Rylaze was granted Fast Track Designation by the FDA in October 2019 for acute lymphoblastic leukemia and was approved as part of the Real-Time Oncology Review program.
Fire away!
At the age of 8, I was diagnosed with ALL. This was the beginning of a sudden life change and I feel as though I have never fully processed what I experienced. After being diagnosed, I was living in the hospital for around a month and half. During that time I had surgery to have a port put in, started numerous medications, had blood transfusions, spinal taps, and injections.
After being released from the hospital I started weekly appointments and the adjustment back into normal life. Being as young as I was, it was hard to process why this was happening to me but I accepted everything that was going on and tried to stay positive during the two years of chemotherapy. The daily medications, weekly visits to the hospital, and the acceptance of my new routine became so normal to me that I didn't give it a second thought, because that's what I needed to do to survive. I still went to school, participated in activities outside of school, and maintained a social life with friends. But outside of the normal life of a kid, I was still someone battling cancer.
Seeing how my diagnosis affected me, my parents, my sister, and those who cared about me will stay with me. It's been 15 years since I stopped chemotherapy and I finally feel like I can accept and process what happened. I was avoidant of anything having to do with cancer and didn't want to look back at what I had been through. But now that I have others in my life that have gone through/are going through treatment I've had the chance to compare experiences and feel like someone else knows what I went through.
This is why I wanted to make this post; I want to hear about others experiences with childhood cancer and how it affected you over the years. Does anyone feel like their memory isn't as clear as it used to be, do you feel the "survivors guilt" if you hear about someone who has passed or is going through treatment, has anyone else had trouble processing the experience and feel it's best to not dwell in the past because answering "why did this happen to me" isn't really possible, after cancer did you feel a new surge of life and increased positivity after winning the battle?
I'm having trouble finding the info I'm looking for. My boyfriend has this. He's 45. He's rejected chemo, and is doing photodynamic therapy instead. Is that smart?
This is a direct copy from my friend. This form of childhood lukemeia is extremely rare and she is reaching out to the ends of the earth to find successful treatment options for her baby. Aria is 4 years old and was diagnosed in Aug 2020.
I'm sorry I don't know specifics, but she has gone through chemotherapy and is now trying a different approach. Her cancer levels have increased since the chemo. This family is really looking for some hope in these dark days.
Thank you reddit.
This Mama is taking to the powers of social media-- Please share this post! My sweet girl is everything to me, and we are praying for a miracle! We have multiple consults for second opinions this week and before we meet with those doctors I wanted to see if we could find ANY success stories for Aria's rare subtype of B-Cell Acute Lymphoblastic Leukemia: TCF3-HLF. (17;19) Only looking for success stories of this particular subtype of leukemia at this time. We know it is rare and that only 1% of children with B-Cell ALL get diagnosed with this each year making Aria 1 of maybe 2 in the country, but please reach out if you know any successful treatment of TCF3-HLF specifically. Thank you!!
https://www.gofundme.com/f/29udi565pc?sharetype=teams&member=8517578&utm_medium=sms&utm_source=customer&utm_campaign=p_na+share-sheet&rcid=49f5d31f60b644beb7fe049848d40211
https://imgur.com/a/yc7ANwy
Hello friends 6 year-old Braden Prater was diagnosed with T-Cell Acute Lymphoblastic Leukemia and is currently admitted at RadyChildren’s Hospital San Diego. Braden is in the HematologyOncology Unit, where he is undergoing intense chemotherapy treatment. He is expected to be hospitalized for the next 4-6 weeks for his initial treatment plan. The goal is for Braden to be cancer- free in 30 days. Braden is expected to receive chemotherapy treatments over the next three years in order to beat his cancer and ward off any relapses.
Braden lives in Point Loma, San Diego and is a first grader at Sunset View Elementary. Braden has played baseball with Point Loma Little League for the past two seasons and is looking forward to returning soon. All proceeds will go to medical expenses and Braden’s needs over the course of his treatment.
This diagnosis came as a shock as Braden has been feeling healthy. Deep bruises popped up overnight up and down his legs and arms, prompting an immediate visit to the emergency room Sunday evening, January 31st, 2021. Blood tests were taken, revealing the devastating reality. Braden’s journey back to health will be especially challenging given Braden’s additional Autism diagnosis at age 3. Braden has been receiving speech, occupational therapy and ABA (Applied Behavioral Analyst) services. Braden is an adventurous little boy who loves spending time with his family, camping, swinging on his swing set, riding bikes, skateboarding, swimming, playing with his endless supply of cruise and Titanic ships and playing Robloxwith his 7 year-old sister (Olivia) and his friends. Braden’s golden hair and charm lights up any room. Braden has a beautiful soul and his big smile can melt anyone’s heart. Please pray for Braden.
My Mother was 53 when she was diagnosed with Leukemia in 2016. It started with her feeling poorly and not being able to walk long distances without becoming short of breath. She had always struggled with being overweight and we all figured that she was feeling the effects of obesity.
However, in mid August she developed a strange rash on her leg that wouldn't go away. She decided to go to urgent care because she thought she had an allergy to a new lotion she had been using. She even had plans for lunch afterward with friends and didn't think that this was a big deal. The doctor then decided to do a full work up after hearing about her recent difficulties with her health.
By that afternoon, she was in an Ambulance on it's way to the nearest Hospital that had the capability to deal with what they found in her bloodwork (We live in a rural area with only a small hospital) By the next morning we had a diagnosis of Acute Lymphoblastic Leukemia
The year that followed was of course, a struggle for my Mother. She got extremely sick from her treatments and was always exhausted. Her appetite was extremely diminished, she lost weight and of course her hair. Her personality went from vivacious and involved to tired and depressed. We all struggled to cope with her illness, but we all thought that there was a light at the end of the tunnel and that this was a passing disease that it would eventually go into remission. That wouldn't be the case.
We found out that my Aunt was eligible to donate her bone marrow to my Mom in December, which meant that she had to go to Denver CO and live there for 3 months during the recovery process so that she could be closer to her Doctor and be sure that the marrow would take. The procedure was done and she was moved into a special apartment complex in Denver. Her sisters and my family all took turns driving to Denver (an 8 hour drive for my family) to rotate staying with her during this time, as she was very weak and needed constant help with her eating, bathing etc...
My Dad runs his own business and was under constant stress as he had to balance working to support us and trying to be there for my Mom. I traveled there as much as my work would allow, but admittedly I wish now that I would have gone more to see her, but I struggled with seeing my Mom that way. It guilts me to this day.
Eventually, she was released back home under a strict diet and a new lifestyle. She was to keep our home extremely sanitary, as she was more susc
... keep reading on reddit ➡I am a current fourth year medical student who was recently diagnosed with acute lymphoblastic leukemia. Thankfully, the doctors caught it early but this disease will most likely require years of treatment and recovery, quashing my opportunity to pursue my upcoming residency in general surgery. I immediately emailed the program director and he told me that he would not be able to save a spot for me in a future year and that I would have to reapply elsewhere. I already know that there is no way that I would be able to survive a grueling intern year while undergoing treatment for cancer. Not only am I terrified for my life, but even if I survive this, I am scared that no surgical program is going to accept me again in the future because reapplying for residency for the second time greatly decreases your chances of matching somewhere. Although I specifically went to medical school to become a surgeon, I fear that the aftereffects from the cancer will weaken my body to the point where I would simply not have the physical energy to pursue a 5+ year residency working 80 hours per week. Any advice or support would be greatly appreciated. I had a moderately competitive application for general surgery and matched in to an average program in the midwest (mid-tier US MD, 247 Step 1, 249 Step 2 CK).
tl;dr incoming general surgery intern diagnosed with cancer, worried that I will never be able to pursue my dreams of becoming a surgeon
