Hi everyone, I was recently diagnosed with pigment dispersion syndrome and struggle to find any elaborated information about this disorder. I was prescribed Timotol on the first visit to ophthalmologist despite having normal pressures due to rainbow halo episodes suspected as pressure spikes. I have two trans illumination defects and no other clinical signs so far, but was told to expect more and in both eyes due to my “eye anatomy”. How quickly does PDS progress to pigmentary glaucoma and how different are the rates of blindness between pigmentary and open-angle? What is usually the first line of treatment? Thank you very much!
Hi Everyone,
I went to my optometrist for an annual contacts/glasses refill, and they took my intraocular pressure at 34/25 (R/L). Two days later, they had me come in to retest and the levels were down in the 20s.
Today I had an ophthalmologist appointment where they took two readings (not using iCare) that had me at 21/18 and 24/20 shortly thereafter.
She informed me that I had pigment dispersion syndrome, and scheduled me to come back in 3 months for a field vision test and follow-up IOP measurements. She did not recommend eye drops or laser treatment at this point.
My question is around why these numbers seem to have fluctuated, and whether I can safely continue a fairly robust workout plan with running, weightlifting, etc. I also wanted to hear this community’s thoughts on supplements or dietary recommendations to help IOP, especially if it is in relation to pigment dispersion syndrome.
Thank you in advance for any guidance! Just a nervous guy looking for some additional feedback.
Hello!
I was diagnosed with the above last year, and have been under the hospital to look into it. It was decided that they would give me a YAG laser iridotomy. This happened and everything went smoothly.
Just had my 2 week review, and explained since I found out about this, I stopped running and doing high impactive exercise. The consultant said to me that a healthy lifestyle was far more important, and that I shouldn't put my life on hold due to something that might cause glaucoma. He explained that many people with the condition actually sometimes do not develop glaucoma in their life time. He said I would be fine to start running again, and keep up with my yearly eye exams to keep things in check. He also said the laser treatment should help with the issue as well.
So just wondered what the general consensus was on here? I am not a hard core runner, just a few 5ks a week in the woods. I have desperately missed it, and it has affected my mental health stopping it. Nothing better than running and feeling free! Well for me anyway! Was my consultant right in what he said? :) (this isn't me disbelieving him, I just wondered if this was the same across the board)
P. S so so amazed at what they can do with eyes these days. I'm so grateful!
I was diagnosed with pigment dispersion syndrome about a year and a half ago. My eye exam before that had been about 3 years prior, with no symptoms at all. First doctor thought it bordered glaucoma, but the second said it wasn't that bad. I am planning to schedule an appointment within the next month, but am just curious about where the border is between the two problems. When does one become the other and does it always occur? Recently found out that grandparents on both sides had glaucoma. Neither parent is currently displaying symptoms, but they are both anti-medical and only do eye exams when they can no longer use their glasses so probably wouldn't know if they were. Wondering what steps I can take that may help with slowing down progression, if any. Currently smoke marijuana and am trying to become more proactive with my medical appointments than I have been in the past.
So, I'm glad this subreddit got made cause I have a questions and I didn't want to bother y'all in your professional subreddits.
7ish years ago my optometrist back home got that "take a picture of the back of you eye" machine. When he took mine he said I had "suspicious discs, my disc ratio was off and I had bright retinas". So he sent me to the ophthalmologist who said my pressures were fine. Everything was cool. Keep up with field of vision testing just in case.
Cut to this year when I went to a new optometrist. Pictures are taken, and he's all like "anyone ever tell you" and I'm like "bright retinas, disc ratio off right? but pressures are fine so I prolly don't have glaucoma? Are you gonna make me go back to an ophthalmologist? " and then he laughed and referred me to an ophthalmologist again.
This one found a very clear Zentmayer Ring and diagnosed me with pigment dispersion syndrome. Which looking into doesn't seem that bad, I mean not great but like not awful and kinda interesting. But my pressures have never been up and it seems to me (completely medically uneducated pleb) that my optic nerves shouldn't look weird due to pigment dispersion if my pressures aren't up?
But she also asked about my extremities in the cold and I was like "That's a real thing? Yeah fingers and toes go white I lose range of motion from the elbow down". I legit just thought I was crazy and I feel super vindicated and like it's not my fault I break phones in the winter XD. And she said something about Raynaud's Phenomenon. Which just sailed over my head at the time cause.... well this is all a lot of info for someone who knows nothing.
So with all that info it seems to me that she thinks it's something like this https://bjo.bmj.com/content/82/8/855 which is frankly kinda cool.
And now I'm all curious but not too worried cause the ophthalmologist seems super on top of things (visual field testing every 4 months, eye pictures every 6, and I have to keep a diary if my vision goes blurry due to exercise). Any insight would be appreciated. Sorry for being a google doctor.
My wife was recently diagnosed with Pigment Dispersion Syndrome. Thankfully it was caught in the early stages and her eye pressure levels have all been normal the last 3 times she's been checked in the last 6 month's.
The diagnosis, however, has left her quite depressed as she's been told she'll need to stop her intense exercise routines (she does a lot of HIIT) and she's convinced she'll end up looking like a "freak" due to her eye(s) losing pigment/color.
My questions are, first, should she be worried about looking like a "freak" as a result of losing pigment and second, what kind of exercise can she still be doing to lead a healthy lifestyle and stay fit, that won't cause pigment to flake off at an increased rate?
Thanks so much for any answers. Really just trying to give her hope at this point.
I've been trying to find a yes or no answer before I waste my local recruiter's valuable time. Anyone know?
I was curious if someone could explain it like I’m five... I been trying to disperse powder pigments and mix them to create paints, but not sure Im dispersing, fluctuating properly... because in the end my water based pigment is still hydrophobic and separates badly. I’m not a chemist, so everything I find on this is over my head. Thanks!
Not a film, it's a show
Just in case you don't know . . . Dispersions are aqueous pigment concentrates. Our dispersions are made from single pigments, are water-borne, and have no fillers or binders. They are made in small batches in ceramic ball mills to achieve the finest grind, producing the cleanest, most intense color possible.
