility doesn’t always mean your flexible it means your ligaments in some areas are which makes you probe to injuries there. When thinking of a solution to a rare symptom and we hear hooves we must not think of horses but yet we must think of the Zebra 🦓
Hello! Ive been doing yoga from home based on online classes (mainly peloton). I have a super mobile lower back that I have consulted with a physiotherapist about. They recommended building up my core strength (which yoga helps with), but also not to stretch it too much, such as in back bends.
Does anyone have any suggestions to reduce lower back bending while in poses such as camel or upward dog? I generally try to focus on opening my chest while uncrunching my lower back, but thats pretty hard to in poses where gravity wants you to bend (upward dog, lizard, etc)
Thanks :)
I could be wrong, but I feel like I've seen a couple people mention these things, and I certainly have had Mononucleosis and am hyper mobile, so I'm curious if these may be risk factors for long covid.
I have suspected for a bit that I am hypermobile - I didn't realize until this year that hypermobility was actually a thing, until I wanted to do flexibility training for circus arts, and learned from a PT I follow online that hypermobile aerialists cannot stretch the same way that "normal" people do.
Today I went into the rheumatologist's office and learned that I am actually a full 9 on the beighton scale. I had researched the criteria for hEDS and also read from some studies that hypermobility can affect things other than our joints since connective tissue is everywhere in your body, and can also affect things like digestion and circulation (which is why so many hypermobile people have GI symptoms, POTS, etc).
My doctor said though that hEDS was only genetic - so even if I met criteria like the Beighton score, GI symptoms, scarring, long limbs, narrow palette, etc, that I wouldn't have hEDS because one of my parents would have to have it. She also said that hEDS and HSD do not affect other parts of your body and that the differences in connective tissue only affect your joints/ligaments. She also mentioned that she didn't think an assessment for hEDS was relevant for most people, because the only difference between hEDS and HSD is whether or not it affects your skin as well, and that it is very rare.
Am I wrong to feel a bit skeptical about her assessment? From what I read, a lot of what she said went against what the official diagnostic criteria for hEDS, and from many studies I've read, even people with HSD tend to have some "system wide" symptoms, aside from just issues with joint hyper extension. Am I off base?
I have been diagnosed with “benign joint hypermobility”. Am HLA B27 positive (which I know doesn’t mean much necessarily). RA negative, have had high non specific inflammatory blood markers in the past.
Also have taken ciprofloxacin in the past (years ago).
X rays of spine and other joints did NOT show inflammation. Hence an OA diagnosis (based on knee and toe arthritis seen on x ray and bone scan)
Recently got Achilles tendinopathy- best ultrasound place in my area said it was chronic and degenerative. Also have plantar fasciitis.
Couple of weeks ago started having pain in fingertip (DIP) joints on my left hand - index to pinky.
Every major joint - have had tendonitis. Random effusions.
Does this sound like OA or maybe Psa, or like fluoroquinolone side effects?
I don’t think I have psoriasis. I know some small % of people with psa don’t have psoriasis immediately but if I’m not textbook, not sure a doc would want to go there.
Have seen rheumatologists… as soon as they find out I don’t have RA they don’t care and send me to my GP or a sports med. sports med says it’s weird that you have so many injuries, must be systematic.
The Achilles tendinosis is quite scary and disabling as it is. How bad can it get from here? If there’s any kind of treatment, I’ll be thrilled.
Oh also x rays of feet showed extra accessory bones or old fractures, they couldn’t tell. Maybe there’s some genetic problem?
Hi all, I’ve posted about this in a few skate communities but didn’t get much feedback. Being hypermobile, my ankles overpronate inwards. I’ve been trying to learn to roller skate and skateboard, and while ankle mobility is usually favorable for these activities, I’m wondering if I should actually get braces to help keep my feet and ankles more aligned so I’m not fighting to keep my ankles straight on top of trying to do everything else that comes along with skating. Does anyone have any experience with this who might have some insights for me? I do strengthening exercises regularly, but that doesn’t seem to be cutting it.
Hey there HSD community! I’m 39 and recovering from a c5-7 fusion in my neck from hypermobility causing my spinal cord to be ‘smashed’ as my refined neurosurgeon exclaimed in shock (I found it hilarious cause you need to find the comedy in things). When he was removing bone spurs and my discs he noted he could wiggle my vertebrae in all directions by a few millimeters.
I essentially explain to people that my spine is a slinky. Lately lumbar issues causing me to use a cane. I wake up some days totally brain fogged and unable to remember anything I just did (neuropsychologist said it’s executive function issues related to frontal lobe).
Anyone else have this issue? I’m struggling to find an expert in hypermobility to state this is why my brain is affected. I tried to apply for a consult from a specialist group here in Houston tx but they rejected me before I even submitted my paperwork because they are overwhelmed with work.
I desperately would love sanity and validation on this topic. My disability insurance is claiming they can’t rule out lifelong anxiety and depression which is just so insanely insulting. It’s absolutely disabling.
Any suggestions to medical studies, research, consulting doctors, types of doctors that could help me?
Occasionally I’ll pop by this sub and I’m always pleased to see some posts about BJHS or EDS and other hypermobilty or connective tissue disorders. Every time there are many people talking about it or discovering that they also have some pretty bendy joints.
What I never see however is it’s connection to occult tethered cord. If you have Bendy joints and other issues like PFD, POTS, CFS etc than this is something you need to look at as a possible culprit. Only issue is, only a handful of docs know it and it’s not visible on normal scans so it’s never diagnosed.
So I’ve had numb penis, erectile dysfunction, low labido for a couple years now. The muscles in my pelvic floor are vice grip of tightness. Constant peeing and the urge to pee, and also it takes forever to get a weak stream going.
Muscles weakness is a common focal point here , for good reason. My muscles got very weak , and turns out it’s because of an occult tethered cord.
For anyone else interested in it, please look up Dr Petra Klinge , and watch her lectures on YouTube. She told me she thinks I’ll get my feeling back and that PFD is directly linked to this.
I’ll make another post after I get my surgery and see how much it helps. Fingers crossed
Do you have an average (normal) range of flexibility? Or are you double-jointed, more flexible than most people you know, or have you been diagnosed with a Hypermobility Spectrum Disorder (HSD) or the Hypermobile subtype of Ehlers-Danlos Syndrome?
You can informally assess your flexibility and joint hypermobility by conducting these 5 simple movement/flexibility exercises: https://www.ehlers-danlos.com/assessing-joint-hypermobility/
Why do I believe this? Purely anecdotes and a hunch that there is a genetic link between homosexuality in males and the genes/loci/SNPs that determine how connective tissue develops, which is expressed by your range of motion/flexibility.
I am gay myself and suffer from Generalised Joint Hypermobility. I know several other gay people who also have the same or some of the same symptoms.
I will now address my theory on some stereotypes that I’m sure many people will say they don’t embody, but hear me out:
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Gay men often participate and excel in sports such as ballet, diving and gymnastics. This is not because they are “gay” as such. It is because being naturally flexible from birth and having Hypermobile joints allows you to EXCEL in all of these sports.
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Gay men do not have “limp wrists” and make “flamboyant” gestures because they are gay. The “limp wrist” position is simply a comfortable way to let your wrist relax when you have Hypermobile joints and stretchy connective tissue. “Flamboyant” gestures while speaking are natural and comfortable movements for people with Hypermobile joints.
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If you’ve ever watched gay porn, which you of course watch everyday (probably have an X Hamster tab open right now), you have seen how flexible most bottoms are.
That’s all I’ve got right now. I’d like to collect some anecdotes here. So please comment to say whether or not your are Hypermobile/naturally more flexible than most people. Or if you have been diagnosed with an actual connective tissue disorder.
Share your experience and let me know whether or not you think there may be a possible connection, further supporting the idea that sexuality is biologically determined in utero, and linked with flexibility.
I’m not entirely sure where to post this question. I only thought of it tonight. My husband and I don’t have social media so it’s a huge afterthought for me to actually consult people that have some grasp of what a toll Ehler’s Danlos has on my quality of life. I wear splints on every joint except my hips and knees and I still dislocate all my joints. The neuropathy pain and sinus tachycardia is no good time either.
I’m 32 with a cardiac alert dog ( due to my dysautonomia referred to as POTS) trying to make new friends in my town. It is limiting on outdoor activities such as hiking and riding quads but that’s life. Usually, I would befriend my coworkers and make friends through hangouts. However, I am a Dyslexia Interventionist and I work remotely from home as of 2019. My husband and I are great hosts and enjoy entertaining on UFC fight nights and PPVs but only our guy friends come to those.
I digress, the whole point of this post was to ask if there are any success stories with having kids with my condition? I’ve been told that it’s a 50/50 chance I will pass it on to my potential child. My parents don’t have EDS so I am a genetic mutation as it is, and I’ve also been told that I would be permanently disable more than I am currently.
I guess I’m looking for a shred of hope here, I don’t want to knowingly create a human that would be in the amount of pain I am in, but I knew better. My husband has mentioned a surrogate, even though we don’t have the money. He prioritizes my health and well being over a child.
I am hypermobile everywhere, but I cannot do the splits or touch my toes.
I saw in another Reddit post that hypermobility causes your muscles to work overtime to compensate for the unstable spine, which leads to tight leg muscles (especially the hamstrings) https://www.reddit.com/r/ehlersdanlos/comments/8eqlyo/is_anyone_else_hypermobile_in_every_way_except/.
I was wondering if a muscle working overtime would cause them to become more muscular and tight. My upper body is extremely weak relative to my lower body. My lower body is somehow extremely strong and muscular, so I was wondering if the muscles working overtime to support my weight while walking has caused them to become muscular.
Is this the case for other people with hypermobility? Also, should you be stretching to increase leg muscle flexibility? I was worried that making the leg muscles too flexible will cause the hips and knees to destabilize (since they're stable as of now with my tight leg muscles).
Hello Dr. K, it has come to my attention that I have hypermobile joints. Having known about this for a while I never thought it was problem until my brother tore his meniscus while running (he also has hypermobility). I have heard that there are links between ADHD and such conditions, it does actually make a lot of sense.
Could you provide some more insight on this? I was wondering what you would suggest for someone who has this condition, I currently go to the gym 5 times a week, i'm not the strongest person and I feel i'm being held back from progressing because of HM.
I've also been reading that it'll get better with age? Seems kind of farfetched idk. Thanks in advance for any tips.
I love vacuuming, it's probably my favourite house chore bc, especially with my medium-hair white cat, the results of vacuuming are sooo satisfying lmao
I decided to vacuum the upstairs and main floor of our home about 2 days ago, and of course here I am, 2 days later, shoulder still in enough pain that it's giving me a headache 🥴 I'm incredibly busy right now in my professional life, but I've been doing so little the past couple days because I'm so uncomfortable in any sitting position (or standing position, for that matter)!
I also go to the gym twice a week typically, but I already missed my first day bc of my shoulder and it looks like I'll miss today too ☹ I was too busy to go last week (kept having meetings during my booking times smh) so now I just feel super restless and blah! I think I'll walk to the grocery store later after ibuprofen has hopefully kicked in, but I'll have to remind myself to carry the grocery bag on the shoulder that isn't killing me atm lol
Would love if my house could just vacuum itself while I watch, or maybe a bionic arm that I could wear while vacuuming so I wouldn't have to worry about lifting the vacuum 🤔
My rheumatologist diagnosed me with this after saying that hEDS is very rare, so I couldn't have it. I did a bit of research because I'd never heard of this term and found some strong evidence that it is an outdated diagnosis.
I brought this up to my GP but she said regardless of the diagnosis, the treatment would be the same, but to me (and my autistic brain that likes things to be in concrete categories) it does matter that my diagnosis is correct.
Has anyone ever been diagnosed with this or does anyone have any thoughts on this?
Hi all!
I've seen a lot of posts about pelvic PT, however there isn't a specialist in my area, and I can't afford to look privately. I've seen a few posts where people have shared their stretches and what to do.
Unfortunately, I'm hypermobile so most hip & pelvic stretches are basically useless when my knees already touch the floor. Has anyone found alternative stretches to do for this?
I just want to be free 😓
I'm mildly hypermobile and sometimes my joints, usually my ankles but sometimes my knees, kind of give out and roll. I've sprained my ankle twice this way. Is this a hypermobility related issue or is it something else?
