...and I’ve been hiding it for years. Let me tell you my story because I haven’t been able to get any help. I am an 18 year old female and I have a medical anomaly where I have reoccurring but unwanted orgasms, one after the other. However, PGAD is a dysfunction that does not include the trigger that sets off MY ‘waves.’ When my bladder fills up, there is a point where my pudendal nerve is either extremely compressed or innervated. Sometimes I will be in a deep sleep and be violently awoken by my shaking body and surge of hormones, or I will be at school at my desk... or at work talking to my boss. I’ve learned to hide these waves, because it happens to me dozens upon dozens of times per day. Each time this happens to me... it feels like my body is being involuntarily raped. After every day, I am exhausted, angry, and scared. After every day, I sob the words: “it’s not my fault,” ...but sometimes it feels like it is... because I am so misunderstood. What will my married life be like? What will happen if I ever get pregnant? What will dating different people be like? I’ve done everything alone, because people don’t understand. I’ve seen doctors about my case, and each doctor doesn’t know what to do because there aren’t cases like mine that they or other doctors have ever seen. Not to mention, I have been invalidated time and time again from doctors who do not believe me. I have done so much research... yet have found no answers; just a further hole to dig. However, After 5 years of this torture, I still haven’t put down the torch. Even though I cannot confide in friends much, even after it feels like I’m being raped time and time again by my own body, even after I am sapped of my energy, have trauma, depersonalization, anxiety, and fear from my pelvic floor dysfunction... I’m still fighting. Even though I haven’t found a person out there who is like me at all.... I’m still fighting. Even though I’m terribly alone with a problem which has done so much damage in my life, I’m still looking for reconciliation. I yearn for light to be shed on those who are silently suffering who I wish weren’t judged. People with seizures wouldn’t be judged like I would be... even though people with seizures have episodes just as involuntary. To the women and men out there who may be silently suffering as I have been... come forth. Whether anonymously or in-person, do so purposefully. People around you who YOU think are amazing and strong people... could be struggling with demon
... keep reading on reddit ➡Has anyone else experienced this issue? Most of the time I feel completely asexual. But I've had a couple episodes of PGAD this year that last for several days and include several orgasms while I'm sleeping. My neurologist is stumped and actually laughed when I told him about it.
I (female bodied 25 yr old) have been plagued by pain and disgust at myself for almost a decade over this. I go through weeks at a time where im so aroused it hurts almost as bad as my chronic nerve pain, and makes me unable to focus naturally on anything. I've been brushed off by doctors telling me its something i'll just grow out of because i was a hormonal teenager (which i certainly am not any more), or it was just part of my cycle. I've been on birth control for years now just to help ease the pain caused by monthly hormonal shifts, and it has helped! But i never knew until yesterday that it was really something diagnosable because no doctor has ever helped me understand that.
Does anyone else have this? Or have you heard of ways I can ease it? Im pretty certain of the causes for me to have developed this, its mostly psychological and cns damage. I would love to be able to sit around with an ice pack over my uterus when i need it but i work full time and dont have that available to me when its the worst- which is actually at work when im stressed out enough without the pain.
Edit: this post has been up for literal minutes, this is not an invitation to follow my account or try to get into my dm's. Thats disrespectful first of all, and second i am a taken lesbian. My debilitating sex drive is not an opening for anyone.
Backstory: I have high-functioning cerebral palsy, and have Restless Leg Syndrome and periodic limb movement disorder at night. The PLMD is more of a burden than the RLS, really, but they do go hand in hand (different sensations though).
I know a little bit about PGAD, but I am now wondering if I have it? I know, yes, I will ask my doctor too, but I want opinions.
I am a 32 year old virgin, and often I'll be sitting doing nothing, and I just feel aroused, congested, and uncomfortable. Orgasming does take the sensation away, unlike some people I've read about.
I've always just figured I'm a "horny" virgin, LOL. But I'm learning it's not normal to just be aroused with no stimuli whatsoever? I'm literally not looking or thinking about anything sexual--however, it then makes me WANT to masturbate. On top of that though, because of SSRIs, my orgasms are slow-going, so I literally don't have the time to spend an hour every day masturbating. I just don't want to! At this point in my life, I would be good with probably once or twice a month, really.
I am very sex-positive and comfortable with my body, I just haven't had a partner yet. Thus, IDK what's "normal."
- this is about my experience when PGAD affects me. I'm not constantly living with this arousal. It comes from time to time, whenever it feels like it. In my case, it doesn't last days, or months, or years like it does in some women. Mine only lasts for hours. There are women with very different, and much more debilitating cases of PGAD. I’m just trying to spread some awareness.
First off, I was overwhelmed with emotion reading the article about Gretchen in the Tampa Bay Times a few days ago. I finally gathered up the courage to watch what she had to say in her video today. When I did watch it, i balled my eyes out because i was able to so closely relate her experience to mine. It’s awful that something as serious as this disorder has only begun to get looked at. One could conclude that it’s because of the societal pressures women deal with when it comes to keeping our sexuality on the down low that it has only been diagnosed. I actually posted a few months ago in r/AskReddit if anyone else had PGAD and got no response.
I'd been dealing with PGAD since I'm pretty sure around 8 years of age. I remember finding porn around this age on the TV and obviously being turned on by it (I got caught once, and my parents blocked the channels).This was around the time I also discovered the shower head. Now, as time went on, I thought that it was normal to randomly get aroused without any kind of mental stimulation. I would be anywhere from home watching tv with my relatives, at school, at the mall, restaurants, etc and i badly needed to touch myself. I'd even done it with my family in the room (i'd wear an over-sized pj tshirt, pull it done over my feet, and just touch away). This went on all the time for years, then i finally get to middle school. In middle school, I finally really learned about masturbation from my guy friends. One day, this guy in my group of friends told us that if we would make it to masturbating 10 times in one day, we'd become immortal. I remember thinking, "only 10? I could reach about 20-30 orgasms a day for years now. I must be beyond immortal!" As I got older it became progressively worse. I remember one night around 9th grade, I was laying in bed about to go to sleep when it hit me. I was insatiable. Insatiable to the point where i rubbed myself raw, on the verge of bleeding, to the point where your clit should not be able to feel anymore, yet it was still throbbing with arousal. This lasted for HOURS until the NEXT MORNING. That night
... keep reading on reddit ➡I've been struggling with this disorder since I was a teenager and didn't know what the hell was wrong with me until just recently, when I found studies and research on it.
For those of you who don’t know, it feels like you need to constantly orgasm. But the more you do, the feeling comes back worse, and faster.
From what I understand I have a more manageable disorder so it doesn't ruin my life; but I'm uncomfortable constantly.
I guess I'm looking for support, and maybe some relief methods. The only things that that have worked for me is working out a lot and exhausting my body. I've also developed a kink for masochism, because if I experience pain during sex it gives my body something to focus on.
UPDATE - I’ve gotten a lot of messages asking for updates as my journey continues, so here goes! Things that have helped:
-Marijuana. Marijuana helps considerably, but I am not a productive stoner, so it’s more of a smoking-at-night thing, otherwise I’m not much use during the day. It does help to sleep, though.
-CBD oil. My favorite ratio is 15:1, although it comes in 20:1, 10:1 and 1;1. 15:1 takes the edge off but doesn’t make me feel baked. I take two hits twice a day from a vape pen. The burny goes away about 80% and I can still function.
-Understanding triggers. Did you know PGAD has triggers? NEITHER DID I. Orgasms make it worse, so stop touching yourself, and your flare will decrease within a couple days. This time frame may vary, but that’s my experience. The important thing is to stop touching, or the burny will strengthen. In the meantime, take CBD in tinctures, edibles, or vape. Exercise. The endorphins help. Put some ice on your crotch to numb the area.
-SSRI’s & Mood Stabilizers. There are finally case studies coming out about this issue, and the studies are showing that antidepressants and SSRI’s (like Prozac) are incredibly helpful for flareups. I met with my doctor and requested Prozac. I am currently taking one 10mg tab intermittently whenever I have a flareup, which is an average of two days following after I have sex or genital stimulation. If this doesn’t work, I will up my dosage to 10 mg every day.
3/29 - first day of taking an SSRI to combat a flare. I woke up at 9am, and was about a 6 on a 1-10 pain scale. I immediately took a 10mg Prozac. By 10am, the flare was gone.
4/15 - I have started an excel spreadsheet to document the SSRI’s efficiency. I’ve noticed the 7-10 day half life is a factor in not f
... keep reading on reddit ➡Who is the comic, and which special is it?
Things I'm sure of:
Guy. Was on Netflix. I'm almost positive they were British but I could be wrong.
This post has been approved by the Moderators of r/sex.
The Sexual Health Research Laboratory at Queen's University is seeking individuals with past or current symptoms of Persistent Genital Arousal Disorder to participate in an anonymous online questionnaire about healthcare experiences.
Participants must be 18 years of age or older, and be able to read and write in English. Completion of online questionnaires asking about health care experiences, costs associated with accessing healthcare, and psychosocial wellbeing will take approximately 20-30 minutes, and we are offering entry in a prize draw as a thank you for your participation.
TO PARTICIPATE please visit: www.queensu.ca/sexlab/PGADHC
This research project is supervised by Dr. Caroline Pukall (Department of Psychology), and is approved by the Queen's University General Research Ethics Board.
For more information about the Sexual Health Research Lab, please visit: http://sexlab.ca
Thank you!
So I am genuinely curious if there are a lot of other people out there suffering from PGAD (persistent genital arousal disorder) ??
I have had it since I hit puberty and always thought it was just me peeing myself a little or being too obsessed with sex until I was about 16.
I grew up in a strict religious household and kind of forced myself to learn about sex through porn and medical text books, since our school didn’t teach sex ed and I was always given the; “Sex for procreation” talk.
I was really made aware of it in my senior year of high school when I lost my virginity to my now husband, who at the time was graduating from college. (6 year difference. Although as a late starter at school I was 18 when we met in a mutual college class that i took to learn a second language.)
Anyways... after sex I became aware that I wasn’t peeing when I was aroused but cumming and it really frightened me. I learned that it wasnt normal as well since I had never masturbated. And a lot of my friends found that weird.
I experience at the minimum 8-12 orgasms a day. These are randomly occurring and I had no idea what an orgasm was until I decided to go all the way with my boyfriend.
Its NOT fun or enjoyable, to put that to rest.
They are painful the more I have because I become incredibly sore from the tensing. My reproductive health has suffered and there are a LOT of infections from having so many... I am constantly embarrassed to be in public alone, because I cant always prepare for “the flood” that comes with it.
Anyways.
I have always wondered if there are others experiencing this. Any men? Do you ejaculate? Do you feel ashamed?
Any interesting stories?
I am really really curious? (I was diagnosed in 2009.)
I've had it for years, I know it's normal to have heightened sexual arousal after quitting, but in my case, even lowering 1mg of Suboxone brings on the PGAD, and it can go on for hours, orgasm every 20 to 30 seconds, unrelated to physical stimulation purposely or not, and it doesn't stop until I take the extra suboxon.
Have others experienced this? Did it ever stop? I've had this on and off for 4 years now, usually happens 1 to 5 times a month, sometimes more often.
Also if I have an unrelated orgasm, produces produced by normal sexual stimulation, the PGAD always starts after the first one.
It has put me off enjoying sex because I'm terrified that if I cum with a partner, the non stop orgasms will come, and what the hell will I do then? That's just plain embarrassing.
Ever since I read about the suicide of [Gretchen Molannen] (http://www.tampabay.com/features/humaninterest/gretchen-molannens-legacy-suffering-suicide-and-a-journalists/2154587) I've been wondering if permanent paralysis of the lower spine could have been a solution. Yes, it would leave her paralyzed, but she wouldn't experience the pain.
Basically in women, this is when a woman can't stop orgasming and may have anywhere from 30-300 in a day. Most of the time, the woman doesn't have to do anything sexual. They just happen. A woman can have so many orgasms that they begin to become painful and bothersome.
I'm asking because I'm pretty sure my wife had an episode of this. I was out with my daughter when she told me what happened. There's not that much information on the Internet, except that neurological changes can bring this about, and my wife had an aneurysm in November of last year.
So, anyone with any experience/advice?
Backstory: I have high-functioning cerebral palsy, and have Restless Leg Syndrome and periodic limb movement disorder at night. The PLMD is more of a burden than the RLS, really, but they do go hand in hand (different sensations though).
I know a little bit about PGAD, but I am now wondering if I have it? I know, yes, I will ask my doctor too, but I want opinions.
I am a 32 year old virgin, and often I'll be sitting doing nothing, and I just feel aroused, congested, and uncomfortable. Orgasming does take the sensation away, unlike some people I've read about. Distracting myself does as well, but this is still every day.
I've always just figured I'm a "horny" virgin, LOL. But I'm learning it's not normal to just be aroused with no stimuli whatsoever? I'm literally not looking or thinking about anything sexual--however, it then makes me WANT to masturbate. On top of that though, because of SSRIs, my orgasms are slow-going, so I literally don't have the time to spend an hour every day masturbating. I just don't want to! At this point in my life, I would be good with probably once or twice a month, really.
I am very sex-positive and comfortable with my body, I just haven't had a partner yet. Thus, IDK what's "normal."
Support for those suffering from PGAD (Persistent genital arousal disorder)
This post has been approved by the Moderators of /twoXChromosomes.
The Sexual Health Research Laboratory at Queen's University is seeking individuals with past or current symptoms of Persistent Genital Arousal Disorder to participate in an anonymous online questionnaire about healthcare experiences.
Participants must be 18 years of age or older, and be able to read and write in English. Completion of online questionnaires asking about healthcare experiences, costs associated with accessing healthcare, and psychosocial wellbeing will take approximately 20-30 minutes, and we are offering entry in a prize draw as a thank you for your participation. We design all of our surveys at the Sexual Health Research Laboratory to be inclusive, and they are created in a way that allows individuals to share their experiences, while protecting their identity.
**TO PARTICIPATE please visit: www.queensu.ca/sexlab/PGADHC **
This research project is supervised by Dr. Caroline Pukall (Department of Psychology), and is approved by the Queen's University General Research Ethics Board.
For more information about the Sexual Health Research Lab, please visit: http://sexlab.ca
Thank you!
This post is approved by the Moderators of r/sexualhealth.
The Sexual Health Research Laboratory at Queen's University is seeking individuals with past or current symptoms of Persistent Genital Arousal Disorder to participate in an anonymous online questionnaire about healthcare experiences.
Participants must be 18 years of age or older, and be able to read and write in English. Completion of online questionnaires asking about health care experiences, costs associated with accessing healthcare, and psychosocial wellbeing will take approximately 20-30 minutes, and we are offering entry in a prize draw as a thank you for your participation.
**TO PARTICIPATE please visit: www.queensu.ca/sexlab/PGADHC **
This research project is supervised by Dr. Caroline Pukall (Department of Psychology), and is approved by the Queen's University General Research Ethics Board.
For more information about the Sexual Health Research Lab, please visit: http://sexlab.ca
Thank you!
This post has been approved by the Moderators of r/ChronicPain.
The Sexual Health Research Laboratory at Queen's University is seeking individuals with past or current symptoms of Persistent Genital Arousal Disorder to participate in an anonymous online questionnaire about healthcare experiences.
Participants must be 18 years of age or older, and be able to read and write in English. Completion of online questionnaires asking about health care experiences, costs associated with accessing healthcare, and psychosocial wellbeing will take approximately 20-30 minutes, and we are offering entry in a prize draw as a thank you for your participation.
**TO PARTICIPATE please visit: www.queensu.ca/sexlab/PGADHC **
This research project is supervised by Dr. Caroline Pukall (Department of Psychology), and is approved by the Queen's University General Research Ethics Board.
For more information about the Sexual Health Research Lab, please visit: http://sexlab.ca
Thank you!
I'm 20 years old and im suffering from this disorder, im also in school and can barely attend lecture, really sucks. Anyone else who has this how do you cope it? I think i got diagnosed it this past month.
