Mitral valve Puns

Hi all,

I’m 30 years old and I was born with a heart murmur (hole in the heart) and was discharged with it around 20 years old as the hospital was happy it hadn’t got any worse and wasn’t affecting my life, oh how things would turn out 10 years later.

I was complaining of ill health before Christmas and with COVID rife in the UK at the time I thought maybe it was that, nearly all the symptoms I was presenting. Multiple negative tests later and the doctors failing to diagnose me over the phone I end up in hospital in February after substantial fluid on my lungs was seen on a chest X-ray a random doctor requested.

Long story short I got endocarditis, an infection in the heart and I was unlucky enough for bacteria to go through my heart murmur and embed itself onto my mitral valve and I stayed in hospital for 6 weeks on antibiotics and was told that the infection has eaten away at the mitral valve and I’d need surgery as the leakage is moderate to servers.

Obviously I’m quite scared, I wasn’t expecting to get to 30 and have this happen to me and I have allsorts going through my head and it’s difficult to not become enveloped by the severity of it.

I’ve been told that open heart surgery on valves is very routine these days and I take comfort in that, but obviously have my chest split open and my heart cut open has me quite concerned.

If anyone has had the same or similar experience I would really appreciate hearing about your own experiences and what I should expect in the process, recovery afterwards et

Thank you all ❤️

I’m happy to report that she’s just fine.

1st dose, zero side effects.

2nd dose, pain at injection site (which is normal for her after ANY shot), tiredness, and very mild dizziness.

I haven’t had either of my shots yet but after seeing how well she handled them I’m a lot less worried.

https://highlysensitiveperson.net/caffeine-mitral-valve-prolapse/

http://www.hsperson.com/pages/2Aug05.htm

Was reading up on this and found it interesting. I often experience a "fluttering" sensation and am prone to chest pain whenever my anxiety is high or I consume caffeine. I'm curious, so I thought I'd ask here!

First time mom here and got some concerning news the other night when our 24 wk ultrasound results posted online for me to see. It was noted that the 4 Chamber was "ABNORMAL" and these are the notes:

Mitral valve appears apically displaced. There appears to be asymmetry of flow between the LVOT and RVOT.

I spoke to my doctor and they will be transferring me to the high risk pregnancy unit for them to do fetal echocardiography.

My doctor didn't really go into detail about what any of it meant or what could be causing it.

Has anyone else had that before or could explain what that means?

I go in next Friday but am just so anxious and would like to better understand what we could be dealing with here. Thank you!

82 M 118 pounds (my father) started becoming very short of breath about 7 months ago. (Sorry this is very long so I decided to keep the background information and the current dilemma in two different sections.

Background:

Up till then other than a bad knee and occasional bronchitis, and an enlarged prostate he was very independent and took care of all his needs- taking the bus, shopping, doctors visits, etc. He would be a little short of breath if he walked more than a 100 feet or so and had gotten an angiogram 2 years earlier which showed no blockage, but now for what seemed very suddenly, he couldn't even walk 10 steps without being out of breath.

The cardiologist did another angiogram which didn't show any new blockages, but it did show some calcium buildup and leakage in his Mitral valve and the chest X-ray showed some fluid buildup. He also did a PFT test (which my dad barely got through) and an Echo which confirmed that he had moderate to severe regurgitation in his Mitral valve and a small amount of leakage in his Aortic Valve.

He didn't seem concerned about it and thought that since my dad had a history of bronchitis, that most of the issues with the breathing was with his lungs and not heart so he just gave him an inhaler for his lungs and .5 MG Bumex to only be taken 3 times a week (to not aggravate his his unitary issues) and scheduled a follow-up for 3 months later.

The issue with that however was that my dad's coughing was not going away and it made breathing hard so he met with his PCP who gave him some steroids and antibiotics to clear up his bronchitis. That helped quite a bit and stopped the coughing and my dad could walk a little more but would still be immediately out of breath.

As soon as the steroids/antibiotics ran out, the coughing came back too and on top of everything, he started getting severe feet swelling to the point where it was weeping. He was in really rough shape so we saw his PCP (who was the only one who could see him fast) who upped his Bumex to daily and told us that if his oxygen drops below 90 to take him to the ER. The cardiologist was also able to fit him in 2 days later, but by then he was in such rough shape that he took one look at him and told us to go the ER.

While in the hospital, the put him on Lasix to treat the edema, put him on oxygen, and also discovered a blot clot which they treated with strong blood thinners. 2 weeks later, because he had gotten so weak, they decided it would be best fo

Just curious who else out there has this condition. I was diagnosed 3 years ago and just had another echo. They called and said it looked “okay” and that I have my appointment in June and the doctor will go over everything. I could be reading into things, but the nurse’s tone of voice has me a little worried but I do have health anxiety so I may just be overthinking.

Curious who has MR and what your symptoms (if any) you might have.

I get skipped beats sometimes, alcohol causes my heart to pound and beat faster so I stopped that. I get pain in my chest/shoulder at times but I also have Costochondritis. There are other things but not sure if they’re related.

Anyone else out there?

Thank you

Hi everyone, I wanted to share my experience of having a minimally invasive mitral valve repair in Sep 2020. I remember before the surgery I was trying to find and read some info from some people who've been through it, and the experiences I found were very helpful. So here is mine.

I am 41 yo, male. Was 40 at the time of surgery.

What caused the surgery:

Around 2017, I got sick with a bad flu, and after I recovered I noticed that when I walked from one room to another, my heart was pumping really hard. I went to see a doctor, got an echocardiogram, and found out that I had a mitral valve prolapse with medium-severe regurgitation.

I was under annual observation, as the cardiologist at the time said we need to wait and see, maybe I will not need a surgery. Eventually around late 2019 I started getting around 50+ daily episodes of palpitations, and occasional bouts of dizziness (especially after a couple of beers I often started feeling dizzy).

At the next checkup around June 2020, cardiologist also said that my left half of the heart started slightly enlarging. So based on the symptoms, and the enlargement, the cardio doc said in the next 3-5 years most likely I should have a surgery. I didn't want to wait any longer and I had the surgery booked for Sep 2020.

The procedure:

I live in Sydney, Australia. I had the surgery at St Vincent's Private hospital, I think they were excellent. Their main cardio surgeon operated on me. I had a minimally invasive surgery, and the valve was repaired, and I got an annuloplasty ring. Just a tiny scar left on the right flank, about maybe 5cm.

Hospital / Post-Op:

Post-op, the pain was pretty significant. Painkillers help to take the edge off, but they definitely don't remove the pain. Just need to be prepared for a few weeks of severe, slowly improving pain.

I was in hospital for 9 days, 2 days in intensive care, 7 days afterwards in the ward. I was allowed to walk up and down the corridor on Day 2. I was home on Day 9.

Recovery:

I was dizzy on a daily basis for about 6 weeks after surgery. It's been slowly improving. I still get an occasional bout of dizziness, maybe once every 2 weeks.

I did cardiac rehab. I have an elliptical at home, I still use it for 25-30 minutes 3-4 times a week. Slowly increasing the intensity, keeping the heart rate around 130-140.

Now, at 8 months post-op:

I can walk very fast now, and I can run, been going for an occasional jog. I could jog much more often, but my cardio is mostly

I’m on Concerta and Cymbalta but I’ve been on them for years. I don’t smoke or drink, and I haven’t had caffeine in weeks (don’t drink coffee.) I know this can get worse or better, but I’m wondering when I should be really concerned?

Tldr; 25M previous amphetamine( Adderall & brief light meth use)/ heavy drinking everyday, sober since October 2020. Recently found out I have congenital heart failure with cardiomyopathy, mitral valve disease/prolapse and my ejection fraction is about ~45%. I started lisinopril 5mg 2 weeks ago (BP 133/97) I follow up appointment with my cardiologist June 10th. I'm trying to get a general idea of what might happen or what can be done to improve heart function if it can be regained. [END TLDR]

•Sorry for the length of this post I'm just a scared and worried kid. Worried about how much damage I did to my body and how much of it if any can be fixed through things like a better diet, light exercise/cardio and medication but I won't be able to get info from my Dr for a couple weeks. If you want or need any more info let me know I'll be hanging around this post• and sorry if formatting sucks I'm on mobile.

FYI I have an appointment with my PCP today, a nephrologist June 8th and a cardiologist June 20th so I am going to see the Drs in person, I know this isn't a place to get treated and I know there's probably a lot more information they'll have access to like echos, x-rays, EKG readings but I'm just trying to get a general idea of what to look forward to.

•QUESTIONS •What if anything can be done to improve my ejection fraction? •My previous cardiologist diagnosed "mitral valve prolapse" but the most recent cardiologist said "Mitral valve disease" is there a difference? What if anything can be done to improve this? •What does a Congenital heart failure with cardiomyopathy diagnosis mean and what if anything can be done to improve my outlook?

• What can I expect my body to be able handle in terms of physical activity with these multiple issues? ( I'm out of work at the moment so I've just been spending most of the day resting and doing little things around the house) •Approx what age might these issues start having a noticable and negative effect on my quality of life? •Will I probably need heart medication for the rest of my life?

** INTRO & ADDICTION HISTORY / DRUG USE** Hello, I'm a 25 year old male, 6'2 ~200lbs I'm in pretty poor shape physically spent 23 hours a day in bed for the last 6 weeks due to depression and my diets mostly take out and frozen I have been working on improving both of those and doing better in general I see a psychiatrist monthly and a therapist weekly. So I went to rehab In October and left sober in November of 202

When a patient is getting a mitral valve ring sewn in, what mechanism brings the valve leaflets together? Are the stitches out by the fibrous skeletal ring or is it when the P2 section is trimmed and that section is stitched together?

I was trying to determine, from both a health and vaccine eligibility - if Mitral Valve Prolapse or Mitral Valve Regurgitation qualifies for the Covid vaccine in New York and/or puts me at higher risk for serious health concerns. Unfortunately the NYC guidance just says “Heart Conditions, including but not limited to heart failure, coronary artery disease, cardiomyopathies, or hypertension (high blood pressure)”

I should clarify that I am a relatively healthy, 29 year old male who is able to quarantine

Does anyone know where I can find this information or know offhand the risks of Mitral Valve Prolapse and if I would qualify for the Covid vaccine?

Hello. I was diagnosed with mitral valve syndrome as a teenager and pretty much ignored the diagnosis, although i am relatively low bmi and prone to anxiety and chest pain. In new york state “other heart conditions” are listed as a qualifier for the vaccine, is it ethical for me to sign up for a vaccine? I work in a front facing retail job and am 32.

I am writing an essay and have to work out if there is a need for antibiotic prophylaxis to prevent infective endocarditis. There is a flow chart to follow which states that it should be delivered if 'patients with any prosthetic valve, including a transcatheter valve or those in whom any prosthetic material was used for cardiac valve repair.' However, I can't make out if a tissue valve would be classed as a prosthetic as it is not mechanical although still 'foreign'? Any help, guidance or answers are greatly appreciated!

Mom having open heart surgery on Monday, terrified.

Title says it all. Last Monday my mom went into the doctor with a bout of afib, and found it was a symptom of a larger problem.

She has to have a mitral valve replacement, in addition to a coronary bypass. This all came out of nowhere, and while she still remains in good spirits at the hospital it’s still terrifying for me, my sister, and Dad.

Luckily we live in Cleveland and she is having the surgery at the Cleveland Clinic.

Has anyone else gone through something like this themselves or with a loved one?

My mom, 65, had a STEMI in 2017. She quit smoking and changed her eating habits. All the symptoms of hf followed, and after seeing a cardiologist, it turned out to be mitral valve stenosis. She had open heart surgery in 2019 to replace the valve and had a double bypass as well. By all accounts, her heart is fine now.

After a long recovery she seemed to be gradually improving, and at this point she's off all her heart meds. She still had soboe but could walk half a block to the hospital entrance, then inside to get to her appointents. About a year ago a different, but similar set of symptoms appeared. She never did see much improvement becuase these symptoms took over. She is retaining water in her legs and has a lot of what looks like ascites in her stomach. For about a year now, she's been on 80mg of Lasix daily and if she doesn't take it, she has even more trouble breathing than usual. But it's not congestion in her lungs, I think it's water in her abdomen pushing on her diaphragm or something. She can lay flat to sleep and has no cough or anything. She has episodes of confusion and a lot of fatigue and SOBOE. She says that before her surgery she "didn't know what breathless was". her vitals are fine at rest but she has trouble walking from the sidewalk to my front door, and we use a wheelchair in the hospital now.

Im not sure she can pee without the Lasix, you would think all that fluid would give her nocturia but it doesn't. Her gfr, bun, and creatinine are fine as far as I know.

She also has pain and tingling in her legs now. She bought a glucometer just to check and her fbg is never below 10. it doesn't go crazy high, her a1c is 7, she's never been diagnosed with diabetes and takes no meds for it. Her diet is fine. She just has high bg for seemingly no reason.

before the heart attack she had no issues with SOB or any of this stuff. Sorry it's so long! I don't know what to do, shes getting worse and I don't want to lose her. She's my best friend.

The main thing that could help us is to know if we need a cardiologist, nephrologost, some other kind of specialist? Who can help us??? Family doctor is not concerned.

Hi! 28F here, just recently diagnosed with Mitral Valve Prolapse with mild regurgitation. I was experiencing shortness of breath, anxiety attacks, sleep disturbances, and chest pain prior to my 2d echo. Doctor told me to take propranolol daily as my heart rate was a bit faster than normal. I've been taking it as prescribed but noticed that I still feel symptoms when I'm full or when I drink cola/eat chocolate/sugary food at night.

Anyway, I was wondering if I'd have to take the propranolol as maintenance medication from now on? I saw some posts/comments where they merely took magnesium and potassium supplements and that helped with the symptoms. I'm due for a follow up check up next week but thought it wouldn't hurt to ask here.

36 F, no significant past medical history, Covid diagnosis in December 2020. Primary complaint during illness was chest pain. Some QT abnormalities present during hospital stay requiring a cards consult. Echo came back with an EF of 64% which I know is good. Only thing I have questions about is the mild tricuspid valve regurgitation. I’m used to seeing that on my older cardiac patients. Is this considered a regular finding in a patient my age? My follow up with cards is over a week away so I am just looking for some input until I can see him.

Hey, I'm curious if anyone here has mitral valve prolapse and tried SSRIs. I have MVP and have been prescribed escitalopram 5mg by my psychiatrist for BPD, depression and anxiety. It's indicated that those with heart problems should be cautious with the drug, since it can cause elevated blood pressure, heart rate and arrhythmia. It can also cause QTc prolongation, and QTc intervals are already prolonged in MVP patients. I raised concerns about this to my doctor, but she absolutely didn't give a f*ck, she dismissed it by saying "it's a safe drug". So far I didn't dare to take it.

I'm NOT asking for medical advice here, I'm asking for the EXPERIENCE of those who have this heart condition and tried SSRIs. Thank you for any answer!

Hi, for those who have experienced mitral valve prolapse or regurgitation, what were you symptoms?