Hello all. I just found found this subreddit and I guess I'm trying to quell my fears a bit.
My son is about two and a half years old and has been in speech therapy for almost a year. He has improved...a bit. In fact most of his speaking or repeating has happened in the past month. The only thing he says spontaneously and clear enough to be understood by others is Mommy and Daddy. And everything else we have to ask him to say and a third party would never understood what he was trying to say. For example if you want something we make him say please and he says "Psszzz"
Anyway, I guess I'm just looking for some people that are going to the same thing. His speech therapist says that no one with this grows up never being able to talk. But I still can't help but worry. He's not on the Spectrum or has any other mental disorder. He has a perfectly normal receptive vocabulary and understands everything...he knows what he wants to say he just can't speak it. Other than this he's perfectly normal on everything else.
What I guess I'm hoping for is is there anyone that grew up with this condition that can kind of give me a hint as to what it's like for him? Kind of help get into his brain a little I guess. I can tell he's frustrated with not being able to talk and he is getting better from what he was. When he becomes an adult what his speech sound normal or does it sound off a bit? I'm just worried for him in the future is all.
I was diagnosed with a somewhat rare speech disorder at 3 years old. I was in speech therapy until the age of 17. My disorder effect my motor skills that are responsible for the movement in my jaw,mouth,and tongue. I aslo have sensory issues and fine motor skills issues in my hands. Grammar and writing is an issue to So,please excuse if my grammar is little weird but,I will try to make it tolerable. AMA
Can’t get the words out
This is my first post to this thread. I’m 18 years old and I have a problem with getting words out. I use to stutter pretty bad for as long as I can remember, probably back in 2nd grade. I don’t stutter now but most of the time I know exactly what I want to say and I attempt to say it but, the words just won’t come out. I looked into it and I might have Apraxia of speech. This has really made my life worse because I can’t communicate how I want to, any tips that can help me please let me know!
Just looking for any advice. My almost 3 year old has been told by his SLP that he has suspected apraxia. Now we have to wait for over 8 months for an appointment with a specialist. Please help us learn how to communicate with him.
https://www.behance.net/gallery/71855381/Understanding-Childhood-Apraxia-of-Speech
From dsm4 to dsm5, phonological disorder became speech-sound disorder, which I understand to refer to kids who have poor phoneme production due to poor auditory perception. If a kid has poor phoneme production due to poor motor skills, is that still SSD, or developmental coordination disorder?
(I'm a psych, not an SLP, so sorry if this is obvious.)
Our four year old was just diagnosed. I'd like to hear from anyone else who's experienced this condition. Both parents who've had children with it and people who grew up with it themselves.
I took speech therapy when I was 7, two days a week, an hour each visit, for about two months. But stopped due to being told I made all the "progress" I would ever make and I would never speak normally. (Note: this came from my Mom. I never heard my Therapist say this.) Moving on.
My question is this: Was she right?
Because I feel I've made progress since I was 7 (I couldn't even form a sentence after I stopped going. And now for the most part, I can talk normally, except I have a sight lisp, and there are a couple of letters and words I can't pronounce correctly. I.E The letter D sounds like T, P sounds like B, G sounds like E, Pool sounds like Poo.)
Should I just accept what I was told to be true? Should I accept that I will never be able to talk normally?
Because I'd like to go back to speech therapy and work on my lisp and speech, but I don't know if it would be a waste of time or not.
Hi all! I know this is more geared towards the speech apraxia board however it’s not active and is filled with mostly parents. I was wondering who all suffered from the speech and language side of dyspraxia more so than the physical side? What were your experiences from it? I’m asking as I never meet a person around my age with it. I’m a 24 year old female.
Hi all! I have a new teen on caseload with dx of both childhood apraxia of speech and dysarthria. Parent is not agreeable to any AAC. I have little experience in treating CAS in children, and some with treating dysarthria in adults, haven’t yet experienced treating dual diagnosis.
Can anybody offer me any information on what you have done in treatment?
This place is a whole lot less active than the disapraxia sub (and I don’t quite feel like I fit in there) and I was thinking a discord might be a nice way to have a more active community. I’d love to be able to properly chat with people who go through the same thing as me.
I understand this sub has more parents than actual apraxics (or whatever people with apraxia are called), but hey if your kid is old enough to properly use discord, then perhaps ask them if they are interested. I’d love to chat!
I’ve recently learned that apraxia awareness day (May 14) is a thing, and so I wonder, what are some good ways to celebrate it since it’s not to far from now?
Recently identified a woman with L sd CVA with minimal physical impairments to have ideomotor apraxia. Her progress toward OT POC is slow and I think it is because the apraxia has not been addressed as heavily as it needs to be. Intervention Ideas for ideomotor apraxia to progress this woman's function and get her home please ☺️
I am the father of a 4-year-old boy (just turned 4 in June) with a severe speech delay. He understands many words, can follow simple directions consistently (when he wants to), and sometimes expresses himself with one word statements, e.g. potty, shower, nap, bed, out, snuggle, snack, etc. He never uses sentences. Once or twice recently he’s put together two words (“bed soon, eggy hot”).
He has some behavioral issues with tantrums, lately I think it has to do with him not taking regular naps anymore.
The thing that upsets me so much is that he is so very far behind his average peers in being expressive with speech. He can’t tell me how his day was, he can’t identify letters or numbers or shapes. He is pretty good at pointing to people in pictures.
He likes to watch music videos and “dance” (taking quick steps in short succession or lifting a leg up high and laughing about it). He has a sense of humor, he likes to steal phones out of pockets. He loves his cat and is soft and gentle with her. He can make little towers out of blocks. Mostly, he wants to inspect his toys closely and sometimes he will arrange them in groups.
We’ve sent him to a three-day 2.5 hour program at our IU, which is supposed to help him with motor skills and following directions, as well as speech. He’s been going for close to a year and has shown very modest, very slow improvements. He still doesn’t really participate in group activities and needs an aide to manage him all the time.
We got him an evaluation with a wonderful speech therapist. She, like others, has said that some of his behavior could indicate autism spectrum but that most of his behavior would indicate that he is not on the spectrum (super close with people, including strangers, and emotionally expressive, loves commotion and loud, bright atmosphere). She thinks it could be something like apraxia and plans to keep working with him. She told my wife “he’s not nonverbal, he’s delayed.”
Still, no one seems to be as worried as me. I’ve met plenty of 4yo boys and my son is very, very far behind. At this age, my nephews could practically write a book they were so talkative. Progress seems slow to nonexistent and I wonder if it’s even possible for him to catch up.
I’m sorry to ramble, but I’m just so ashamed and hopeless about the situation. I know that that is not a helpful attitude, but being around friends with funny, talkative, thoughtful kids and having a 4yo that behaves more like a 2yo is ju
... keep reading on reddit ➡Hi! This community has been so beneficial in the last few weeks as I’m adjusting to life after my Dad suffered from a large ischemic stroke in his left side brain.
He has made it to acute rehab, and is working on the right side paralysis - slowly seeing some movement back in his right leg.
They have him in 1-2 hours of speech therapy a day to help his aphasia and apraxia. He seems to have a good understanding of others (receptive), but cannot communicate himself (expressive).
He gets stuck on saying the same words “yeah” and “when”. He is great at pointing to yes/no for basically all questions. But has a hard time identifying objects, shapes, colors, numbers, letters when presented with them.
I know everyone at the rehab center as well as his doctors aren’t really allowed to make a prediction on is recovery. So I’m turning to this community of survivors and caregivers - has anyone else had experience with aphasia and apraxia? What’s a realistic idea of recovery?
