Hi all,
I’m 30 years old and I was born with a heart murmur (hole in the heart) and was discharged with it around 20 years old as the hospital was happy it hadn’t got any worse and wasn’t affecting my life, oh how things would turn out 10 years later.
I was complaining of ill health before Christmas and with COVID rife in the UK at the time I thought maybe it was that, nearly all the symptoms I was presenting. Multiple negative tests later and the doctors failing to diagnose me over the phone I end up in hospital in February after substantial fluid on my lungs was seen on a chest X-ray a random doctor requested.
Long story short I got endocarditis, an infection in the heart and I was unlucky enough for bacteria to go through my heart murmur and embed itself onto my mitral valve and I stayed in hospital for 6 weeks on antibiotics and was told that the infection has eaten away at the mitral valve and I’d need surgery as the leakage is moderate to servers.
Obviously I’m quite scared, I wasn’t expecting to get to 30 and have this happen to me and I have allsorts going through my head and it’s difficult to not become enveloped by the severity of it.
I’ve been told that open heart surgery on valves is very routine these days and I take comfort in that, but obviously have my chest split open and my heart cut open has me quite concerned.
If anyone has had the same or similar experience I would really appreciate hearing about your own experiences and what I should expect in the process, recovery afterwards et
Thank you all ❤️
82 M 118 pounds (my father) started becoming very short of breath about 7 months ago. (Sorry this is very long so I decided to keep the background information and the current dilemma in two different sections.
Background:
Up till then other than a bad knee and occasional bronchitis, and an enlarged prostate he was very independent and took care of all his needs- taking the bus, shopping, doctors visits, etc. He would be a little short of breath if he walked more than a 100 feet or so and had gotten an angiogram 2 years earlier which showed no blockage, but now for what seemed very suddenly, he couldn't even walk 10 steps without being out of breath.
The cardiologist did another angiogram which didn't show any new blockages, but it did show some calcium buildup and leakage in his Mitral valve and the chest X-ray showed some fluid buildup. He also did a PFT test (which my dad barely got through) and an Echo which confirmed that he had moderate to severe regurgitation in his Mitral valve and a small amount of leakage in his Aortic Valve.
He didn't seem concerned about it and thought that since my dad had a history of bronchitis, that most of the issues with the breathing was with his lungs and not heart so he just gave him an inhaler for his lungs and .5 MG Bumex to only be taken 3 times a week (to not aggravate his his unitary issues) and scheduled a follow-up for 3 months later.
The issue with that however was that my dad's coughing was not going away and it made breathing hard so he met with his PCP who gave him some steroids and antibiotics to clear up his bronchitis. That helped quite a bit and stopped the coughing and my dad could walk a little more but would still be immediately out of breath.
As soon as the steroids/antibiotics ran out, the coughing came back too and on top of everything, he started getting severe feet swelling to the point where it was weeping. He was in really rough shape so we saw his PCP (who was the only one who could see him fast) who upped his Bumex to daily and told us that if his oxygen drops below 90 to take him to the ER. The cardiologist was also able to fit him in 2 days later, but by then he was in such rough shape that he took one look at him and told us to go the ER.
While in the hospital, the put him on Lasix to treat the edema, put him on oxygen, and also discovered a blot clot which they treated with strong blood thinners. 2 weeks later, because he had gotten so weak, they decided it would be best fo
... keep reading on reddit ➡I am writing an essay and have to work out if there is a need for antibiotic prophylaxis to prevent infective endocarditis. There is a flow chart to follow which states that it should be delivered if 'patients with any prosthetic valve, including a transcatheter valve or those in whom any prosthetic material was used for cardiac valve repair.' However, I can't make out if a tissue valve would be classed as a prosthetic as it is not mechanical although still 'foreign'? Any help, guidance or answers are greatly appreciated!
Mom having open heart surgery on Monday, terrified.
Title says it all. Last Monday my mom went into the doctor with a bout of afib, and found it was a symptom of a larger problem.
She has to have a mitral valve replacement, in addition to a coronary bypass. This all came out of nowhere, and while she still remains in good spirits at the hospital it’s still terrifying for me, my sister, and Dad.
Luckily we live in Cleveland and she is having the surgery at the Cleveland Clinic.
Has anyone else gone through something like this themselves or with a loved one?
Hi everyone, I [24M] have severe Mitral Valve regurgitation and was just told that my surgery will need to happen in the next few months. The surgeon basically gave me a choice between repair and replacement (metal valve) and I was wondering if those who have been through either have thoughts. He said it is likely that I would have to have another surgery in 20 years if they repaired it, but that the replacement would likely last a long time. I would prefer to not be on anticoagulants forever but if that is the best option I have, I suppose that would be what I need to do. Any thoughts would help a ton.
My mom, 65, had a STEMI in 2017. She quit smoking and changed her eating habits. All the symptoms of hf followed, and after seeing a cardiologist, it turned out to be mitral valve stenosis. She had open heart surgery in 2019 to replace the valve and had a double bypass as well. By all accounts, her heart is fine now.
After a long recovery she seemed to be gradually improving, and at this point she's off all her heart meds. She still had soboe but could walk half a block to the hospital entrance, then inside to get to her appointents. About a year ago a different, but similar set of symptoms appeared. She never did see much improvement becuase these symptoms took over. She is retaining water in her legs and has a lot of what looks like ascites in her stomach. For about a year now, she's been on 80mg of Lasix daily and if she doesn't take it, she has even more trouble breathing than usual. But it's not congestion in her lungs, I think it's water in her abdomen pushing on her diaphragm or something. She can lay flat to sleep and has no cough or anything. She has episodes of confusion and a lot of fatigue and SOBOE. She says that before her surgery she "didn't know what breathless was". her vitals are fine at rest but she has trouble walking from the sidewalk to my front door, and we use a wheelchair in the hospital now.
Im not sure she can pee without the Lasix, you would think all that fluid would give her nocturia but it doesn't. Her gfr, bun, and creatinine are fine as far as I know.
She also has pain and tingling in her legs now. She bought a glucometer just to check and her fbg is never below 10. it doesn't go crazy high, her a1c is 7, she's never been diagnosed with diabetes and takes no meds for it. Her diet is fine. She just has high bg for seemingly no reason.
before the heart attack she had no issues with SOB or any of this stuff. Sorry it's so long! I don't know what to do, shes getting worse and I don't want to lose her. She's my best friend.
The main thing that could help us is to know if we need a cardiologist, nephrologost, some other kind of specialist? Who can help us??? Family doctor is not concerned.
My boyfriend is having his 3rd Mitral Valve replacement (the 2nd one didn’t take well). I’m nervous (he’s not) and was wondering if anyone had a similar story that they could share any info would be greatly appreciated.
Anybody out there have experiences with this? My dad, who is in his 50's and has been going to dialysis for 2 years now is going to be having mitral heart valve surgery, and is going to need a double bypass surgery done too (we've known about this for awhile now). Does anybody out there have any experience/know anyone with this surgery? What was the experience like?
The title mainly explains this. My dad had a mitral valve replacement (full open heart surgery. Sternum wired back together) ten days ago. He’s recovered VERY well and is doing absolutely amazing. The doctors kept him in the hospital for five days, two of those being ICU days.
When I sit down on the couch next to him, I hear a weird clicking noise coming from his chest. It seems to match what I assume is his heart beat as it is very rhythmic. I’ve asked him if he can hear it, and he calls me crazy and says I’m hearing things. I assume he’s just blocked it out. I don’t know if he has stitches or staples. He’s probably about 30 pounds over weight but has lost a lot (probably water weight) since his surgery. He’s visibly skinnier. I am just wondering what that clicking noise is.
He doesn’t know if the wound was closed with stitches or staples. I’d assume it was staples because when I had surgery my doctor told me they held better? The bandage hasn’t come off yet so is it the staples hitting the bandage?
Thank you for your time!
Edit: Corrected some spelling/grammar mistakes
My boyfriend is getting his third mitral valve replacement at 34. The last one didn’t take too well and he needs it replaced again after only 3 years. He won’t be allowed to have any visitors or anyone to stay with him during his stay at the hospital because of Covid. Does anyone have any tips on how to stay sane and positive while dealing with isolation and recovering from heart surgery?
TLDR:
Any tips on staying positive after heart surgery while dealing with isolation?
I've been in and out of Afib for a couple years. Next month I'm getting a mechanical valve and a bypass installed. Anyone here know what I should prepared for?
my wife had bacterial endocarditis and needed to have a pig valve to replace the mitral valve. This choice was made to enable pregnancy. She is due for a new one but reluctant to get a metal valve because of the noise - she cannot stand a ticking clock at night for context. Is it as noisy as that? (she is late 40's and would prefer non-metal but there are concerns about repeated operations since she's going on to number 3).
itral valve replacement is a cardiac surgical procedure in which a patient’s diseased mitral valve is replaced by either a mechanical or bioprosthetic valve.
Mitral valve replacement is performed when the valve becomes too tight (mitral valve stenosis) for blood to flow into the left ventricle, or too loose (mitral valve regurgitation) in which case blood can leak back into the left atrium and thereby back into the lung. Mitral valve disease can occur from infection, calcification, inherited collagen disease, or other causes. Since a mitral valve replacement is an open heart surgical procedure, it requires placing the patient on cardiopulmonary bypass.
The research study, titled “Global Transcatheter Mitral Valve Repair and Replacement market Research Report 2019,” evaluates the historical performance and the current status of this market for a detailed understanding, emphasizing especially on the dynamics of the demand and supply of Transcatheter Mitral Valve Repair and Replacement in 2024.
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https://preview.redd.it/88o3efxicv431.jpg?width=700&format=pjpg&auto=webp&s=1e8f5d597a50a4d811768e32ae136b1c903d2b6f
Several segments of the worldwide Transcatheter Mitral Valve Repair and Replacement market have also been discussed in this research report with thorough information, considering their historical and existing performance in the global arena.
It further maps the competitive landscape of this Transcatheter Mitral Valve Repair and Replacement market by evaluating the company profiles of the leading market players, such as Edwards Lifesciences, Medtronic Plc, Abbott Laboratories, Neovasc Inc, Cardiac Dimensions Inc
On the basis of the product, the market has been classified into: Transcatheter Mitral Va
... keep reading on reddit ➡Hi, I'm a 21 year old female. My height is 5'4" and my weight is 154. I am currently on no medications, and I don't smoke.
I have congenital asymptomatic mitral valve prolapse with regurgitation. When I was younger I used to go to the cardiologist, but after two visits a year apart, I was cleared unless I showed symptoms. My parents tell me that the doctor said that I would almost certainly or possibly need valve replacement surgery in my mid-to-late 20s.
I recently went to an after hours clinic for a UTI and due to high blood pressure (although I just have a 6 year history of white coat hypertension) the physician's assistant requested that I have an EKG immediately. my blood pressure had been 147/98 and once taken later 139/110. She read the EKG and said she saw enlargement of my left atrium, and said she was going to refer me to the cardiologist. I told her I had MVP, but she just stared at me blankly. I've been checking my blood pressure the past few days and it's been between 123/86 and 114/73 every time. So I think it was just me being scared of the doctor.
I haven't had a chance to go to the cardiologist yet, so this is all I have. But I have anxiety and I'm also quite sedentary at some points, but I have also been having chest pain and shortness of breath (although I assumed they are due to those previous things). Is there a chance that my MVP made my left atrium enlarge and does that usually become dangerous? Do you think I will need to get the valve replaced?
