I have Chronic Pancreatitis and have a Celiac Plexus Nerve Block first thing in the morning. I’m in pain management, but heavy duty painkillers aren’t enough and I’ve been hospitalized 9 times in the last 2 years. Constant Pain!!! What can I expect afterwards? The diagnostic injection gave me 4 pain free days for the first time in a few years, so I have high hopes. Will I be able to moderately drink alcohol occasionally after this without pain? I take Creon enzymes with every meal, and I’m only in my early 30’s so I’d like to know if any of you have had similar issues? Thank you!! I’m pretty nervous about the procedure, as it was incredibly painful when they did the diagnostic procedure.
I got the diagnostic test injection awhile back with a long acting anesthetic, and had 4 days of almost no pain at all in so long!! Then, when it wore off I had an acute pancreatitis attack... Last week I just got the Phenol nerve plexus block to fully kill the nerves in the exact same spot, but just had a terrible acute pancreatitis attack about a week later when it seemed to wear off again. I really need some legitimate good recipe resources, everything online is so terrible tasting and awful sounding!! Any ideas or websites??
I have gastroparesis and my POTS mainly manifests as GI symptoms. My GI and cardiologist think my POTS is hyperadrenergic and said clonidine may improve my GI symptoms. I’m currently on metoprolol which helps my cardiac symptoms but not GI. I just want to know others experiences with these interventions.
Thanks!
After two years of chronic pancreatitis, they recommend me getting this in two weeks. I know it’s been posted many times before on this page, but I’m wondering if I should do it. I’m in constant pain and only take medication at night when it’s unbearable and I’m not working, tramadol which makes me feel like hell and I usually can’t sleep. Has this worked for anyone?
I just asked my pain management doctor this morning about getting a celiac plexus nerve block injection after seeing it online. My mother (who has Fibromyalgia and a degenerative disk disease), had a couple while I was very young, and she said she got quite a bit of relief for about 6 weeks. I asked my doctor about it, and he explained it to me and immediately scheduled it for two weeks from now! I’d pay anything to have no pancreatitis pain for 6 weeks!!! Has anyone else ever had one? Here’s a link for reference: Link
I just had my first trial celiac plexus nerve block yesterday, and I’m wondering what the rest of you experienced? They went in and put dye in to make sure it was in the right spot, then injected me with anesthetic and a steroid to see how I do. If it works good, then they are going to do a phenol nerve ablation on the entire nerve bundle in a few weeks. I’m just wondering what to expect in the meantime? Any personal experiences would be extremely appreciated!! Thank you so much!!
I've been having constantly pain from my diagnosis CP as well as gallbladder disfunction. Been constantly loosing weight and can't keep up the calories. Lost another 8lbs this past 4 weeks. Down to 154lbs, 5'11" middle age male.
My gastroenterologist today said she wants to do a celiac plexus block to numb the pain and hopefully be able to get my to be able to eat more. Has anyone with CP had this done? Thoughts?
Thank you
... Or at least the girl who tried to push her overpriced probiotics on me just said. I don't even know how to respond. Cuss words were my first thought.
Has anyone had experience with a ceilac plexus block for pain? Here is a link to info on the procedure: https://my.clevelandclinic.org/health/treatments/16853-celiac-plexus-block
I was diagnosed with Crohn's back in May after an extremely bad flare-up which resulted in me being hospitalized for a couple of weeks. One piece of advice I was given after being diagnosed was to meet with a pain management specialist and develop a pain management plan because it's not a matter of if the pain hits, it's when and how bad. After hearing about the celiac plexus block on my first appointment I was excited, an injection every few months to be pain-free and opiod-free sounded great. However, I started to notice that this particular clinic pushes spinal injections for just about every type of pain which has me wondering if it's the right treatment or simply the one the clinic can make the most money off of. I've done some research but haven't found much info on the celiac plexus block being used to treat Crohn's. I found two posts on this sub but they were both over a year old and didn't have many replies, so I thought it might be okay to ask the question again.
I was travelling to visit family last week and ended up pushing myself harder than I was able to handle, by Wednesday last week my pain started climbing. Thursday and Friday pain kept increasing and I was nearing the limit of pain medication I had on hand to manage the pain (Flew home from NC to Ohio on Friday).
Saturday my pain became unmanageable, I should have gone to the ER hours before I did but was stubborn (stupid me!). By time I got into ER my pain was at an 8 and spiking at 9, vomiting, just utterly miserable.
It was early Sunday morning by time I was admitted, my oncologist came in to review my case and consult Sunday afternoon. He scheduled me for the nerve block Monday morning.
I was on some heavy duty pain meds but the nerve block was finally done around 4pm Monday (they had several trauma cases come in that were higher priority for me) and the proceedure took 30-60 minutes (I think? So groggy). When it was finished my main pain was gone. Completely and totally gone.
I still have a small ache where the procedure was done, it's about a 2 or 3, and feels different than the other pain I had so I expect that to finish healing (I bicycled 12+ miles last night and that aggravated the incision a bit) but I expect that to drop lower soon.
I haven't taken any pain medication since 1pm on Monday. From a 9 pain to nothing from one relatively minor procedure. Obviously this is not something you do on a whim but by god when you need it, it is wonderful.
No one knows how long it'll last, may be days, usually weeks. When it wears off we'll either repeat the procedure or try something else, just kinda play it by ear
I had my first block at the end of last week, and I've had a pretty swell weekend pain-wise. It was obviously not a magic bullet, but I went in with low expectations and it ended up helping more than I thought (unless it's just coincidence). I think it's definitely worth repeating to see if it knocks things down a notch again (this one will wear off fairly soon the doc predicted), but I'm just happy to find another tool in my tool box that helps the pain.
It's also just a reminder for all of us struggling that it is rarely one treatment or medication that makes a significant dent in our pain. For me, it took lots of miserable trial and error (savella and prednisone, I'm looking at you) before I found a combination of things, pharmaceutical and behavioral, that each contributed to a lessening of pain by about 10-20% percent. In the end, it all adds up. I also started taking Alpha lipoic acid on a whim a few weeks ago and that seems to help my neuropathic pain with no side effects (I take 300 mg. a day).
edit: forgot to add, CP blocks are done for abdominal pain...usually cancer or pancreatitis, but my doc was willing to give it a try for my functional abdominal pain, which is like an amplified pain syndrome that's neurological in nature.
Keep searching for every little thing that helps. I know I will.
Hi, im sorry if this doesnt belongs here but I dont know where else to look.
My father in law, 57 was diagnostised with pancreas cancer 2 months ago, he has the policystic kidneys so he was transplanted 12 years from a living person. He went to surgery but was not succesful since the tumor was really close to his aorta vein and his spleen. He was then told there was no treatment to his disease since he has only 1 kidney.
The idea was, getting home to gain some weight and recover from surgery so we can look for some treatment with other oncologyst. I contact some, and at least 2 agree that he can have treatment since his kidney and liver are working good althoght his disease.
In home he has a lot of pain since he got an infeccion from the surgery which he is treating. He is now in severe pain so they gave him morphin but he really is another person and can barely speak a word.
Before morphin he wasnt like this. We have the idea to suspend morphin and use cbd
Can this help lower his pain? Sorry English is not my first language and this is really hard to me since he is like a father to me.
We'd like to at least improve his life quality, morphin its really hard on him.
Thank you
I was chatting with some folks in an endo group on FB and had this sudden, massive realization.
I am completely symptom-free from endo.
I have not had pelvic pain in MONTHS. This is the longest that's happened in my entire adult life. Since I was 12 and had my first period, it just got worse until it was just constant and a fact of life. So much so that a diagnostic nerve block for another condition had me in a panic that I'd been paralyzed. I wasn't. I just had absolutely no idea what life was like without the pain.
So what has caused this miracle? How did I get symptom-free?
I addressed all the causes of my pain.
Because endo is only one condition that can cause our symptoms. There are many that can, and do, cause all the "classic" endo symptoms.
Yes, even the painful and heavy periods.
Yes, even the cyclical nature of the symptoms.
I know this because I've lived with it all for almost 30 years. I have had 7 surgeries for endo. I had bowel endo removed. I had a hysterectomy. I tried every hormonal treatment under the sun.
And it just kept getting worse.
But then one day a doctor looked beyond my endo. My relief is the result of that.
I am not a doctor, and what is below is just my personal experience. But I will say that I see it mirrored in so many others throughout the groups for the other conditions, and that the doctors I see for the other conditions see a high rate of their patients also having endo. One even used to regularly consult with the endo center at his hospital, because he believed the connection was just that strong. There are also many here who have seen my other posts, gone for consult, and now find themselves on a similar path towards treatment for these underlying conditions. I cannot stress strongly enough that if you continue to struggle with endo, and are unable to find relief from your symptoms, please consider other conditions. I absolutely know diagnostic journeys suck, but if it results in you being symptom-free, it's friggin worth it (imho, only you can decide that for yourself).
I'm going to paste in a comment I made on a post the other day (with some tweaks for clarity, and there will definitely be edits to this post for formatting!), because I think it explains a lot of it. The post was about misdiagnosis, and I was talking about all the issues that had gotten attributed to endo...but were not. Yes, endo may have played a role, but it was not solely responsible for these issues o
... keep reading on reddit ➡If y'all relax your abdomen muscles, do you get a weird pulling sensation like you do when you go round rollercoasters? It's a strong sensation, almost pain. Is that an us thing or an everyone thing? Does anyone know what that is?
Not medical advice I just want to know if this is normal. I don't know normal people to ask.
Do your worst!
For context I'm a Refuse Driver (Garbage man) & today I was on food waste. After I'd tipped I was checking the wagon for any defects when I spotted a lone pea balanced on the lifts.
I said "hey look, an escaPEA"
No one near me but it didn't half make me laugh for a good hour or so!
Edit: I can't believe how much this has blown up. Thank you everyone I've had a blast reading through the replies 😂
Pilot on me!!
They’re on standbi
Dad jokes are supposed to be jokes you can tell a kid and they will understand it and find it funny.
This sub is mostly just NSFW puns now.
If it needs a NSFW tag it's not a dad joke. There should just be a NSFW puns subreddit for that.
Edit* I'm not replying any longer and turning off notifications but to all those that say "no one cares", there sure are a lot of you arguing about it. Maybe I'm wrong but you people don't need to be rude about it. If you really don't care, don't comment.
What did 0 say to 8 ?
" Nice Belt "
So What did 3 say to 8 ?
" Hey, you two stop making out "
I won't be doing that today!
You take away their little brooms
This morning, my 4 year old daughter.
Daughter: I'm hungry
Me: nerves building, smile widening
Me: Hi hungry, I'm dad.
She had no idea what was going on but I finally did it.
Thank you all for listening.
There hasn't been a post all year!
I just asked my pain management doctor this morning about getting a celiac plexus nerve block injection after seeing it online. My mother (who has Fibromyalgia and a degenerative disk disease), had a couple while I was very young, and she said she got quite a bit of relief for about 6 weeks. I asked my doctor about it, and he explained it to me and immediately scheduled it for two weeks from now! I’d pay anything to have no pancreatitis pain for 6 weeks!!! Has anyone else ever had one? Here’s a link for reference: Link
