Medullary thyroid cancer Puns

Been having these glands since 20yrs old. Went to a new gynecologist and she informed me to get that checked. I don’t know what to expect. Googled about it and still feel confused. Anyways, I guess I’m grateful this gynecologist cared about my health and convinced me to get an ultrasound. Thank you for reading. God bless everyone

Hi everyone. A couple days ago I was diagnosed with Medullary Thyroid Carcinoma. I haven’t been struggling with any symptoms yet. I was just wondering if anybody has or had it? Also should I be worried about an operation on my neck? My doctor will be referring me to one of the best specialists for me. It could take up to 6 weeks for my appointment. But they do want me to go in as soon as possible. I caught the lump on my own, really quick. I’m glad I didn’t live with it for too long. So any feedback/advice would be greatly appreciated.

Hey, wanted to stop by and say hello and share some resources for anyone diagnosed with MTC.

First, take some deep breaths, take a walk. MTC is very rare, but it typically grows extremely slowly. If you're pre-surgery, you have an amazing opportunity to hopefully choose a surgeon who can treat you properly. It's a gift you couldn't buy after an incomplete first surgery at any price. There's a website you can go to to find expert care. Most doctors will go an entire career seeing MTC once or twice. These people see it all the time.

https://medullarythyroidcancer.org/wiki/index.php?title=Center_of_Excellence

There is a Facebook group as well that is amazingly supportive.

https://www.facebook.com/groups/MedullaryThyroidCancer/

Please reach out. MTC isn't necessarily a death sentence, and there are people in the group who've had it over 30 years.

You're not alone!

I don't even know how to react to this. I though the ultrasound person looked very worried, and today my gp has confirmed I have medullary thyroid cancer, spread to my lymph nodes. They haven't done any further scans yet. It feels unreal, I don't smoke, I'm healthy otherwise. I really want to get to know who my wonderful one year old son becomes. Most of my family lives in the other side of the world, and it's already been heartbreaking having to tell my mum via Skype. How do you cope with this, I'm at a complete loss for what to do.

A few weeks ago they found two 1.8 cm nodules on my thyroid. I was given the option of a biopsy so I took it. The results came back indeterminate. That was almost 2 weeks ago and I'm still waiting on my molecular test results but I'm starting to get really freaked out and anxious. I wish I could just talk to my doctor about my concerns about what I've seen on the ultrasound and read about thyroid cancer but he won't see me until my results are in so here I am. I'm at the point where I'm worried about papillary or follicular cancer but I know there's a very good chance I'll survive and that's what's important.

Medullary and anaplastic have me really freaked out though and I can't find anywhere that gives me any clues about whether or not that's what I have. I'm hoping my doctor would have let me know if he was concerned about it considering it's pretty urgent but I don't know. Obviously no one can tell me for sure until I get the results back but I'd like to find some information to ease my mind at least and I can't. All I know is the size, that one was solid and the other was fluid filled, that they both were slightly hypoechoic on the ultrasound, and that neither of them had any internal microcalcifiations. I'm assuming it hadn't spread to my lymph nodes or anything like that either because there was nothing about that on the ultrasound. Can anyone offer me any slight reassurance or glimmer of hope that I'm not dying?

I was diagnosed with thyroid cancer toward the end of March. I was at a routine appointment with my endocrinologist and he noticed a small lump on my neck. He ordered a biopsy and scheduled an appointment for two weeks later to go over the results.

A week later, he called, saying drop everything and get into the office ASAP. He gave me the diagnosis and moved more quickly than I could have ever imagined. In the next three days, I had an ultrasound and an appointment with a surgeon, and surgery scheduled for April 15th.

In my ignorance, I didn’t realize there are several types of thyroid cancer, with medullary being a very aggressive form and it tends to get in the lymph nodes more quickly than other forms.

Surgery went well, the pathology report on nearby lymph nodes came back clean and all is well, but I didn’t realize how big a bullet I dodged until after it was all over. I really didn’t research the different types until surgery was over and I’m glad I didn’t. My nervousness about surgery would have been even worse.

Hello there! MEN2A Ret Gene positive here, and I have a few questions.

This isn’t a MCT question as much as I’m curious if you had any reactions to the levothyroxine? I’ve taken it for years and after my surgery when I started taking the full dose and I’ve had a few things come up.

Any crazy side effects?

Doctors give me a 20% chance to live more than twelve months. I have no family or friends. I am 29. I have been working as a software engineer for 6 years, and I have saved more or less all of my money. I want to give it to charity. I am thinking about the Make A Wish foundation.

Everyone at the clinic has someone. You don't realize how alone you are until you are having chemicals pumped into your body which will kill either you or your disease. As the sessions pile on, your joints begin to creak, your hair begins to fall out, and water begins to taste like iron. Your strength fails you, your skin becomes sallow and it becomes impossible to enjoy food. I can no longer work, because even the act of typing causes me intolerable pain. Computer science is the only thing that I have ever enjoyed, and now I spend my days alone, half conscious in front of the television waiting for the clock to strike 11 so that I can return to bed for another night of restless sleep.

With every keystroke, the joints in my fingers cackle as if they were mocking the frailty that I find myself in. I was once strong and healthy, and now I weigh less than 120 pounds. Walking to the sink to fill my mug with water is a tortuous task, and more often than not it causes me to vomit. I am in too much pain to clean it up, so my apartment has become rancid and I live in squalor. Every Tuesday, I have to force myself to walk down two flights of stairs to get on the bus so that I can continue to poison my body.

This is not the life I want to live.

My only regret is having never made a friend. I wish I could find one now, but I have no social skills and I don't want a friendship born of pity.

I am bitter, and angry that I did not get the lump on my neck checked sooner. I will die for my mistake one way or another, but I would rather go on my own terms. I wish that I had thrown myself in front of a train when I still had the strength to do so.

Let this be a lesson to you all.

This is the best tl;dr I could make, original reduced by 63%. (I'm a bot)

> A phase I, first-in-human study led by The University of Texas MD Anderson Cancer Center reveals for the first time, an investigational drug that is effective and safe for patients with cancers caused by an alteration in the receptor tyrosine kinase known as RET. The drug appears to be promising as a potential therapy for RET-driven cancers, such as medullary and papillary thyroid, non-small cell lung, colorectal and bile duct cancers, which have been historically difficult to treat.

> "The current treatments for these cancers are limited to traditional chemotherapy and earlier generations of multiple kinase inhibitors. These options have had limited success with often considerable side effects that significantly impact the patient's quality of life."

> The drug targets RET-altered cancers with fewer side effects affecting non-cancerous organs.

> RET is linked to half of all medullary thyroid cancers, 20 percent of papillary thyroid cancers and 1 to 2 percent of non-small cell lung cancers.

> "Our study reported an overall response rate of 37 percent for RET-driven cancers, with responses of 45 percent for non-small cell lung cancer and 32 percent for medullary thyroid."

> "Overall, the data show the precision targeted therapy with next-generation kinase inhibitors can have a powerful impact for patients with RET-driven cancers," said Subbiah.

Summary Source | FAQ | Feedback | Top keywords: Cancer^#1 patients^#2 thyroid^#3 RET^#4 drug^#5

Post found in /r/Futurology, /r/science and [/r/Health](http://np.reddit.com/r/Health/comments/8cmz21/firstinhuman_clinical_trial_of_new_targeted

Hi team,

Waiting for a trial to kick off...

Any experiences? Particularly interested in progress with Bone mets.

Thanks!

Hi everyone, I have a question regarding a question i saw on Rx regarding thyroid medullary carcinoma. The question states that there was a patient who has medullary thyroid carcinoma who present with hypercalcemia. I'm aware that medullary carcinoma can present with increased parafollicular C cells which secrete calcitonin. But how would the production of calcitonin lead to hypercalcemia because calcitonin works by lowering calcium levels? Any help is appreciated, thanks.

We are MEN 2 B.

Are you afraid that thyroid cancer has shortened your life? I can’t help but think that this is my first cancer (of many) and I will not live to be an old woman. Can anyone relate? 😢

almost exactly two years ago, i (23 F) went to the endocrinologist due to some weird symptoms i was having (it ended up just being crazy stress lol), thinking i may have had something going on with my thyroid since my mother has had thyroid issues in the past (specifically thyroid cancer). the doctor thought i should get a thryoid US just in case, and said she found a "teeny tiny tiny" (her exact words haha) nodule, and that it's nbd due to how small it is. i suddenly remembered this had happened, and i feel very stupid. i feel like i should've gotten a follow-up or something, what with my family history and all. i'd gotten the scan maybe 2 months before the pandemic started, and i think with all that craziness i ended up forgetting. i was also reassured by her words (she’s also my mother’s doctor and treated her when she got her diagnosis), but now the paranoia is getting to me. i plan on scheduling an appointment soon to get a US, but i'm curious as to what kind of frequency i should be getting them. i’m honestly freaking out real bad since it’s been two years already. any thoughts (or reassurances T_T) are helpful! thank you so much in advance :)

I lost my original 70 when I was still in college and had more free time to go down to the Y and work out, and I definitely am finding it harder now that I have a full time job. Being hungry and having a full time job don't mix well for my attention span. Plus I found out I had thyroid cancer in late 2019/had my surgery in early 2020, so that threw a wrench in things and I did a lot of stress eating.

But life has finally stabilized and I'm committing to getting this done. My goal is to be able to look into the mirror and be proud of myself, and hopefully rework my wardrobe and put myself back out there on dating apps.

This is more of a rant than anything else, but maybe someone can empathize with my story.

My now ex boyfriend of almost 5 years told me he resents me because after my surgery in Oct 2020, I was always so tired and didn't have the energy to spend time with him like I did before. He said he felt lonely, and so he cheated on me. He said he blames himself but he said he felt lonely for such a long time (like really, is one year really so long?)...

I know this was probably a blessing in disguise, because who needs a partner like that. But I just wanted to say that I hope everyone has the support system that they need through their diagnosis. This "good cancer" comes with so much more hardship than just surgery. It took so much more from me than I thought it ever would.

Hi everyone! Currently waiting for my ultrasound thyroid results (next Friday) but I wanted to know if anyone on here had or has thyroid cancer. Lately I’ve been feeling like I have something ‘stuck in my throat’ and a sore neck. My anxiety is through the roof at the moment and I am super stressed. I keep reading that it could be a sign of the big C word 😣 All my blood work is within normal range. No antibodies detected. My GP keeps telling me I don’t have thyroid disease based on my blood work but I still have all the symptoms. Can someone please help calm my nerves or give advice on what my next step should be? Thanks!

Was diagnosed with thyroid cancer. I need recommendations for endocrinologists with a thyroid cancer focus. Anyone know of any or any to avoid? Please and thank you.

Edit: Thank you all for your help and well wishes! I feel better about the road ahead.

almost exactly two years ago, i went to the endocrinologist due to some weird symptoms i was having (it ended up just being crazy stress lol), thinking i may have had something going on with my thyroid since my mother has had thyroid issues in the past (specifically thyroid cancer). the doctor thought i should get a thryoid US just in case, and said she found a "teeny tiny tiny" (her exact words haha) nodule, and that it's nbd due to how small it is. i suddenly remembered this had happened, and i feel very stupid. i feel like i should've gotten a follow-up or something, what with my family history and all. i'd gotten the scan maybe 2 months before the pandemic started, and i think with all that craziness i ended up forgetting. i was also reassured by her words, but now the paranoia is getting to me. i plan on scheduling an appointment soon to get a US, but i'm curious as to what kind of frequency i should be getting them. any thoughts (or reassurances T_T) are helpful! thank you so much in advance :)