Hey, this is pretty long but Iโm hoping you get through it, Iโve just put in all my symptoms I can think of. Iโm getting desperate and feel like my myriad of doctors are missing somethingโฆ I have a bunch of diagnosis but I feel like somethings being misdiagnosed or missed completely, I would really appreciate it!
- 30F
- 156cm tall
- 97kg
- Caucasian
- Live in Brisbane, Australia
- Smoked for around 3 years from 26-29yo
- Smoke 2 joints every night
- Mental health: Generalised & social anxiety, depression, ADHD
- Medication: Zoloft, slow release Ritalin, Levlen ED (the pill), Nexium
- Barely ever drink as I seem to have some kind of intolerance, I get hot sweats, weak legs, diarrhoea and feel nauseous, usually end up vomiting and have burst blood vessels on my face from vomiting.
- I drink 2 cans of Pepsi Max every day
- General tightness and rigidity
- Hyperlordosis - whole life
- Popliteal Artery Entrapment Syndrome - started getting symptoms at 21 and I was around 75kg at the time, I tried so hard to get a diagnosis and spent thousands of dollars seeing doctors and being pushed through excruciating exercise by trainers who didnโt understand for 7 years which unfortunately is common because PAES is rare and also made it so much worse. My calf muscles are now 3 times the size they should be. My calves start to tighten/cramp after walking up one flight of stairs at home (14 stairs), walking medium pace for 50 meters on a flat surface, add on an incline and itโs 10-15 meters. Jumping or skipping/hopping is pointless as is sport. I canโt wear any shoe that has a even a slight heel because my calves cramp and will be sore for days, if I try and put on a high heel my calves are so tight that I canโt straighten my legs when I stand. I also get cramping in my feet when my calves cramp, I saw a podiatrist and got inserts made but they didnโt help. -I got a the diagnoses at 7 years, the Dr. told me to do 20 single calf raises, I struggled to 10 and he put a stethoscope to my ankle/foot and there was no pulse in either leg. I tried Botox behind my knees with no success. I have had surgery in January 2021 on my left leg for a Popliteal artery release and am booked in for my right leg next month. Because of the PAES I have struggled to find exercises that donโt aggravate my calves or the arches of me feet. I did โprehabโ to strengthen my supporting muscles for surgery however my hyperlordosis seemed to flare up and I couldnโt stand for more than a few minute
I was looking at my leg and noticed a bit of skin that looks to be stretched out by some bone. If you look on your own leg it should be facing outwards and is on the side of the leg. I found that it is most noticeable when stretching the leg outwards and is almost unnoticeable otherwise. There should also be an identical bone inwards although it doesnโt stretch out any skin and is much less noticeable.
Sorry if this is common knowledge. I am not a medical student and have been trying to figure this out for some time.
68 year old female complains of pain in popliteal fossa whenever she is laying down for more than 15-20 minutes. During the day, she does not experience much pain because she does not lay down. However, she is deprived of sleep due to shooting, tingling, pain in popliteal fossa that sometimes will radiate down her calf. It is difficult to assess this patient as she does not have the pain when she comes in the clinic and only when she is home.
She was referred for lumbar radiculopathy however there is no pain with palpation of spinous processes, muscles, and no pain during AROM with ROM WFL. Slump, SLR, negative. Hamstring length within normal limits, repeated lumbar flexion or extension had no impact on symptoms. There is diminished ankle jerk reflex, normal quad reflex.
There is full range of motion in the knee, with no pain at end range. Thessaly/ McMurrry (-). Patella mobility is WNL. Patient had a MRI of the knee performed last year which depicted meniscus tear so the MD changed his diagnosis and believes it may be meniscus related.
Patient had a nerve conduction test performed to lower extremities,which as per patient reports results were normal. Patient had venous insufficiency previously which was discovered with ultrasound, she underwent a procedure to remove some the veins. she states it helped her. Test were done afterwards and she states circulation is normal.
Iโm looking for suggestions of what might be going on, it does not seem musculoskeletal related to me as the pain is only when she is laying down for more than 20 minutes or so. The pain varies in intensity with some days better much worst than others. The way the patient describes it does sound neuro related with maybe the tibia nerve involved. We have been putting electrical stimulation to the knee and she states the sensation from the estim feels similar in a way to the sensation she feels at night.
We first started treating her back as she did have intermittent sciatica but that is improved now. Symptoms in her posterior knee remain the same therefore started focusing treatment on the knee now. Any ideas ?
Hi all.
I was diagnosed with a large DVT involving my popliteal vein, among others, last November. I have been on Eliquis since, and seem to be recovering pretty well. I have a follow up with my hematologist March 1st, but from my last appointment I don't think she's going to be useful for this question.
Others that have had a DVT involving this vein, did you ever regain the motion/flexibility in your knee? I have regained some, but bending it still feels stiff, and is limited. Which is a issue for me with my hobbies. And getting out of my tub/shower to the point I am thinking of tearing the tub and just putting a shower - albeit a fancy one- in the bathroom. I haven't been pushing it with anything. But have been increasingly frustrated.
Is my only chance at getting any answers seeing a vascular specialist? Will I get any answers if/when I finally have a follow up ultra sound, and then meet again with my primary care doctor? I was a candidate for knee replacement surgery prior to this DVT. But now I am not even sure if that's going to be at all safe for me. Especially since the DVT is being considered unprovoked/Covid related
TIA
I have a chronic blood clot in my perineal vein which is the result of an acute clot, diagnosed in January '20, but my knee seems very sensitive to changes in my resting heart rate, i.e. becomes uncomfortable when my resting heart rate climbs above 60. I'm wondering if a popliteal valve has been damaged as that is where the pain first began, and I'm thinking there was possibly a blood clot there first but that it moved on before the ultrasound which only found the dvt in the perineal vein. can anybody shed any light on this?
