We are desperate. I really need help for my mom with TBI and brain damage from a subarachnoid hemorrhage

My mom has been to one neurologist after another in the past 10 years. "Its sleep apnea" "its narcolepsy" "its chronic fatigue".

My mom was tortured and abused by my dad. He gave her on and off concussions for about a year. In 2011 Standford brain scans showed TBI in her frontal lobe. Therefore perscribed aderal and other uppers disguising the symptoms.

3 years ago i took her to get a steroid shot in her lower back. After an hour she was yelling in pain saying her head hurt. A nurse told me the doctor screwed up by inserting the need into her spinal chord; releasing blood straight into her brain. They called an ambulance for her. She was in the icu for 3 days. The found that there was a large amount of blood in her brain that settled into a spot behind her ear that turned into brain damage. Thats when they told me it was a subarachnoid hemorrhage. A year went by where she debilitated. No lawyer wanted to fight the doctor. She was put back on stimulants. Once again it was forgotten.

Until this month. She cant remember people, places, things that occcured in the last weak. She is on stimulants and still confused and exhausted. We have an appoinment with another neurologoist. I will demand more scans. I have the ones from standford so he can compare.

My mom means the world to me. And im breaking down seeing her like this. Ive been vigilant of this for 10 years. There were bad times but this where it has to end. She deserves proper treatment.

I feel very lost. Can anyone tell me what to demamd from the neurologist? What is the best things i can do for my mom until then? She is stubborn so how do i let her give me control at appointments? Thank you so much

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πŸ‘€︎ u/ashlyrind7
πŸ“…︎ Nov 24 2021
🚨︎ report
42F Mother had subarachnoid hemorrhage & stroke.

Hello, and thank you if you decide to respond to my post.

My mother had a subarachnoid hemorrhage & stroke in May of 2019.

I guess it’s better to start from the start than anywhere else.

Mom has had severe hip arthritis for about 8 years. (Almost joint to joint)

First symptoms appeared at about 9PM(not feeling like eating). 2AM, symptoms became serious (screaming, thrashing, tongue all the way out of the mouth). Called 911. Took 45 min to get her down the stairs and to the ambulance. Fast forward some non important details later, she went into surgery at around 8-9AM(20% chance of living, [dangerous surgery - unknown if this was the case]). She has had a couple months of speech therapy but nothing more.

Last month she had her first seizure. At this moment, she cannot speak, personality jumps from one variant to another, mental capacity seems to be very reduced(can’t focus on reading words - few at a time, not too easy for her to do math, right arm cannot be utilized to full extent(can barely hold 2lb for 1 minute), still can’t walk enough compared to before the subarachnoid hemorrhage + stroke. Her knees hurt and her legs hurt after walking/standing for a minute or 2.

She is taking Levothyroxine, Tramadol, Baclofen, cholesterol medicine, and seizure medication.

Not sure what to do at this point other than therapy. Need help, suggestions, insights, pointers, anything. PLEASE

  • and PS, I’m completely deteriorated and destroyed by this. guess you can say I’m just β€œhanging in there” ..
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πŸ‘€︎ u/Stupefied_Gaming
πŸ“…︎ Dec 24 2021
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My dad a subarachnoid hemorrhage last night :(

I don't have many words. Almost 20 hours later, and he has complications with AVM and vasospasm. He is 59.

This is it. His prognosis is not good. It is hard to process. The nurses say he's going to be in the ICU in for 2 weeks minimum. I don't want to let him die alone. The hospital is another city and we've already spent 3 uber rides going back and forth between my house and the hospital in the first day. Do I do this for 2 weeks? I still have a course that I need to focus on so I can graduate from university. But I don't want to let him die alone. :(

EDIT: I decided to commute with my familty to the hospital every day in the morning, do my coursework at the hospital and commute back home.

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πŸ“…︎ Nov 04 2021
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Single-cell analysis of microglial transcriptomic diversity in subarachnoid hemorrhage biorxiv.org/content/10.11…
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πŸ‘€︎ u/sburgess86
πŸ“…︎ Jan 03 2022
🚨︎ report
In need of some guidance for, well, everything. Its a long and wild story but Ill get to the point quick. 1/31/21 my girlfriend had a Right MCA aneurysm rupture causing a severe subarachnoid hemorrhage and intraparenchymal hemorrhage . Skip past the 4 hours watching her lay there lifeless

In the hospital bed. Past the life flight refusiing to fly because of snow, a drive 3 hours away in said snowstorm with her daughter at 2 in the morning to AGH in Pittsburgh, the craniectomy, 25 days of driving back and forth everyday to see her, bringin her home with half of her skull missing, her left sided neglect, screaming, crying, shaving her head again to prepare for the april 1st cranioplasty...the nightmarish story is honestly still baffling to even myself. The next unexpected hell begain april 2nd, when her very intense pain started, so much so, it was like I didnt know who she was, AGAIN! But we made it, oh and she said YES when I asked her to marry me! Now its june and we find ourselves in a Pittsburgh pain clinic being told she has CRPS type 1 of left lower extremity and being offered a SCS trial made by Abbott. It sounds promising and getting off the oxycodone, gabapentin, cymbalta, and Tylenol was a high priority due to chronic liver problems. After fiasco with insurance, she gets the trial for 3 days. She said it was like a miracle, took away 80 percent of the pain in her leg. But, now that the trial scs was removed the pain increased and seems to have migrated to her arm, ribs, and shoulder. Im so unsure of the difference in her pains.as to what's causing them. She uses the words tight like a boa constrictor, electricity like licking a 9 volt battery, stabbing, burning like some set her on fire, novacaine, she says her left foot looks and feels 3 times its size, her skin texture is changing. Her left knee swells, her hip doesnt want to bend and so many other things... She can barely walk. She said it was all gone with the trial. I guess my questions are for someone that has or has had one. Is it the same feeling as the trial? Did you have any problems? Does the swelling and tightness go away eventually? What should we know before the implant? Thank you in advance

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πŸ“…︎ Oct 05 2021
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My father had a Frontal Lobe Subarachnoid Hemorrhage due to a ruptured Aneurysm 2 weeks back. He has developed Hypersexuality ever since.

My father (57) underwent a ruptured aneurysm causing a subarachnoid hemorrhage grade 4. The doctors said his chances were slim.

Right now, after 2 weeks, However, he can now talk, eat on his own, sit on the chair but has vision problems in one of his eye. However, the major concern I have is of Hypersexuality. My father was an ideal gentleman who was very courteous. However ever since the Hemorrhage, he has been straight way flirting with the Nurses, putting sexual innuendos and has been sexually suggestive.

My mom must be going through a lot. That being said, I wanted to ask. Is there is any cure to this Hypersexuality which will stop making him being like this ? I do not mind the memory loss but this is bad.

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πŸ‘€︎ u/poorindianliving
πŸ“…︎ Jun 21 2021
🚨︎ report
Subarachnoid Hemorrhage Treatment

Male 37, 101kg 5 8"

Comorbidities RLS and Severe Depression

After a (f)MRI I was diagnosed with a subarachnoid haemorrhage. I was prescribed Nimodipine for 21 days. Now that treatment had finished and with symptoms mostly unchanged I don't believe the bleed has stopped. I have been scanned again and am waiting to hear back and I dont have an official appointment for neurology for a month. In the mean time I want to know what treatments I can hypothetically expect if I am correct that there has been no improvement?

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πŸ‘€︎ u/PenMark42
πŸ“…︎ Sep 01 2021
🚨︎ report
but what about the subarachnoid hemorrhage??? 🧠
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πŸ‘€︎ u/MuhCarbs
πŸ“…︎ Mar 24 2021
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β€˜Right-handed man’ almost masturbates to death: medical case study A 51-year-old man suffered a subarachnoid hemorrhage after masturbating. PLEASE UPVOTE! foxnews.com/health/right-…
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πŸ‘€︎ u/Shotgxn
πŸ“…︎ Jul 23 2021
🚨︎ report
I suffered Subarachnoid Hemorrhage on August 15th, 2020

Hello my name is Glenda, and unfortunately suffered a terrible Subarachnoid Hemorrhage on that day in mid August and i am still trying to come to terms with my sudden hemorrhage that day. I was rushed to the emergency room on the island of Saipan. Saipan has no neurosurgeon so i was unconscious for the rest of that Saturday night and Sunday morning. That morning they arranged an emergency flight to nearby Guam because they more than a few neurosurgeons in Guam. I had my surgery on August 17th and i stayed in the hospital until September 21st. After that my husband noticed that i was very confused, had trouble walking, and would urinate the bed a lot putting strain on my husband mentally. He felt something else was wrong with me but couldn’t figure out why i was like this and then on October 19th, 2020 i was diagnosed with Hydrocephalus. The Hydrocephalus caused me to lose parts of my memories, and now has made me very forgetful and i hate it so much. I stayed in the hospital in Saipan again while my husband took care of the kids at home and again Saipan doctors couldn’t do anything for my Hydrocephalus so i again waited and suffered in confusion for a hospital bed at the Guam hospital until November 6th, 2020 i finally got the ok to go to Guam again for emergency surgery for my Hydrocephalus. My surgery was a success and they put a shunt in my belly and i remained in hospital until December 14th, 2020. The Subarachnoid Hemorrhage and the misdiagnosis of my Hydrocephalus after my brain surgery really has affected my confidence in exercising, eating, driving, and has made me very forgetful. I am losing confidence a lot these days. Thank you for reading my story and forgive my English as it’s not my first language.

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πŸ‘€︎ u/Coolchewy17
πŸ“…︎ May 07 2021
🚨︎ report
Rare case of Splitting Headaches caused by Subarachnoid Hemorrhage journal.medizzy.com/rare-…
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πŸ‘€︎ u/Surgeox
πŸ“…︎ Apr 14 2021
🚨︎ report
Subarachnoid Hemorrhage,berry aneurysm,SAH,Neurosurgery youtu.be/O95W-30p18Q
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πŸ‘€︎ u/PicFun-Medicosis
πŸ“…︎ May 16 2021
🚨︎ report
Antifa made a fake tweet and some people are dumb enough to think it’s real. It’s to mock me for my brain injury in 2019 when antifa punched me repeatedly in the face & head. I was hospitalized for a subarachnoid hemorrhage. https://t.co/4h6vfMbFcf https://t.co/8HRlwKFuYY mobile.twitter.com/MrAndy…
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πŸ‘€︎ u/Wumbotlo
πŸ“…︎ Aug 23 2021
🚨︎ report
CT Scan of Subarachnoid Hemorrhage
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πŸ‘€︎ u/PicFun-Medicosis
πŸ“…︎ May 16 2021
🚨︎ report
Subarachnoid Hemorrhage,berry aneurysm,SAH,Neurosurgery youtu.be/O95W-30p18Q
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πŸ‘€︎ u/PicFun-Medicosis
πŸ“…︎ Jun 25 2021
🚨︎ report
Management of Subarachnoid Hemorrhage,SAH,brain hemorrhage youtu.be/15gSx78fGWc
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πŸ‘€︎ u/PicFun-Medicosis
πŸ“…︎ Jun 25 2021
🚨︎ report
Subarachnoid hemorrhage

I have a question regarding subarachnoid hemorrhages. Thankfully I don't have one, neither does anyone I know. However, the exam to get into college is partially about this. I was wondering how they come to exist. I don't understand how blood can get into the subarachnoid space, because as far as I know, there are no arteries in this space. The internet says they happen because of a hemorrhage in for example the Willis circle. I don't get how that blood can pass the Pia Mater and get into the subarachnoid space.

Thanks in advance

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πŸ“…︎ Mar 01 2021
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This subarachnoid hemorrhage in my eye really shows the natural separation of the lens, pretty cool!
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πŸ‘€︎ u/CaptainRoise
πŸ“…︎ Sep 04 2020
🚨︎ report
Subarachnoid Hemorrhage: What is the role of LP? first10em.com/subarachnoi…
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πŸ‘€︎ u/First10EM
πŸ“…︎ Sep 22 2020
🚨︎ report
A study of 408,609 adults in the UK found those with a 'smoking gene' had 63% greater risk for a serious type of stroke called subarachnoid hemorrhage (SAH). Those who smoked β‰₯40 packs of cigarettes a year were nearly three times more at risk for SAH than those who did not smoke. ahajournals.org/doi/10.11…
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πŸ“…︎ Feb 01 2021
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Strictly only Nimodipine for Subarachnoid Hemorrhage? Or would any other CCB also work?

A patient presented with trauma related SAH at my hospital. She had a history of hypertension being treated with amlodipine. The attending did not start with nimodipine right away. I am a medical student quarantining at home, and so can't follow the case anymore. But I would like to know what really the protocols are. Do we not start nimodipine if one is already taking a CCB? Thank you.

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πŸ‘€︎ u/Xena237
πŸ“…︎ May 09 2020
🚨︎ report
I need to get this thing started. 1 knee replacement, 1 heart attack, 1 subarachnoid hemorrhage and 1 covid19 infection later....we are are both resilient
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πŸ‘€︎ u/moiststoma
πŸ“…︎ Aug 29 2020
🚨︎ report
I am a 44 year old male that suffered a Subarachnoid hemorrhage on NYE. Excruciating headaches, and I am told by neuro team, months of recovery? Anyone else have a similar experience that would like to chat?
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πŸ‘€︎ u/heavym
πŸ“…︎ Jan 07 2021
🚨︎ report
Torsades caused by subarachnoid hemorrhage case

Had a 75 y/o male patient, wife called because the patient had collapsed (w/ a pulse + resps) & was experiencing chest pain & palpation earlier in the day. We get through this small house that has incredibly narrow everything and is essentially a maze to find the patient even being guided.

He was unconscious on our arrival laying in a doorway on the 2nd floor, exceptionally tight space between a small bedroom and tight hallway. He was breathing rapidly with a bounding rapid pulse, and had a normal cap refill time. He apparently had a recent hx of head injury, and an extensive cardiac history.

We got vitals - BP was mildly hypertensive, SPO2 was mildly hypoxic, rate was 190bpm. A 12L was obtained (I don't have the strip) and the paramedic interpreted it as torsades. I got IV access and the paramedic started mag sulfate 2g/3min and the patient deteriorated into VF while we were watching him.

It was at this point we called for support & help from the local fire service post. We started CPR, got an iGel down, started asynchronous ventilation, shocked him, and got a better IV access. After a few rounds, help arrived and the decision was made we were going to start the process of moving the patient so we could work him without the space constraints and such - primary goal getting the LUCAS on him.

The fire service brought up a scoop litter. They assembled the litter under him and one of the firefighters got on top of him to do CPR. They attached ropes to each end of the litter - one pulls him down the hallway, and one is on the back to control the descent down the stairs essentially like a toboggan on a rope. I'm scooting down the stairs on my ass ventilating, the is firefighter doing CPR, the firefighter stuck in front is both guiding the litter & watching the IVs, the posse is following behind with the equipment.

We got him down into an open space between a kitchen and living room. Got the LUCAS on, moved him to the stretcher, and shit you not within the first LUCAS cycle he ROSC'd to sinus bradycardia.

Myself, the paramedic from my unit, the 2 critical care paramedics from the critical care unit, and an EMS physician pile into the back of the critical care ambulance. We induced hypothermia with 2L of cold ringers, put him on the vent with capno, head elevation, etc. Our truck and the physician flycar were driven to meet us at the ED.

Hospital did there thing, and it was determined a subarachnoid hemorrhage from the fall caused th

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πŸ‘€︎ u/hdo85
πŸ“…︎ Dec 05 2019
🚨︎ report
Subarachnoid Hemorrhage: What is the role of LP? first10em.com/subarachnoi…
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πŸ‘€︎ u/First10EM
πŸ“…︎ Sep 22 2020
🚨︎ report
Closest sub: 5 YRS AGO I HAD A SUBARACHNOID HEMORRHAGE ON MY BRAIN OR BLEEDING AND THE DR DIDN'T KNOW IF I WOULD MAKE IT, THAT 1ST PIC WAS 8 MONTHS LATER AT A CHECKUP AND THE DR WAS SURPRISED I WAS WALKING, IVE HAD A GREAT WIFE THAT GOT ME ALL THE HELP I NEED, EVEN WITH REMAINING SIDE EFFECTS πŸ™πŸ’• reddit.com/gallery/ll83zr
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πŸ‘€︎ u/kfree68
πŸ“…︎ Feb 16 2021
🚨︎ report
22M Subarachnoid hemorrhage

As if having one isn't horrid enough and saps all your energy, my family just thinks I'm being lazy when the whole reason I had one is because of over exertion from concussion/heat exhaustion/stress

How do I not lose my cool in the face of these odds?

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πŸ‘€︎ u/DylanEnglish
πŸ“…︎ Dec 14 2019
🚨︎ report
Life Following a Subarachnoid Hemorrhage/ Brain Aneurysm Rupture

On February 20, 2017 I had a subarachnoid hemorrhage to the brain and suffered a traumatic brain aneurysm rupture that lead to weeks in ICU on machines and months in rehabilitation to learn to walk, talk, eat, everything all over again. I was a careerminded recent late college grad looking to move up in my career to a disabled mentally brain damaged individual with numerous setbacks. Through the grace of God I survived and want to help encourage others to live and embrace life. Learn to Love Yourself and Your Survival Journey

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πŸ‘€︎ u/mycountrybeauty
πŸ“…︎ Oct 07 2019
🚨︎ report
Hi all! Anyone else have migraines that developed after an intracranial hemorrhage? I’m on year 7 post subarachnoid hemorrhage and the migraines are increasing not decreasing in frequency/intensity .. just curious if anyone else out there shares this etiology .. and how you’re hangin’
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πŸ‘€︎ u/buswina1
πŸ“…︎ May 01 2019
🚨︎ report
Sharon Stone Never Expected To Get This Disease | (17 clicks later) subarachnoid hemorrhage, a form of stroke healevate.com/60-celebrit…
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πŸ‘€︎ u/bbizzess
πŸ“…︎ Jul 10 2016
🚨︎ report
Subarachnoid hemorrhage

Why is a subarachnoid hemorrhage so much more dangerous than an intra-ventricular hemorrhage, when cerebral spinal fluid communicates to both areas?

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πŸ‘€︎ u/icutthegrass
πŸ“…︎ Feb 16 2020
🚨︎ report
Seeking advice on recovery from a ruptured brain aneurysm and subarachnoid hemorrhage.

Asking on behalf of my husband... His TBI happened in early July of this year and then in early October he underwent a craniotomy to clip the aneurysm. Is there anyone on this sub that has experience with this particular form of injury?

Physically he is doing very good. He is walking and taking care of most of his ADL's with lots of prompting. However, his short term memory is only about a minute. He is very confused. It takes him a long time to process info or directions. I know it's early and these things will improve, but I want to do everything I can to help with his recovery. I know time is of the essence and the earlier he gets the best help possible, the better. He has done in house rehab, but they booted him out once he was "good" physically. Cognitively he needs a lot more work, of course. Mos tof the info I am finding is for trauma, not a bleed. I know there are similarities, but also some major differences.

What I'm asking here is for advice for books/websites/info that will help with his recovery. Does anyone have experience with supplements or vitamins that they would recommend? What about specialists/ specialized therapies in this field? Anything else I should be paying attention to?

While his docs and therapists have been great, I feel that there should be more that I can do. He is currently attending a day institute, 5 days/week, where he gets OT, PT, Speech and Recreational therapy. A few things happened early on that I wasn't too pleased with, but I have talked to the facility and hopefully they will be resolved. He just started there this week, so I'm sure there is a settling in period.

He is also a musician-drums and piano specifically. I am encouraging him to play as often as he can. I play music a lot (with quiet, non stim periods too) I have been playing music for him from day one, even while he was unconscious. I do feel that this has helped 'bring him back'. He was tapping his foot long before he was talking. His Docs have stressed that music is very important and also feel that it has played a major part in his recovery. His musician friends have been coming by and working with him whenever they can. I would like to see more though. I am thinking of contacting a local high school or college to see if any students would come an play on a regular basis.

Any advice anyone could give me would be much appreciated. He means the world to me. I know things will be different, but I want to see him enjoy hi

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πŸ‘€︎ u/gardengarbage
πŸ“…︎ Oct 31 2019
🚨︎ report

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