Burkitt Lymphoma Puns

Hi! I’m new to this channel so thank you in advance for your answers.

My dad is a 50 year old man, very healthy but my family on dads side is very prone to cancer. On June of this year he started having pain and by July he was stage 4 on his Burkitt lymphoma. He started very badly but started improving after chemo.

His chemo plan had to be changed as the first one was very aggressive, and was also affecting his health a lot. Whilst the second plan was more mild, in his last scan it seems the tumors have grown back again (not as bad as at the beginning but noticeable), so he might need a second round of chemo :( but we don’t know if his body would be able to tolerate it.

I was wondering if this has happened to anyone? And if so if you suggest any alternative treatments or things to improve his health so he might be able to withstand his original chemo plan?

We are very anxious about this last scan as he was supposed to have only one round of chemo. So now we’re very concerned that the cancer may be more resistant?

Hope what I’m saying makes sense, and again thank you in advance for your answers!

Edit to add: we haven’t done a pet scan as we are waiting on a last chemo per doctors recommendation, but we did a CAT where the masses were still visible.

My dad was diagnosed with stage 4 Burkitt lymphoma. He was admitted to hospital with tumour lysis syndrome mid December. He had one round of r chop asap when he was admitted along with dialysis and several blood transfusions. He recovered somewhat before Christmas thanks to the chemo and dialysis and was able to come home Christmas Eve.

He's been struggling since then and an MRI confirmed he has multiple bulky tumours on his spine, hip, left rib, above and below the diaphragm. The tumours around his spine and hip have also caused a small spinal fracture and nerve compression causing him to lose most movement in left leg. Needing a zimmerframe or other assistance to walk at all.

He had one round of intra spinal chemo before the new year and has just had his 1st round of r epoch and this week at home recovering.

To say it's been tough is an understatement but I don't know I realized how hard this is on him. He's very irritable and it's difficulty to encourage him to take his pills to help manage his symptoms and chemo side effects.

I'm looking after him with my 3 sisters and my mother who has a few age related mobility issues.

He's only done 1 round of r epoch and I don't know how he's going to do 5-7 more does this get any easier?

He's barely ate anything for 14 days he's not had a bowel movement for 12 days. He drinks loads but isn't peeing much and feels nauseas and pain most of the day. He's not sleeping despite oral morphine and paracetamol. The tumours on his hip, spine, and rib are making it so hard for him to sleep that laying down is hard but he gets so out of breath whenever he tries to move. He's cold all the time and has an electric blanket and hot water bottles to him warm.

He's lost 20kg since this all started but his weight loss seems to have stabalize but he looks very frail and weak.

I don't know what to do or how he's going to get through this?

Hello everyone,

I haven't posted any updates in some time. I was finally declared in remission after completing my radiation treatments for refractory Burkitt's lymphoma. I was diagnosed at the end of November 2019. Originally I was low risk and was planned to only do three rounds of in patient chemotherapy. My fourth pet scan (in April) at the end of six chemotherapy rounds showed that I still had a small area of persistent disease in my neck that was more active than seen in my third pet scan. I had a fifth pet scan six weeks after completing radiation that showed great improvement in uptake but uptake was slightly above my liver and was told this was likely inflammation from radiation. Sixth PET scan in September showed a Deauville score of 2 and it was determined by a tumor board that I would not be getting a transplant. After finishing chemotherapy, I was seeing a radiation oncologist and salvage/stem cell transplant specialist for care and not my hematologist. I really like both my radiation oncologist and stem cell specialist but my hematologist has always been a downer and seems to word things in the most negative light possible. My last few appointments with my radiation oncologist and stem cell transplant specialist were positive and I was told that my risk of relapse was low but still present by my stem cell transplant specialist during my last few appointments.

Well today was a follow up appointment for bloodwork and physical with my hematologist who I had not seen since June. Blood work came back fine (still anemic and low white blood cell counts and thyroid is no longer working properly... not a big deal), no issues with my physical, and no indications for relapse. This was all great but the demeanor of hematologist was super off-putting and freaked me out. He started off the appointment by saying that he was surprised to see that I am still alive and didn't say it in a positive or joking way. After going through the bloodwork and physical he brought up again how surprised he was and that he wanted two more PET scans (one ASAP and one in March). He also kept mentioning that relapse was a major concern. It felt like he didn't believe I was in remission and sort of needed to prove it. There was no how are you doing or what is new conversations but there never were any friendly conversations in my previous appointments. I guess I shouldn't be surprised but it still was.

I am fine with doing surveillance scans but now I am stre

I guess nobody really expects this kind of thing, especially in your early 20's. I've been very lucky so far - My diagnosis has been very quick and generally my findings are looking good (except for, you know, the cancer). I'm surrounded by family, friends and my amazing SO. Started chemo on Thursday so everything is super fresh and new to me. I'm feeling fine right now, but the big boy treatment courses are starting next week (COPADM * 2) and I'm told it's gonna get interesting. I'm trying to stay positive and in a good mood for as long as I can, and it's really nice to have found a forum to share in my experience, read about others who are going in a similar path as me and know that I am not alone. Wishing everyone good health wherever you are on your path, take what ever positive things you can from this experience and know that you are good and beautiful and strong!!!! Lots of love ❤️ We are going to win this thing!

As said above, I'm going through a lot. I've been fighting cancer (Burkitt lymphoma) since May of 2019 (previous Bile Duct Cancer 2016). I've lost my left leg first, and just recently, lost my right due to my cancer metastasizing to my bone marrow. I've been in the hospital for about 90% of the time since last year. My last surgery, which lasted 6 hours, was dreadful. After surgery I had 2 strokes back to back. Currently have limited usage of my right side, but not fully numb. Been quarantined since I'm immuno compromised from chemo and radiation in the hospital. Lost my brother 2 years ago, and both parents have passed. My sister is quarantined with her family so she cannot visit me. Through all this however, I'm somewhat happy. I don't know how, or why, but I'm doing my best. I'm not fully there as far as being 100% truly happy, but I'm doing my best for what I've got. What truly makes me feel warm inside is hearing about others being happy. I'm into playing online games so that keeps me afloat. In any case, I'm writing a huge paragraph, but just wanted to share to everyone that, for everything I'm going through, if I can smile through this mess, you can too. I sincerely hope everyone is doing well through this, and if you'd like, I'd love to hear about your day. Thank you so much for reading this, and have a pleasant day/evening! <3

I'm nine months cancer free and I'm having my port removed Monday. Treatment can be brutal but it can also be very effective.

I have a question to those who know or is familiar with the disease. I was diagnosed in July / August when I did an MRI for my back pain. They found the tumors wrapped around my L2 and L4 and had to do surgery. Since then I have absolutely no feeling in my leg and using a wheelchair. I'm on chemotherapy for my lymph nodes and a brain tumor that formed. My question is, is there any possible way that I can regain the use of my leg or is this a lost cause? I'm receiving really good care but half my doctors say I'm going to be in the wheelchair for a long time, others say I'm going to be able to move again soon. Feeling hopeless. Thank you.

The son of a dear friend was just diagnosed with Burkitt's lymphoma and while learning about it and looking for recent advancements in treatment, I have come across several really innovative medical science. One of the most interesting is that of cancer metabolism therapeutics. Available clinical trials seem to be in various "phases" but I'm curious if anyone has had any experience with treatments of this nature? Seems like a viable opportunity but I'm interested in learning more about the experiences of others.

Hello everyone!

This is is my first post to reddit. I have been lurking here for some time and I just want to say that everyone sharing their stories, struggles, and victories has helped get me through the past couple of months. It is time for me to share my story and see what others have to say.

I (28M) was diagnosed with Burkitt lymphoma in December 2019. The disease was limited to my head and neck area and I was classified as low risk. The doctors planned on doing just three rounds of DA-EPOCH. After my second cycle of DA-EPOCH, my interim PET scan showed persistent but reduced activity in two areas on my neck. Doctors were a little surprised but told me not to be concerned and that I would do six cycles now. No big deal! They went ahead and scheduled another PET/CT after my fourth cycle. After my fourth cycle, the PET/CT showed that everything was resolved except for one lymph node that originally had an SUV of 68 (2 cm x 4 cm) and now showed an SUV of 4.5 (1.5 cm x 2.2 cm). Doctors were concerned and said that while they expect me to be in remission after cycle six, they may want me to do radiation or ASCT. For most of my chemo cycles, I was able to increase the doses and tolerated the side effects well. I was feeling pretty upbeat at the end of cycle six.

I had my end of treatment PET/CT on Monday and received my results today. That same lymph node decreased in size (now normal) but showed an SUV of 8. Doctors said I now had refractory disease even if it was limited and that this was serious. I knew the outcomes for refractory Burkitt lymphoma were not great so I felt pretty awful once the results were shared. I am meeting with a radiation oncologist on Friday and a Bone Marrow Transplant specialist on Monday. I am not sure of what the plan is but the doctors encouraged me that there is hope and that the remaining disease is small and hopefully radiation therapy is all that is needed to get into remission. Doctors did say that they personally have never treated Burkitts with radiotherapy but that other aggressive lymphomas typically responded well in their practice (glass half full I guess).

I feel so frustrated that I was so close to being done and that I have to continue this journey. I was so naive in the beginning to be happy (not sure if that is the right term) that I had "low risk disease" and it just seems like everything is going sideways now. I have been trying to be positive but today has been a struggle. I am gonna k

The 12 year old son, Aaron, of my dearest friends has Lymphoma and a large tumor in his chest. He is in the hospital, for such a long term that they gave him an address to use. That is terrifying. Please pray for him and his parents, Dawn and Todd. They are such good people and have seen my husband and I through some seriously bad times. I can't imagine finding out that my baby (he is the youngest of 4) has cancer. Thank you for any prayers and thoughts.

Im 20 years old today October 2 i got diagnosed with burkitt lymphoma and my girlfriend is currently pregnant and is going to be induced Sunday October 6 and lastly October 10 we will be moving to a new apartment also the day i will begin my treatment and will be staying to at the Oakland kisser for the first 6-8 weeks of my daughters life these news came as a shock to me and feels like everything ive built is being torn apart ive always hated doctors and hospitals in general and now i have to over come this fear and will be going through alot in my life for the next couple months its hard to know what to expect and how to prepare. Ive been optimistic for most of it but now im at an all time low ,not knowing what the future holds for me or my new lil family , or how my body will react to the treatment man i dont even know why im writing this tbh i guess im just looking for advice or optimism or just to be able to talk to people going through this as well. so ill keep you guys updated cya.

So I have had a pretty rough 2 years. My graduation anniversary from college just came and went, as did my first job 2 year anniversary afterwards. I became a surgical technologist and specialize in the upper appendages. I fulfilled my dream. Be me. Be happy. Be your average 250 lb 6' tall corn-fed midwesterner male. My life is going great, until my testicles start to hurt a bit. I notice one is a bit hard and slightly enlarged. I go see a doctor and after a round of antibiotics and steroids for supposed epidydimitis I still don't see any results... I just feel more pain. I start noticing an ache in my back. I tell myself it is from the 50 mile commute to the hospital I work at. My birthday is today. I am 32. It is the beginning of December. Lucky me. I am doing well losing weight. I dropped 20 lbs since I graduated l. Must be healthy habits. The new scale says 230. What's with the heat? Why is it so hot all the time? The operating room is 67 degrees and it is December. We Why am I sweating like a pubescent teenage boy? It is my sister's birthday today. She is 40 today and Christmas 2017 is one week from today. And why is my left testicle getting larger? I go to the emergency room because it feels like my gonad is being tied off. I am told that I have a hydrocele and surgery needs to be performed. I tell the OR doc that I know a bit about the hydrocele as I am fresh out of school.."They don't hurt doc, this is excruciating." "The scans don't lie." He says. I schedule a procedure ASAP. This is debilitating, why am I so sweaty? New years is today, my surgery is tomorrow. The scale says 210. Surgery day comes and goes and my nuts are cut in the process. The surgeon calls me and says "The hydrocele was frankly unremarkable, your surgery was unnecessary." Be me looking at the tennis ball sized testicle on the left side that still hasn't healed closed 1 week later. I call the doctor. "It takes time for the swelling to go down, see me next week to evaluate." Next week I have a grapefruit. And my right leg hurts. I am still working like this, keeping it together. I have a new job....my dream job....I am here to impress. People are noticing my sweat. I am regowning two or three times a procedure. Somehow I am soaking through these blue gowns and scrubs hourly. My back hurts. My testicle is screaming at me. And my leg feels weird. What is that sensation? Feels weird to bend it. Kind of tight. Early February. I am not sleeping at night. It feels as if I hav

UpToDate says tumor size can double every 25 HOURS. That seems insane and inaccurate. A few other sources have given various other timelines. Curious if there’s a better metric, particularly for non-endemic Burkitt’s?

Just looking for advice, company, and any top-tips!

Extra stuff about me: I am waiting for bone marrow results, doesn’t look like it’s spread very far from the one tumour I have in my nasopharynx, just started steroids and expecting CODOX-M starting Tuesday.

I'm currently sitting in the hospital and just received my first dose of chemo (CODOX-M regimen). I feel right now it's going to be one of the last times I'll be completely okay mentally and physically for a while, and I'm bored out of my mind at this hospital, so ask away if anyone has any questions.

Hi! I’m new to this channel so thank you in advance for your answers.

My dad is a 50 year old man, very healthy but my family on dads side is very prone to cancer. On June of this year he started having pain and by July he was stage 4 on his Burkitt lymphoma. He started very badly but started improving after chemo.

His chemo plan had to be changed as the first one was very aggressive, and was also affecting his health a lot. Whilst the second plan was more mild, in his last scan it seems the tumors have grown back again (not as bad as at the beginning but noticeable), so he might need a second round of chemo :( but we don’t know if his body would be able to tolerate it.

I was wondering if this has happened to anyone? And if so if you suggest any alternative treatments or things to improve his health so he might be able to withstand his original chemo plan?

We are very anxious about this last scan as he was supposed to have only one round of chemo. So now we’re very concerned that the cancer may be more resistant?

Hope what I’m saying makes sense, and again thank you in advance for your answers!

Edit to add: we haven’t done a pet scan as we are waiting on a last chemo per doctors recommendation, but we did a CAT where the masses were still visible.

Anyone had Burkitt's Lymphoma before? I have had it twice, it is not a common cancer.