I've recently got this new preworkout and it's really cool, it's Eddie Halls one. I was doing research as I always love to do with getting new supplements, and it contains L-Citrulline, I read that it dilates blood vessels. I also smoke weed and that too dilates blood vessels. I have Haemophilia C :)
I'll keep it relatively brief here for now... I'll happily discuss more details via PMs or replies.
I am looking for someone in the UK with Haemophilia A who has received Gene Therapy, who would be interested in coming to London to record a Vodcast style chat about their experience with myself (a Haem B gene therapy recipient). I'd need to record within the next 2-3 weeks...
It will be a relatively informal conversation taking no more than 30-60 minutes to record.
The recording is for a pharmaceutical companies internal meeting next January. Any expenses will be covered and you'll be paid an honoraria for your time.
Does anyone have any advice if you have tattoos and/or have haemophilia as I'm not sure on the procedures I'd have to go through in order to get one. Thank you :)
21 y/o here. First of all, I am not in any relationship at the moment. However, since I am out of school - I was well-known as the haemophiliac there - there will come a time that I have to โoutโ myself as a haemophiliac.
I just want to listen to your guysโ stories.
It's well-known now that Tsarevich Aleksei had haemophilia, but when did this become public knowledge? It doesn't seem likely that the royal family would have advertised it, and it seems more plausible that it came out after the family was executed. When did it become public knowledge in the USSR that Tsarevich Aleksei had haemophilia?
Rasptin wouldn't be in the picture so there would have been slightly less discontent throughout the country, also I figure this might have changed the public's view on the war too, perhaps because there would be less external influence upon Nicholas II.
What do you think?
Not sure if this will be a good idea or not, but I tested it with puncture spectres on standard before expedition league started and the bleed from your minions counts as your kills similar to how the poison from spiders from Arakaali's Fang counts as your kills.
This means you can proc the bleed explosions from Haemophilia gloves if your Summon Reaper bleeds a monster and you use Speaker's Wreath helmet to ensure the bleed kills it.
With 50% bleed from the Summon Reaper skill and 20% from Vulnerability you can get 70% bleed chance.
This could make the skill both good for clear and bossing. Just thought I would throw this out there and see if anyone can build from it
Introducing Haemophilia, a custom skill tree mod for regular vampires!
Haemophilia is a fully standalone, highly compatible, script-light mod that aims to enhance your vampire gameplay through simple, impactful, and interesting perks accessible via the new custom skill "vampirism".
Inspired by the three great vampire overhauls, Sacrosanct, Better Vampires, and Scion, Haemophilia can be used alongside any major overhaul and take advantage of their unique features! If any of this tickles your fancy, go over to the mod page and give it a try!
๐ค
Hi, I live in the UK and I am a 16 year old with severe haemophilia A. I receive my treatment (elocta) via the NHS for free and Was wondering if I were to go travelling after I finish school how I would acquire my treatment abroad. If anyone has any knowledge or experience I would appreciate any info thank you.
Hi all, I inject elocta to treat haemophilia A every 4 days. Recently I have been having issues where small blood clotts have been blocking my syringes. I am very concerned by the clotts and was wondering if anyone had any advice?
So one day i was messing around with pob and came up to the thought that trickster is very well suited for dots in general, not only chaos dots, and is very tanky at the same time. Then i thought that my harvest bleed bow glad was, despite his 6.5kHP, not very tanky. At all...
So i took my harvest glad's pob, removed all the irrelevant gear and replaced it with stuff like kintsugi for the tankiness, vertex because idk trickster at all (never played one) but i know that the helmet is kind of bis with the ascendancy. Didn't bother maxing resistances in pob bc it looks like there's enough room on the rings to come up with enough resistances.
This is what i came up to :
Looked pretty decent imho. I decided to make a test run of the build in flashback, as i had nothing better to do.
Here is the state of my trickster after 51h of /played (a bit more than 2 weeks irl).
Not...that impressive. I was never able to link the bow to get the second 6L so i had to always swap gems for puncture on conquerors and the like. I got the Kintsugi from heist league after the merge, wanted to check how tanky it would feel but didn't really play past that. I'm not so sure that kintsugi is actually so much needed. I was already just blasted by how tanky the trickster feel, how fast he is...that was my first trickster and f*** this ascend is totally busted ! :D That was great ^^
I was able to take down Sirus A5 deathless on the first try, didn't push to A8.
Sharing this here bc maybe some of you will be able to try and min max the build. I'd be happy to see a showcase of a bleedster oneshotting Sirus :)
If he hadn't had this condition, they would have had no reason for Rasputin to enter royal life, how different would history have been?
I have a really mild form of hemophilia, mild as in I've never actually been to the hospital for any injury and I've fallen and cut myself by accident multiple times and I have had severe injuries that haven't required me go to the hospital. My dad was in the army and I know he or my mum wouldn't want me joining, but honestly I feel like I need this but at the same time I really don't know If I'll be able to join due to my blood disorder. I don't exactly know what my clotting factor is but I don't think it's lower than 60% - 70%.
But overall hemophilia has never interfered with my life up until now. I know nobody can tell me whether I'll be able to join or not, I just would like some advice.
As mentioned in the title, I want to make a bleed pop max block double strike glad that is tanky enough to deal with the new league mechanic. I've always loved vaal double strike as a skill. Most of the builds I've seen have used the bleed pop ascendancy node rather than going for block. Now that I have the haemophilia gloves I want to make a tanky version that can deal with bosses and clear speed alike. Any insight or ideas would be much appreciated :)
It is pretty rare and I am the only person in my family who has it.
