I had a radical hysterectomy at 17

(I use they/them pronouns)

A radical hysterectomy is where they take out your cervix/uterus/fallopian tubes but I do I have both ovaries and a vaginal canal

I have a severe case of PCOS I was falsy diagnosed for years (until I was 14 and diagnosed with PCOS) by doctors just claiming that I was young and young people have irregular periods but in my case I was constantly is the hospital due to period "cramps" ( it was actually due to oviaran cysts) and I was constantly sick due to severe iron diffencecy my iron levels were 4.26 in 2016 when I was 13 ( between 35.5 and 44.9 percent for adult womenΒ ) and I was bleeding so much and not your average heavy flow I would literally bleed so much a day I would lose consciousness and pass out from blood loss and I was bleeding every single day for months it just never stopped and that's when the doctors were finally like let's test them for Von Willebrand disease (A bleeding disorder caused by low levels of clotting protein in the blood.) because of how of how much I was bleeding it came back negative and they had no idea what to do next and for the next 9 months I was going to the children's hospital 2 hours away twice a month to get an iron transfusion and even then we could never get my levels higher than 10 because the bleeding was so extensive

And here is the crazy part I started my period when I was 10 and my periods were really irregular and would be super heavy and would last long period of time with excruciating period cramps that would land me in the ER every so often plus extensive weight gain and so the doctors put me on birth control pills and that's where it started there are many types of birth control and I couldn't take most of them because they didn't have the right hormones to stop the bleeding but I have been on 17 different types including the IUD and Progesterone/Estrogen pills I was on birth control for 7 years and even after all that nothing I mean nothing stopped my period even with an IUD in longer than 2 years they just never ended

I couldn't ever have normal feelings either and that sounds weird but we all know that with periods comes emotions and my hormones were all over the place so I was constantly going in and out of super intestine mood swings that would switch on a dime and that became my day to day life because at first my periods lasted 2 weeks+ and then it turned into 4 months+ next thing I knew was it was years(the last period I experienced was 4 years and 12 months shy

... keep reading on reddit ➑

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πŸ‘€︎ u/Suicidal_Fluffy
πŸ“…︎ Jan 21 2022
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Mom [69F] was just diagnosed with metastatic endocervical adenocarcinoma after failed radical hysterectomy

Stanford doc thought it was early stage due to results of cervical biopsy, so scheduled her for a radical hysterectomy. When they went in, they found a couple ~2cm tumors positive for cervical cancer on her omentum (inside the abdomen). They had to stop the procedure and she’s scheduled to do a consult with an outpatient oncology nurse in very early January (chemo, etc.)

Looking at the internet, the prognosis seems terrible. But it’s hard for me to wrap my head around given that she still seems like her. She doesn’t look like she’s dying with only a year or so left to live, and I wouldn’t guess that she has something killing her from the inside.

I’m just trying to get a sense of what’s in store for us over the coming months…

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πŸ“…︎ Dec 24 2021
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Having radical cystectomy (ileal conduit) and total hysterectomy in 2 weeks. Any tips for recovery?

So far, I plan to prepare the guest room for me to recover when I get home. But what else would be smart?

I have control issues and one way I get relief is planning. This situation is so beyond control, and I’m searching for control comfort.

So what can I do / buy / prepare before I go in? Tips? Tricks? Sage advice?

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πŸ‘€︎ u/mswoodie
πŸ“…︎ Dec 31 2021
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So when will it feel normal to ride in a car again & go over speed bumps/roads without feeling awful? I’m a week and a half out post radical hysterectomy. Any insight would be helpful. Thanks
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πŸ‘€︎ u/JenJude14
πŸ“…︎ Dec 11 2021
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Had a radical hysterectomy (goal being ovary removal/oophorectomy for PMDD). I never realized that it could be so very quiet in my head.

I'm 6 days post op and I'm experiencing a peace and calm like I never have before. I had no idea that the constant stream of hormones is what made me feel like I could never turn my thoughts off. Since surgery my anxiety has been the lowest it has maybe ever been, as is my depression. I could cry with relief... But I don't feel the constant urge to cry anymore.

Basically I just can't believe that all this time, my hormones were pounding in the back of my mind like a war drum, amping me up at every moment. I would do this surgery a thousand times over if I had to.

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πŸ‘€︎ u/hobbyflake
πŸ“…︎ Sep 16 2021
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How can I help my mom after her radical hysterectomy?

My mom was just diagnosed with early stage cervical cancer and has a radical hysterectomy scheduled for next week. I'll be going home a few days before and I'm planning on being there for a while after. I haven't been in her appointments with her since I don't live in the same town so I'm not sure what to expect after her surgery. She's having it done abdominally. Are there things I can/should do to help her recover after surgery? My dad lives with her but he's kind of squeamish so I don't mind doing the majority of the caretaking. Thank you in advance for your help

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πŸ‘€︎ u/Dr_Cat_Mom
πŸ“…︎ Sep 14 2021
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Post radical hysterectomy my experience

I first was diagnosed with stage 4 endometriosis when I was 21, by which point much of my pelvic region was welded to other bits of it.

Usual story from 12 periods so heavy I nlacked out 28 day long periods etc. I think it was 5 surgeries, though it may have been 6 before I was 30 to laser and excise my bits as well as 3 courses of 6 months of gosrelin and mirena and usual back to back pill, as well as adventures in traditional Chinese medicine and acupuncture.

Whatever it worked and after an uncomfortable number of miscarriages I now have 3 amazing kids.

What I've also hadin that time is abnormal cervix, and tumours in my uteine lining as well as chocolate and standard ovarian cysts.

After conical ablation, manual cauterisation and balloon microwave of my uterus and cervix did not stop and I had yet another abnormal cervical smear and two more tumours in my uterus I finally had a radical hysterectomy.

It's 6 months post op and it's fabulous.

All that crapa d now the bastard thing is in a bin or an incinerator. I dont have to constantly worry about tumours and pain, I'm not passing out from blood loss or anemia.

I do have other issues but these are no longer mine.

I recognize I'm exceptionally lucky that a particularly thorough excision operation was followed immediately by a pregnancy and a decision to go for the domino effect whilst we had a chance by my husband, but I still hope this can be a good news hope for someone.

All of my 3 are girls, so the news about new treatments has really made my day as I'd hate to pass this bloody thing onto them.

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πŸ‘€︎ u/2020Fernsblue
πŸ“…︎ Aug 26 2021
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Radical Hysterectomy and Foot Injury and vent

Hi everyone,

I am getting an almost radical hysterectomy next month - ovaries, tubes, uterus, cervix - vaginal. It's because of cancer risk and fibroids. I can't really delay it more. I say almost, because I think radical includes some of the vagina too.

I have had a foot injury that includes major nerve damage and it will still be in a brace then. I will be recovering from surgery alone, in a very tiny ground level appartment and will set things up but I don't know what to do about getting the cast on and off, any ideas?

I'm really bummed -- I don't have close friends in the area, since I was constantly on the road for work. I have some people who are friends-ish, but when I really needed help after the accident that caused my foot injury and asked very clearly even with specific things they all ghosted. My expectations are low. My insurance doesn't work out of state, so can't be elsewhere. Trying to not have a pity party, the hysterectomy is on the anniversary of me getting covid, it took months to recover then I was in the accident, dad died shortly before I got covid, then gma and aunt while sick, then accident and complications that hospitalized me, now this is kind of the final bump hopefully -- it's a lot to bear in one year and feels very lonely. Esp people my age (~30) idk... just don't get it or try. Going into this procedure feeling very alone. Will be a relief to be done though.

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πŸ‘€︎ u/Chance_Door9939
πŸ“…︎ Feb 13 2021
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Considering elective radical hysterectomy

I’m a 30ish woman who is married and done having kids. I have ovarian and breast cancer in my family history on both sides of my family. One of my maternal aunts fought a hard battle with ovarian cancer for 7 years before she passed, and one of my paternal aunts fought ovarian cancer for a few years and just a few months ago was declared in remission. She now miraculously caught her very early breast cancer by total accident so thankfully the prognosis is good.

I feel like ovarian cancer is breathing down my neck and waiting in the wings here. I also have been previously diagnosed with PCOS but that seems to be worlds better post pregnancies. I know there are risks associated, especially with a radical hysterectomy. I’m nervous about surgical menopause, and a whole host of other scary sounding things I’ve read and I’m sure there’s much more that I haven’t.

Any advice? What would you do? What have you done for your own health?

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πŸ‘€︎ u/SmartLlama
πŸ“…︎ Jan 27 2021
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I had a radical hysterectomy July 2019 for PMDD

My PMDD journey is a complicated one. Feel free to skip to the tl;dr.

I also have PCOS so I didn’t have regular periods until I was 26 and lost 170 lbs (I’m 5’11’’ and went from 310 to 140). After I was at a healthy weight, I started to have mental health issues. One weekend I just couldn’t get out of bed. It get like my limbs weighed 1,000 lbs and I was walking through jello. I managed to get to my Mom’s house about an hour away and I just cried all weekend. I wasn’t even particularly upset but I couldn’t stop crying. I was also ravenously hungry for carbs and sweets. The next couple weeks were odd. I eventually went to my GP and he diagnosed me with depression and gave me Lexapro. Well, Lexapro turned out to be a bust for me. It made me few like nothing was real and it gave me terrible waking dreams where demons were attacking my legs. I went to the ER to tell them it wasn’t working for depression and the ER doc double to dose. Between the demons, feeling like a failure and not being able to tell what was real I took my Dad’s car out with the intention of crashing it and killing myself. Thankfully my sister called me and that lead to me breaking down and being hospitalized for the first time.

In the hospital they put me on Zoloft and immediately it seemed I was better. I was doing push-ups in the hall and talking to anyone who would listen. Thinking they had hit a home run I was out of the hospital in 2 days. What really happened was they had made me hypomanic. As I continued on the Zoloft, I slept less and less, exercised more, went to the grocery store just to talk to people and had me brain feel like it was on fire. I went back to my GP, who I’ve known my whole life and he immediately saw I was bipolar. He stuck me on lithium, took away the Zoloft and spent the next 6 months finding me a psychiatrist.

The psychiatrist agreed with my GP so we started the med-go-round. During this time, my mom was noticing a pattern that I would get worse right before my period, and my periods were going wonky again from stressful weight gain. So I went to my gynecologist and we tried every class of birth control. They made my symptoms much worse. I went from 2 weeks a month feeing awful to all month. I stopped bc and decided to try to treat it psychiatrically. None of the psych meds were working or worked for longer than a couple months. I was hospitalized twice more for suicidal ideation. So me and my care team decided it was time to try ECT (electroshock ther

... keep reading on reddit ➑

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πŸ‘€︎ u/Emmalah
πŸ“…︎ Jul 05 2020
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Radical Hysterectomy, mid-30s

Hello all!

I'm in my mid-30s and I am scheduled to undergo a radical hysterectomy (ovary, tubes, uterus, cervix, and a little more) in 1.5 weeks. This may or may not include removal of some colon depending on tests this week, but I think this is unlikely. I will not be able to go on hormone replacement therapy*

Does anyone have experiences that you would be willing to share? I'm right out of another surgery and I'm not looking forward to another recovery period (I was in the hospital 6 days the week before last for an emergency laparotomy). I've also heard a bunch of bad accounts about hormones and depression after surgical menopause, but everything is very vague and is targeted at women over 40. Health sites (web-md, etc) aren't much help - they make it sound like a breeze with a few hot flashes and some vaginal dryness. The doctor talks like it will be a simple laparoscopic procedure unless he decides mid surgery that he needs to do something more invasive. This is exactly what I heard the week before last so I'm almost expecting another laparotomy 😁

  • As stated above, I will not be doing hormone replacement therapy. The very small amount of material I've seen on younger surgical menopause patients seems to revolve around the hormone replacement.. so any experience with "cold turkey" menopause would be very much appreciated!

Thank you!

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πŸ‘€︎ u/MiSoCrabby
πŸ“…︎ Jan 20 2020
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Skincare suggestions post radical hysterectomy

I had a radical hysterectomy in November 2018. I mostly feel better, but my skin is loosing elasticity really fast. I’m 38. I can’t have any progesterone, I’m on 1 mg of estradiol a day, I work out and I’m pretty thin (5’2 110lbs), but I’m sad about the skin tone and texture degrading so quickly. Any suggestions?

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πŸ‘€︎ u/nicolea22
πŸ“…︎ Feb 28 2020
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4 months post radical hysterectomy, today I ran 6 miles.

I was afraid I would never run any distance again, and today I ran 6 miles in 51 minutes. Not super fast, but it makes me feel like me again to be running again.

  • thanks for listening.
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πŸ‘€︎ u/nicolea22
πŸ“…︎ Apr 07 2019
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Wife(41) had a Radical Hysterectomy as a part of Cancer diagnosis - depression due to surgical menopause

Its been 8 weeks after my wife had her radical hysterectomy, and things havent been at a really low point over the last week.

As of now we are seeking counselling and hormone alternative herbal treatments, to lessen the low mood and depression - she cant go in for hormonal treatment due to the type of cancer.

We both read the following article - particularly the comments

http://www.hormonesmatter.com/hysterectomy-hormones-suicide/

It's a real downer.

Do things get better over time? if so how long time ?

I cant bear to see my wife go though her hell, and I feel very helpless - I try not to show it since I dont want her to feel guilty, since as it is she feels really bad that she cant care for our little one (who doesnt understand why mom is low and different)

Is there hope ?

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πŸ‘€︎ u/v--2
πŸ“…︎ Aug 05 2019
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Wife(41) had a Radical Hysterectomy as a part of Cancer diagnosis - suggestions for overcoming Surgical menopause symptoms

My wife(41) had a Radical Hysterectomy roughly 5 weeks back as a part of Cancer diagnosis, off lately the effects of Surgical menopause has hit her like a ton of bricks.

We have a 6 year old daughter

She is facing the following symptoms

  • Extremely low mood: She cannot bare the fact that she didnt have another child. She keeps having nightmares about having another kid
  • Unable to sleep: I dont think she has slept a full nights sleep in a week.
  • She is a very happy and bubbly personality, but I havent seen her laugh in over 2 weeks,
  • Blaming herself for her cancer and the fact that she didnt take care of her health, took up a lot of stress at work etc, because of which she didnt think about having another kid and got cancer.

During the first 3 weeks after the surgery the above symptoms we very low (say 2 out of 10), but sine the last week or so its increased to a lot (10 out of 10), I would assume this is due to the drop in hormones kicking in due to the hysterectomy

Due to the type of cancer diagnosis, my wife cannot go in for HRT, or any time of hormonal medication.

  • Will my wife's mood improve over time ? if so how long will it take?
  • I have been very supportive but I am really worried about her long term health and worried about her going into depression - Is there anything that I can do to reduce the above symptoms
  • I have been away from work (and by my wife's side) for over 6 weeks, but eventually I do have to get back to work, I am worried about leaving my wife alone at home, with her thoughts while I am at work
  • I also find it really difficult to get her to do any of the things that she used to like doing - shopping, going out for a meal etc, she just stays in bed thinking about not being able to conceive

Any help would be appreciated

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πŸ‘€︎ u/v--2
πŸ“…︎ Jul 29 2019
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Recently had a radical hysterectomy to remove a cancerous tumor on my cervix and I need some advice...

I recently (6 days ago) underwent a radical hysterectomy and I'm trying to find someone whose undergone this type of procedure before. I need some aftercare advice. I spoke to several nurses at the hospital who all either gave me different answers or acted clueless. I'm just looking for someone who can give me some advice and maybe some info on their expirience. Also, I will not be using any information given in exchange for medical advice so no needs to worry about that.

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πŸ‘€︎ u/andinshawn
πŸ“…︎ Sep 23 2019
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My wife(41) had a Radical Hysterectomy as a part of Cancer diagnosis - Any tips for me as the husband to help her

My wife had a Radical Hysterectomy as a part of Cancer diagnosis, based off my research on the net, I know that she is going face the usual surgical menopause symptoms

Hot flushes, anxiety, mood swings etc.

Most of the literature available on the net only talk about these symptoms and how a female should have to deal with - Breathing exercise, Yoga etc.

I am reaching out her to understand what I (as a husband) should expect and more importantly what would be the optimal way to deal with it, with a view to having a happy married life.

I just want to know all the details and be prepared, considering that I am a man who generally dosent express emotions and pickup subtle messages.

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πŸ‘€︎ u/v--2
πŸ“…︎ Jul 16 2019
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25 YO abdominal radical hysterectomy. What is recovery like?

I will be having a radical hysterectomy, where all of my reproductive organs will be removed, because of severe endometriosis. My endo is so severe it has cause frozen pelvis. My doctor plans to try the Da Vinci robot method first but thinks the endometriosis has caused so much damage it will need to be done abdominally.

I am curious of what recovery will be like. I know I will have a 2-3 day hospital stay but what else can I expect? What should I buy to be prepared for surgery? How long will I need someone around to help me? How painful is the full abdominal incision? Any other advice you wish you had known before an abdominal hysterectomy?

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πŸ‘€︎ u/allikate93
πŸ“…︎ Mar 22 2019
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Radical Hysterectomy Post Op??

Hi! I’m 21 and a clueless former nursing student who just had a radical hysterectomy on May 22nd, and I have NO CLUE WHAT IS NORMAL POST OP IS SUPPOSED TO BE LIKE and none of the women in my life have experienced menopause yet or even had their tubes tied; so I’ve really come to ask: what the hell is supposed to be happening three weeks after surgery?

Starting on Tuesday I started having really heavy, bright red, clotty bleeding (I say heavy hesitantlyβ€” my periods were an Ultra and a Maxi Pad an hour before this, right now is maybe a maxi every 2.5 hours?) and I CALLED MY DOCTORS OFFICE but they haven’t had a chance to see me, and the ER seems really pointless at this point without having a real baseline for how much bleeding is normal?

I don’t know what information is good to add here otherwise; I had five abdominal incisions and one vaginal incision to remove my cervix, I’ve been trying to be careful about it but I have no idea what’s going on. Is it even supposed to be able to find things to bleed out like this? SOS, I don’t know what I’m doing anymore 😎

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πŸ‘€︎ u/ribothy
πŸ“…︎ Jun 09 2019
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Radical Hysterectomy, Mid-30s reddit.app.link/qTuOvubBo…
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πŸ‘€︎ u/MiSoCrabby
πŸ“…︎ Jan 20 2020
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Advice for daughter (who is also caregiver) after mom’s radical hysterectomy?

My mom had a laparoscopic radical hysterectomy about 36 hours ago. Aside from the actual operation, I have been with her the entire time.

She needed to have a radical hysterectomy due to hyperplasia with atypia and pre-cancerous cells. Thankfully, she had a phenomenal surgeon and team of nurses, and there was no visible evidence of cancer; official lab results will come back in 10-14 days.

Although we were told before the surgery that she would be discharged from the hospital a few hours after surgery, she had high blood pressure afterward, so we had to stay overnight for monitoring. We came home about 11 hours ago. I am operating on about 6 hours of sleep across the span of 3 days, mostly because I like to know all of the details and I want to make sure she is well at all times.

She seems to be recovering well β€” pain at a 2-3 out of 10, walking around the house and using restroom on her own, minimal spotting/discharge, absolutely no nausea or vomiting, eating full meals and drinking about 60 oz water/day.

What advice might you all have for me as I take care of her over the next few weeks?

TLDR: Mom had radical hysterectomy 36 hours ago. Any advice for daughter who is also caregiver?

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πŸ“…︎ May 03 2019
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Radical hysterectomy without confirmed diagnosis of Cancer

My mother (Age 55, menopause at age 43) was found to have endometrial thickening of 18 mm in the yearly checkup. She had D&C done last week and samples were sent for biopsy. The biopsy said "negative for dysplasia and malignancy. However possibility of Endometrioid endometrial carcinoma cannot be ruled out. Further imaging for correlation is recommended." She had a Pelvic MRI done. Her gynaecologist says that though the MRI looks clear, it is better to not take any risks and perform a radical hysterectomy. I am very confused whether this is the correct course. Any help would be appreciated.

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πŸ‘€︎ u/randomguy12842
πŸ“…︎ Apr 20 2019
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Has anyone had a radical hysterectomy before 40?

I’m 38 and scheduled to have my uterus and remaining ovary (Fallopian tubes are long gone) removed in a couple weeks and am scared about the immediate onset of menopause. I’d love to hear stories from other women who may have experienced this already. The endo is everywhere and there is Adenomyosis in my uterus so I know this is my only option, but I’m still scared. How bad are the hot flashes, will I be super emotional, will my skin start to get wrinkly? I know these things are trivial in the grand scheme of things but I can’t help but to be worried about that and the surgery in general.

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πŸ‘€︎ u/anitabelle
πŸ“…︎ May 08 2019
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Wife had radical hysterectomy due to stage IIIc ovarian cancer. It's been a week since the surgery, and she can barely get around, has significant nausea and contraction-like cramping in her abdomen. Any suggestions?

I've talked with the nurses and her surgeon and they all say this is to be expected. I'm just hoping to hear the same from folks that have been through it and can say how long it lasted and if there was anything that helped relieve symptoms. Thanks in advance...

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πŸ‘€︎ u/uncertain444
πŸ“…︎ Jan 13 2018
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Nutritional question for women that have had radical hysterectomy due to endometriosis:

First time post long time lurker(hi😊) I (F, 38yrs) had a radical hysterectomy January 9th due to endometriosis that covered a lot of my organs as well as uterus and ovaries. I’m healing well and on progesterone but won’t be put on estrogen till August. I’m wondering if any other of you ladies have had this and what supplements/foods your taking or eating to help with surgical menopause. And to explain, my dr isn’t putting me on estrogen till August to prevent feeding any endo cells that may be left over inside of me. I would just like to have some pointers on diet and supplements until then. Thanks for any input😊

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πŸ‘€︎ u/lady8080
πŸ“…︎ May 07 2019
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Cervical cancer surgery: less invasive radical hysterectomy has more deaths than open radical hysterectomy statnews.com/2018/10/31/d…
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πŸ‘€︎ u/PastTense1
πŸ“…︎ Nov 01 2018
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Cervical cancer surgery: less invasive radical hysterectomy has more deaths than open radical hysterectomy statnews.com/2018/10/31/d…
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πŸ‘€︎ u/PastTense1
πŸ“…︎ Nov 01 2018
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Minimally invasive radical hysterectomy may increase death risk in patients with early-stage cervical cancer massgeneral.org/about/pre…
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πŸ‘€︎ u/HearTomorrow
πŸ“…︎ Oct 31 2018
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Sex After Radical Hysterectomy

My fiancΓ©e was diagnosed with endocervical adenocarcinoma a week after giving birth to our baby boy, and will likely require a radical hysterectomy, which, as we learned, may include the removal of a small portion of her vagina.

We are highly sexually active and are wondering how this may change things. Does anyone have experience with this issue?

After the biopsy of a rather large polyp, she still hasn't received a PET scan to see if her uterus is the only place she has cancer.

Thanks for the help.

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πŸ‘€︎ u/Triteleia
πŸ“…︎ Apr 24 2016
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What to expect from radical hysterectomy for Stage 1B1 Cervical Cancer?

Just recently dx with Stage 1B1 cervical cancer. Had my PET scan so waiting to see if lymph nodes are involved If results come back negative, then it will be a radical hysterectomy for me. For those of you who have had one, what can I expect? Both short and long term. And what can I do to physically best prepare myself (i.e. exercise, diet)?

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πŸ‘€︎ u/CoconutDreams
πŸ“…︎ Dec 12 2016
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Breastfeeding after radical hysterectomy?

Due to my traitorous ovaries and their tendency to grow tumors constantly, I am scheduled for a radical hysterectomy and sacralcolcopexy in a couple of weeks. I'll be away from my baby in the hospital for a couple of days, and won't be able to nurse him for a few days because of the anesthesia.

I'll be starting hormone replacement therapy after the surgery to stave off surgical menopause and my doctors have assured me that it will still be safe to nurse. However, I'm not sure how all of this upheaval is going to affect BFing. My little guy is 13 months and already nursing less than before. Between a few days off the boob and then hormonal changes, I don't know how we're going to get going again.

Has anyone been in a similar situation and have any advice?

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πŸ‘€︎ u/RhinoTattoo
πŸ“…︎ Sep 01 2014
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Bipolar meds and HRT post radical ( early) hysterectomy ?

So, I'm just curious if any of our lovely ladies have experienced complications from mixing HRT meds with the ones they are on for bi polar?

Any idea what I should look out for?

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πŸ‘€︎ u/faithlessdisciple
πŸ“…︎ Feb 05 2016
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I just wish I knew anyone in the same position as me.

20 y/o AFAB with absolutely debilitating dysphoria.Currently pausing a FTNB transition (havent decided id I will continue or stop) Have been on T for about 9-10 months currently taking a break. I don't regret HRT, it was probably the best decision of my life, though I wouldn't recommend hormones to anyone else since it's such a far-reaching thing. And I want top surgery and hysterectomy so badly. But I have so many qualms about surgery, and the trans community, way too many to list here. Then again, my dysphoria is so debilitating that it leaves me unable to function for months on end. Nothing but staying in bed, smoking, and self harming for weeks and weeks and weeks. I tried therapy, various radical self acceptancr techniques, nothing helped because it is just this behemoth of a problem that always finds its way to crush my defenses.

And I don't know what to do with my transition.

My friends are all either cis or trans with 0 doubts towards their transitions. Online, I struggle to find anyone to ask for insight either. People who are happy with their transitions tell me I'll be happier after it, people who have detransitioned tell me I'd be happier without it. I don't like either outcome, I don't want to listen to them because I know everyone is biased towards their own experience. There's so much conflicting information abt transition and the psychology of trans people that I'm lost & ambivalent in my feelings and opinions about it. I don't know what to do with myself. I just wish I had a friend who wasn't cis, or trans, or detrans, but just somewhere in the middle not knowing what to do like me. Then we'd both have someone on equal footing to discuss this with and maybe figure it out together. But I don't think it will happen. I feel like a bad person, there's no one else like me that I know so I feel like a freak and an embarassment. And I still don't know what to do with myself.

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πŸ“…︎ Dec 17 2021
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I need help keeping my head above water post-cancer surgery.

On December 28th, I had a radical hysterectomy to treat stage II cervical cancer. Three days prior to that, I was laid off from my job of four years and informed that I would not be receiving my Christmas bonus. We are behind on rent, utilities, and car payment, and I'm looking for any monetary help or advice to survive this time. I have an Amazon wishlist for necessities for my animals and children, a GFM for expenses, and I'm signing up to do DoorDash et al as soon as I'm cleared to drive again, in addition to applying for every job known to man. We have access to food and my husband is employed full time but we were paycheck to paycheck.

Thank you so much to anyone who reads this and I wish you a happy new year!

ETA: here's my GFM and my Amazon Wish List.

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πŸ‘€︎ u/leahtucks
πŸ“…︎ Jan 04 2022
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Endocervical Adenocarcinoma Treatment Options

Hello I'm new here and looking for some support. I am so happy to have found this sub and I'm sorry for the very long post. To preface, I am 45 and married and childfree by choice. I have no previous abnormal paps but do have OCD and anxiety for which I take medication, but otherwise in good health and very active. Located in Canada.

Oct 2020 - I went for a regular Pap and results came back as Endocervical Adenocarcinoma in situ. Referred to a gynecologist for colposcopy. Cervical biopsies and ECC came back with Endocervical AIS again but the endometrial biopsy was clear. I was told it's pre-cancer and not cancer so was not really concerned.

Late Nov 2020 - Had LEEP done for further biopsy. Results came back as a very small early cancer which appeared to be all removed with the LEEP (clear margins). The gyn would send my case to the tumour board review in the next few weeks. Now, I'm a bit more worried but still Ok.

Dec 2020 - Scheduled with gyn-oncologist at the cancer centre. I met with a Resident and Fellow who did most of the consult. The gyn-oncologist came in for the last 10 minutes. The Fellow said the only choice for treatment was a hysterectomy (removal of cervix, uterus and fallopian tubes) in case there was microscopic disease not detectable by imaging. It would either be simple or radical pending further results from the pathologist during the board review on whether there was LVSI and size of the tumour. He would also remove my ovaries due to 5% chance of ovarian metastases and put me on low dose of estrogen till I reached 51.

Well, here is where I freaked out! I was unclear why I was even at this appointment if the cancer was supposedly removed by the LEEP. I did not want my organs removed or to be on hormones for 6 years! This was all moving so fast and I needed to put the brakes on. I asked for a second opinion but proceeded with getting blood tests and CT scan with contrast and tried not to think about it over the holiday break.

Jan 2021 - I met directly with a different gyn-oncologist first week of the new year. She now had the missing pathology data from the tumour board review and the diagnosis is: Stage 1A1 Endocervical Adenocarcinoma.

No LVSI found and depth of tumour invasion was 2.8mm. CT and blood work were clear. Because of this new information, she said there was no need for a radical hysterectomy and the choice was now between having a colposcopy every six months for three years OR a simple hysterectomy leaving the o

... keep reading on reddit ➑

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πŸ‘€︎ u/FearlessAd8525
πŸ“…︎ Jan 18 2022
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Recently diagnosed and looking for hope

I was recently diagnosed with stage 1b2 cervical cancer. I’m a wife and stay at home mom of 2 beautiful little girls (4&1). I’m scared to say the least. I’ve already had my CKC (cold Knife cone) done and my tumor is 2.2x5. My margins were clear as was my second cervical swab and uterus biopsy. But my cancer is adenocarcinoma and grew that big in just over a year. I haven’t been seen by my gyn/onc yet but I’m pretty sure a total radical hysterectomy, radiation and chemo are in my future. I have no idea how I’m going to be able to take care of my babies going through this. Just looking for success stories, hope, insight. Anything you can give me at this point.

πŸ‘︎ 10
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πŸ“…︎ Jan 12 2022
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Has anyone else had any kind of tumor in her vagina. How is it treated? What does it mean exactly to remove a woman's vagina?

I was recently diagnosed with cervical/upper vaginal cancer, all spreading downwards My doctor plans to make me radical abdominal hysterectomy but they will also extend it to my vagina... I never heard it before how can someone's vagina be removed, I can't really imagine, how the results would look. Does that mean that it will be all closed up? What remains? How does it affect sex life? How can you pee afterwards? I'm so frightened as I'm just 27 years old...

πŸ‘︎ 58
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πŸ“…︎ Dec 18 2021
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Post-Oophorectomy HRT users: What method of HRT are you using, and at what dosage? Do you like it? Have you tried others? Do you go through insurance or pay out of pocket?

Nearly 4 months post-op radical hysterectomy and I've had an annoying journey with my HRT. I'm now exploring different methods and looking to, once again, increase my dosage because I am still experiencing symptoms.

My questions are to try to gauge what method of HRT is the least frustrating yet most effective, and to determine if there are any out there that need a dosage higher than is standard.

I myself am currently on a topical compounded cream and I find it very annoying, and am considering asking for patches but am concerned about the increase in price. Any detail you are willing to share is helpful. Thank you :)

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πŸ‘€︎ u/hobbyflake
πŸ“…︎ Jan 04 2022
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Looking for some emotional support

I’m not sure why I’m writing this. I feel like no one has gone through quite the same experience as I have, but the loss and regret I am feeling is so intense and I guess I’m just hoping for some kind words. I was diagnosed with cervical adenocarcinoma stage 1B1 or 1B2 at 19 weeks pregnant. It is a rare form of adenocarcinoma called villoglandular. I was advised that for my best outcome I should have immediate radical hysterectomy which would effectively end my pregnancy. The second option was to have chemo until 28 weeks pregnant and deliver a very preterm infant. I have a 2.5 year old son at home and was having a hard time processing the fact that I had cancer at all. I couldn’t look at him without crying, thinking about the possibility that if the cancer spread I could not be around to see him grow up. My gyno oncologist told me that any delay in treatment could be detrimental to my health. I was so scared and I feel I made my decision out of fear and went ahead with the surgery. I have such regret and feel such loss. My baby girl was so perfect and I didn’t give her a fighting chance. I can’t try for another child. Still waiting on histology to determine if the staging was correct or if I need further treatment. I am dealing with the uncertainty of my cancer diagnosis, loss of a child and loss of fertility all at once and it is crushing.

πŸ‘︎ 9
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πŸ“…︎ Jan 08 2022
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SERIOUS: This subreddit needs to understand what a "dad joke" really means.

I don't want to step on anybody's toes here, but the amount of non-dad jokes here in this subreddit really annoys me. First of all, dad jokes CAN be NSFW, it clearly says so in the sub rules. Secondly, it doesn't automatically make it a dad joke if it's from a conversation between you and your child. Most importantly, the jokes that your CHILDREN tell YOU are not dad jokes. The point of a dad joke is that it's so cheesy only a dad who's trying to be funny would make such a joke. That's it. They are stupid plays on words, lame puns and so on. There has to be a clever pun or wordplay for it to be considered a dad joke.

Again, to all the fellow dads, I apologise if I'm sounding too harsh. But I just needed to get it off my chest.

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πŸ‘€︎ u/anywhereiroa
πŸ“…︎ Jan 15 2022
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Looking for a reality check. I might be in denial.

The doctor (gyno oncologist) told my mom that my sister’s cancer is not survivable. Recurrent cervical cancer. Radical hysterectomy. Radiation (30 rounds). It came back. She’s had 2 rounds of chemo with Keytruda and 4 more to go. It’s been aggressive from day 1. The doctor said he’s never a case this bad in his 20 year career.

I am almost relieved he said it. So is my mom. And obviously miracles happen. Just wanted to hear thoughts on this. Has anyone experienced being told this type of news or maybe just some gentle words of reality. I’d prefer helpful comments if possible. I’m sure some will be mad the doctor said what he said but we are not.

Thank you in advance.

Edited to notate my sister is 49 but my mom is her caregiver right now. That’s why the doctor is telling my mom things about my sister’s condition. Also cross posting to Cancer Caregivers.

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πŸ‘€︎ u/mrnibbles777
πŸ“…︎ Dec 18 2021
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Anesthesia vs surgery charge breakdown

I'm an obgyn and I have multiple patients who bring me their hospital bill and I have noticed that the charges for anesthesia are significantly higher than charges for the actual surgery. Can anyone make sense of this?

I recently saw a patient who was charged about 45k for a TAP block, which was about double the total charge for the hysterectomy. 😳 Of note, I get about $600 of that.

πŸ‘︎ 62
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πŸ‘€︎ u/Arassi86
πŸ“…︎ Aug 31 2021
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Medical Malfeasance

For those of you who have woken up to the disaster this current mass ailment management is, I have really bad news for you. These sorts of health lies and incompetencies have been going on for decades, perhaps centuries.

This link: https://www.youtube.com/watch?v=2-gry5EjNdg shows how it works. Dr. Paul Mason is in a ground of doctors, thinkers, and others interested in health that are aware that we are getting really shitty advice from main stream medicine concerning diet and exercise.

I myself was given unsolicited advice in the late 1960's from two independent and separate medical doctors that strenuous exercise was bad for me. 54 years later, it is daily strenuous exercise that is helping me reverse my ageing process and keeping me healthy.

In 1990, a medical doctor prescribed a radical hysterectomy for my wife for endometriosis. Instead we used homeopathy and traditional Chinese medicine. When the MD found out that we were NOT doing it her way, the way that made her lots of money, she went ballistic and verbally abused my wife. But now we have two adult children that young married couples see when they close their eyes and dream.

Don't fall for the medical scam.

πŸ‘︎ 15
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πŸ‘€︎ u/birdyroger
πŸ“…︎ Nov 30 2021
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