Hi, i'm 16 and have a corrected cleft lip and palate in the UK. I was wondering if anybody on this sub has any information about whether it would make me medically unfit for the military and they'd fail me on the medical for all of the surgeries i've had or if they'd see that physically i'm fit enough for the army and let me join. i've heard their medical system is wack. Thanks.
Im learning spanish, but its hard to roll my Rs because I have a corrected cleft palate. Cleft palate is a fairly common birth defect (as far as birth defects go), so I imagine native speakers have found a way around it. I have two questions:
(1) for you native speakers in the same boat, what tricks should I try?
(2) what does it sound like if a foreigner doesnt roll their Rs? is it like an annoying lisp or an exotic accent? is it easy to distinguish words from context (eg pero vs perro)?
So we just recently found out we’re expecting our first! We go in for our first ultrasound here soon, but I’m just curious if anyone has an idea of the chances of my baby having a cleft lip/palate if me (the mother) has one as well as my grandpa (my dads dad) and my cousin (my dads nephew) and I think there is one or two more in my dads extended family that I am not familiar with. Is this concern worth mentioning to my OB? And is there any way of us finding out at any point during my pregnancy with any genetic tests or ultrasound? Any help is appreciated!
Hey y'all! I hope you are having a great week! I've been thinking a lot about my younger self, growing up with a cleft palate, and all the surgeries I endured to fix it. Sometimes I think about the messages that I really needed to hear as a young girl growing up with a cleft palate, the biggest one being that I'm not alone, and that other young kids are going through the same surgeries I'm going through, too.
For those who grew up with a cleft lip and/or palate, I have a question for you: If you were to read a book or watch a movie or TV show as a young child about cleft lip/palate, what would you want the theme or overall message to be? What is something you felt like you really needed to hear as a child growing up with a cleft lip and/or palate?
And here's another question for parents of children with a cleft lip and/or palate: What is one message/theme/subject matter you'd love your child to learn about having a cleft lip and/or palate?
I'd love to hear your thoughts <3
Hey guys, so i live in NC and am participating in an event called “Carolina’s Dancing with the Stars”. It’s organized by Operation Smile and this is their 14th year doing it. Being a “Star” I have to raise $10k for children in need of surgery. The money will cover the cost of 42 children in need. The children either live in poverty here in the United States, or live in other countries where their families cannot afford the surgeries. Although I’ve gotten lots of likes and shares on my social media posts, actually getting donations has been a struggle. If you guys would be willing to donate or at least spread the word it would be greatly appreciated! Here’s the link, thank y’all so much! Donation Link
I have an older male cat who has a cleft palate, history of bladder stones, and newly discovered allergy to fish. With his urinary issues and cleft palate, he has a limited range of food options out there, and his Vet recommended only canned food. There's exactly one brand that sells one texture of food for his health issues and is easy to eat with his cleft palate: Royal Canin Urinary S/O Morsels in Gravy. Everywhere is out of it, both online and locally, so we have just a few cans and have been giving him his less preferred texture (loaves in sauce). He has a really hard time eating anything but the morsels in gravy, like he has a hard time picking up the food with his mouth.
Anyone have any idea what to do in this situation? Any other cleft palate kitty owners out there with tips? We're calling the Royal Canin hotline tomorrow, so hopefully they will have some ideas, but I figured crowd sourcing couldn't hurt. Thanks!!
He currently has a referral for a Dr Gilbert but as I understand it, after speaking with his nurse, he doesn't use that procedure. Unfortunately, not many people have trained for it and it can really be botched if they don't know what they're doing so I certainly don't want my son to be a guinea pig.
Today I made an appt for him at UAB to get a second opinion and to see if any of their surgeons do it. On a major pilonidal website they have a map of Dr's that they know do it and there was a Dr Mackenzie Abraham on there but she's a resident and the operator didn't even know who she was currently working under.
Anywho, if you have info on this or can even share your experience with these cysts please do. Thanks!
EDIT I'm in the UK and surgery for cleft lips is done for free at 6 months old and cleft palate if he has it will be done at 12 months old
Hi everyone, im currently 37 weeks and my little boy is going to be born with a cleft lip and possible palate he is my first baby and I was just wondering if anyone out there has had a baby with the same conditions and how different it was to a normal baby, midwifes keep telling me how sorry they are that my baby is going to have a cleft lip but honestly me and my partner are just happy hes healthy since we lost our last son at 17 weeks pregnant so we will love him unconditionally I just want to be prepared for any difficulties I may face looking after him I mean nobodies perfect and I will probably make mistakes but I would like to feel prepared for my little guy
Hi! I was wondering if anyone is expecting a cleft palate affected baby? ❤️ This is my second baby, and due to my genetic condition I am more told there's a 50/50 chance of baby having the same condition as myself. My first baby was born with a cleft palate, PRS, and Sticklers (Same as me). She is almost 4 and she's an amazing kiddo. I'm more prepared and confident this time around since I have more knowledge on my genetic condition, however I'm still super nervous! Long story short some of my relatives are against me having a child due to my condition, but mine and my kiddos genetic condition does make us any less of people. I'd love to see if anyone else is going through the same! 🥺❤️
Lara Verheijden is a Dutch photographer/artist who lives and works in Amsterdam and Berlin. I am not super familiar with her work, but it seems really cool, arty nudes and stuff. Anyway, she is really successful and looks great too. Really has a unique look. I'm not sure if I can post links here, but you can easily find her on Instagram. Just wanted to throw it out here. I don't have a cleft myself, but my mother has. I think its important to have really cool women who are rocking life with their asymmetrical face.
ETA: wording
I think people are addicted to plastic surgery, particularly young women. I think it's a waste of money, and all the things that people are brainwashed into believing are "attractive", such as puffy lips and ridiculously huge boobs, are actually extremely ugly and most everyday folks don't find those things attractive. It makes me sad when people who are blessed with natural good looks ruin them with these procedures. Plus, I don't think it's healthy, neither physically nor mentally. It's why people have eating disorders. If I were in politics I'd go as far as to declare it a public health crisis.
Don't get me wrong, I have insecurities about my own body. I wish I was a few inches taller, I wish that my face wasn't so round, I wish that my facial hair was a bit thicker (particularly the area below my mouth), and I wish I didn't have scoliosis. I know there are procedures that can "fix" all of these things, but I am opting not to get them. I've made a commitment to myself not to have any surgeries unless it's for a genuine health concern (i.e. removing a cancerous tumor). Taking myself out of the picture, I think there are healthier ways to deal with insecurities such as teaching people to respect each other and not judge others based on their natural imperfections.
Hey guys, I'm in a situation where a patient cant go to a prosthodontist and needs a new upper denture. They have an oral nasal communication a little smaller than a dime in the traditional place. My question is would you impress and try to build the obturate at the same time as the denture, or make the denture and hard line the obturate after fabrication in a case like that? Thanks for any input.
Hi friends! I was wondering what your experience has been with dating as a cleftie. How has it influenced your dating life and has it changed when you got older?
Has anyone had Cleft Palate surgery for their cat? If so, what has the experience with it been? My little Loki is up for surgery next month and I am a bit worried.
A student on my caseload has undergone several cleft palate related surgeries over the years. She will soon be getting bone graft surgery for palatal fistulas. About how long can I expect her recovery to take? I have never worked with cleft palate before (I'm a CF) and have no idea what post-surgery therapy should look like. Luckily she also has language goals, so I figure we can work on those while she's recovering.
Hoping to hear from others who had a baby with a cleft palate and/or pierre robin sequence. One of our twins is still in nicu just working on gaining weight (iugr) and bottle feeding - born about a month ago at 36 weeks. He has a bilateral cleft palate (no lip involvement) that plastics says they will repair at 12 months. They've been on the fence about pierre robin sequence - his jaw is definitely small but not small enough? His tongue is pretty far back as a result, but his tongue tie keeps it forward.
We have been working with OT on bottle feeding with the Dr Brown bottles and specialty valve. He can complete about 50% of his feeds by bottle - definitely making progress but he does have good and bad days with it. He hasn't needed oxygen support (despite sounding like it...we call him a little pug 😉), but he is more comfortable on his side given his small jaw and tongue placement.
Not sure what all to ask. I feel a little overwhelmed, but I think it's just because we had a "bad" feeding day. Sometimes he seems uncomfortable, but I think it's just how he sounds with the palate right now. What were others' experiences? Did feeding eventually click? At what point did providers talk about placing a gtube to go home, if applicable? How has sleeping/breathing been as they've gotten bigger?
