Hi All. I was just diagnosed with low enzyme levels of sucrase, maltase, and lactase based on a biopsy from an endoscopy. Also some mild gastritis. Before my diagnosis I thought for sure I had Celiac's, but the doctor said there were no signs of celiacs. The doctor didn't seem to have much advice other than to see a nutritionist for the enzyme issue so I wanted to see if anyone was in a similar situation and had advice.
I've had a sensitive stomach my whole life (currently 25), but never anything crazy that lead me to think I had a problem. I've been a little underweight all of my life as well, usually around 123 lbs at 5' 8.5". I've also always had an excessive amount of bowel movements, usually 3 to 4 every day and my stools usually float which is a sign of malabsorption.
About a month and a half ago I started getting constant acid reflux everyday, bloating, some stomach burning, and my main concern was weight loss. I went from 123 lbs down to 114 lbs and I was really trying to eat more to try and gain weight. This is when I went and got the Endoscopy done.
I have tried so many things since I started getting acid reflux starting with tums, pepcid, omeprazole. Those didn't work so I moved on to ACV, digestive enzymes, digestive bitters, probiotics, and then betaine HCL with pepsin. (Not all at the same time) Those did not seem to help either and a little over a week ago I went gluten free and everyday I have felt better. My acid reflux is almost gone at this point, but I am still having some bloating and burping issues.
I am very surprised the doctor said I do not have Celiac's and instead have these low enzyme levels. Based on what I found online it looks like it is called CSID.
My next step is to try and find a nutritionist that has experience with CSID which seems like it's going to be difficult. I'm also going to try and go on a CSID diet once I learn more about it, looks like there are a lot of restrictions.
Curious to hear if anyone has had a similar experience or any advice.
Thanks 😊
Which enzyme is used to synthesise glucose + fructose into sucrose?
I think it may be sucrase/invertase but I’m not entirely sure, as I know that this enzyme is used to break down sucrose into fructose/glucose
Hey! I've never posted on reddit before so if I'm posting to the wrong place just like, lemme know.
Recently my GI doctor gave me a breath test for sucrase deficiency. Big reveal: turns out I have a sucrase deficiency. From what I've read the bottom line is my body has a hard time digesting sucrose and it leads to all kinds of intestinal discomfort/ IBS like symptoms.
I've been able to find some lists of what I can and cannot eat given this diagnosis. The carbohydrates I can digest are so limited, I decided to start on a keto diet. I was worried that if I didnt, I would struggle to fuel myself in a healthy way.
It seems like a keto diet is perfectly in line with my goals and personal beliefs about modern industrialized diets. I'm trying to lose weight, manage my PCOS, keep my insulin levels healthy (they currently are fine but its always in the back of my mind), AND avoid sucrose.
I'm wondering if anyone has found resources: books, blogs, etc that talk about sucrase deficiency and the ketogenic diet. I would love to read more about it or talk to people who have similar experiences as me.
Thanks!
What is the exact purpose of mixing the dried yeast (sucrase) with sodium alginate?
Hello! I recently saw a GI for my symptoms of constant diarrhea, bloating, burping, acid reflux and regurgitation
I did an endoscopy and a SIBO test and the biopsy showed I had low Lactase (3.5), Sucrase (10.4), Maltase (41.6) and Palatinase (1.7)
My doctor has never seen a patient with CSID so he told me he'd consult with a colleague before informing me of next steps so I've just been doing a lot of Google searching and glad I found this community.
What are usually the next steps here?
Do any of y'all also have severe/bad acid reflex/esophageal motility issues?
I see a lot of mention of food restrictions and honestly completely cutting out carbs/sugars would be a nightmare for me so curious how others have found this experience. How strict do you need to be? Are there any other negative side effects of eating sugars/carbs other than personal discomfort? In a way I feel like I have gotten used to always feeling terrible so part of me is doesn't want to give up foods.
The funeral director was asking us what we think Mum should wear in her casket.
Mum always loved to wear sarongs (fabric wraps that go around the torso and drape downward a bit like a long skirt would), so my uncle suggested that she wear a sarong in there.
The funeral director looked a bit confused, as did some of our family members, to which my uncle added:
"What's sarong with that?"
I started laughing like an idiot. He was proud of it too. The funeral director was rather shocked. We assured her, and our more proper relatives, that Mum would've absolutely loved the joke (which is very true).
His delivery was perfect. I'll never forget the risk he took. We sometimes recall the moment as a way help cushion the blows of the grieving process.
--Edit-- I appreciate the condolences. I'm doing well and the worst is behind me and my family. But thanks :)
--Edit-- Massive thanks for all the awards and kind words. And the puns! Love 'em.
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True story; it even happened last night. My 5-year-old son walks up behind me and out of the blue says, "hey."
I turn to him and say, "yeah, kiddo? What's up?"
He responds, "it's dead grass."
I'm really confused and trying to figure out what's wrong and what he wants from me. "What? There's dead grass? What's wrong with that?"
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He says, totally straight-faced, "hay is dead grass," and runs off.
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He replied, "Well, stop going to those places then!"
She said how do you know he was headed to work?
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A taxi
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