My name is Todd Robertson and I’m a six-time blood clot survivor living with from a clotting condition called Factor V Leiden. My mother passed away from a PE caused the same blood clot related disorder, and I also lost my wife to brain cancer years ago. Suffice to say, I am passionate about helping other patients and survivors, as well as elevating the importance of mental health for people with chronic medical conditions. I moderate multiple online support groups totaling 40,000 members. In October, I was named the World Thrombosis Day 2021 Ambassador of the Year. In my free time, I love to stay active and you can often find me outdoors. I’m excited to answer your questions about anything – no topic is off limits. AMA!
PROOF: https://i.redd.it/g38ru2a14t481.jpg
Why YSK: Combined with hormonal (estrogen-based) birth control, your risk of developing a blood clot when you have Factor V can be upwards of 30%. Why they do not screen for these disorders before prescribing BC is a mystery to me. I found out the hard way when, at 40, I developed a massive DVT clot that ran from my abdomen to my ankle. I was extremely lucky it did not lead to a pulmonary embolism. I do not mean to scare anyone, but if you are on BC, please be aware of the signs and symptoms of a blood clot.
https://factorv.org/
https://factorv.org/birth-control
https://www.stoptheclot.org/about-clots/blood-clot-info/
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Age: 31 years old
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Gender: Female
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Ethnicity: Indian (Asian)
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Height: 5'0"
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Weight: 70 kilos
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Current Location: Florida, USA
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Medications: Currently not on bloodthinners. I take Strattera for ADHD.
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Gynaecological History: No living children; 1 Early Miscarriage at 10 weeks in 2008, No D&C required. Currently have regular unmedicated cycles 32 days long. First Day of Last period was 21 days ago.
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Medical History: I had a bilateral pulmonary embolism in 2010. I was diagnosed with Heterozygous Factor V Leiden, Protein S and C Deficiency (but thankfully was Negative for Lupus Factors). My PE was caused by the hormonal birth control pill (oestrogen). Before my PE I was unaware of my hypercoaguable state. I urged my parents to get tested, which they ignored (my Father later had a DVT two years later. Had my told you so moment. Also realized my Daddy is really my Daddy! I digress.)
Question: Should I be worried about the COVID-19 Vaccine and the possibility of DVT/PE occuring? My heamotologist does not have any specific answers or guidelines for me at this time and has requested I wait until there is more information regarding thrombophliacs and vaccine interactions before getting vaccinated.
I work in dentistry so I have contact with patients everyday. Any insight or information is highly appreciated.
I know nothing about either. Treat me like I'm 5. Can anyone weigh in with their experience, how you decided, what actually each entails, anything.
My appt I made online with PP is for next Wednesday. I chose which option I wanted, medical, but what if that isn't the best option for me?
The questionnaire asked if I had any bleeding disorders. No bleeding disorders, but I do have a clotting disorder. I have had miscarriages in the past before having my 2 healthy kids after finding out I needed blood thinners to maintain pregnancy. Apparently I clot them out. Would this make medical not an option for me? I stopped taking my baby aspirin.
If the knife is all way way in, try sliding small coins or your keys into the wound to help staunch the bleed. This may be distressing to the victim, but your courage could save their life.
Hey can anyone kindly explain why deficiency of factor XIII will not cause raised PT and PTT although it causes abnormal bleeding
I was diagnosed factor XII deficiency 2 years ago when I developed non-traumatic bruises and routine blood work found prolong APTT in clotting profile. Received extensive clotting factor blood tests and only found factor XII deficiency. No vWD etc.
Saw a hematologist and was told that its usually incidental finding. Said it wont affect me even in major surgery. No regular follow up given and no further work up.
Fast forward to now. TTC 6 yrs and finally started to see RE now. Suddenly recalled this condition and read up and found its related to infertility or RPL. I am never pregnant and not even a chemical one before. RE will start me on IVF. I told my RE but she doesnt know anything abt factor XII deficiency.
Wanna know if there is anything I need to do to increase my chances of successful IVF? Should I see one more hematologist or what? Any suggestions are welcome. Thanks!
Im 22, F. I'm 5'7, 185 ish pounds. White. I have ADHD, anxiety, and factor 5 liedien (a common blood clotting factor). I rarely drink and dont smoke.
My friend asked me to give them a ride to a social distanced birthday party we were both headed to. They were kinda desperate so I agreed to help. 10 minutes into the car ride they remembered their boyfriend's coworkers had tested positive for corona and that they were scheduled for a test themselves :/ Prior to that they hadn't been wearing a mask. I had but they were also in the front seat. I have a blood clotting factor and I'm honestly terrified of getting coronavirus and ending up in the hospital alone. After the exposure to my friend I told my parents and they have been extra careful around me but my dad (60's) has 2 blood clotting factors and has a weakened immune system. My friend's boyfriend also seems to be sick now.
I keep hearing about how coronavirus causes blood clotting for many patients. However I havent seen any testing facilities that prioritize people with clotting disorders/ factors or any information about the risk of coronavirus with a blood clotting issue. This may be a dumb question, but have people gotten coronavirus, while also having a blood clotting disorder or factor, and ended up fine and healthy? I havent found any information on this. I just want to know how much at risk I am.
I have a fun little mutation called Factor V Leiden which predisposes me to developing harmful blood clots more often than the average person. I also am homozygous for the mutation, which is pretty rare (two bad alleles) and a lot worse than someone who might only be heterozygous (still one good allele and bad allele in this case). I’ve been told by my hematologist that I’ll likely need to go on blood thinners preventatively and full time once I’m 50 — I’m 37F right now.
So with all the news about yet another symptom popping up with covid19 and the nature of these blood clots they’re finding in patients — especially when people aren’t even responding to anticoagulant therapies or they immediately redeveloping clots — it’s giving me a fucking anxiety rodeo (I’ve also suffered from generalized anxiety disorder most of my life which doesn’t help).
Quite frankly I’m just terrified and I know we don’t know much at this point and probably won’t for many more months. And it’s going to take awhile with all the data getting tossed around. I’m just looking for any morsel of reassurance I can get, especially on the prevalence of these clots in covid19 patients. Is it just people in the ICU? Does it impact mild cases too? Are there any stats on percentages or probabilities? I just don’t know how to process this anymore, and I live alone right now in the Bay Area of California. Elderly parents are all the way in Florida, and I have no siblings. So afraid they’ll just find my body eventually in my apartment unit after I have a stroke. :( I know it’s irrational and I know logically it’s not doing me any good to dwell on it, but how the hell do you not?
We just found out this week that my MIL and GMIL both are carriers on the factor 5 clotting disorders. Hubby hasn’t been checked yet, but I’m curious if anyone knows if there is any link between miscarriages and male factor 5? I know there is a like if the female partner is a carrier but not sure about male. We haven’t started ttc yet but we are getting ready to in 9 mo- 1 year.
Just wanna say you are fucking rockin. It’s been about 30 minutes after a few pretty painful dog bites on my hands. The really deep punctures already stopped bleeding with a bit of pressure and it almost doesn’t hurt at all now. Thank you for generally keeping me safe.I promise take care of myself to make the job easy as possible.
Do I have to ask for specific things to be tested for? Or do they test for any and all abnormal clotting disorders? Need advice as I might not be able to see a haematologist and only my gp.
