Hi everyone, just hoping to get an idea about study material for the Neuromuscular Boards (US). Books, board review courses and questions banks is everyone using?
Thanks!
I know strange request. I‘ve had ongoing si joint health issues and bizarre, weird, painful symptoms for months. Seeing a chiropractor who has a PHD in orthopedics and neurology (so he isn’t a quack), after months of not getting better I’m getting a referral to a specialist. In the meantime I’d love any answers or advice from someone who is specialized. I can do a phone call and literally I can set up Venmo, I just need some answers or reassurance. Thank you! Feel free to check out my page. Sorry if this isn’t allowed to be posted on here- just let me know. :)
I had my second opinion appt today and it went well. It was with a neuromuscular specialist and she and her resident did a physical neurological exam and said all looks good. They said I can do a repeat EMG to put my mind at ease if I would like to endure another one. They also ordered some blood tests, thyroid panel, and some antibody testing, they said there can be some antibodies that cause BFS and if that’s the case it still doesn’t change the course of treatment it will remain the same it will just confirm their diagnoses of BFS. They said my symptoms and timeline all line up with BFS. And I do not need to worry about ALS. The doctor said it’s not uncommon for people to have BFS and they aren’t sure what exactly causes but they do believe it has a lot to do with stress and anxiety and it’s a cycle. So the stress and anxiety can make it worse especially if you are stressed out about the fasciculation. She said there is no specific medication that they know helps. She said to try to get good quality sleep, eat well, exercise and help relieve psychological stress. Both the neuromuscular specialist and the resident said they get fasciculations and even mentioned their EMG tech gets them as well. Very reassuring appointment, both great doctors!
Hi all! I’m looking for a doctor who is a neuromuscular specialist. Mayo/cleveland/Hopkins are no go’s at this point. So, I’m hoping someone will have rec’s - can be anywhere! Thanks!
today is the day. i’ll let you guys know what she says afterward. i seem to always blank out and forget my questions when i go to the doctor, any advice on how not to?
also what types of questions did you ask when seeing a neurologist?
thanks!
Hi all,
I’ve had Post Concussion Syndrome for over 8 years. I recently think I had a setback.
I hit my head a few times lightly in August and September. Didn’t make much of it.
Started developing electric shock pains, muscle weakness on both sides but primarily the left side, and loss of sensation.
Gotten tons of scans and tests, and I got nothing so far. Has anyone ever experienced worsening weakness after a concussion? The weakness has progressively gotten worse to the point of not being able to lift things or walk properly. I’m 25 and scared.
I am Male 21 years old white, currently experiencing extreme shortness of breath. The symptoms have gotten worse over the last 2 months.
I have done a lung function test which showed that my breathing capacity is down to 60% of expected, I did an CTPA scan which showed no scaring or signs of lung disease meaning the doctor has referred me to a neurologist.
I am currently in a hospital and will need to wait 1 month to see a neurologist, I am currently on steroid inhaler which seems to help me sleep abit although given no other medication.
Is there maybe something I can suggest to the doctor to trial for respiratory restriction due to muscle disease or maybe what disease it could be??
Other symptoms include - purple discolouration of hands, heart palpitations, blurry vision, muscle spasms.
Any information would be greatly appreciated.
So I was wondering If someone can help me. If anything doesn’t make sense, it’s because it’s almost 6am, I haven’t slept and I’m on a bunch of pain and sleeping meds…
Anyhow, short story today, long story tomorrow if anyone cares to listen to it.
I’m 37 m. I started getting random tachycardia and blood pressure disturbances (hypertnesion) In My late 20s. I was out of shape.by the time I was 35, I had gotten into shape and noticed I my blood pressure was consistently low instead of low and high on some days. Dr said it made sense as I was In Shape. But what didn’t make sense was some days, my heart was in the 40s resting and almost 100 resting. Cardio told me “complain enough and you’ll get a pace maker”. 30 yrs old I was getting spells of extreme, unnatural fatigue and the worse head pressure/pai you could imagine. They would happen frequently enough to worry about but they weren’t life altering. Went to hormone dr and they didn’t dint anything after running. A ton of labs. Neuro shooed me out of his office with some u hectic so for migraine (they didn’t help/ I looked up migraine and I did not fit the description. 33 yrs old I suffered debilitating, life changing nausea and Gastroparesis. They took out my gallbladder and suffered for awhile but both those issues seemed to have went into remission on their own. So skip to the year of covid. Before I bought the bug, I had my igg tested cus my dr didn’t like how many lung j sections I was getting every few months. They determined I had no diseases but I did have an ig2 deficiency. They said “we will just watch for now but if you keep getting these lung infections, we may have to act on them”. This is when my eyes began to burn like crazy. Try. Covid hapoened and I got it bad. 6 weeks of infections I. My lungs. 10 days after recovering fully, I fell ill from a lot of things what I know now as dysautonomia. Postural Orthodtatic tolerance. My heart was 120 resting for weeks and when I would shower, it was 160 and I felt out of breath. I was intolerant to exercise and even climbing stairs. I would feel air hunger for 30 minutes after a single flight. Those 20 minute bouts of unnatural fatigue turned into 2 hours bouts. I began to get caught in the side of the highway calling ems because I felt I couldn’t safely operate my car from one second to the next. The attacks lasted much longer this time around. I’d be on the side of the road for 2 hours once I realized the Er couldn’t help. I lost 3 pounds and had
... keep reading on reddit ➡Has anyone had experience with DNS therapy? I’m doing physical therapy for my grade 1 L5-S1 spondy. I recently listened to Joe Rogan’s podcast with Peter Attia and they spoke about DNS. It sounds like something that would be great for us spondy people and am curious if anyone has any experience. I found a couple of chiropractors in Indianapolis that offer this on their websites
Have a test due today at 9pm EST, can provide more information and study guides. Should be pretty easy 50 questions on test. Message me or add discord: cboy#4154
What would you guys want to see as attributes in a new type of stim device combining waveforms that reconnect nerves to the brain and allows you to actively move through ranges of motion rapidly speeds up physical therapy and is great for muscle recruitment in training
The mechanism of action is through kicking down the sympathetic nervous system thus allowing more neurological signal to be pushed in through the device increasing muscle activation 50-300% and massively increasing blood flow to the area/increasing inflammation.
What are the attributes as rehab therapy consumers and patients you would want to see in this product. How much would you be willing to pay to speed up your recovery process 50-65%?
Comment in the section below also relay if you wound be a special candidate due to pacemaker! Thank you for the feedback trying to help as many as possibly with innovation and ideas. Your time is much appreciated.
Hello Reddit. I am Preston, a 22yr old man from VA and have been struggling with some neuromuscular problems for about 14ish months. Some muscles (ONLY LEFT SIDE) seems to have shrank, moved, or been hard to consciously engage at all. I have been passed around to multiple orthopedists, a rheumatologist, functional medicine specialist, PT, chiropractic work, and it has seemed to continue on a downward trajectory. The reason I’m in this thread is that I was diagnosed with Lyme about 3 weeks ago after finally sending out for a real Lyme test (not the inaccurate Doctors office ones), and the doctor said I’ve probably had this for a while. After all of my research on Lyme, it’s obviously largely variable and individual by case somewhat. However, do these sound like symptoms from Lyme? Is there a name for this phenomenon and is it crazy that it’s on one side? Will they get better as I go through Lyme treatment? What specialists should I be seeing to aid this? I apologize for the random post; In fact I do not believe that I have posted on Reddit ever. But I have been developing new things like a pelvic tilt from this, rheumatoid arthritis in my Right hip thats compensating, and other problems I want to find a way to fix. If anyone has similar experiences, referrals, doctors, advice, ANYTHING…. Please let me know. Thanks so much everyone, have a good day.
I really need some training, and I can't find any in Miami, FL.
I'm just curious, as I'm suffering BMD (Beckers Muscular Dystrophy). Here's my rant/background of how things went for me. (27 M, for reference).
I have been diagnosed with BMD in 2020.
It's all started with a high CK back ranging from 2018-2020 (cretin kinase) level whenever I take anti depressants or go to gym (I had to go to the ER for really high CK levels, up to 40,000 and potential kidney damage). Also had another round in the ER for mental health issues (and had a potential heart issues, which turned out to be nothing), but had to stay in hospital for a few days to get my mental health straightened up.
My GP (general practitioner for short) sent me to a private rheumatologist and my psych sent me to some sport science medicine place to try and figure things out, which none of them worked out. Then my GP sent a fax to the public hospital rheumatologist, then a few months later I gotten a call out of the blue from the neuromusclar department saying that should I come in.
Then another few months later I went into the neuromusclar department of a major public hospital (I'm from Sydney, Australia), and ordered heaps of blood tests, heart ultrasound, MRI on the brain and legs and other random test and told me to come back like 6 months later.
But then I got a call like a month later telling me to come in sooner and cancel all other random tests (I have done my blood test, heart ultrasound and MRI by then). When I went in a month later, I was diagnosed with BMD though blood tests, which I was quite shocked. They said they couldn't do anything much apart from seeing them yearly.
In 2021, I went to see the neuromusclar team as part of my yearly thing, and also I said to them that I had been suffering significant soreness in the chest (I should have went to the ER tbh). Then they done the usual tests as well as to measure my blood pressure. My blood pressure was quite high so they gave me some meds to control the blood pressure and chest pains. Also done an heart MRI and ultrasound as well, which I haven't gotten a response back, so I guess I'm in the clear.
Also I have been suffering some serious mental health issues as well on top of all that which needs to be medicated as well. Even before my BMD diagnosis, I had suffered significant anxiety, schizophrenia and all that stuff, which is controlled though medication.
Yes I know there a r/MuscularDystrophy subreddit, but I thought is there anyone here who suffer from something simil
... keep reading on reddit ➡
Does anybody here have any experience/thoughts regarding DNS?
Has anyone had significant success with neuromuscular orthotics?
I have had chronic facial pain + migraines for over 5 years. I also clench and grind at night, which add to the problem. I’ve tried Trudenta, night guards, etc. and nothing has been a long-term solution.
I saw a neuromuscular dentist, and he said I’m a really good candidate for an orthotic. They are so $$, and while I’m willing to do something if it will help, I’m not finding many testimonies online.
Has there been any research done when neuromuscle reeducation exercises are done incorrect, how does it affect the rest of routine?
Male, 24 years old. Live in Canada. 100kg, 200 Cm tall.
I have a scheduled wisdom tooth extraction. A few of them have cavities. Only one of the four teeth hasn't erupted.
I have an unknown neuromuscular disease that weakens my diaphragm, throat and skeletal muscles, and affects my cognition. I also have Ehlers-Danlos Syndrome. As far as I know, a neurological problem would put me more at risk for adverse events from sedation.
I discussed these conditions with the oral surgeon but he still wants to perform the procedure in his office and not at the hospital. Claimed that he could not do it at the hospital because I dont have a diagnosis for the neuromuscular disease, and that as long as I could "walk up some stairs" that it would be ok. He said there wouldn't be general anaesthesia, just medication through my hand to put me in a "dream-like" state. I'm wondering if I can do this procedure with just local anesthesia, if 3 of the 4 teeth are erupted.
I know strange request. 😅 I‘ve had ongoing si joint health issues and bizarre, weird, painful symptoms for months. Seeing a chiropractor who has a PHD in orthopedics and neurology (so he isn’t a quack), after months of not getting better I’m getting a referral to a specialist. In the meantime I’d love any answers or advice from someone who is specialized. I can voice chat. Just need some answers or reassurance. Or any suggestions. (My issues are on my page) Thank you! Let me know if not allowed.
Hi all! I’m looking for a doctor who is a neuromuscular specialist. Mayo/cleveland/Hopkins are no go’s at this point. So, I’m hoping someone will have rec’s - can be anywhere! Thanks!
Hi all! I’m looking for a doctor who is a neuromuscular specialist. Mayo/cleveland/Hopkins are no go’s at this point. So, I’m hoping someone will have rec’s - can be anywhere! Thanks!
Hi all! I’m looking for a doctor who is a neuromuscular specialist. Mayo/cleveland/Hopkins are no go’s at this point. So, I’m hoping someone will have rec’s - can be in the DMV or anywhere else! Thanks!
Hi all! I’m looking for a doctor who is a neuromuscular specialist. Mayo/cleveland/Hopkins are no go’s at this point. So, I’m hoping someone will have rec’s - can be anywhere! Thanks!
