I’m not sure if this is the right place to post but I am 19 weeks and 2 days and had my anatomy scan yesterday where they told me my baby has a space in the cerebellum part of the brain and it could possibly be dandy walker variant/syndrome. My question is if anyone has had this and had the mri done and it was a mistake or everything was fine. We are devastated that this happened and just praying for a miracle while waiting to hear back about getting an mri. Any input would help, thank you.
For those who don't know DW is basically when there is excess fluid around the cerebellum creating excess pressure, which in turn effects motor functions. Growing up he had to go through occupational, physical, and speech therapy, and he also needed leg braces because his legs were so weak. He spoke and crawled really late, and even now he has problems buttoning his shirts and tying his shoes. My dad got him biking as a way to build his legs up and get him out of the braces, but he was never able to go very far without stopping or taking breaks. This time, he went out and biked all the way to a nearby park and back (about 4 miles) with no stopping and i still get teary eyed thinking about how far he's come.
I am trying to find out if there is any medical evidence that DW can be passed on to your children or if it is merely a congenital, seemingly random malformation but can't find any research on it. Does anyone know of any sources?
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Why do you ask? Got something against people with Downs Syndrome? I'll add that to the list of people you don't care about either.
I'd wager money you think calling someone a retard is fine and dandy, too.
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Author: /u/SpacificRim
Hello everyone! I had a level 2 ultrasound yesterday where I was informed that my baby has dandy walker malformation. The doctor told me that his vermis in his brain is only partially developed and will have issues from this. I really didn’t know how to react because I have never heard of this and can’t really find much online about it. She said the spectrum for it is wide and can range from mild problems like balance and intellectual delays all the way to severe problems like seizures and basically unable to do anything. We will not know how severe it is until after he is born up to about a year old. I guess I’m just wondering if any of you have experience with dandy walker or know anyone who does? I’m taking anything I can get at this point because I have no idea what to expect.
Edit: I will also be getting an amniocentesis test done to see if there are any other problems going on. Hopefully that goes well
Remember how stupid it was that all they had to do was stab the Night King and nobody had apparently thought of that in thousands of years?
Okay, what if they instead had to go to the original source: The Children of The Forest (let’s actually do something with that revelation). Bran can figure out that if they finish what the First Men started and wipe out the Children, the rampaging Walkers will be destroyed too. A little less obvious and a bit of a moral quandary for them to murder these mostly innocent folks and end a species to preserve their own kingdoms. Not everyone agrees, maybe this is where Daenerys alienates some others by being a little too cool with genocide. Perhaps they have to also burn down the Weirwoods which pisses off the folks they trying to save.
Anyways, how else could you make the White Walker ending less awful?
I'm curious as to how many people on this subreddit themselves have or know someone who has a diagnosis of either mega cisterna magna or Dandy-Walker variant? What, if anything, did doctors tell you about it?
Woke up with a pep in my step despite only sleeping four hours (stayed up too late doing a puzzle as therapy). Believe it or not, that feels like more rest than I ever got while stoned. Exercised already, plan to jog later, and have so much energy to tackle my work tasks. Sobriety rules. Keep going, everybody!
Our son was diagnosed with Dandy-Walker malformation during his 20-week anatomy ultrasound. He will be turning six this summer and we've continued to be amazed at how so many of the things we'd been told to expect with this malformation have not ended up being worries overall. He hasn't needed any corrective surgeries or shunts, there was no buildup of cerebral fluids, and his development has been almost completely on-par for a child born 3-4 weeks premature.
Over the last five years, I've been attempting to learn as much as I can, both about the malformation itself and about the complex functions of the cerebellum. I've been working my way through Masao Ito's The Cerebellum: Brain for an implicit Self. I'm particularly interested in his conjectural work in the final chapters regarding the potential role of the cerebellum in affecting cognitive functions.
Ito cites some evidence for cerebellar irregularities contributing to aspects of Autism spectrum disorders, dyslexia, and schizophrenia and suggests that some of the characteristics of these disorders have to do with dissonances between explicit mental models generated in the cerebral cortex and implicit or internal models generated by the cerebellum.
I'd be interested to know if there is any further study that might help shed some light on the effects of Dandy-Walker malformation in this kind of cognitive realm. Our son hasn't had any further brain scans since just a few days after he was born, and I'm not sure just how much or how little of his cerebellum actually developed, but I know that the brain re-maps itself to account for some of these deficiencies.
I'm trying to determine just how much of this re-mapping and extreme neuroplasticity in infancy might be contributing to behavioral issues and cognitive delays that our son is experiencing right now in his first year of school. I'm relatively certain that the Dandy-Walker malformation has contributed to his speech delays and fine motor skills involved in writing, but I'm looking for more information as to how it might be affecting his math and computational skills, and even more specifically, some recent behavioral issues that have had us tearing our hair out from time to time.
Not looking for medical advice here - just seeking out conjecture and direction for further places to read for my own edification. We've been working closely with his school and with his pediatrician to see how we can best support him and his learning, but the
... keep reading on reddit ➡Anyone else notice this?
Fairly unsubstantiated post, based on personal experience, and on what I am seeing elsewhere.
As a "not fully vaccinated" person, society is closing in, increasingly. I am barely allowed to participate in goings-on, anymore. My family shuns and shames me. My "friends" have essentially abandoned me. Shit is getting very, very real, now...
Mask mandates are ubiquitous, across 6 or 7 out of the Australian jurisdictions, including the one I am stuck in. Vaccine mandates, too. I'm not allowed to work. I essentially can't "go out". In another state, they want to make mandates apply in supermarkets, too, so you essentially won't be able to buy food...
"Social distancing" is also ubiquitously still in place. Businesses are closing EVERYWHERE, because they can't make money. Governments are constantly threatening "new lockdowns" and curfews, because, duhh, Omicron, means rising case numbers. It's genuinely scary to see where things are going...
Aside from not currently being in lockdown, we are currently the most restricted we have ever been. Ever. Especially if you are "unvaccinated", or, increasingly, unboosted...
Very soon, people like me won't even be able to enter a university campus, or even study online. Can't work, can't study. Logic...
And people ABSOLUTELY lap this up. Media coverage is UNIVERSALLY for more restrictions. Almost everyone I know, and encounter "IRL" is all for it. As is the entirety of local Reddit, aside from, obviously, the "critical" or "skeptical" subs. Worse than that, if you question ANY element of it, you are shamed, ostracised, demonized, treated worse than dirt. Why?
I know this isn't the case everywhere. Not in Red US states. Not in Mexico, per se. Not in Japan. Not in parts of Eastern Europe, or Africa, or elsewhere. But it is, here. It IS, in NZ. It IS in Blue/Purple US states. It IS in the UK, and in France, and in Germany, and in Austria, and in the Netherlands. Some of those places are even more extreme than where I am, despite less compliant populations, and lower vaxx rates...
When, and how does this end?? Next year will almost certainly be worse. In fact, for me personally, I 100% guarantee it will be.
When will people wake up? Will they ever?? What the fuck are we going to do?? How do we actually push back? I'm genuinely beginning to think that this WON'T end, because people simply do not want it to, so... Where do we go from here??
It was pretty bad at first, but by the end I liked it.
It had a bad start, but by the end I really liked it.
